Guest guest Posted August 26, 2000 Report Share Posted August 26, 2000 << Anyone have comments on their opinions on these indicators of toxicity>> I'm not sure if these are clear and unique enough to be used in a statistical " checklist " approach, but most likely can be used by an experienced practitioner or thoughtful patient to get a good diagnosis. It seems likely they are accurate reflections of mercury tox. <<?? What others should be added to the list?? >> See the " diagnostic checklist " in <A HREF= " http://hometown.aol.com/noamalgam " > Amalgam Illness: Diagnosis and Treatment</A>, or the preliminary one I posted as a SCI post long ago. Add to them a few things like elevated plasma cysteine, low RBC zinc and molybdenum, low plasma sulfate, etc. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2000 Report Share Posted August 26, 2000 Dear Andy, Amy, and anyone else, We just received results from Doctor's Data on the second day of the first round of chelation with DMSA-SR/ALA. Please help me interpret what we are seeing. The highest toxic metal was cadmium=2.0 (ref. 0-2) micrograms/g Cr. The next highest is mercury at 2.4 micrograms/g creatinine (ref.=0-3). Arsenic was 36 (ref. 0-100) and tin was 1.6 (ref. 0-6). Everything else was very low or not present. My question is this: If we are seeing substantial amounts of mercury coming out, even though it is within the reference range of Doctor's Data, is this what we are looking for? I suspect another large amount of mercury is coming out in the stool and any amount of mercury would be considered abnormal. According to Amy, the goal would be to keep chelating until the number for mercury reaches 0. Is it a surprise that the mercury levels on this test are not in the elevated range delineated by Doctor's Data? When we did the first chelation on DMSA, the urine sample had 4.9 micrograms of mercury per gram of Creatinine. Anyway, I plan to keep checking about every month or so but any advise regarding these results as to whether we are on the right track would be appreciated. Ken Sokolski Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2000 Report Share Posted August 30, 2000 Ken, Most of my son's mercury on DMSA/ALA is coming out in stool. So, I have decided to retest both stool and urine every 4 months or so while on DMSA/ALA. Amy ------------------ Reply Separator -------------------- Originally From: KKSOKOLSKI@... Subject: Re: [ ] toxicity reference limits Date: 08/26/2000 06:08pm Dear Andy, Amy, and anyone else, We just received results from Doctor's Data on the second day of the first round of chelation with DMSA-SR/ALA. Please help me interpret what we are seeing. The highest toxic metal was cadmium=2.0 (ref. 0-2) micrograms/g Cr. The next highest is mercury at 2.4 micrograms/g creatinine (ref.=0-3). Arsenic was 36 (ref. 0-100) and tin was 1.6 (ref. 0-6). Everything else was very low or not present. My question is this: If we are seeing substantial amounts of mercury coming out, even though it is within the reference range of Doctor's Data, is this what we are looking for? I suspect another large amount of mercury is coming out in the stool and any amount of mercury would be considered abnormal. According to Amy, the goal would be to keep chelating until the number for mercury reaches 0. Is it a surprise that the mercury levels on this test are not in the elevated range delineated by Doctor's Data? When we did the first chelation on DMSA, the urine sample had 4.9 micrograms of mercury per gram of Creatinine. Anyway, I plan to keep checking about every month or so but any advise regarding these results as to whether we are on the right track would be appreciated. Ken Sokolski -------------------------- eGroups Sponsor -------------------------~-~> Best friends, most artistic, class clown Find 'em here: 1/8014/9/_/705339/_/967327734/ ---------------------------------------------------------------------_ -> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2000 Report Share Posted August 30, 2000 How can you tell it's coming out mostly in the stool? I have noticed that Dean is not urinating nearly as much on the dmsa/ala as he was on the dmsa alone..and it also is very pale rather than dark and smelly. But, he is having more frequent bowel movements. Would that point to the same conclusion? Maranie Re: Re: [ ] toxicity reference limits Ken,Most of my son's mercury on DMSA/ALA is coming out in stool. So,I have decided to retest both stool and urine every 4 months orso while on DMSA/ALA.Amy------------------ Reply Separator --------------------Originally From: KKSOKOLSKI@...Subject: Re: [ ] toxicity reference limitsDate: 08/26/2000 06:08pmDear Andy, Amy, and anyone else,We just received results from Doctor's Data on the second day of the first round of chelation with DMSA-SR/ALA. Please help me interpret what we are seeing. The highest toxic metal was cadmium=2.0 (ref. 0-2) micrograms/g Cr. The next highest is mercury at 2.4 micrograms/g creatinine (ref.