SSDI

[Guest guest]

I got it on my first try know hearing -- I used a good SS attorney that

had a nurse disability coordinator. As many of you know SS has NEW rules

for CFS that have just come into affect. My attorney told me not to even

dream about getting through on my first try but with the new rule it was

no problem and I even got a very generous retroactive payment.

Document work attempts --you try to work then you relapse and then you

try again. And make sure your employer is aware of these attempts. Also

make sure your doctor will write a supportive letter. Better yet write

the letter yourself and have your dr. edit and sign it.

Steve

ps thank to all the advocates that got the new rules into effect. I

think that the research conducted at the new jersey center also

contributed to these new rules.

Philip L Comer wrote:

> From: Philip L Comer <philcome@...>

>

> This is offtopic so I'll be quick. After 5 frustrating and depressing

> years I was awarded SSDI this week by the ALJ. It was my second

> hearing on my first application. I post this here to encourage those

> of you wandering in the SSDI maze to not give up! The system will wear

> you down and discourage you but you can't yield to those feelings. If

> anyone has specific questions you can backchannel me and I'll respond.

>

> Phil

> -----------------------------------------------------------------------

> [

[Guest guest]

In a message dated 2/3/00 6:22:16 PM Eastern Standard Time,

sheri.clark@... writes:

<< On this last review, I received shorter temporary SSD because I had

worked full time for 4 months, stopped my SSD and gone onto my

employer's insurance program. >>

Sheri,

This is not that usual to have happened, unfortunately. A good,

comprehensive testing and report can document your cognitive skills, but the

examiner has to be fully aware and understand CFS. We have one excellent

occupational therapist who does these examinations for SSDI and we've even

had a patient fly in from Texas to have this done. If you want his name and

number, backchannel me. It's the most effective tool for assessing

functional capacity.

Gail

[Guest guest]

During my 8 years on SSD, following a 2 years battle to get it to begin

with, I have been reviewed twice. The attempts to work and documented

relapses helped me get reapproved the first time.

However, I have now expended all my trial work times. If I return to

work once more, I will lose SSD and have to begin at square one again

with the full application process. This includes producing records

dating over 12 years from dozens of doctors. A huge job at my stage in

the game with my cognitive abilities being poor in third stage CFIDS.

On this last review, I received shorter temporary SSD because I had

worked full time for 4 months, stopped my SSD and gone onto my

employer's insurance program.

However, I had a severe relapse and reactivation of HHV-6 and who knows

what other viruses (CMV, EBV Herpes 1), because I was working, and I had

to quit and go back on SSD. That has caused them to doubt that I am

permanently disabled in spite of doctor and personal documentation

explaining that the work level relapsed me severely further causing

progressive neural damage to my CNS and ANS.

I even got a very specific letter from my last employer describing how

my cognitive problems and stress sensitivity prevented me from

performing even simple office level skills. I could advise the CEO

brilliantly, my clinical skills were good, but could not do simple

detail work.

I'm sort of being " punished " for trying too hard to become employable

and getting off of SSD and Medicare. Now I can't try to work at all

since my trial hours are elapsed.

We need to be very careful in managing the " attempt to work, fail at

work " cycle. I was " too sincere " about getting back to work, was misled

by my SSD case manager about the hours I had accrued and the # of months

I had made more than $500.00 (now a $700.00 cap). Even though I called

numerous times as soon as I became employed, they're now telling me I

owe $5000.00 which is due to their error, not my effort and honesty.

Sheri

[Guest guest]

Hi Caroline,

Congrats on winning the first time around! My memory is as bad or

I am quite sure even worse than yours...because..it " seems " like you might

have told us, but I really can't say for certain. Winning the first time

needs

to be told about more often anyway!

I was reading (somewhere..can' remember where I read it..lol!) that if a

person is having trouble with insurance help in purchasing meds to ask

your pharmacist about any programs that there are where the drug companies

actually pay for or help pay for some meds. I was trying to explain this to

Marty yesterday, as it seems he is up the same creek you are. It wouldn't

hurt to just ask at the pharmacy..they'd know what you meant.

Hope you find some help for the cost of those meds.

Your friend, tricia

wega2@...

