Guest guest Posted September 5, 2000 Report Share Posted September 5, 2000 I'm also not sure why the emotions are running so strong with this thread, except maybe that we're all so desperately trying NOT to harm our little guys anymore than they've already been hurt! My opinion is that Mercury isn't stuff to mess around with, and that if there are any nooks or crannies in the body that it hasn't found its way to already, I don't want to encourage it by shaking it around any more than absolutely necessary. So I guess I'm weighing in on the side of (ugh!) every 4 hrs, and longer runs of chelation rather than shorter ones. I was trying to explain this to my hubby the physicist last night and he asked " why do you stop and start chelating like that, rather than just doing one long run of chelation? " I said because of the physical discomfort of it, but wasn't sure if there are other reasons for the stop-start pattern of chelation. Is it also to let the metals that have been shaken loose drain out of the body? If so, is it better to go longer and let more drain, or do the 3-on-4-off pattern that I've seen mentioned. Anyone? We're looking for a doc in California who knows his/her stuff about all this, and will prescribe/work with us, btw. We already have a hair test that indicates probable metal problems. Please let me know if you know of anyone. Terri in Santa Cruz mom to Clio 9yo, Zane 7yo hfa and Risa 6 months (I don't sleep all night as it is -- maybe I'll give up sleep altogether when we start chelating!) At 08:12 PM 9/5/00 -0400, you wrote: -------------------------- eGroups Sponsor -------------------------~-~> eGroups eLerts It's Easy. It's Fun. Best of All, it's Free! 1/9067/9/_/705339/_/968199156/ --------------------------------------------------------------------> Jeannie: My thoughts are...maybe you're missing the boat! I think the main reason for NOT giving the DMSA and ALA less than every 4 hours is that this stuff causes MAJOR DAMAGE! It has no right being in our bodies in the first place. It is a neurotoxin that causes severe damage to whatever tissue it binds to. It binds mostly to the brain, kidneys and liver. Three things I would prefer to keep it out of myself. The damage it can cause CAN be irreversable. Why play Russain Roulette all over again with our kids? I believe this schedule is suggested for our children's best interests and health. I really don't understand all the animosity about this issue! Besides...the children themselves are uncomfortable...irritable is the way I think most parents have described the " Off " days...WHY? Because the metals are being redistributed...and it hurts them. Even adults who have been treated have described this feeling...it's not nice! Why put your child through all that for nothing? Better safe than sorry. What is wrong here...am I missing the boat or do others think this >way too. The ALA will eventually get all the Hg out. Period. Slammed >Hg or original Hg...no difference. It all gets removed. If it doesn't >then the theory that ALA detoxes the brain adequately is somehow >flawed. > >The only thinking that would justify the every four hours would be to >avoid a very temporary additional Hg to the brain which will >ultimately be 100% removed anyway. > >Yes/No ? > >Jeannie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2000 Report Share Posted September 6, 2000 In a message dated 9/5/00 11:57:13 PM Central Daylight Time, sleep@... writes: << My son has had no problems except when attempting the every four hour thing...it was a nightmare !!! TID worked like a charm. >> Jeannie, What problems did your son have with the every four hour dosing? Was the problem mainly with lack of sleep or was there something else? Just curious. By the way, my two cents on the " slam " scenario is that there is no evidence that anything causes metals to " slam " into the brain. This is the wording Andy uses to get people's attention to get his point across that he feels it is much safer to keep blood levels of chelators even. His point, well taken, is that when you free up metals without adequately supplying something to take them completely out of the body, you have the potential for redistribution to other parts in the body, including the brain. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2000 Report Share Posted September 6, 2000 In a message dated 9/6/00 12:07:29 AM Central Daylight Time, tmykland@... writes: << I was trying to explain this to my hubby the physicist last night and he asked " why do you stop and start chelating like that, rather than just doing one long run of chelation? " I said because of the physical discomfort of it, but wasn't sure if there are other reasons for the stop-start pattern of chelation. Is it also to let the metals that have been shaken loose drain out of the body? If so, is it better to go longer and let more drain, or do the 3-on-4-off pattern that I've seen mentioned. Anyone? >> According to the doc we're using now, you want to give a rest between rounds because doing it straight could be too hard on the kidneys and liver and you need to give them time to process the stuff. If you try to release too much too quickly you could have to deal with kidney failure. With our former doc, my son did two rounds of straight 20-days on chelation. Overall, he seemed to do better with the 3-4-days on 5-11 off. I think the amount of time between chelation rounds really depends on the person. Watch them carefully and see which they respond to the best. While we got alot of progress with the 20-days on, I wouldn't recommend doing it for more than 1-2 rounds. We've been doing this for a few years and have found a cycle of sorts where we feel great right after a dose of chelators for several days (getting longer each time -- now about a week) and then kind of feel a dumping of metals (often can taste metals) and feel kind of yucky for a few days, then better, then some more yucks, etc. I've been told that as you pull metals out of the blood stream, your body dumps others from the cells into the blood and then you get the kind of rebound effect until all the metals are out. Sometimes it seems like the metals come out on their own within a day or so as our elimination methods increase (trying not to be graphic here) and then we feel much better. As we've gotten more healthier, we have more of these things that seem like releases in between chelation where before we didn't feel very well until we got another round of a chelator. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2000 Report Share Posted September 6, 2000 I appreciate all your thoughts and sentiments . Thanks for sharing... but I still disagree. Sorry. If it " has no right to be in our bodies in the first place " ...then don't take it at all, . Peace. Jeannie > Jeannie: > My thoughts are...maybe you're missing the boat! I think the main reason for > NOT giving the DMSA and ALA less than every 4 hours is that this stuff causes > MAJOR DAMAGE! It has no right being in our bodies in the first place. It is > a neurotoxin that causes severe damage to whatever tissue it binds to. It > binds mostly to the brain, kidneys and liver. Three things I would prefer to > keep it out of myself. The damage it can cause CAN be irreversable. Why > play Russain Roulette all over again with our kids? I believe this schedule > is suggested for our children's best interests and health. I really don't > understand all the animosity about this issue! Besides...the children > themselves are uncomfortable...irritable is the way I think most parents have > described the " Off " days...WHY? Because the metals are being > redistributed...and it hurts them. Even adults who have been treated have > described this feeling...it's not nice! Why put your child through all that > for nothing? Better safe than sorry. > > > What is wrong here...am I missing the boat or do others think this > >way too. The ALA will eventually get all the Hg out. Period. Slammed > >Hg or original Hg...no difference. It all gets removed. If it doesn't > >then the theory that ALA detoxes the brain adequately is somehow > >flawed. > > > >The only thinking that would justify the every four hours would be to > >avoid a very temporary additional Hg to the brain which will > >ultimately be 100% removed anyway. > > > >Yes/No ? > > > >Jeannie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2000 Report Share Posted September 6, 2000 <<I really don't understand all the animosity about this issue! >> In response I ask you...what animosity about this? All I was doing was asking what the deal was all about and questioning the logic.Surely that should be allowed . We are still allowed to question aren't we...even experts can be mistaken ! Listen,there may be no right or wrong way set out yet...or perhaps the irritability on the part of the kids we are seeing is owing to poor nutritional supplementation after the Chemet is done.There is no study group here. We are it! My son has had no problems except when attempting the every four hour thing...it was a nightmare !!! TID worked like a charm. I will admit to you though that his great health and well being after the Chemet may be because of the Essiac Tea and the Melatonin and Zinc and CoQ and Cal/Mag etc which all likely help him out .Not to mention the hour of swimming we do each night. Whatever the case I saw no malaise at all.And he too had a great day at school. His teacher even emailed me asking me what I had done over the weekend. His focus was up about 40% she said. And he is eating well. Please folks,do not get your knickers all in a twist over this. Do what you feel you need to do . My