=0-3). Arsenic was 36 (ref. 0-100) and tin was 1.6 (ref. 0-6). Everything else was very low or not present. My question is this: If we are seeing substantial amounts of mercury coming out, even though it is within the reference range of Doctor's Data, is this what we are looking for? I suspect another large amount of mercury is coming out in the stool and any amount of mercury would be considered abnormal. According to Amy, the goal would be to keep chelating until the number for mercury reaches 0. Is it a surprise that the mercury levels on this test are not in the elevated range delineated by Doctor's Data? When we did the first chelation on DMSA, the urine sample had 4.9 micrograms of mercury per gram of Creatinine. Anyway, I plan to keep checking about every month or so but any advise regarding these results as to whether we are on the right track would be appreciated.Ken Sokolski-------------------------- eGroups Sponsor -------------------------~-~>Best friends, most artistic, class clown Find 'em here:>'>1/8014/9/_/705339/_/967327734/--------------------------------------------------------------------> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2000 Report Share Posted August 30, 2000 When someone posts a question, which starts off with: " I know this is a stupid question " , I always tell them " no question is every stupid " , so I'm going to take my own advice here and ask how someone knows that most of the mercury is coming out in the stool??? Thanks. Amy Holmes wrote: > > > Ken, > > Most of my son's mercury on DMSA/ALA is coming out in stool. So, > I have decided to retest both stool and urine every 4 months or > so while on DMSA/ALA. > > Amy > > ------------------ Reply Separator -------------------- > Originally From: KKSOKOLSKI@... > Subject: Re: [ ] toxicity reference limits > Date: 08/26/2000 06:08pm > > Dear Andy, Amy, and anyone else, > We just received results from Doctor's Data on the second day of the > first > round of chelation with DMSA-SR/ALA. Please help me interpret what we > are > seeing. The highest toxic metal was cadmium=2.0 (ref. 0-2) > micrograms/g Cr. > The next highest is mercury at 2.4 micrograms/g creatinine (ref.=0-3). > Arsenic was 36 (ref. 0-100) and tin was 1.6 (ref. 0-6). Everything > else was > very low or not present. My question is this: If we are seeing > substantial > amounts of mercury coming out, even though it is within the reference > range > of Doctor's Data, is this what we are looking for? I suspect another > large > amount of mercury is coming out in the stool and any amount of mercury > would > be considered abnormal. According to Amy, the goal would be to keep > chelating > until the number for mercury reaches 0. Is it a surprise that the > mercury > levels on this test are not in the elevated range delineated by > Doctor's > Data? When we did the first chelation on DMSA, the urine sample had > 4.9 > micrograms of mercury per gram of Creatinine. Anyway, I plan to keep > checking > about every month or so but any advise regarding these results as to > whether > we are on the right track would be appreciated. > Ken Sokolski > > -------------------------- eGroups Sponsor > -------------------------~-~> > Best friends, most artistic, class clown Find 'em here: > 1/8014/9/_/705339/_/967327734/ > ---------------------------------------------------------------------_ > -> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2000 Report Share Posted August 30, 2000 I tested Fecal Elements from Doctor's Data twice. At the same times, ran Urine Toxic Elements. Got some in urine, more in stool. Because of the cost, I think it is a great idea to test a lot less frequently than I was doing. In fact, I am taking my own advice, and not retesting for 4 more months! When I do, it will be both tests. Amy ------------------ Reply Separator -------------------- Originally From: " Maranie " <adams6@...> Subject: Re: Re: [ ] toxicity reference limits Date: 08/29/2000 10:31pm How can you tell it's coming out mostly in the stool? I have noticed that Dean is not urinating nearly as much on the dmsa/ala as he was on the dmsa alone..and it also is very pale rather than dark and smelly. But, he is having more frequent bowel movements. Would that point to the same conclusion? Maranie Re: [ ] toxicity reference limits Date: 08/26/2000 06:08pm Dear Andy, Amy, and anyone else, We just received results from Doctor's Data on the second day of the first round of chelation with DMSA-SR/ALA. Please help me interpret what we are seeing. The highest toxic metal was cadmium=2.0 (ref. 0-2) micrograms/g Cr. The next highest is mercury at 2.4 micrograms/g creatinine (ref.