" We Will Win "

-- SSDI

Hi everyone,

I had trouble with my mail earlier this week, and we all know about my short

term memory problems, so I know you will understand if I tell you I don't

remember if I told you this or not. =) I got a phone call on Monday telling

me I had been approved for SSDI / SSI... on the first try no less. That's

the good news. Bad news is that my husband makes too much money for me to

get the SSI and medical assistance, so I am still without Insurance.

I am playing every card I can to find a way to get coverage. I just found

out that my previous employer offered an insurance option to all who were

losing coverage on December 01, 2001 due to the bankruptcy. This coverage

would have been in effect until March 2002 when the new corporations

insurance took over. I was not offered that option. Also working on the

spend down " program details, and there is a bank that offers prescription

rate reductions to their members I am checking out. Of course, there is also

the option in play of my husband changing employers to one who provides

insurance. He works with Temporary Services at Kodak film company

right now. We have made it this far, we will continue to do so.

Hope all is well with all of you. If I already told you all of this, sorry.

If not, sorry I forgot. Smiles, Caroline

---------------------------------

[Guest guest]

Caroline, sorry to hear that you were unable to claim your SSI because your

husband makes to much money. I often ask myself, well then why is it that I

can't afford anything with his salary. In some cases, we are talking about one

person's salary that is suppose to take care of a family and feed, cloth, pay

the mortgage, etc. and then still have money for all of these medications....not

at the rate some of these medications cost.

It really too bad Caroline, I know how frustrating that can be. I hope you will

find the answers and help you are looking for.

Marilyn

mhogg69@...

SSDI

Hi everyone,

I had trouble with my mail earlier this week, and we all know about my short

term memory problems, so I know you will understand if I tell you I don't

remember if I told you this or not. =) I got a phone call on Monday telling me I

had been approved for SSDI / SSI... on the first try no less. That's the good

news. Bad news is that my husband makes too much money for me to get the SSI and

medical assistance, so I am still without Insurance.

I am playing every card I can to find a way to get coverage. I just found out

that my previous employer offered an insurance option to all who were losing

coverage on December 01, 2001 due to the bankruptcy. This coverage would have

been in effect until March 2002 when the new corporations insurance took over. I

was not offered that option. Also working on the " spend down " program details,

and there is a bank that offers prescription rate reductions to their members I

am checking out. Of course, there is also the option in play of my husband

changing employers to one who provides insurance. He works with Temporary

Services at Kodak film company right now. We have made it this far, we will

continue to do so.

Hope all is well with all of you. If I already told you all of this, sorry. If

not, sorry I forgot. Smiles, Caroline

[Guest guest]

I used to work for the Sate of Utah and, through another program, became

somewhat familiar with their medicaid policies. At that time, four

years ago, a family or person was able to do what is called a " spend

down. " If you had medical expenses you could not pay for the month, you

could pay the difference, between your income and the state maxim income

allowance, to the state and receive medicaid for that month. It was

possible to do this up to 90 days after a major medical expense. It

would be worth it to check with your social service providers and ask

about a spend down option. Hope this helps someone.

wrote:

>

> The joke of it all is that we are only allowed a total family income of

$535.00 to qualify for SSI and the medical. That is gross family income for a

family of 4. My house payment is $900.00 a month so tell me how I could possibly

live on $535.00 a month. I pay $800-1500 a month in medical... but that does not

count off the gross. Go figure. It's all a game anyway. I get all my meds from

my doctors except for the cheap ones. I don't see all the doctors I should, but

I see my Rheumy every month and one of my PCP's every week. If I get into

trouble, I see one of the other specialists. I have labs done monthly too. If I

had insurance, I would do more medically, but for the moment... all is covered

sufficiently.

> Caroline

> mhogg69@... wrote: Caroline, sorry to hear that you were unable to

claim your SSI because your husband makes to much money. I often ask myself,

well then why is it that I can't afford anything with his salary. In some

cases, we are talking about one person's salary that is suppose to take care of

a family and feed, cloth, pay the mortgage, etc. and then still have money for

all of these medications....not at the rate some of these medications cost.

>

> It really too bad Caroline, I know how frustrating that can be. I hope you

will find the answers and help you are looking for.

>

> Marilyn

> mhogg69@...

