Guest guest Posted June 9, 2011 Report Share Posted June 9, 2011 Believe it or not, when I first started research the first study medications I researched was for Paripheral Neuropathy and the drug I researched was in competition with Cymbalta. Our Subjects for two weeks took Cymbalta and or Placebo then 2 weeks of the study drug and or placebo then they registered their pain on a scale. Lyrica is like cymbalta both are anti depressant drugs and work with the nervous system. People like diabetics or HIV patients like yourself get Neuropathy because of long term medication/drug use. We could not find a single diabetic to have any indication of nerve damage that was diet controlled or on natural diabetic supplements. The source of the problem is the pharmaceutical drugs. I would recommend you take Alpha-lipoic acid, which is an antioxidant that is made by the body and is found in every cell. This will repair much of nerve damage you have throughout your body. If you're looking for advise on what dosage to take of lyrica you'll have to talk to your doctor. He's got your health in his control depending on what dosage you want to be put on. However the people from my health store recommend Alpha Lipoic Acid to anybody with Neuropathy problems and it helps them out tremendously. From: DOUG MAN <dougman1@...> Subject: Paripheral Neuropathy cures for AIDS Date: Thursday, June 9, 2011, 8:28 AM  I have Peripheral Neuropathy which causes extreme pain in my shins (lower legs) and feet. Sometimes it makes it difficult to walk any distance at all. My doctor has me on Lyrica which stops my legs from jumping and twitching but does not help the pain much. He now increased the dose of Lyrica saying a higher does will stop the pain. What do you guys take or do for Neuropathic pain in your legs and feet? Any ideas and information will be helpful. Doug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2011 Report Share Posted June 9, 2011 hello, try this link and you might find it interesting. its not only good for pain but also for your immune system The 12 Safest And Most Effective Pain Relievers ________________________________ From: DOUG MAN <dougman1@...> cures for AIDS Sent: Thu, June 9, 2011 6:28:47 AM Subject: Paripheral Neuropathy  I have Peripheral Neuropathy which causes extreme pain in my shins (lower legs) and feet. Sometimes it makes it difficult to walk any distance at all. My doctor has me on Lyrica which stops my legs from jumping and twitching but does not help the pain much. He now increased the dose of Lyrica saying a higher does will stop the pain. What do you guys take or do for Neuropathic pain in your legs and feet? Any ideas and information will be helpful. Doug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2011 Report Share Posted June 9, 2011 Don, Do they take Alpha Lipoic Acid and something like Lyrica or just the Alpha Lipoic Acid and nothing else? Paripheral Neuropathy cures for AIDS Date: Thursday, June 9, 2011, 8:28 AM I have Peripheral Neuropathy which causes extreme pain in my shins (lower legs) and feet. Sometimes it makes it difficult to walk any distance at all. My doctor has me on Lyrica which stops my legs from jumping and twitching but does not help the pain much. He now increased the dose of Lyrica saying a higher does will stop the pain. What do you guys take or do for Neuropathic pain in your legs and feet? Any ideas and information will be helpful. Doug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2011 Report Share Posted June 9, 2011 Hi Don, Thank you for the help. I like the way you seized the moment to bash pharmaceutical drugs. One thing I must say is that you never disappoint me. lol. Some of what you say is true. My peripheral Neuropathy is from use of the early monotherapy drugs for HIV, specifically DDI and D4T then used in higher doses than they use now, and they were used in monotherapy, not in combination like they do now. Today these drugs are much safer than they were before. I knew the risk of peripheral neuropathy when I started these drugs. I had a choice, like each of us do, I could let the virus go unchecked and take nothing (this is what you and some of the others in this group choose to do) , or I could risk ripping up my nerves and keep the virus in check. I chose the latter. I do pay the price now because I developed peripheral neuropathy which I knew was a risk. It is not all bad though. Having peripheral neuropathy helped me qualify for disability. Where can I get Alpha Lipoic Acid? I am interested in trying it. Doug Paripheral Neuropathy cures for AIDS Date: Thursday, June 9, 2011, 8:28 AM I have Peripheral Neuropathy which causes extreme pain in my shins (lower legs) and feet. Sometimes it makes it difficult to walk any distance at all. My doctor has me on Lyrica which stops my legs from jumping and twitching but does not help the pain much. He now increased the dose of Lyrica saying a higher does will stop the pain. What do you guys take or do for Neuropathic pain in your legs and feet? Any ideas and information will be helpful. Doug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2011 Report Share Posted June 9, 2011 Alot of what you say here is true Doug.  