Re: Fw: sibling relationships project

[Guest guest]

I just took the survey. It was lengthy, but interesting.

Kulczyk

On Fri, Mar 4, 2011 at 9:57 AM, ELLEN BRONFELD <egskb@...> wrote:

> FYI...

> I always think it is good if we can support research in this area...

> Ellen

> Ellen Garber Bronfeld

> egskb@...

> sibling relationships project

>

>

> Dear Ellen,

>

> My name is Burbidge and I am a PhD student at Queen’s University in

> Kingston, Ontario, Canada. My dissertation research is focused on sibling

> relationships in adults who have a brother or sister with a developmental or

> intellectual disability. I am looking for adults, aged 25 to 69, who have a

> brother or sister with a disability and who might be interested in

> participating in my research. The study is done completely online, so I am

> hoping to recruit participants from all over North America.

>

> I am writing to ask whether IPADD might be able to help me with contacting

> siblings to let them know about my study. This could be done in a variety of

> ways, such as an email sent through a listserv, a notice in a newsletter, an

> notice through facebook or , or by you providing my contact information

> directly to some siblings who you know. I am flexible and willing to do

> whatever works best for your organization.

>

> Please let me know if this is something that your organization would

> consider participating in. Once the study is complete, I will send a summary

> of my findings to all participants and all organizations that assisted with

> recruitment. I have attached a recruitment flier to provide you with a bit

> more information about my study.

>

>

> Thank you for your time and I look forward to hearing from you. Your help

> is greatly appreciated.

>

>

> Sincerely,

>

> Burbidge

> --

> Burbidge, MSc

> PhD Candidate

> Clinical Psychology Program

> Department of Psychology

> Queen's University

> 5jgb@...

>

>

> You are invited to participate in a study about the effects of sibling

> relationships on well-being in adult siblings of individuals with

> developmental disabilities

>

>

>

>

> What do we want to learn? We are interested in the effect that sibling

> relationships, family characteristics, and supports have on the well-being

> of adults who have a sibling with a developmental disability.

>

>

>

>

> How long will it take?

>

> a.. Approximately 45 - 60 minutes

>

> b.. The study can be completed online or paper questionnaires are

> available if preferred

>

>

>

>

> Who is eligible to participate in this study? You are eligible if you:

>

> a.. Are aged 25 to 69 years old,

>

> b.. Do not have a developmental disability,

>

> c.. Have at least one living sibling with a developmental disability

> (e.g., intellectual disability, Down syndrome, Fragile X syndrome, autism

> spectrum disorder, Aspergers syndrome, cerebral palsy, fetal alcohol

> syndrome/spectrum disorder, etc.)

>

>

>

>

> What will you be asked to do? Answer questions about your:

>

> a.. Relationships and use of supports

>

> b.. Well-being

>

> c.. Sibling with a developmental disability (e.g., diagnosis and level of

> ability)

>

>

>

>

> How can you participate?

>

> a.. Go to the survey website at: https://www.surveymonkey.com/s/YNHWLRT

>

> b.. Email julie.burbidge@...

>

> c.. Or phone at 613-986-0559 (Ottawa) or 1-877-833-3059 (Toll Free)

>

>

>

>

> Thank you for your interest.

>

>

>

>

> Sincerely,

>

>

>

>

> Burbidge, M.Sc.

>

> Doctoral Candidate

>

> Department of Psychology

>

> Queen’s University

>

> Kingston, Ontario, Canada

>

>

>