> SSDI

>

> Hi everyone,

>

> I had trouble with my mail earlier this week, and we all know about my short

term memory problems, so I know you will understand if I tell you I don't

remember if I told you this or not. =) I got a phone call on Monday telling me I

had been approved for SSDI / SSI... on the first try no less. That's the good

news. Bad news is that my husband makes too much money for me to get the SSI and

medical assistance, so I am still without Insurance.

>

> I am playing every card I can to find a way to get coverage. I just found

out that my previous employer offered an insurance option to all who were losing

coverage on December 01, 2001 due to the bankruptcy. This coverage would have

been in effect until March 2002 when the new corporations insurance took over. I

was not offered that option. Also working on the " spend down " program details,

and there is a bank that offers prescription rate reductions to their members I

am checking out. Of course, there is also the option in play of my husband

changing employers to one who provides insurance. He works with Temporary

Services at Kodak film company right now. We have made it this far, we will

continue to do so.

>

> Hope all is well with all of you. If I already told you all of this, sorry.

If not, sorry I forgot. Smiles, Caroline

>

>

[Guest guest]

The joke of it all is that we are only allowed a total family income of $535.00

to qualify for SSI and the medical. That is gross family income for a family of

4. My house payment is $900.00 a month so tell me how I could possibly live on

$535.00 a month. I pay $800-1500 a month in medical... but that does not count

off the gross. Go figure. It's all a game anyway. I get all my meds from my

doctors except for the cheap ones. I don't see all the doctors I should, but I

see my Rheumy every month and one of my PCP's every week. If I get into trouble,

I see one of the other specialists. I have labs done monthly too. If I had

insurance, I would do more medically, but for the moment... all is covered

sufficiently.

Caroline

mhogg69@... wrote: Caroline, sorry to hear that you were unable to

claim your SSI because your husband makes to much money. I often ask myself,

well then why is it that I can't afford anything with his salary. In some

cases, we are talking about one person's salary that is suppose to take care of

a family and feed, cloth, pay the mortgage, etc. and then still have money for

all of these medications....not at the rate some of these medications cost.

It really too bad Caroline, I know how frustrating that can be. I hope you will

find the answers and help you are looking for.

Marilyn

mhogg69@...

SSDI

Hi everyone,

I had trouble with my mail earlier this week, and we all know about my short

term memory problems, so I know you will understand if I tell you I don't

remember if I told you this or not. =) I got a phone call on Monday telling me I

had been approved for SSDI / SSI... on the first try no less. That's the good

news. Bad news is that my husband makes too much money for me to get the SSI and

medical assistance, so I am still without Insurance.

I am playing every card I can to find a way to get coverage. I just found out

that my previous employer offered an insurance option to all who were losing

coverage on December 01, 2001 due to the bankruptcy. This coverage would have

been in effect until March 2002 when the new corporations insurance took over. I

was not offered that option. Also working on the " spend down " program details,

and there is a bank that offers prescription rate reductions to their members I

am checking out. Of course, there is also the option in play of my husband

changing employers to one who provides insurance. He works with Temporary

Services at Kodak film company right now. We have made it this far, we will

continue to do so.

Hope all is well with all of you. If I already told you all of this, sorry. If

not, sorry I forgot. Smiles, Caroline

[Guest guest]

,

If you retained anything from his birth that shows the Trisomy 21, make a copy

and submit it to the SSA, that should prove it right there without all the forms

having to be filled out from others.

Judi - Proud mother to Jordan 7, ds and Savannah 4 Months, nda

Ambition is a poor excuse for not having enough

sense to be lazy.

[Guest guest]

Unless something has changed, if you don't show up for

your hearing, the case is automatically dismissed.

Surely your neurologist could work around your court

date.

I understand how difficult it can be staying at home

alone when you have been working outside your home,

seeing people, being active. It took me 4 years to get

through Social Security. Most of my 'friends'

disappeared by then. Some members of my church

questioned my faith since I didn't get well after so

long. You're in a difficult place, that's for sure.

I don't know where you live so I don't know what is

available to you. I used to take my son to the big

public library downtown. I never told him beforehand

so he wouldn't be disappointed if I didn't feel up to

it. We became involved in a very family oriented

church that had many activities for the family. One of

my son and my trips was to the humane society to get

him a dog. You will find the things that work for you

and your family.

Good Luck on getting through Social Security soon.