=0-3). Arsenic was 36 (ref. 0-100) and tin was 1.6 (ref. 0-6). Everything else was very low or not present. My question is this: If we are seeing substantial amounts of mercury coming out, even though it is within the reference range of Doctor's Data, is this what we are looking for? I suspect another large amount of mercury is coming out in the stool and any amount of mercury would be considered abnormal. According to Amy, the goal would be to keep chelating until the number for mercury reaches 0. Is it a surprise that the mercury levels on this test are not in the elevated range delineated by Doctor's Data? When we did the first chelation on DMSA, the urine sample had 4.9 micrograms of mercury per gram of Creatinine. Anyway, I plan to keep checking about every month or so but any advise regarding these results as to whether we are on the right track would be appreciated. Ken Sokolski -------------------------- eGroups Sponsor -------------------------~-~> Best friends, most artistic, class clown Find 'em here: 1/8014/9/_/705339/_/967327734/ ---------------------------------------------------------------------_ -> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2000 Report Share Posted August 31, 2000 Dear Amy and others, We saw a large amount of mercury come out in the urine after DMSA/ALA so I am guessing that if the stool were added in, a tremendous amount of mercury is being dumped. My plan is to monitor the urine until we get back zero. Then I will also do a stool test to see if anything is coming out there. I do not look forward to doing stool tests unless I have to. Ken Sokolski Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 Ken, I think this is a good plan. When you do your first stool, the amount of arsenic coming out will shock you. Amy ------------------ Reply Separator -------------------- Originally From: KKSOKOLSKI@... Subject: Re: [ ] toxicity reference limits Date: 08/30/2000 11:41pm -------------------------- eGroups Sponsor -------------------------~-~> Get Your Free PC World Newsletter Today! 1/8237/9/_/705339/_/967693280/ ---------------------------------------------------------------------_ -> Dear Amy and others, We saw a large amount of mercury come out in the urine after DMSA/ALA so I am guessing that if the stool were added in, a tremendous amount of mercury is being dumped. My plan is to monitor the urine until we get back zero. Then I will also do a stool test to see if anything is coming out there. I do not look forward to doing stool tests unless I have to. Ken Sokolski Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 Amy, Thanks for the advice. I also notice that on the DMSA-SR/ALA the first day of chelation is not too bad and subsequent days get worse as far as behavior. We are on the third round of it now and it seems (with fingers crossed) that the effects of detox are lessening compared to when we started. He is scheduled to start IVIG in mid-October. By that time we will have completed 8 rounds of DMSA-SR/ALA. I would have liked to delay it further but I'm afraid of losing insurance coverage. The IVIG goes on for another six months anyway and by that time by your formula, he should have had over 50% of the mercury removed. He will get the IVIG three days after his DMSA-SR/ALA dose so I don't think there will be any interaction. He is really trying to talk more. I see some positive signs but I also think he needs more and I am hoping the IVIG will be the extra he needs. Please let me know what you think. I am hoping to meet you at the conference in San Diego. Talk to you soon. Ken Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 Just wanted to add to my own message. Now that day 2 of this round is upon us, my son is clearly much more miserable, irritable, and tired compared to yesterday when he seemed fine. It looks like it takes about 24 hours for the real detox to begin and another 24 hours after stopping chelation for it to end. Based on this, I am switching to Friday, Saturday, Sunday chelation so that he can get the most out of his education. He did sleep through the night last night but is still tired today. His appetite was also greater yesterday. I am not seeing the high volume of urine and stool we saw on rounds 1 and 2 of DMSA-SR/ALA. On the first round we measured a large amount of mercury and cadmium in the urine. I am going to recheck what is coming out in one month, about a week before starting IVIG. I definitely notice when we are chelating a big increase in sound sensitivity and more problems following directions. On the off days, his ability to understand and follow directions increases and he is talking more. I have to tell you a funny story though which just tells you what these kids are taking in when we may not realize it. This morning we were in the hot tub near the pool and an older woman asked if she could have the hot tub to herself to do exercises for five minutes. My son was swimming in there and I thought it was going to be impossible to get him out. Before I could even ask him to leave, he walked right out of the hot tub, took my hand, pushed me into the main pool, then jumped in himself. Almost exactly five minutes later after swimming around, he returned to the hot tub as the woman was leaving. She said " thanks, " and he jumped back in. He understood the whole situation but didn't say much of anything. Then, last night he wanted my attention while I was on the computer. He sat on my lap, grabbed the mouse and clicked on " START " on the bottom left. When the menu came up he clicked on " SHUT DOWN " and then clicked " OK " so the computer shut off. As soon as he did this, he dragged me away