son has gone thru round one and has held up nicely afterward too. Stop screaming ( all caps is screaming in internet lingo )....look in the mirror if you are so angry at this...something may be wrong with your motives.We are doing great. Jeannie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 We do pretty much the same, DMSA during the day and melatonin every nite. The 4 days we do not chelate we supplement minerals and use NAC several days a week during or off DMSA. My kids are great and getting better. It works for us. Beverly > <<I really don't understand all the animosity about this issue! >> > > In response I ask you...what animosity about this? > > All I was doing was asking what the deal was all about and > questioning the logic.Surely that should be allowed . We are still > allowed to question aren't we...even experts can be mistaken ! > > Listen,there may be no right or wrong way set out yet...or perhaps > the irritability on the part of the kids we are seeing is owing to > poor nutritional supplementation after the Chemet is done.There is no > study group here. We are it! > > My son has had no problems except when attempting the every four hour > thing...it was a nightmare !!! TID worked like a charm. > > I will admit to you though that his great health and well being after > the Chemet may be because of the Essiac Tea and the Melatonin and > Zinc and CoQ and Cal/Mag etc which all likely help him out .Not to > mention the hour of swimming we do each night. > > Whatever the case I saw no malaise at all.And he too had a great day > at school. His teacher even emailed me asking me what I had done over > the weekend. His focus was up about 40% she said. And he is eating > well. > > Please folks,do not get your knickers all in a twist over this. Do > what you feel you need to do . My son has gone thru round one and has > held up nicely afterward too. Stop screaming ( all caps is screaming > in internet lingo )....look in the mirror if you are so angry at > this...something may be wrong with your motives.We are doing great. > Jeannie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 I read some clinical studies with Chemet/DMSA and LEAD chelation. It indicated after several days of chelation, blood levels of lead were low. When retested a week later, lead levels rose but not to their previous levels (60%). Presumably, once you bring the metals down, the metals in the body shift, releasing metals from loaded cells to fill the void left in the chelated cells. Repeat chelation, in a step wise fashion seems to draw out metals from DMSA resistant tissue indirectly. Also, chelation removes good minerals too. I think it is important to supplement, rest and recover slowly and safely. Beverly > > > >Jeannie: > >My thoughts are...maybe you're missing the boat! I think the main reason for > >NOT giving the DMSA and ALA less than every 4 hours is that this stuff causes > >MAJOR DAMAGE! It has no right being in our bodies in the first place. It is > >a neurotoxin that causes severe damage to whatever tissue it binds to. It > >binds mostly to the brain, kidneys and liver. Three things I would prefer to > >keep it out of myself. The damage it can cause CAN be irreversable. Why > >play Russain Roulette all over again with our kids? I believe this schedule > >is suggested for our children's best interests and health. I really don't > >understand all the animosity about this issue! Besides...the children > >themselves are uncomfortable...irritable is the way I think most parents have > >described the " Off " days...WHY? Because the metals are being > >redistributed...and it hurts them. Even adults who have been treated have > >described this feeling...it's not nice! Why put your child through all that > >for nothing? Better safe than sorry. > > > > > >What is wrong here...am I missing the boat or do others think this > > >way too. The ALA will eventually get all the Hg out. Period. Slammed > > >Hg or original Hg...no difference. It all gets removed. If it doesn't > > >then the theory that ALA detoxes the brain adequately is somehow > > >flawed. > > > > > >The only thinking that would justify the every four hours would be to > > >avoid a very temporary additional Hg to the brain which will > > >ultimately be 100% removed anyway. > > > > > >Yes/No ? > > > > > >Jeannie > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 In a message dated 9/6/00 4:14:57 AM !!!First Boot!!!, sleep@... writes: << If it " has no right to be in our bodies in the first place " ...then don't take it at all, . >> I think you missed the boat again, she was referring to the mercury not having any right to be in the body in the first place, not the DMSA. PEACE, Elaine Quote Link to comment Share on other sites More sharing options...
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