; )

Willow

--- MRGranadaHome <robert_g54463@...>

wrote:

> Well, my meeting with my ssdi lawyer went about 25

> minutes and he said he would update his file with

> all needed paperwork and he didn't even blink or

> talk too much about me having worked in the last 3

> years for only 3-4 months, tried to anyways. My dh

> is getting restless too due to I know he wants me to

> work, or get me out of the house, per say cause all

> staying in the house does is make me depressed, more

> depressed than normal. I have been trying to

> convince him to get the family a Y membership but we

> do have a lot of bills, etc. I just thought it would

> be something nice for the family to do for once,

> even if I can't always enjoy it.

> The lawyer said that he knows the judge, a woman,

> and she isn't a real stickler for things so. At

> first he said he knew the judge that was going to do

> the case and that this certain judge always approves

> cases.

>

> But my lawyer said he was surprised the last judge

> didn't even look at my records.

>

> I was surprised by the 300+ pages of legal documents

> he had though. He was happy that I wrote out all the

> people/doctors that I have seen. Poor guy seemed so

> disorganized and I got some tough love from his

> assistant and she had a head cold. I wasn't going to

> go due to I felt crappy, nauseated but after I

> talked to her I resigned to, I had to go, he only

> comes to my town every other month and my case is

> March 12th and I did tell him that I was afraid I

> couldn't go due to brain biopsy so i have to keep

> him updated

> anyways,

> here is hoping all are looking for a pain free

> weekend

> G

[Guest guest]

You can complete the application online:http://www.socialsecurity.gov/d & s1.htmI would advise you to contact the AIDS Legal Referral Panel in San Francisco before submitting your application. They were very helpful to me when I filed for SSDI back in 1995. This is a very important form, so take your time and make sure it gives a good description of physical and mental limitations that you are dealing with.AllanOn Dec 9, 2008, at 3:33 PM, marblejewelryman wrote:I made a claim for SSDI about 3 weeks ago at my local Social Security Adm Office in San Francisco. I have not yet received an application. Does anyone know generally how long it takes just to get the application papers?thanksBos

[Guest guest]

A very good point SSA "lost" my paperwork 2 different times. I even HAND DELIVERED THEM. You have some people that will not do their jobs and lose your paperwork probably to a shredder. When you hand deliver them make sure you have a worker sign for them. This will allow a paper trail to start. Do not believe anything they say. They say things just to get you out the door until you find out 6 weeks later that they are not moving on it and have no idea where your paperwork is. So get everything initialed by the desk help. Do not just Drop it off because you are in a hurry to get elsewhere.

FRANK

I had to get a lawyer to finally get approved and it was a 3 year battle.

In a message dated 10/4/2010 6:33:10 P.M. US Mountain Standard Time, lilyrose_bell@... writes:

Hey guys, just a note. When I send stuff out to the gov. or someone important I always make copies of everything I signed and sent back in. Very important. Government is never organized. It really helps if you are so if any questions come back to you....you have all your stuff to look back on...

lily:)

[Guest guest]

My son got his SSDI check yesterday. After writing out his fair share expenses,

(which we figured before our taxes & gas went up) he'll still have to much

money. He'll be needing money next month when we take him on our vacation, but

what about until then?

Can't really put more into savings...enough there already.

How long does he have to spend it? Does (the overage)all have to be spent this

month? What if he doesn't need anything? When we go out to eat, is he allowed

to " treat: once in a while? (I've been having him buy his own; we used to treat

him, but that got to be a problem with SSI.

Thanks,

Liz

[Guest guest]

Remember that there is the 2nd " type " of special needs trust for " his " assets,

commonly referred to as a d4A or d4C (pooled), or OBRA, or 1st Party Trust. IF

you are Guardian for him, then (1) you need court permission to move his savings

to that Trust; (2) notice goes to the Illinois Attorney General's Office; (3)

The state can challenge/question expenditures as not being for his SOLE benefit;

(4) depending on your County, the Judge/Court can retain jurisdiction and would

also have to approve expenditures; (5) when your son passes, the State (but not

SSA) gets reimbursed, if anything is left in THIS Trust for what they paid

during son's life, but CANNOT touch the 3rd party special needs trust (the

inheritance/gift special needs trust); and this 1st party trust cannot allow for

gifts and contributions as a 3rd party special needs trust could permit. If he

is his own Guardian, then no court is involved but he must move the assets to

the Trust or you could under a power of attorney he signed if the power of

attorney specifically provides you that power.

