Guest guest Posted April 5, 2001 Report Share Posted April 5, 2001 Well, I am grateful for Mr. Beckwith's post. It is certainly encouraging to read about his progress over the years. I compliment him on keeping such good quality records and reporting so completely. My own personal search for treatment details on Pralt and Oxyplus, not counting FO/CC, seem to tend toward a clean intestine, oxygenation, an alkaline system, citric acid, sulphur, Omega -3 oil and a strong immune system. Additionally, suppliers suggest various supplements. This causes me to wonder if Mr. B. made dietary changes, drank scotch, used lots of capsules each day, ran a couple miles, et cetera. Based on your experience, would you send us to other than just FS/OO; maybe a bit of Beta Glucan? is that what I'm reading? Obie. History > Hi, > > Partly in answer to a message from Jim and partly for the benefit of any of > you who might be interested in studying what has happened to me I will post > my history. If uninterested it doesn't take long to delete. > > I am still learning. I am now 79 and 3 months along. > > I do not believe that those who warn against the use of Flax Oil for PCa are > correct. > > this is very important because if they are correct I, and many others, are > long dead. If they are incorrect they are going to condemn a lot of men to > an earlier, more painful death than would have been necessary. There is no > argument with this statement. > > PCa history and Analysis > > Over the last nine years I have learned quite a bit about PCa. One thing I > have learned is that when a man is diagnosed with stage 4 [D] PCa with the > best standard treatment the medical establishment believes they are doing > well to have 60% still alive in five years and 10% still alive in 10 years. > Since this was written I have learned tha the figures here are a little > pessimistic. > > In January of 1991 during a routine physical I was found via a DRE to have > an enlarged Prostate. I was referred to a Uroligist, Dr. Reynolds > at St. 's hospital in Knoxville who confirmed that finding and arranged > for a Biopsy. > > This was done at St. 's and all cores showed Malignant. There was no > Gleason score given. Dr. Reynolds simply told me that some PCa was very > aggressive and most were slow developing and mine was in between. It was > not slow. > > On March 8, 1991 blood tests showed a PSA of 75. A bone scan indicated no > spread and it was decided to go with a Radical Prostectomy. > > The operation was set up for March 19, 1991. During the procedure it was > found that the cancer had metastasized to the lymph glands and the operation > was aborted. Doctor Reynolds told me that was not the answer to the > problem. Mine was stage IV, or D. > > Today, going into the tenth year, the PSA is 19.1 and improving. Very recent > bone and body scans have shown no evidence of metastasis. I am way better > off than I was nine years ago. > > I have had no standard treatment nor drugs since October 19, 1995. This was > due to confidence in the use of Flaxseed Oil and cottage cheese from what I > knew of Dr. Johanna Budwig's procedures in Germany. I plan to continue this > approach. > > In no way am I urging anyone to do what I have done. That is up to each > individual. I have learned much from the lists and am grateful for them. I > compliment Don Cooley for setting them up. > > The rest of this account is a description of what was done, mistakes that > were made, and things learned to the present date, Feb 22, 2000. > > American Medical people seem reluctant to experiment with anything just for > the sake of the health of people like me. > > Let's face it, medicine and drugs are big bucks and they are not in business > primarily for my health. Patients like me pay the bills and that keeps the > business going. > > > In early April I began Lupron & Eulexin. I was the first on whom my doctor > used it. I also had learned of the Work of Dr. Johanna Budwig in Germany > with flaxseed oil and cottage cheese and found a source and began to use it > at two tablespoons a day with a half cup of cottage cheese. Lupron shots > were given monthly. > > March 5, 1991 the PSA was 75. > On Sept 18, 1991 the PSA was 0.2 . > March 26, 1992 the PSA was 0.1 > August 25, 1992 the PSA was 0.0 > Feb 23, 1993 The PSA was 0.1 > August 23, 1993 The PSA was 0.2 > Feb 19, 1994 The PSA was 0.1 > 1 > August, 21, 1994 The PSA was 0.0 > Feb 1995 The PSA was 0.6 > Oct 19, 1995 The PSA was 1.1 > May 5, 1996 The PSA was 1.6 > Dec. 9, 1997 The PSA was 1.46 > Aug 7, 1998 The PSA was 4.89 > Nov 6, 1998 PSA 8.78 > February 1999 PSA was 10.1. This was a 13 % rise instead of 100 %. > > May 99 PSA now 14.4, a 43% rise. Now I went to five tablespoons a day and > careful about the protein. > > May 99 to Aug 99 PSA now 18.4, an increase of 28%. > Oct.18, 1999 PSA 16.4 > Nov 1999. PSA 18.7 > Jan 5, 2000 PSA 22.2 > Feb 15 PSA 19.1 > This was a 3.1 drop in the last six weeks. > > A Bone Scan and Prostascint in mid to late December showed no evidence of > metastasis. > > April 1, 2000 I PSA 12 .9. > May 21 The PSA was 20.2 > July 7 The PSA was 22.1 > Aug 21 The PSA wasw 40 > Sept. 21 The PSA was 36 > Oct 19 the PSA was 7.9 > Dec 9 the PSA was 1.7 > Feb 5 the PSA was 4.9 > > In trying to figure out what caused the PSAs to rise There appeared to be > one major factor that was different. > I am a beekeeper and this summer has been the most stressful summer I have > ever had. > We had some trips that caused fatigue to the extent that I was almost ill. > > I understand that things like this can cause havoc with the immune system > and can cause a rise in the PSA that can range from 50% to 100%. > > I decided to take two monthly Lupron shots to help bring the PSA down if I > am not refactory. I am also using an extract from Agaricus Brazei Murill > mushroom which seems to be having great results strengthening the immune > system, and continuing with the Flax Oil. > > It