to the bed and made me tickle him. Again, he didn't say much but he got his point across. I've never seen him shut down the computer before and don't know who, if anyone, taught him to do it. Just a couple examples of the kinds of things that are going on around here. Oh, when he really wants something, he will use a couple of words to get his point across. When I asked him yesterday whether he wanted a shower or a bath he said, " Bath Daddy...bubbles me. " We have a lot of work to do on language but the ability is there. Ken Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 Ken, what wonderful and inspiring stories! thank you, Re: [ ] toxicity reference limits > > Just wanted to add to my own message. Now that day 2 of this round is upon > us, my son is clearly much more miserable, irritable, and tired compared to > yesterday when he seemed fine. It looks like it takes about 24 hours for the > real detox to begin and another 24 hours after stopping chelation for it to > end. Based on this, I am switching to Friday, Saturday, Sunday chelation so > that he can get the most out of his education. He did sleep through the night > last night but is still tired today. His appetite was also greater yesterday. > I am not seeing the high volume of urine and stool we saw on rounds 1 and 2 > of DMSA-SR/ALA. On the first round we measured a large amount of mercury and > cadmium in the urine. I am going to recheck what is coming out in one month, > about a week before starting IVIG. I definitely notice when we are chelating > a big increase in sound sensitivity and more problems following directions. > On the off days, his ability to understand and follow directions increases > and he is talking more. I have to tell you a funny story though which just > tells you what these kids are taking in when we may not realize it. This > morning we were in the hot tub near the pool and an older woman asked if she > could have the hot tub to herself to do exercises for five minutes. My son > was swimming in there and I thought it was going to be impossible to get him > out. Before I could even ask him to leave, he walked right out of the hot > tub, took my hand, pushed me into the main pool, then jumped in himself. > Almost exactly five minutes later after swimming around, he returned to the > hot tub as the woman was leaving. She said " thanks, " and he jumped back in. > He understood the whole situation but didn't say much of anything. Then, last > night he wanted my attention while I was on the computer. He sat on my lap, > grabbed the mouse and clicked on " START " on the bottom left. When the menu > came up he clicked on " SHUT DOWN " and then clicked " OK " so the computer shut > off. As soon as he did this, he dragged me away to the bed and made me tickle > him. Again, he didn't say much but he got his point across. I've never seen > him shut down the computer before and don't know who, if anyone, taught him > to do it. Just a couple examples of the kinds of things that are going on > around here. Oh, when he really wants something, he will use a couple of > words to get his point across. When I asked him yesterday whether he wanted a > shower or a bath he said, " Bath Daddy...bubbles me. " We have a lot of work to > do on language but the ability is there. > Ken > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2000 Report Share Posted September 4, 2000 Sounds good. With my kids, there were new skills were evident each week. I understand that how fast our kids normalize depends on several factors, including the age they got autism and when effective intervention occurs. Also it takes some time for the kids to learn " missed " developmental lessons, but they can go thru this quickly, especially if they are getting speech and sensory integration therapy. keep going. Sounds good. Beverly > Just wanted to add to my own message. Now that day 2 of this round is upon > us, my son is clearly much more miserable, irritable, and tired compared to > yesterday when he seemed fine. It looks like it takes about 24 hours for the > real detox to begin and another 24 hours after stopping chelation for it to > end. Based on this, I am switching to Friday, Saturday, Sunday chelation so > that he can get the most out of his education. He did sleep through the night > last night but is still tired today. His appetite was also greater yesterday. > I am not seeing the high volume of urine and stool we saw on rounds 1 and 2 > of DMSA-SR/ALA. On the first round we measured a large amount of mercury and > cadmium in the urine. I am going to recheck what is coming out in one month, > about a week before starting IVIG. I definitely notice when we are chelating > a big increase in sound sensitivity and more problems following directions. > On the off days, his ability to understand and follow directions increases > and he is talking more. I have to tell you a funny story though which just > tells you what these kids are taking in when we may not realize it. This > morning we were in the hot tub near the pool and an older woman asked if she > could have the hot tub