Re: Applying for SSI

October 26, 2007

I believe that your application gets dated when you apply .. or when the

young adult turns 18. If it takes longer to establish eligibility, then

they will pay back to the application date or birthday.

When Jan and I went in to apply, we were a few months past her

birthday. They needed some doctors to attest to her eligibility, but

the payments were retroactive to the application date. That took some

months, but it worked.

Our best encounter with SSI was when we went in together to discuss any

changes related to my receiving social security. Yes I was past 65 when

they started giving social security to people still employed. The clerk

helping us was very helpful and guided us to move Janet to SSDI which

pays a little more and has less restrictions .. but it has to be related

to a parent's being on social security.

The real reason that clerk was so helpful was that he had a son with DS

and was happy to see Jan who was enough older than his son to be some

encouragement.

The most wonderful news about SSDI was that it set the clock going for

medicare eligibility for Jan. That clocked in two years later on the

exact date that I lost coverage for her on my medical because I'd

changed employers. Her bone marrow transplant was supported by medicare

and medicaid. Thankyou to all of you tax payers because it was a

wonderful success. It saved her life and allowed her back to good

health after some really awful years.

Rick ... dad to Jan

November 18, 2010

Margie, bring the most current paperwork you have from the school, make a packet

to leave with them. Have all of the doctors names, addresses, phone numbers

ready. I didn't take with me, the contact person at the office in

Woodridge said if I had she would have just jotted down some notes if she

noticed anything but his paperwork really says it all, mainly that is

communication skills are in the low range which could effect his ability to hold

a full-time job and support himself out in the community.

The first try we didn't get the full amount, I went back and filled out

paperwork after to say that now that he was receiving SSI I was charging him

" his fair share/room and board " and now we get the full $674.00. I also don't

have the account set up where I'm in charge of the money, it has both of our

names on it.

I'm seeing a lawyer today to get some other things done that I need to and plan

to discuss guardianship with her but I'm still not sold on the idea of doing it

for .

Good luck!! I thought it was a pretty painless process after some of the stories

I'd heard.

H.

Applying for SSI

I have an appointment next Tuesday to apply for SSI in the Aurora office. Are

here any stories, suggestions, strategies anyone would be kind enough to

hare? I'm sure most of you have been through this years ago. I think we have

ll our ducks in a row, but it always helps to get pointers.

Thanks,

Margie

November 18, 2010

Hi , yes good advice to 'charge' rent or fair share of household expenses.

Many parents do not think to tell SSI they will be deducting money from the SSI

check for food and shelter expenses. If you don't charge for food and shelter,

you are giving away approximately $220 each month. SSI deducts 1/3rd of the SSI

check if a person is receiving free room and board.

As for guardianship, you are right to be concerned. I have a handout on

alternatives to guardianship which I'll share with the group. My daughter is 43

and we have gotten by quite nicely with a durable power of attorney for

advocacy, health care and property (3 forms). However a poa isn't for

everyone. Your child has to be able to understand what s/he is signing when

s/he signs the poa. The level of understanding has to be that they understand

the loss of privacy when they allow their mom or dad, as agent, to have access

to confidential information. I'll be giving a presentation on Guardianship and

Less Intrusive Alternatives to Guardianship this Friday (tomorrow) in Geneva.

You can check the Arc of IL's website for more information if you are interested

in attending. Terrie Varnet

________________________________

From: " sunshinebeaches3@... " <sunshinebeaches3@...>

IPADDUnite

Sent: Thu, November 18, 2010 6:15:29 AM

Subject: Re: Applying for SSI

Margie, bring the most current paperwork you have from the school, make a packet

to leave with them. Have all of the doctors names, addresses, phone numbers

ready. I didn't take with me, the contact person at the office in

Woodridge said if I had she would have just jotted down some notes if she

noticed anything but his paperwork really says it all, mainly that is

communication skills are in the low range which could effect his ability to hold

a full-time job and support himself out in the community.

The first try we didn't get the full amount, I went back and filled out

paperwork after to say that now that he was receiving SSI I was charging him

" his fair share/room and board " and now we get the full $674.00. I also don't

have the account set up where I'm in charge of the money, it has both of our

names on it.

I'm seeing a lawyer today to get some other things done that I need to and plan

to discuss guardianship with her but I'm still not sold on the idea of doing it

for .

Good luck!! I thought it was a pretty painless process after some of the stories

I'd heard.

H.

Applying for SSI

I have an appointment next Tuesday to apply for SSI in the Aurora office. Are

here any stories, suggestions, strategies anyone would be kind enough to

hare? I'm sure most of you have been through this years ago. I think we have

ll our ducks in a row, but it always helps to get pointers.

Thanks,

Margie

November 18, 2010

Remember: as Sherri Schneider has explained, if you use fair share and the fair

share amounts to more than the SSI amount, you will still lose 1/3. If you use

rent, consider (as I am a former IRS Agent and IRS Attorney) taxable income and

loss of dependency exemption. As to Powers of Attorney, remember the Illinois

August 2007 special Power of Attorney for educational decisions, and that SSA

and State of Illinois insist on their own forms. Also remember that Illinois has

yet an additional form for mental health decisions.

Rubin

The Law Offices of

Rubin & Associates

Law practice limited to

" future " & legal planning for Illinois families of children & adults with

intellectual or developmental disabilities, & /or mental illness...

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(O) 847-279-7999

(F) 847-279-0090

(TF) 866-TO-RUBIN

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(www.specialneedsalliance.org association of experienced " Special Needs

Planning " Attorneys (member of the SNA Board of Directors), as well as a member

of NAELA, the National Academy of Elder Law Attorneys (www.NAELA.org), and

serves on NAELA's Special Needs Law Section Steering Committee.

Rubin has been awarded the dale Hubbell Peer Review Rating of AV

Preeminent (www.martindale.com).

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From: Theresa Varnet [mailto:tvarnet@...]

Sent: Thursday, November 18, 2010 07:55 AM

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