Dentist

[Guest guest]

My 8 year old daughter who has a dx of autistic spectrum, severley mentaly

challenged, and mild CP, sees a specialist that puts her to sleep. This is

because she is so tactile defensive. To strap her down hold onto her and then

look into her mouth freaks her out. It bothers me to put her under, but must be

done. She has a double set of teeth growing in on the top. We are waiting for

insurances to get settled out again to take care of this.

Dorothy/Gidgeat

Mom to 9 Wonderful children

__________________________________________________

[Guest guest]

In a message dated 6/10/02 1:26:10 AM Central Daylight Time,

writes:

> There is a " Barney Goes to the Dentist " book that might be helpful

> too.

>

>

>

>

I give that book rave reviews. It really did the trick for .

There is also a book out for kids with autism that takes them through an

entire dental appt. -quite a nice social story. Ditfferent Roads to Learning

sells it. No- I don't get an kickbacks for referrals. Wish I did though.LOL

Another note, don't assume that just because someone is a ped. dentist that

they are good at what they do. It took 3 tries before I found someone that I

trust with .

Karyn

[Guest guest]

Hi Kris,

I once had an OT (Marsha Dunn Klein in Tucson) suggest a tooth

brushing game. She said many times part of the reason children fight

you when you are trying to brush their teeth is that they don't know

when it's gonna end.

She suggested taking the tooth brush and quickly brushing while you

count " 1, 2, 3, done! " . When you say " done " or " WHEE! " or " stop " or

whatever, pull the brush away from your childs mouth. Make it fun!

Then repeat the game moving the brush to different areas around your

child's mouth. Building up to an actual tooth brushing might take a

little while. The object is to build your childs trust. Eventually

you can count slower and slower 1..........,2.........,3.......

DONE! Don't count higher, just slower (and brush faster!)

Since my son is very defensive, she suggested starting on his cheek

or wherever he would tolerate it and working my way toward his mouth

and in to his teeth whenever possible.

If you combined that with the mirror suggestion it might even have a

better effect.

Good Luck!

Maureen

mom to Lany 9, Grego 7, and Conor 4 (DS)

> My daughter is 3 yr 4 mos, and should be seeing a dentist. Problem

is she's

> very orally defensive. I have to fight to get a toothbrush in her

mouth and

> brush. Can you imagine a dentist in there?? I've taken her in

before just

> to have a quick see, wouldn't let him near her. Also, because of

her cardiac

> issues, she will need antibiotics first. I know she won't let him

near her,

> so why go through this medicine? Anyone have any suggestions how

to handle

> this? I brought her in to see her brothers get their teeth clean,

no

> problems. TOuch her, then there is a big problem! HELP!!

>

> Kris mom to Sierra, and

[Guest guest]

I hate it when they make generalizations as well, but it was a tidbit that

was passed my way so I thought i would throw it out there and get some

responses and i did, i did not know because my dentist has not said anything

about it to me yet, and he has been to the dentist THREE times already .

Sherri mom to Tayler 3 and 10 months (ds) and Cierra almost 2 1/2

Re: dentist

> Oh really....

> Can I forward my latest bill for Noah's dental work to her? It's about

> $2700 for " non-existent " cavities! It is possible that children with DS

> are not " prone " to cavities, but I get sick of people telling me they

> don't get them. I think that opinion can make people less diligent

> about oral hygiene, and that is a big mistake.

>

> I hate it when people make generalizations about our kids!!!

>

> Karla in Texas-Mom to Noah 7ds with a mouth full of crowns...on baby

> teeth!

>

> sherriwalthers wrote:

> >

> > According to my mother in law, who was talking to her oral hygenist she

said

> > that people with ds do not get cavities, they are very prone to gum

problems

> > though.