I have been speaking to people who have been diagnosed positive within the past 5 years or so.  Most are already on meds and many of them have told me that they haven't notice any side effects whatsoever other than initally but they say your body adjusts and you don't notice anymore.  Ones who were on meds back in the 80s to mid to late 90s are the ones who seemed to have the most problems from my findings so far.  I am concluding that it is true that the newer drugs are much safer but definitely not totally free of side effects (but that's most drugs right).  The newer meds are just ALOT better than they used to be.  Long term use is still questionable.  I'm still questioning people. What amazes me is how fast these new drugs can bring the virus down to undetectable levels.  One of my old buddies in Florida was undetectable within 2 months.  He said he didn't have any side effects and said he felt alot better since he started meds.  That was last summer.  I don't talk to him now because he had a strong crush on me and wouldn't take no for an answer so I kinda disappeared. What have you guys heard about the newer meds today? Randall ________________________________ From: DOUG MAN <dougman1@...> cures for AIDS Sent: Thursday, June 9, 2011 4:00 PM Subject: Re: Paripheral Neuropathy  Hi Don, Thank you for the help. I like the way you seized the moment to bash pharmaceutical drugs. One thing I must say is that you never disappoint me. lol. Some of what you say is true. My peripheral Neuropathy is from use of the early monotherapy drugs for HIV, specifically DDI and D4T then used in higher doses than they use now, and they were used in monotherapy, not in combination like they do now. Today these drugs are much safer than they were before. I knew the risk of peripheral neuropathy when I started these drugs. I had a choice, like each of us do, I could let the virus go unchecked and take nothing (this is what you and some of the others in this group choose to do) , or I could risk ripping up my nerves and keep the virus in check. I chose the latter. I do pay the price now because I developed peripheral neuropathy which I knew was a risk. It is not all bad though. Having peripheral neuropathy helped me qualify for disability. Where can I get Alpha Lipoic Acid? I am interested in trying it. Doug Paripheral Neuropathy cures for AIDS Date: Thursday, June 9, 2011, 8:28 AM I have Peripheral Neuropathy which causes extreme pain in my shins (lower legs) and feet. Sometimes it makes it difficult to walk any distance at all. My doctor has me on Lyrica which stops my legs from jumping and twitching but does not help the pain much. He now increased the dose of Lyrica saying a higher does will stop the pain. What do you guys take or do for Neuropathic pain in your legs and feet? Any ideas and information will be helpful. Doug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2011 Report Share Posted June 9, 2011 Honestly, when I was on meds I didn't have any noticeable side effects other than vivid dreams and a hard time waking up when I was on sustiva. Each person reacts differently. What concerned me was always the long term effects, which are unknown. Back to neuropathy, I think that may be what is bothering my brother. He is on pain meds for fibromyalgia. He does take lyrica. Don, are you saying the lyrica helps, or causes neuropathy? Any suggestions as to a dose of alpha lipoic acid for it? While you are at it, can you refresh us on the benefits of alpha lipoic acid for hiv and therapeutic dosage? Thanks, On Jun 9, 2011 5:40 PM, " Nonyo Biznazz " <nonyobiznazz@...