to herself to do exercises for five minutes. My son > was swimming in there and I thought it was going to be impossible to get him > out. Before I could even ask him to leave, he walked right out of the hot > tub, took my hand, pushed me into the main pool, then jumped in himself. > Almost exactly five minutes later after swimming around, he returned to the > hot tub as the woman was leaving. She said " thanks, " and he jumped back in. > He understood the whole situation but didn't say much of anything. Then, last > night he wanted my attention while I was on the computer. He sat on my lap, > grabbed the mouse and clicked on " START " on the bottom left. When the menu > came up he clicked on " SHUT DOWN " and then clicked " OK " so the computer shut > off. As soon as he did this, he dragged me away to the bed and made me tickle > him. Again, he didn't say much but he got his point across. I've never seen > him shut down the computer before and don't know who, if anyone, taught him > to do it. Just a couple examples of the kinds of things that are going on > around here. Oh, when he really wants something, he will use a couple of > words to get his point across. When I asked him yesterday whether he wanted a > shower or a bath he said, " Bath Daddy...bubbles me. " We have a lot of work to > do on language but the ability is there. > Ken Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2000 Report Share Posted September 5, 2000 Thanks Beverly. Encouragement helps. is nine but we have been detoxing him for several years. I know his body is resilient. He has had seizure-like activity which has caused his abilities to go up and down. I know the wires are there if we can just get the problem under control. Ken Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2000 Report Share Posted September 6, 2000 Could someone tell me what IVIG Is and what it does?? I'm still trying to learn all I can. Thanks so much! Jill _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2000 Report Share Posted September 6, 2000 Ken, I think you are right about IVIG. I think we are going to need it at some time in our kids who have autoimmunity issues. The only question is when? Amy ------------------ Reply Separator -------------------- Originally From: KKSOKOLSKI@... Subject: Re: [ ] toxicity reference limits Date: 09/03/2000 12:19pm -------------------------- eGroups Sponsor -------------------------~-~> GET A NEXTCARD VISA, in 30 seconds! Get rates of 2.9% Intro or 9.9% Ongoing APR* and no annual fee! Apply NOW! 1/7872/9/_/705339/_/967997963/ ---------------------------------------------------------------------_ -> Amy, Thanks for the advice. I also notice that on the DMSA-SR/ALA the first day of chelation is not too bad and subsequent days get worse as far as behavior. We are on the third round of it now and it seems (with fingers crossed) that the effects of detox are lessening compared to when we started. He is scheduled to start IVIG in mid-October. By that time we will have completed 8 rounds of DMSA-SR/ALA. I would have liked to delay it further but I'm afraid of losing insurance coverage. The IVIG goes on for another six months anyway and by that time by your formula, he should have had over 50% of the mercury removed. He will get the IVIG three days after his DMSA-SR/ALA dose so I don't think there will be any interaction. He is really trying to talk more. I see some positive signs but I also think he needs more and I am hoping the IVIG will be the extra he needs. Please let me know what you think. I am hoping to meet you at the conference in San Diego. Talk to you soon. Ken Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 Amy, I don't know when the optimal time would be. Unfortunately due to getting insurance and Dr. Gupta to be willing to do it starting in Mid-October, I cannot wait any longer than this so we will see what happens. It continues over at least six months and by then we should have chelated most of the mercury out. Dr. Gupta agreed to let us continue chelation while doing the IVIG but I will be giving the DMSA/ALA-SR on Friday, Saturday, and Sunday and doing IVIG on Wednesday. Also, we continue to give him homeopathic treatments and I am going to begin a group of natural treatments for candida based on information learned from a friend in northern California. I hope I have more information on this at the conference. We are doing well but he is still hyper and laughing a lot. I don't know if it's intoxication or just being so happy that he is feeling so much better. Talk to you soon. Ken Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 Jill, IVIG is intravenous gamma globulin. It has been effective in autoimmune conditions and seizures, conditions which many autistic children have. It has been effective in treating some autistic children by Dr. Bradstreet (Florida) and Dr. Gupta (California). Recent studies suggest it is needed in high dosages which earlier studies were not using. Ken Sokolski Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 I think we detox our kids from metals, eliminate allergins, clean the