> > Sherri Mom to Tayler almost 4 and cierra almost 2 1/2

>

>

> Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

>

>

[Guest guest]

Hey, Sherri, nothing wrong with passing along info you get. That's what this

list is about. I believe, like everything else discussed on this list, each

of our children with or without DS is different. My son 14DS has NEVER

had a cavity, fortunately. And anyone who would be less diligent about oral

hygiene because their child has no cavities or is told, without looking into

it further that they do not get cavities at all, should have their heads

examined.

Jackie, Mom to 14ds, 11, and Bradley 8

[Guest guest]

please dont hate me but actually i was told kinda the same thing about kids

with ds. was told that they tend to have fewer cavities and more gum

problems. my ben has had a few cavities but not nearly as many as my alex.

i thought it had somehow been documented. this was one positive thing i did

hear about, along with finding out kids with ds respond better to chemo.

i hate generalizations too but if someone in the medical or dental field had

learned this, its hard not to believe. now tell me all kids with ds are

always happy, loving etc kids then thats when i get mad.

just my two cents but thought it was interesting that i also was told this

(and i believe i also read it).

kerrie mom to ben 17ds and alex 14nda

[Guest guest]

re: " He said he never

allowed the parent's to stay in the room, as children " play to " the parent. "

We have had a lot of oral issues with our daughter. She still doesn't feed

by mouth (although vastly improved), used to throw up 15+ times a day, we

couldn't get a toothbrush near her or she'd throw up, was/is incredibly

orally defensive, etc. We took her to different dentists when we moved to

find someone compatible, and I must say to all (esp those who don't have

children w/long medical histories), don't ever let a dentist/doctor tell you

you can't be in the room. Ever. It doesn't matter if the child plays to a

parent. Working through to a level of comfort for the child is what's

important. And a dentist who doesn't want to deal with that, shouldn't be

treating children. Plus, you all need to know what is going on in there.

We once interviewed a dentist who told me I couldn't be in the room either.

I tried to explain 's history and how hysterical she'd be without me.

He said he'd get her under quickly. I said wanted to stay with her until

she was under, at a minimum, and that I would help hold her. He said that

wouldn't be necessary as he would have her ... tied down. I don't think

so! Needless to say, we didn't go back.

Eleanor

dentist

When was little we had a pediatric dentist come to one of our

mother's meetings. He seemed very nice and sounded good. He said he never

allowed the parent's to stay in the room, as children " play to " the parent.

We took to him a few times. He would always start crying as soon as

we left him in the room and then suddenly he would stop and he would come

out

quite happy. We thought something was a bit odd but it seemed to work. Now

I would be a lot more suspicious. My daughter finally said, she bet he was

giving R. gas. And it makes sense. That might be all right, with the

parents' permission but without that is trouble. After a few times we went

back to our family dentist and did fine. He was a bit older by

then.

Over the years he has been through a lot of dentistry. He had all 4

impacted wisdom teeth out together at one point, and has had a lot of

routine

things done, plus being fitted 3 times for upper dentures. He's never been

a

problem to work on, and I'm sure that first dentist didn't need to gas him.

But it is one possibility for a child who needs it.

Jessie, Mom to , 37 and the light of my life.

Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

[Guest guest]

In a message dated 6/11/02 12:35:33 PM Central Daylight Time,

writes:

> We have had a lot of oral issues with our daughter. She still doesn't feed

> by mouth (although vastly improved), used to throw up 15+ times a day, we

> couldn't get a toothbrush near her or she'd throw up, was/is incredibly

> orally defensive, etc. We took her to different dentists when we moved to

> find someone compatible, and I must say to all (esp those who don't have

> children w/long medical histories), don't ever let a dentist/doctor tell

> you

> you can't be in the room. Ever. It doesn't matter if the child plays to a

> parent. Working through to a level of comfort for the child is what's

> important. And a dentist who doesn't want to deal with that, shouldn't be

> treating children. Plus, you all need to know what is going on in there.

> We once interviewed a dentist who told me I couldn't be in the room either.

> I tried to explain 's history and how hysterical she'd be without me.

> He said he'd get her under quickly. I said wanted to stay with her until

> she was under, at a minimum, and that I would help hold her. He said that

> wouldn't be necessary as he would have her ... tied down. I don't think

> so! Needless to say, we didn't go back.