was a month before I got that started, and had another PSA on Sept 21 > when I had the first Lupron shot. I was afraid there might have been a > different mutation and the PSA would be skyrocketing. > > The PSA was 36 and dropping. The stress is off and there will be many fewer > bees next season if I am still here. I am no longer concerned that anything > unusual is happening. > > I had the second Lupron shot on Thursday, Oct. 19. I also had blood taken > for a PSA just prior to the Lupron shot. > > In discussions attempting to analyzy what had happened most were inclined to > think that it was the Lupron that caused the drop. > > However, upon studying the PSAs more closely I realized that beginning with > Aug 1994 the PSA was rising steadily for over a year while I was still on > Lupron. It seems logical to assume that by that time I was becoming hormone > refactory and since that time I have been fighting a hormone refactory, semi > aggressive PCa with nothing other than cottage cheese, Flaxseed oil and some > enzymes. > > At the time I took the Lupron on Sept. 21, I also began the use of Agaricus > Blazei Murill mushroom which is a potent source of Beta Glucan. It seems > within the realm of probability that the Beta Glucan was a strong aid in the > drop in PSA. > > I had a body scan in late December of 2000 and there was no detectable > cancer. All tests were normal. This was better than it was in Jan 1991. > With the technology that the surgeon had at that time [he did not yet know > what Lupron would do] he did not expect me to live six months. > > With the technology that exists now, I believe that without the FO/CC I > would have been dead somewhere in 1996. That is not certain; it is an > informed guess. > > I am now using 600 mgs of Beta Glucan a day and plan to go to 800 with 8000 > mgs of time release Vitamin C and will see hat effect that has on the PSA. > > Cliff > > > > > > > > > > > > > > > > > > ================================================= > UNSUBSCRIBING FROM THE PRALT-DISCUSS LIST: > > Registered Topica users can unsubscribe from the list on the web with the click of a button. At the Topica site, while in the Pralt-Discuss List, in their list preferences. > > Subscribers can also unsubscribe from your list via email simply by sending a BLANK email to: > > Pralt-Discuss-unsubscribe@... > > ==^================================================================ > EASY UNSUBSCRIBE click here: http://topica.com/u/?b1dfcn.b2vCHe > Or send an email Pralt-Discuss-unsubscribe@... > This email was sent to: obie2@... > > T O P I C A -- Learn More. Surf Less. > Newsletters, Tips and Discussions on Topics You Choose. > http://www.topica.com/partner/tag01 > ==^================================================================ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Hi Kim, I actually do mostly read the posts in order and have done since the begginning (i.e the first post) :-) I like very much to understand things in context. I had gotten behind recently due to things offline, but am quickly catching up again :-) > > I've read many posts seeking the truth or knowledge of the beginnings > on many topics, questions posed and sometimes answered. I am the type > to do research outside of the forum if I find a topic interesting. > The latest posts between members who seem to have some type of > negative history led me to do some reading. I spent a long time going > through old posts to find why discord on the forum is comming up so > frequently. > > A post can be interpreted entirely different depending on who we are, > our backgrounds, beliefs, etc. My suggestion to all who feel > disgusted would be to take the time and effort to read in order the > posts from the beginning, not all the way back but from where the > misunderstanding or confrontations began. I've been enlightened but > will keep my opinions to myself. > > Kim > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 oops, sorry. sent this to the wrong list ) it was " the other one " where the discussion was raging once again. gundula Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 So very true, Gundula! When was a baby 34 years ago, I tried to keep up with the latest jargon, but it changed every six months and I stopped trying. I don't even use such atrocious phrases as " he or she. " The English language got along just fine for centuries with the masculine pronoun being the neuter pronoun as well. No one has convinced me why this should change. granny, un-PC history > >Mongolian Idiot >Mongoloid >Retarded >Mentally disabled >Challenged >Special Needs >Down Syndrome >Downie, Downs >Trisomie 21 > >I am sure I have forgotten some. Originally all of these terms had no >negative connotation but were simply discriptive. >The negative meanings came with time and with use, with people not wanting >to have anything to do with " them " . >The negative feelings towards our children do not change with the name, >sadly enough, but its true. It takes a lot more than a new name to change an >attitude. A new name can help, not using an old name can help as well. But >it is the attitude that needs changing, not primarily the name. > >I have seen a lot of change in the years that I worked as a nurse, and even >more change since I have had my daughter and been personally confronted with >attitudes and names. > >Things are definitely not what they could be yet, but they are improving. >Name or no name, old name or new. Our children are being more and more >accepted into normal society, much much more than when I was a child. > >So I don't worry too much about names. I do worry about attitudes. > >And I do worry about intolerance in general. > >Just a bit of history. > >Gundula, in Germany, where history took a bad turn not too long ago. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 I agree!!! I may be new to this community, but I believe (and always have believed) words are just words. It's the intent of the person using the word(s) that draws any battle lines. And for me, it also has to do with the person. If they are already an " idiot " , then even the intent behind what they say loses value and the battle lines are wiped away and at that point, only Darwin can help. Sincerely, (Granny's newest member of her UN-PC club) history Mongolian Idiot Mongoloid Retarded Mentally disabled Challenged Special Needs Down Syndrome Downie, Downs Trisomie 21 I am sure I have forgotten some. Originally all of these terms had no negative connotation but were simply discriptive. The negative meanings came with time and with use, with people not wanting to have anything to do with " them " . The negative feelings towards our children do not change with the name, sadly enough, but its true. It takes a lot more than a new name to change an attitude. A new name can help, not using an old name can help as well. But it is the attitude that needs changing, not primarily the name. I have seen a lot of change in the years that I worked as a nurse, and even more change since I have had my daughter and been personally confronted with attitudes and names. Things are definitely not what they could be yet, but they are improving. Name or no name, old name or new. Our children are being more and more accepted into normal society, much much more than when I was a child. So I don't worry too much about names. I do worry about attitudes. And I do worry about intolerance in general. Just a bit of history. Gundula, in Germany, where history took a bad turn not too long ago. ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 hi it was on the down syn list serv. here ist the url. http://listserv.nodak.edu/archives/down-syn.html almost the same discussion was on the DS canadian parent list at the same time. both discussions were triggered by the bombing in Irak. downsyndromecanadianparents/ gundula Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2008 Report Share Posted February 5, 2008 Moran and imbecile..... (not calling names, just adding to Gundula's list) Sorry, I am a bit late in responding. I've been under the weather and just getting back to speed. The Diagnostic and Statistical Manual use to classify mental retardation as idiot, moran and imbecile. Now it's Mild MR, Moderate MR, Severe/profound MR (I think - it's been awhile since I looked in the DSM-IVR). These terms are approved by the American Psychological Association for the DSM - which is used not only to classify, but for diagnositc and billing purposes. Fourteen years ago, there was discussion in my Psychological Assessment in Children's class (graduate level) that there was a movement to remove Mental retardation. Not much has changed in the past 14 years. The " M " word is racist against the people of Mongolia. When I worked on Tim's genealogy, others researching his paternal grandfather's mother's side of the family suspect her roots came from Mongolia (she was born in Boryslov, Ukraine). I have been waiting for years for someone to ask me if is a " M " because when they do, I have the perfect response ready--and they are going to learn more about my husband's family then they wanted to...lol! Gotta keep that humor. I see parents with younger children use Trisomy 21 and not Down syndrome. I'm still scratching my head on that one. I may have used that myself when was a baby. I may refer to as one having cognitive limitations. Heck, my memory is getting bad that could probably describe me as having cognitive limitations as well! He also has neurological impairments that include mental retardation. Just one more thing to add to the history part. I have a cousin with DS who is in his upper fifties now. His father, my grandfather's brother, advocated to have children like his son educated in school and the school did relent. However, it was children with learning disabilities that were included and not my cousin. was educated by his mother and father. His parents did a good job, but he could have had so much more if he were born when was. We have come a long way, but we still have a long way to go. cindysue@... history Mongolian Idiot Mongoloid Retarded Mentally disabled Challenged Special Needs Down Syndrome Downie, Downs Trisomie 21 I am sure I have forgotten some. Originally all of these terms had no negative connotation but were simply discriptive. The negative meanings came with time and with use, with people not wanting to have anything to do with " them " . The negative feelings towards our children do not change with the name, sadly enough, but its true. It takes a lot more than a new name to change an attitude. A new name can help, not using an old name can help as well. But it is the attitude that needs changing, not primarily the name. I have seen a lot of change in the years that I worked as a nurse, and even more change since I have had my daughter and been personally confronted with attitudes and names. Things are definitely not what they could be yet, but they are improving. Name or no name, old name or new. Our children are being more and more accepted into normal society, much much more than when I was a child. So I don't worry too much about names. I do worry about attitudes. And I do worry about intolerance in general. Just a bit of history. Gundula, in Germany, where history took a bad turn not too long ago. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2010 Report Share Posted September 10, 2010 > >>> Before there were meds --for every person in california that died >>> of AIDS we made a blanket, THERE WERE NO MEDS so we took these >>> blankets before our goverment to show them, 10 months later AZT >>> was approved, we had to work hard on pressureing our goverment for >>> medications. here are pictures of these blakets with names of >>> those who died on them. This is our history, and will not be >>> forgotton. >>> >>> > ---------- > > ---------- > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.