______________

Rubin*

[cid:image003.jpg@...]

___________________________________

The Law Offices of

Rubin & Associates

Law practice limited to serving the future & legal planning

needs of Illinois families of children & adults with intellectual

disabilities, developmental disabilities, & /or mental illness...

(E) brian@...<mailto:brian@...>

(W) www.SNFP.net<http://www.snfp.net/>

(O) 847-279-7999

(F) 847-279-0090

(TF) 866.TO.RUBIN

Mail: 1110 West Lake Cook Road, Buffalo Grove, Illinois 60089-1997

* Member by invitation of SNA, the Special Needs Alliance.

(SNA is the national non-profit association of experienced " Special

Needs Planning " Attorneys. Rubin is a member of SNA's

Board of Directors.) Click for more

information.<http://www.specialneedsalliance.org/>

* Member of the Special Needs Law Steering Committee of

NAELA,<http://www.naela.org/>

the National Academy of Elder Law Attorneys. <http://www.naela.org/> Click for

more information<http://www.naela.org/>

* Rubin has been awarded the dale Hubbell Peer

Review<http://martindale.com/>

Rating of AV Preeminent, the highest rating given<http://martindale.com/>. Click

for more

information<http://martindale.com/-N-Rubin/903577-lawyer.htm?view=cr>

*For more information about Rubin, please visit

www.SNFP.net<http://www.snfp.net/>.

Notices:

1. This message does not create an attorney-client relationship, and is not

legal advice absent such a relationship with the recipient. This message may

contain confidential information protected by the attorney-client and/or work

product privilege. The information is only for the use of the intended

recipient. If you are not such recipient, disclosure, copying, distribution or

reliance upon this e-mail is strictly prohibited. If you have received this

transmission in error, please notify The Law Offices of Rubin & Associates

by e-mail and destroy the original message and all copies.

2. IRS CIRCULAR 230 NOTICE: TO THE EXTENT THAT THIS MESSAGE OR ANY ATTACHMENT

CONCERNS TAX MATTERS, IT IS NOT INTENDED TO BE USED AND CANNOT BE USED BY A

TAXPAYER FOR THE PURPOSE OF AVOIDING PENALTIES THAT MAY BE IMPOSED BY LAW.

3. Disclaimer Regarding Electronic Signature. If this communication concerns

negotiation of a contract or agreement, electronic signature rules do not apply

to this communication: contract formation in this matter shall occur only with

manually-affixed original signatures on original documents. The Signature given

hereon is not an electronic signature and is provided only for the purposes of

providing information as to the identity of the sender and for no other

purpose(s) whatsoever.

From: IPADDUnite [mailto:IPADDUnite ] On Behalf

Of Liz

Sent: Friday, March 04, 2011 9:06 AM

IPADDUnite

Subject: Re: SSDI

Yes, it is SSDI that he's on. He got switched in Jan. when my hubby started

collecting his SS. He's not working any longer...Lost his funding when we had to

take him out of the ICF he was in.

Okay, so for in order for him to keep his Medicaid, then he still has to be

under $2,000, correct?

Which still leaves the questions of how long he has to spend it before it gets

taken away. I don't want to spend it on stuff he doesn't need or won't use, just

because he has it. I believe he can use it for the vacation, but that won't be

until next month.

We found out that he was way to low on what he had been paying us for his fair

share expenses, so we just increased that. Now our taxes just went up & gas went

up. So my hubby thinks we should do another increase.

Liz

[Guest guest]

, my son is on SSDI and SSI (DAC) and HBWD, can he still have the $25, 000

in assets not the $2,000? Shirley…

He cannot have more than $2,000 if he is going to keep the SSI. Not a problem

for the SSDI.

______________

Rubin*

[cid:image003.jpg@...]

___________________________________

The Law Offices of

Rubin & Associates

Law practice limited to serving the future & legal planning

needs of Illinois families of children & adults with intellectual

disabilities, developmental disabilities, & /or mental illness...