>

> Eleanor

>

I'm with you on this one. I personally as a child had a very bad experience

with pain at the dentist and have a very difficult time even now.

I would never let them alone with . There is no way they would know if

he was just being stubborn or if they were hurting him. I don't know that a

child can be expected to tell an adult they hardly know when they are being

hurt. We as parents can help out. Heck, I have the same feeling about the

hosp.

Karyn

[Guest guest]

i stay in my chair for the dentist. they r able to get the instraments to

reach if i parallel park next to the chair. i get tired of opening my mouth and

it hurts so i ask to rest in between things. they put the suction thing in

my mouth so i dont choke on the water.

kimi

[Guest guest]

i`m also sitting in my wheelchair while dentist is doing his work. only when

i was younger i sit on his chair.

patie

[Guest guest]

Damn, Liz! That's a huge chuck o change! I'd be SOL.

De

Faith is the ability to not panic.

-----Original Message-----From: Liz [mailto:elwilkinson@...] Sent: Thursday, August 19, 2004 3:01 PMHepatitis CSupportGroupForDummies Subject: dentist

OK, here's the deal. My periodontist wants to charge me 14,000.00 for all my reconstruction work. 1100.00 per crown and all the other stuff. WHAT!? If you are a smoker, it cuts off %50 of the circulation to your jaw. Which means bone loss. Now folks, for those of us who spent our formative years being a wild child, this is important. I may just pick and choose what I want done, but I smoke and this is not a pretty picture.

Take care

Take care of yourself,

Liz

[Guest guest]

Hi , you might search out a pediatric dentist who is experienced in

treating patients with special needs such as autism. In my area, a couple

of dentists advertise this in their yellow page ads. They have equipment

and staff for sedation in the office, and/or do dental work on an outpatient

basis in a nearby hospital.

You might also come up with names of dentists prepared to do this by calling

the local hospital and asking if they have any pediatric dentists with

admitting privileges.

Good luck. I *have* heard of this problem though my child hasn't

experienced it (so far.) Needle obsessions are pretty common in OCD.

Kathy R. in Indiana

----- Original Message -----

From: " klwicklund77 " <k777thorpe@...

Does anyone else have a child who is unable to get cavities filled

because of the needles?

We're looking at sedation....for cavities.

Valium and nitrous oxide and both together were not enough to overcome

his fear - he simply won't allow it. Though if you talk to him about

it before or after he is rational and logical and remorseful.

[Guest guest]

-

My son is 14 - We have the same problem about the dentist, only for a

different reason - My son fears the instruments will fall down his throat and

then

he'll have to be hospitalized, operated on, and possibility of death... A big

vicious circle. The same situation has occurred over the years with strep

tests - He does NOT allow a throat culture under any circumstances. He's hurt

many a doctor for even attempting. For so long I used to think it was the

gag reflex thing, but a couple of years ago he was finally able to explain WHY

and I was stunned. I never realized just how complicated this " fear " was.

Even as a baby, he couldn't tolerate the stage 2 and up baby food with the

" chunks. " Even now on the Zoloft he still refuses to go, although not as

adamantly and does't get that look of terror in his eyes at the mention of

dentist - just a refusal. The psychiatrist has also suggested a dentist who

uses

sedation.

In a message dated 8/4/2005 8:10:03 P.M. Pacific Daylight Time,

kathylr@... writes:

Does anyone else have a child who is unable to get cavities filled

because of the needles?

We're looking at sedation....for cavities.

Valium and nitrous oxide and both together were not enough to overcome

his fear - he simply won't allow it. Though if you talk to him about

it before or after he is rational and logical and remorseful.

[Guest guest]

Sometimes a kid can be given a sedative before the needle. Once my

daughter who was a toddler had to have some stitches removed in the

doctor's office and I asked my pediatrician to order a sedative. It

really did the trick and she was fine by the time we left.