> wrote: > Alot of what you say here is true Doug. I have been speaking to people who have been diagnosed positive within the past 5 years or so. Most are already on meds and many of them have told me that they haven't notice any side effects whatsoever other than initally but they say your body adjusts and you don't notice anymore. Ones who were on meds back in the 80s to mid to late 90s are the ones who seemed to have the most problems from my findings so far. I am concluding that it is true that the newer drugs are much safer but definitely not totally free of side effects (but that's most drugs right). The newer meds are just ALOT better than they used to be. Long term use is still questionable. I'm still questioning people. > > What amazes me is how fast these new drugs can bring the virus down to undetectable levels. One of my old buddies in Florida was undetectable within 2 months. He said he didn't have any side effects and said he felt alot better since he started meds. That was last summer. I don't talk to him now because he had a strong crush on me and wouldn't take no for an answer so I kinda disappeared. > > What have you guys heard about the newer meds today? > > > > Randall > > > ________________________________ > From: DOUG MAN <dougman1@...> > cures for AIDS > Sent: Thursday, June 9, 2011 4:00 PM > Subject: Re: Paripheral Neuropathy > > > > Hi Don, > Thank you for the help. I like the way you seized the moment to bash pharmaceutical drugs. One thing I must say is that you never disappoint me. lol. > > Some of what you say is true. My peripheral Neuropathy is from use of the early monotherapy drugs for HIV, specifically DDI and D4T then used in higher doses than they use now, and they were used in monotherapy, not in combination like they do now. Today these drugs are much safer than they were before. I knew the risk of peripheral neuropathy when I started these drugs. I had a choice, like each of us do, I could let the virus go unchecked and take nothing (this is what you and some of the others in this group choose to do) , or I could risk ripping up my nerves and keep the virus in check. I chose the latter. I do pay the price now because I developed peripheral neuropathy which I knew was a risk. It is not all bad though. Having peripheral neuropathy helped me qualify for disability. > > Where can I get Alpha Lipoic Acid? I am interested in trying it. > Doug > > Paripheral Neuropathy > cures for AIDS > Date: Thursday, June 9, 2011, 8:28 AM > > I have Peripheral Neuropathy which causes extreme pain in my shins (lower legs) and feet. Sometimes it makes it difficult to walk any distance at all. My doctor has me on Lyrica which stops my legs from jumping and twitching but does not help the pain much. He now increased the dose of Lyrica saying a higher does will stop the pain. > > What do you guys take or do for Neuropathic pain in your legs and feet? Any ideas and information will be helpful. > > Doug > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 Prednisone, 5 to 10 mg, works for me for most of my aches and pain. I found that it keeps viruses, XMRV, under control too. It can be ordered online from Canada without a prescrition, as most doctors will not give it to AIDS patients. Order early, as due to customs it will take 3 weeks to get the product. However, it is just a little more expensive this way but when one factors in a doctor appointment otherwise, it is about the same. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 All cartisones bring long term adversaries including psoriasis etc. This happens once you stop or even a tapering dose. Kumar On Fri, Jun 10, 2011 at 6:31 PM, livingwithouthivmeds < noreenelaine@...> wrote: > > > Prednisone, 5 to 10 mg, works for me for most of my aches and pain. I found > that it keeps viruses, XMRV, under control too. It can be ordered online > from Canada without a prescrition, as most doctors will not give it to AIDS > patients. Order early, as due to customs it will take 3 weeks to get the > product. However, it is just a little more expensive this way but when one > factors in a doctor appointment otherwise, it is about the same. > > > -- www.srisms.com For Solar Home Light Systems Call: 9247110759 / 9014110759 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 Prednisone does not cause psoriasis. It may or may not help with it. In fact, many skin problems are treated with it. Prednisone has some side effects such as affecting the cortisol production and weight gain if taken in large doses. In life, many things are a trade off. In the early days, AIDS patients were treated with steroids before more toxic HAART was on the scene. I for one am certainly willing to take Prednisone and its side effects over kidney/liver failure, heart attacks, cancer, etc. for the HAART and especially since HIV is an unproven virus in the first place. Prednisone helps with inflammation, which so many diseases seem to have their fair share. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 Hi Doug and , sorry for the late response. You can get alpha laplic acid at any vitamin store. You can take it in conjunction with your medications. as for your quesiton. Lyrica doesn't cause the neuropathy but it isn't going to make it better. It's long term drug use. It's just a long term side effect. Lyrica and Cymbalta alleviates the pain because they work directly with the nervous system. > > From: DOUG MAN <dougman1@...