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FYI...

I always think it is good if we can support research in this area...

Ellen

Ellen Garber Bronfeld

egskb@...

sibling relationships project

Dear Ellen,

My name is Burbidge and I am a PhD student at Queen’s University in

Kingston, Ontario, Canada. My dissertation research is focused on sibling

relationships in adults who have a brother or sister with a developmental or

intellectual disability. I am looking for adults, aged 25 to 69, who have a

brother or sister with a disability and who might be interested in participating

in my research. The study is done completely online, so I am hoping to recruit

participants from all over North America.

I am writing to ask whether IPADD might be able to help me with contacting

siblings to let them know about my study. This could be done in a variety of

ways, such as an email sent through a listserv, a notice in a newsletter, an

notice through facebook or , or by you providing my contact information

directly to some siblings who you know. I am flexible and willing to do whatever

works best for your organization.

Please let me know if this is something that your organization would consider

participating in. Once the study is complete, I will send a summary of my

findings to all participants and all organizations that assisted with

recruitment. I have attached a recruitment flier to provide you with a bit more

information about my study.

Thank you for your time and I look forward to hearing from you. Your help is

greatly appreciated.

Sincerely,

Burbidge

--

Burbidge, MSc

PhD Candidate

Clinical Psychology Program

Department of Psychology

Queen's University

5jgb@...

You are invited to participate in a study about the effects of sibling

relationships on well-being in adult siblings of individuals with developmental

disabilities

What do we want to learn? We are interested in the effect that sibling

relationships, family characteristics, and supports have on the well-being of

adults who have a sibling with a developmental disability.

How long will it take?

a.. Approximately 45 - 60 minutes

b.. The study can be completed online or paper questionnaires are available if

preferred

Who is eligible to participate in this study? You are eligible if you:

a.. Are aged 25 to 69 years old,

b.. Do not have a developmental disability,

c.. Have at least one living sibling with a developmental disability (e.g.,

intellectual disability, Down syndrome, Fragile X syndrome, autism spectrum

disorder, Aspergers syndrome, cerebral palsy, fetal alcohol syndrome/spectrum

disorder, etc.)

What will you be asked to do? Answer questions about your:

a.. Relationships and use of supports

b.. Well-being

c.. Sibling with a developmental disability (e.g., diagnosis and level of

ability)

How can you participate?

a.. Go to the survey website at: https://www.surveymonkey.com/s/YNHWLRT

b.. Email julie.burbidge@...

c.. Or phone at 613-986-0559 (Ottawa) or 1-877-833-3059 (Toll Free)

Thank you for your interest.

Sincerely,

Burbidge, M.Sc.

Doctoral Candidate

Department of Psychology

Queen’s University

Kingston, Ontario, Canada

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