Re: Fw: We Need Your Autism Experience

[Guest guest]

Thanks Ellen,

I think I might be of help to this panel, but there is not an application

attached. Can you attach or should I contact .

Happy New Year,

Dr. Dujmovich

(815) 568-8364

Fw: We Need Your Autism Experience

To those to whom this applies:

Ellen

Ellen Garber Bronfeld

egskb@...

We Need Your Autism Experience

Having trouble viewing this email? Click here

Illinois Autism Task Force

Illinois Autism Clearinghouse

Putting the Pieces Together

Dear parents and guardians,

The Information Clearinghouse Committee of the Illinois Autism Task Force is

looking for a few good people to be part of a focus group on autism.

Specifically, we want experienced parents of children or adults with autism. The

live, in-person focus group session is being held in collaboration with the

Autism Society of Illinois. The focus group session will take place at

Lisle Public Library,

777 Front Street, Lisle, IL 60532

Saturday, January 29

1:00 pm to 3:00 p.m.

Meeting Rooms A and B.

Participation is voluntary and names will be kept strictly confidential. We

value your privacy, your time and your expertise.

Parents chosen to participate in the focus group will meet these criteria:

1.. Have experienced the diagnosis process with their child

2.. Have navigated a transition from at least one educational level, such as

from elementary to middle school

3.. Have some knowledge of the service delivery system for people with Autism

Spectrum Disorders (ASD) in Illinois

4.. Be familiar with the process of getting services to meet the needs of their

child at various stages of development

5.. Be willing to share what worked and what didn't

The results from the focus group will be shared statewide, anonymously of

course. We will publish a report that synthesizes the major themes explored in

the focus group.We will use results to shape the " Finding Help in Illinois "

section of our website, which is in development. We aim to help Illinois improve

current services to families of people with Autism Spectrum Disorder ((ASD). We

intend to use your wisdom to grow responsive, comprehensive future services in

Illinois for your family and others.

If you are interested in being part of this special panel of parental experts on

ASD services, please complete the short application questionnaire accompanying

this letter, and return it by January 21, 2011 at the latest. The Information

Clearinghouse Committee will review the applications and select up to 30

possible participants, then ask members of the Autism Task Force to help choose

the invitees. We will strive for a diverse, representative group.

If you fit the criteria above, we really need your help! Even if you're not part

of this first focus group, we look forward to hearing from you and working with

you now and in the future.

Sincerely,

Ruth Ann Sikora, Co-Chair, Information Clearinghouse Committee

Hammond, Co-Chair, Information Clearinghouse Committee

Please download the Application for the Focus Group Here

Forward email

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Autism Society of Illinois | 2200 S Main Street | Suite 205 | Lombard | IL |

60148

[Guest guest]

,

I will contact you by email and forward what I received this morning. It should

come through the email. If not, I can download and send it on.

Marie, co-moderator

>

>

> Thanks Ellen,

>

> I think I might be of help to this panel, but there is not an application

attached. Can you attach or should I contact .

>

> Happy New Year,

>

>

> Dr. Dujmovich

> (815) 568-8364

>

>

>

>

>

>

> Fw: We Need Your Autism Experience

>

>

>

>

> To those to whom this applies:

> Ellen

> Ellen Garber Bronfeld

> egskb@...

> We Need Your Autism Experience

>

> Having trouble viewing this email? Click here

>

>

> Illinois Autism Task Force

> Illinois Autism Clearinghouse

> Putting the Pieces Together

>

>

> Dear parents and guardians,

>

> The Information Clearinghouse Committee of the Illinois Autism Task Force is

looking for a few good people to be part of a focus group on autism.

Specifically, we want experienced parents of children or adults with autism. The

live, in-person focus group session is being held in collaboration with the

Autism Society of Illinois. The focus group session will take place at

>

> Lisle Public Library,

>

> 777 Front Street, Lisle, IL 60532

>

> Saturday, January 29

>

> 1:00 pm to 3:00 p.m.

>

> Meeting Rooms A and B.

>

> Participation is voluntary and names will be kept strictly confidential. We

value your privacy, your time and your expertise.

>

> Parents chosen to participate in the focus group will meet these criteria:

>

> 1.. Have experienced the diagnosis process with their child

> 2.. Have navigated a transition from at least one educational level, such as

from elementary to middle school

> 3.. Have some knowledge of the service delivery system for people with Autism

Spectrum Disorders (ASD) in Illinois

> 4.. Be familiar with the process of getting services to meet the needs of

their child at various stages of development

> 5.. Be willing to share what worked and what didn't

>

>

> The results from the focus group will be shared statewide, anonymously of

course. We will publish a report that synthesizes the major themes explored in

the focus group.We will use results to shape the " Finding Help in Illinois "

section of our website, which is in development. We aim to help Illinois improve

current services to families of people with Autism Spectrum Disorder ((ASD). We

intend to use your wisdom to grow responsive, comprehensive future services in

Illinois for your family and others.

>

> If you are interested in being part of this special panel of parental experts

on ASD services, please complete the short application questionnaire

accompanying this letter, and return it by January 21, 2011 at the latest. The

Information Clearinghouse Committee will review the applications and select up

to 30 possible participants, then ask members of the Autism Task Force to help

choose the invitees. We will strive for a diverse, representative group.

>

> If you fit the criteria above, we really need your help! Even if you're not

part of this first focus group, we look forward to hearing from you and working

with you now and in the future.

>

> Sincerely,

>

> Ruth Ann Sikora, Co-Chair, Information Clearinghouse Committee

>

> Hammond, Co-Chair, Information Clearinghouse Committee

>

> Please download the Application for the Focus Group Here

>

>

>

>

>

>

>

> Forward email

>

> This email was sent to brian@... by info@... |

>

> Update Profile/Email Address | Instant removal with SafeUnsubscribeT | Privacy

Policy.

>

>

> Autism Society of Illinois | 2200 S Main Street | Suite 205 | Lombard | IL |

60148

>

>

>

[Guest guest]

This is a worthwhile effort, no doubt, but the preselection of the participants

misses an important problem that has often been discussed here. Criteria #3 and

#4 exclude those who were never linked to available services by school

districts, physicians, or other potentioal referral points. Of course, there's

not much point in inviting those with no experience, but the group as planned

should at least consider how to reach the less informed, less socially

connected, or just overwhelmed parents at each level at which additional

services are needed.

>

>...

> We Need Your Autism Experience

>

>

> Illinois Autism Task Force

> Illinois Autism Clearinghouse

> Putting the Pieces Together

>

>

> Dear parents and guardians,

>

>

>

> The Information Clearinghouse Committee of the

Illinois Autism Task Force is looking for a few good people to be part of a

focus group on autism. Specifically, we want experienced parents of children or

adults with autism. The live, in-person focus group session is being held in

collaboration with the Autism Society of Illinois. The focus group session will

take place at

>

> Lisle Public Library,

>

> 777 Front Street, Lisle, IL 60532

>

> Saturday, January 29

>

> 1:00 pm to 3:00 p.m.

>

> Meeting Rooms A and B.

>

>

>

> Participation is voluntary and names will be kept

strictly confidential. We value your privacy, your time and your expertise.

>

>

>

> Parents chosen to participate in the focus group will

meet these criteria:

>

> 1.. Have experienced the diagnosis process with

their child

> 2.. Have navigated a transition from at least one

educational level, such as from elementary to middle school

> 3.. Have some knowledge of the service delivery

system for people with Autism Spectrum Disorders (ASD) in Illinois

> 4.. Be familiar with the process of getting services

to meet the needs of their child at various stages of development

> 5.. Be willing to share what worked and what

didn't.....

>