caregivers

[Guest guest]

>Grandparents are great too! <

Thanks! In my case my grandson was born at the end of my daughter's senior year and they lived with us for 6 years until recently. She would have moved out sooner but Tristan regressed into autism, she was young and worked full time so the brunt of all his needs, including getting informed, and advocating for him, fell on me. I am also the more inclined toward this of the two of us. Whatever the reason, many of us Grandparents are in the fray of this arduous journey of the heart. I started a group for us grandparents called Grandparents As Autism Advocates. If there are Grandparents on this group who need support, are the sole caregivers or the support for your children and grandchildren that would like to join us please contact me privately. I have been saying to anyone who will listen (even those who won't) that the vaccines, and most likely the mercury in vaccines caused my grandson to regress into autism. He was doing so well, on target with everything until his last round of shots that included the MMR and Chicken Pox vaccine. I believe that it is was the many shots with mercury before those last vaccines that set his body up to spiral and crash when given the multiple live vaccines. He has the related sensory and bowel disorders also.

[Guest guest]

Are

there other caregivers out there that want to talk about this, too? Kat?

I

know I still feel like I robbed my daughter (now 17) of part of her childhood because

she had to be my caregiver during tx. Guilt is a very difficult emotion.

De

Re:

Re: Thank You to everyone..

Hi Debiinaustin

I'm Bonnie, and I can pretty much

relate to you, where your daughter is

the hepper, its my hubby that is the

hepper in our family, I know all the

horrable things you think of, and

all the feeling of anger, denial, depression

and then the worst for the family of

a hepper, the guilt trip that it wasn't you

that has the HepC, I cryed to

myself when my hubby told me he had it, but

wanted so much to be strong for

him, It is soooo true that it affects the whole

family, not just the hepper,

but you finely settle down and take one day at a time

and try to help in any way that you

can,,, my husband has been my hero since

being diagnoised with HepC, he is on

his second try for treatment, the first one

worked, but he relapsed after a

month he was able to keep working through the

first treatment, and is still

working the second time around, I

still don't know how he does it, he

is having trouble with fatigue and other

issues concerning the HC. I

think right now the worst part of this time around

with the treatment is the wondering

if it will work or will he relapse again, he is

having a hard time with this. the

treatment is harder on him time around too, last

time he had almost no problems, this

time he is having almost all symptoms

which is harder on him

Bonnie

[Guest guest]

When Mitch Was On Tx He Worked Full Time Plus Overtime. On Top Of That He Took

Care Of Me. And My Nephews. I Was Sick Both Mentally And Physically. I Feel

Really Bad That I Didn't Take Care Of Him. Finding Out He Had Hep Was A Big Blow

For Me Mentally. Then 2 Months Later I Was Dx'd. I Lost All Control Of My Life.

My Reality As I Seen It Was Way Off Base. To This Day I'm Still Hearing Weird

Off The Wall Things I Did From 2002 To 2005. Thank God Mitch Did Not Give Up On

Me. He Was And Still Is My Hero. D

[dmotley@...] wrote:

Are there other caregivers out there that want to talk about this, too?

Kat?

I know I still feel like I robbed my daughter (now 17) of part of her

childhood because she had to be my caregiver during tx. Guilt is a very

difficult emotion.

De

Re: Re: Thank You to everyone..

Hi Debiinaustin

I'm Bonnie, and I can pretty much relate to you, where your daughter is

the hepper, its my hubby that is the hepper in our family, I know all the

horrable things you think of, and all the feeling of anger, denial,

depression

and then the worst for the family of a hepper, the guilt trip that it

wasn't you

that has the HepC, I cryed to myself when my hubby told me he had it, but

wanted so much to be strong for him, It is soooo true that it affects the

whole

family, not just the hepper, but you finely settle down and take one day at

a time

and try to help in any way that you can,,, my husband has been my hero since

being diagnoised with HepC, he is on his second try for treatment, the first

one

worked, but he relapsed after a month he was able to keep working

through the

first treatment, and is still working the second time around, I

still don't know how he does it, he is having trouble with fatigue and other

issues concerning the HC. I think right now the worst part of this time

around

with the treatment is the wondering if it will work or will he relapse

again, he is

having a hard time with this. the treatment is harder on him time around

too, last

time he had almost no problems, this time he is having almost all symptoms

which is harder on him

Bonnie

[Guest guest]

Is anyone aware of aface to face support group for people who have become

gardians of adults with disabilities. The area would be western suburbs.

Thank you, Cindi

Cindi Swanson

Outreach Supervisor

Western DuPage Special Recreation Association

116 N Schmale Road, Carol Stream, IL 60188

(630) 681-0962

cbswanson@...