Good luck,

Bonnie

> Hi , you might search out a pediatric dentist who is

experienced in

> treating patients with special needs such as autism. In my area, a

couple

> of dentists advertise this in their yellow page ads. They have

equipment

> and staff for sedation in the office, and/or do dental work on an

outpatient

> basis in a nearby hospital.

>

> You might also come up with names of dentists prepared to do this by

calling

> the local hospital and asking if they have any pediatric dentists with

> admitting privileges.

>

> Good luck. I *have* heard of this problem though my child hasn't

> experienced it (so far.) Needle obsessions are pretty common in OCD.

>

> Kathy R. in Indiana

> ----- Original Message -----

> From: " klwicklund77 " <k777thorpe@a...

>

>

> Does anyone else have a child who is unable to get cavities filled

> because of the needles?

>

> We're looking at sedation....for cavities.

>

> Valium and nitrous oxide and both together were not enough to overcome

> his fear - he simply won't allow it. Though if you talk to him about

> it before or after he is rational and logical and remorseful.

>

>

[Guest guest]

I realize that the fear is OCD, yet for the sake of dental health

perhaps some accommodation may be necessary. I once had a root canal

where they used a dental dam so that I wouldn't swallow any of the

tooth fragments - maybe you could ask for that in addition to the

sedation.

Bonnie

>

> -

>

> My son is 14 - We have the same problem about the dentist, only for a

> different reason - My son fears the instruments will fall down his

throat and then

> he'll have to be hospitalized, operated on, and possibility of

death... A big

> vicious circle. The same situation has occurred over the years

with strep

> tests - He does NOT allow a throat culture under any circumstances.

He's hurt

> many a doctor for even attempting. For so long I used to think it

was the

> gag reflex thing, but a couple of years ago he was finally able to

explain WHY

> and I was stunned. I never realized just how complicated this

" fear " was.

> Even as a baby, he couldn't tolerate the stage 2 and up baby food

with the

> " chunks. " Even now on the Zoloft he still refuses to go, although

not as

> adamantly and does't get that look of terror in his eyes at the

mention of

> dentist - just a refusal. The psychiatrist has also suggested a

dentist who uses

> sedation.

>

>

>

>

> In a message dated 8/4/2005 8:10:03 P.M. Pacific Daylight Time,

> kathylr@a... writes:

>

> Does anyone else have a child who is unable to get cavities filled

> because of the needles?

>

> We're looking at sedation....for cavities.

>

> Valium and nitrous oxide and both together were not enough to overcome

> his fear - he simply won't allow it. Though if you talk to him about

> it before or after he is rational and logical and remorseful.

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi , how old is the child and how bad are the cavities?

When I was very young, I was the same way. The dentist just let me

hold my mom's hand and I'd raise another hand when it hurt. He just

went slow I guess, you know, not continually " drilling " but

drill/stop/drill/stop....

At some point I began getting shots, but can't recall when. I can

recall I still really hated them (still do sometimes).

was bad when young, nitrous oxide (which personally I hate,

tried just one time and didn't do well for me) didn't work for .

I finally found another dentist willing to try and he was about to

have me leave the room, as I think they were going to restrain .

What I did was sit on the chair with , have him totally focus on

me, look at my face and to LISTEN to me as I talked. I counted. I

told him to listen to me, keep looking at my face (as I held each of

his hands in mine) and I told him I was going to count and to listen

only to me (oh yeah, breathe through nose also). So I counted

loudly/firmly, 1..2..3..4 and so on. He managed to get the shot and 2

teeth pulled (after previously bending the needle as the dentist was

trying to give it as struggled). I think the shot was done by

before #20 or so, not too long. And the teeth were out with around

#10.

I had to do the same with when he got braces. Reminded him to

breathe in/out through his nose, and listen to me count (tho with him

I sat by and just whispered directly in his ear).

Don't know if this would work with an older kid though. But maybe

just having him focus on you and holding his hands, letting him

squeeze or YOU squeezing his hands and holding his attention might get

him through it.

