Fw: Survey: Parenting Children & Youth with Special Needs

[Guest guest]

Re: Survey: Parenting Children & Youth with Special NeedsFYI

Ellen

Ellen Garber Bronfeld

egskb@...

Survey Parenting Children & Youth with Special Needs

As you may know, I have been working as a parent consultant as part of

an NIH research project to help identify and acknowledge all of the unique

experience, skills and knowledge it takes to raise a child with special needs.

Finally, the online survey is here!

https://www.surveymonkey.com/specialneedschild

<https://www.surveymonkey.com/specialneedschild>

Please consider taking the survey if you care for a child under 21 years

of age with special needs.

I also need your help to reach other parents of children and youth with

special needs. So, please forward the survey to other parents, groups,

listservs and post to websites and in newsletters serving families of children

and youth with special needs.

You can use the letter below (adapted as needed) to share general

research information, research contacts and the survey link.

Please let me know if you have any questions about the research or the

survey.

Thank you so much!

Jennings

https://www.surveymonkey.com/specialneedschild

<https://www.surveymonkey.com/specialneedschild>

------------------------------------------------------------------------

I am writing from Northeastern University’s Institute on Urban Health

Research to let you know about our online survey: “Parenting Children and

Youth with Special Needsâ€.

This survey is part of a research project funded by the National

Institutes of Health and is for parents who have at least one child with special

needs who is under age 21. We are conducting this survey to better understand

the work – tasks and activities - that parents of children with special needs

do. The information we gather will help us to increase the visibility of this

work, help others recognize its value, and enable us to advocate effectively for

increased supports for families of children with special needs.

Thank you for your help in distributing the link to this survey! To

make it as easy as possible for you, we have drafted some text that could be

sent in an email, listserve broadcast or in a newsletter:

You are receiving this email because researchers at Northeastern

University have asked us to forward it to members of our organization/our

listserv. We want to help them access a broad range of parents of children and

youth with special needs, because they are conducting a survey to ask about the

experience of parenting a child with special needs:

https://www.surveymonkey.com/specialneedschild

<https://www.surveymonkey.com/specialneedschild>

While the survey is not from our organization, we are happy to cooperate

with the researchers and are glad they intend to use the results to advocate for

policies and programs to meet the needs of children with special needs. Be

assured that if you choose to participate, your responses will not be made

available to us and will have no bearing on your relationship with us, or any of

the services and supports you receive. If you have any questions, please feel

free to call the head of the project, Dolores Acevedo-, Ph.D., at

Northeastern University: 617-359-0785. Thank you for considering their request

to fill out the survey.

Sincerely,

Dolores Acevedo-, Ph.D.

Associate Professor, Bouve College of Health Sciences

Northeastern University

360 Huntington Avenue

Boston, MA 02115

Email: d.acevedogarcia@...

Phone: 617-359-0785

------------------------------------------------------------------------

--

Ms. Vaughn Edelson | Programs Manager

Genetic Alliance

4301 Connecticut Ave., NW

Suite 404

Washington, DC 20008

T: 202.966.5557, x213 | F: 202.966.8553

vedelson@...

Are you following @GeneticAlliance on Twitter?

www.twitter.com/geneticalliance

---You are currently subscribed to memberforum as: pafoundation@...

unsubscribe click here:

http://listserv.galists.org/u?id=5874.85d6e9c8255c0364fb67b5ac8a25eea3 & n=T & l=mem\

berforum & o=501046Communications not originating from Genetic Alliance are not

endorsed by Genetic Alliance, its board, or staff.Put it in WikiAdvocacy!

wikiadvocacy.orgYour questions and answers are valuable to the whole community.

Put the information at their fingertips.

------------------------------------------------------------------------

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.851 / Virus Database: 271.1.1/3126 - Release Date: 09/10/10

02:08:00