(E) brian@...<mailto:brian@...>

(W) www.SNFP.net<http://www.snfp.net/>

(O) 847-279-7999

(F) 847-279-0090

(TF) 866.TO.RUBIN

Mail: 1110 West Lake Cook Road, Buffalo Grove, Illinois 60089-1997

* Member by invitation of SNA, the Special Needs Alliance.

(SNA is the national non-profit association of experienced " Special

Needs Planning " Attorneys. Rubin is a member of SNA’s

Board of Directors.) Click for more

information.<http://www.specialneedsalliance.org/>

* Member of the Special Needs Law Steering Committee of

NAELA,<http://www.naela.org/>

the National Academy of Elder Law Attorneys. <http://www.naela.org/> Click for

more information<http://www.naela.org/>

* Rubin has been awarded the dale Hubbell Peer

Review<http://martindale.com/>

Rating of AV Preeminent, the highest rating given<http://martindale.com/>. Click

for more

information<http://martindale.com/-N-Rubin/903577-lawyer.htm?view=cr>

*For more information about Rubin, please visit

www.SNFP.net<http://www.snfp.net/>.

Notices:

1. This message does not create an attorney-client relationship, and is not

legal advice absent such a relationship with the recipient. This message may

contain confidential information protected by the attorney-client and/or work

product privilege. The information is only for the use of the intended

recipient. If you are not such recipient, disclosure, copying, distribution or

reliance upon this e-mail is strictly prohibited. If you have received this

transmission in error, please notify The Law Offices of Rubin & Associates

by e-mail and destroy the original message and all copies.

2. IRS CIRCULAR 230 NOTICE: TO THE EXTENT THAT THIS MESSAGE OR ANY ATTACHMENT

CONCERNS TAX MATTERS, IT IS NOT INTENDED TO BE USED AND CANNOT BE USED BY A

TAXPAYER FOR THE PURPOSE OF AVOIDING PENALTIES THAT MAY BE IMPOSED BY LAW.

3. Disclaimer Regarding Electronic Signature. If this communication concerns

negotiation of a contract or agreement, electronic signature rules do not apply

to this communication: contract formation in this matter shall occur only with

manually-affixed original signatures on original documents. The Signature given

hereon is not an electronic signature and is provided only for the purposes of

providing information as to the identity of the sender and for no other

purpose(s) whatsoever.

From: IPADDUnite [mailto:IPADDUnite ] On Behalf

Of Shirley Linden

Sent: Friday, March 04, 2011 9:46 AM

IPADDUnite

Subject: RE: SSDI

, my son is on SSDI and SSI (DAC) and HBWD, can he still have the $25, 000

in assets not the $2,000? Shirley

From: Liz

<dljar58@...<mailto:dljar58%40charter.net><mailto:dljar58%40charter.net>\

>

Subject: SSDI

To:

IPADDUnite <mailto:IPADDUnite%40><mailto:IPADDUnit\

e%40>

Date: Friday, March 4, 2011, 1:40 PM

My son got his SSDI check yesterday. After writing out his fair share expenses,

(which we figured before our taxes & gas went up) he'll still have to much

money. He'll be needing money next month when we take him on our vacation, but

what about until then?

Can't really put more into savings...enough there already.

How long does he have to spend it? Does (the overage)all have to be spent this

month? What if he doesn't need anything? When we go out to eat, is he allowed to

" treat: once in a while? (I've been having him buy his own; we used to treat

him, but that got to be a problem with SSI.

Thanks,

Liz

[Guest guest]

________________________________

From: " bethdamen@... " <bethdamen@...>

IPADDUnite

Sent: Fri, March 4, 2011 10:08:47 AM

Subject: Re: SSDI

 

my son gets ssi and works ...can i start a retirement fund for him

SSDI

IPADDUnite <mailto:IPADDUnite%40>

Date: Friday, March 4, 2011, 1:40 PM

My son got his SSDI check yesterday. After writing out his fair share expenses,

(which we figured before our taxes & gas went up) he'll still have to much

money. He'll be needing money next month when we take him on our vacation, but

what about until then?

Can't really put more into savings...enough there already.

How long does he have to spend it? Does (the overage)all have to be spent this

month? What if he doesn't need anything? When we go out to eat, is he allowed to

" treat: once in a while? (I've been having him buy his own; we used to treat

him, but that got to be a problem with SSI.

Thanks,

Liz