gut from yeast, upgrade the nutrition and retest the autoantibodies. I have a theory that the brain autoimmunity problem may recover once we settle down the hyper reactive immune system thru chelation and other measures(custom treatment based on each childs cond. and test results). I am reluctant to use IVIG as an early treatment. It is a pooled blood product and there are alot of people who have gotten serous viral infections from its use. Detox and restore health. We may not even have to go there. Beverly > Ken, > > I think you are right about IVIG. I think we are going to need it > at some time in our kids who have autoimmunity issues. The only > question is when? > > Amy > > > > ------------------ Reply Separator -------------------- > Originally From: KKSOKOLSKI@A... > Subject: Re: [ ] toxicity reference limits > Date: 09/03/2000 12:19pm > > > -------------------------- eGroups Sponsor > -------------------------~-~> > GET A NEXTCARD VISA, in 30 seconds! Get rates > of 2.9% Intro or 9.9% Ongoing APR* and no annual fee! > Apply NOW! > 1/7872/9/_/705339/_/967997963/ > -------------------------------------------------------------------- -_ > -> > > Amy, > Thanks for the advice. I also notice that on the DMSA-SR/ALA the first > day of > chelation is not too bad and subsequent days get worse as far as > behavior. We > are on the third round of it now and it seems (with fingers crossed) > that the > effects of detox are lessening compared to when we started. He is > scheduled > to start IVIG in mid-October. By that time we will have completed 8 > rounds of > DMSA-SR/ALA. I would have liked to delay it further but I'm afraid of > losing > insurance coverage. The IVIG goes on for another six months anyway and > by > that time by your formula, he should have had over 50% of the mercury > removed. He will get the IVIG three days after his DMSA-SR/ALA dose so > I > don't think there will be any interaction. He is really trying to talk > more. > I see some positive signs but I also think he needs more and I am > hoping the > IVIG will be the extra he needs. Please let me know what you think. I > am > hoping to meet you at the conference in San Diego. Talk to you soon. > Ken > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 Thanks Ken for the information. How did you learn about IVIG and where could I get more information? The only Dr. that I knew of that was treating the immune system was Dr. Golberg with the protocol. Has anyone looked into that or had success with it? It makes good sense to treat the immune system, I am just confused. With all the different paths its hard to find a clearly marked road to take with this. Maybe there isnt one that exsists Should a person Chelate first or should they be treating the immune system? Maybe a person should do both at once? I would appreciate any more advice anyone might have. Thanks! Jill _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 I was under the impression there were little risks with IVIG? Anyone have studies showing otherwise? I am considering this in the future. Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 Ken Could you join my interventions in autism list? This info would be INVALUABLE!? We do whatever it takes to get our kids out of this mess. PLEEEZ (you can go on digest too if you feel overwhelmed on this list?) intervenonelist (or egroups) Thanks Kathy B Re: [ ] toxicity reference limits > >Amy, >I don't know when the optimal time would be. Unfortunately due to getting >insurance and Dr. Gupta to be willing to do it starting in Mid-October, I >cannot wait any longer than this so we will see what happens. It continues >over at least six months and by then we should have chelated most of the >mercury out. Dr. Gupta agreed to let us continue chelation while doing the >IVIG but I will be giving the DMSA/ALA-SR on Friday, Saturday, and Sunday and >doing IVIG on Wednesday. Also, we continue to give him homeopathic treatments >and I am going to begin a group of natural treatments for candida based on >information learned from a friend in northern California. I hope I have more >information on this at the conference. We are doing well but he is still >hyper and laughing a lot. I don't know if it's intoxication or just being so >happy that he is feeling so much better. >Talk to you soon. >Ken > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 I agree. Blood product. My immunologist suggested to me that he had to call most of all his patients who did IVIG in May becuaes they suspected JACOB something disase (kind of like mad cow but the human form). Don't know if I want to trade that for autism? KAthy Re: [ ] toxicity reference limits >> Date: 09/03/2000 12:19pm >> >> >> -------------------------- eGroups Sponsor >> -------------------------~-~> >> GET A NEXTCARD VISA, in 30 seconds! Get rates >> of 2.9% Intro or 9.9% Ongoing APR* and no annual fee! >> Apply NOW! >> 1/7872/9/_/705339/_/967997963/ >> -------------------------------------------------------------------- >-_ >> -> >> >> Amy, >> Thanks for the advice. I also notice that on the DMSA-SR/ALA the >first >> day of >> chelation is not too bad and subsequent days get worse as far as >> behavior. We >> are on the third round of it now and it seems (with fingers >crossed) >> that the >> effects of detox are lessening compared to when we started. He is >> scheduled >> to start IVIG in mid-October. By that time we will have completed 8 >> rounds of >> DMSA-SR/ALA. I would have liked to delay it further but I'm afraid >of >> losing >> insurance coverage. The IVIG goes on for another six months anyway >and >> by >> that time by your formula, he should have had over 50% of the >mercury >> removed. He will get the IVIG three days after his DMSA-SR/ALA dose >so >> I >> don't think there will be any interaction. He is really trying to >talk >> more. >> I see some positive signs but I also think he needs more and I am >> hoping the >> IVIG will be the extra he needs. Please let me know what you think. >I >> am >> hoping to meet you at the conference in San Diego. Talk to you soon. >> Ken >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 no disrespect Kathy but I joined your list on digest and only got 10+ postings from YOU originally for autism treatment, is there anyone else on your list ?? rgds paul --- Jim Blanco <kblanco@...> wrote: > Ken > Could you join my interventions in autism list? > This info would be > INVALUABLE!? We do whatever it takes to get our > kids out of this mess. > PLEEEZ (you can go on digest too if you feel > overwhelmed on this list?) > intervenonelist (or egroups) > Thanks > Kathy B > Re: [ ] toxicity reference > limits > > > > > >Amy, > >I don't know when the optimal time would be. > Unfortunately due to getting > >insurance and Dr. Gupta to be willing to do it > starting in Mid-October, I > >cannot wait any longer than this so we will see > what happens. It continues > >over at least six months and by then we should have > chelated most of the > >mercury out. Dr. Gupta agreed to let us continue > chelation while doing the > >IVIG but I will be giving the DMSA/ALA-SR on > Friday, Saturday, and Sunday > and > >doing IVIG on Wednesday. Also, we continue to give > him homeopathic > treatments > >and I am going to begin a group of natural > treatments for candida based on > >information learned from a friend in northern > California. I hope I have > more > >information on this at the conference. We are doing > well but he is still > >hyper and laughing a lot. I don't know if it's > intoxication or just being > so > >happy that he is feeling so much better. > >Talk to you soon. > >Ken > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 I think you have to work on both, in my opinion ? What may take the mercury out, could also drain you of vital minerals and vitamins....I would think before would be a good idea, get their livers to detox properly, then do the chelation, then go back on the immune system and refurbishing their stores? Kathy Re: [ ] toxicity reference limits > >Thanks Ken for the information. How did you learn about IVIG and where >could I get more information? > >The only Dr. that I knew of that was treating the immune system was Dr. >Golberg with the protocol. Has anyone looked into that or had success >with it? It makes good sense to treat the immune system, I am just >confused. With all the different paths its hard to find a clearly marked >road to take with this. Maybe there isnt one that exsists > >Should a person Chelate first or should they be treating the immune system? >Maybe a person should do both at once? I would appreciate any more advice >anyone might have. Thanks! Jill >_________________________________________________________________________ >Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > >Share information about yourself, create your own public profile at >http://profiles.msn.com. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 Yes, loads more....it is more on this issue of late becuase it is all new Kathy Re: [ ] toxicity reference >> limits >> >> >> > >> >Amy, >> >I don't know when the optimal time would be. >> Unfortunately due to getting >> >insurance and Dr. Gupta to be willing to do it >> starting in Mid-October, I >> >cannot wait any longer than this so we will see >> what happens. It continues >> >over at least six months and by then we should have >> chelated most of the >> >mercury out. Dr. Gupta agreed to let us continue >> chelation while doing the >> >IVIG but I will be giving the DMSA/ALA-SR on >> Friday, Saturday, and Sunday >> and >> >doing IVIG on Wednesday. Also, we continue to give >> him homeopathic >> treatments >> >and I am going to begin a group of natural >> treatments for candida based on >> >information learned from a friend in northern >> California. I hope I have >> more >> >information on this at the conference. We are doing >> well but he is still >> >hyper and laughing a lot. I don't know if it's >> intoxication or just being >> so >> >happy that he is feeling so much better. >> >Talk to you soon. >> >Ken >> > >> > Quote Link to comment Share on other sites More sharing options...
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