Glad to say that the kids are fine with dentists now, takes a

shot better than me(!), my hands still stay in fists when I go!

> Does anyone else have a child who is unable to get cavities filled

> because of the needles?

>

> We're looking at sedation....for cavities.

>

> Valium and nitrous oxide and both together were not enough to

overcome

> his fear - he simply won't allow it. Though if you talk to him

about

> it before or after he is rational and logical and remorseful.

>

>

[Guest guest]

Been there, done that, see you again in 6 months!

I feel your pain, or was that a kick? j/k <tylerhaley01@...> wrote:

[Guest guest]

I am looking for a good dentist who takes medicare and also does general

anaesthesia. I have a 16 year old and is in urgent need of a  dentist, he won't

sit for anyone he needs to go through general anaesthesia for some extensive

work, and my regular dentist does not take Medicare. Any info is appreciated.

Thanks.

Delphine.

[Guest guest]

There used to be a dental clinic at Illinois Masonic Hospital (in Chicago) for

people with disabilities. They certainly take Medicaid and will use anesthesia

if necessary, but they required an appointment first to see if the patient

really needed the general.

Pam/Chicago

>

> I am looking for a good dentist who takes medicare and also does general

> anaesthesia. I have a 16 year old and is in urgent need of a  dentist, he

won't

> sit for anyone he needs to go through general anaesthesia for some extensive

> work, and my regular dentist does not take Medicare. Any info is appreciated.

> Thanks.

>

> Delphine.

>

>

[Guest guest]

Milestone Dental Clinic in Rockford. If you live around Naperville it really

isnt much more of a ride than to some of the clinics in the University

hospitals, where the waiting list is long, like 2 years long IF you need work

WITH ANESTHESIA.

Milestone takes Medicaid and is wonderful with our kids. They ONLY treat

specail needs children and adults.

Diane S.

>

> I am looking for a good dentist who takes medicare and also does general

> anaesthesia. I have a 16 year old and is in urgent need of a  dentist, he

won't

> sit for anyone he needs to go through general anaesthesia for some extensive

> work, and my regular dentist does not take Medicare. Any info is appreciated.

> Thanks.

>

> Delphine.

>

>

[Guest guest]

Medicaid will pay for medical transportation also.

________________________________

From: swedegrl2005 <swedegrl@...>

IPADDUnite

Sent: Thu, December 2, 2010 11:04:08 PM

Subject: Re: Dentist

 

Milestone Dental Clinic in Rockford. If you live around Naperville it really

isnt much more of a ride than to some of the clinics in the University

hospitals, where the waiting list is long, like 2 years long IF you need work

WITH ANESTHESIA.

Milestone takes Medicaid and is wonderful with our kids. They ONLY treat specail

needs children and adults.

Diane S.

>

> I am looking for a good dentist who takes medicare and also does general

> anaesthesia. I have a 16 year old and is in urgent need of a  dentist, he

won't

>

> sit for anyone he needs to go through general anaesthesia for some extensive

> work, and my regular dentist does not take Medicare. Any info is appreciated.

> Thanks.

>

> Delphine.

>

>

[Guest guest]

I recommend my dentist in Plymouth. I have listed him in

the database as well.

[Guest guest]

> Does anyone know of any dentists that specialize in replacing old mercury

fillings safely?

>

Dr Trish Braga at Cahill Dentistry in Inver Grove Heights does this. While she

is not a biological dentist she does practice mercury safe removal and even has

books in the waiting room about the dangers of mercury. She is very open to the

patients ideas and opinions and is the best dentist I've ever had.

[Guest guest]

I can recommend Dr. Colin Hatcher of Cedar Cliff Dentistry in Eagan and Dr.

Laughlin of HealthCentered Dentistry in River Falls, WI. Dr Laughlin is highly

regarded in the holistic dentistry field. Well worth the drive.

Sara

> Does anyone know of any dentists that specialize in replacing old mercury

>fillings safely?