> > Subject: Paripheral Neuropathy > cures for AIDS > Date: Thursday, June 9, 2011, 8:28 AM > > I have Peripheral Neuropathy which causes extreme pain in my shins (lower legs) and feet. Sometimes it makes it difficult to walk any distance at all. My doctor has me on Lyrica which stops my legs from jumping and twitching but does not help the pain much. He now increased the dose of Lyrica saying a higher does will stop the pain. > > What do you guys take or do for Neuropathic pain in your legs and feet? Any ideas and information will be helpful. > > Doug > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 If HIV wasn't proven virus Why the cd4 comes low with HIV Presence ? Sent from my iPhone On Jun 10, 2011, at 10:55 PM, " livingwithouthivmeds " <noreenelaine@...> wrote: > Prednisone does not cause psoriasis. It may or may not help with it. In fact, many skin problems are treated with it. Prednisone has some side effects such as affecting the cortisol production and weight gain if taken in large doses. In life, many things are a trade off. In the early days, AIDS patients were treated with steroids before more toxic HAART was on the scene. I for one am certainly willing to take Prednisone and its side effects over kidney/liver failure, heart attacks, cancer, etc. for the HAART and especially since HIV is an unproven virus in the first place. Prednisone helps with inflammation, which so many diseases seem to have their fair share. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 Good questions Dan. In fact Don I was going to you that too. What Dose of Alpha Lipoic Acid should I take and how often do I take it. Thanks for your help. Paripheral Neuropathy > cures for AIDS > Date: Thursday, June 9, 2011, 8:28 AM > > I have Peripheral Neuropathy which causes extreme pain in my shins (lower legs) and feet. Sometimes it makes it difficult to walk any distance at all.. My doctor has me on Lyrica which stops my legs from jumping and twitching but does not help the pain much. He now increased the dose of Lyrica saying a higher does will stop the pain. > > What do you guys take or do for Neuropathic pain in your legs and feet? Any ideas and information will be helpful. > > Doug > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 Marc why don't you get it? We have explained it to you over and over and you yet have the same questions over and over again.....smh > Prednisone does not cause psoriasis. It may or may not help with it. In fact, many skin problems are treated with it. Prednisone has some side effects such as affecting the cortisol production and weight gain if taken in large doses. In life, many things are a trade off. In the early days, AIDS patients were treated with steroids before more toxic HAART was on the scene. I for one am certainly willing to take Prednisone and its side effects over kidney/liver failure, heart attacks, cancer, etc. for the HAART and especially since HIV is an unproven virus in the first place. Prednisone helps with inflammation, which so many diseases seem to have their fair share. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 I would go with what the label instructs you to take. i just called the vitamin store and she suggests for neuropathy the suggested dosage is 600-1200 milligrams. They have 600 milligram tablets, and they will not counter act with your medications. Since this is something your body produces naturally as we get older we produce less of it. you might want to get on CoQ10 also, that help with oxygenation of the viral organs too. CoQ10 is something else we produce less of as we age. > > From: DOUG MAN <dougman1@...> > Subject: Paripheral Neuropathy > cures for AIDS > Date: Thursday, June 9, 2011, 8:28 AM > > I have Peripheral Neuropathy which causes extreme pain in my shins (lower legs) and feet. Sometimes it makes it difficult to walk any distance at all.. My doctor has me on Lyrica which stops my legs from jumping and twitching but does not help the pain much. He now increased the dose of Lyrica saying a higher does will stop the pain. > > What do you guys take or do for Neuropathic pain in your legs and feet? Any ideas and information will be helpful. > > Doug > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 I looked into taking CoQ10 a long time ago. It is too expensive for me, although I think it might be helpful. rom: Don cures for AIDS Sent: Friday, June 10, 2011 1:27 PM Subject: Re: Paripheral Neuropathy I would go with what the label instructs you to take. i just called the vitamin store and she suggests for neuropathy the suggested dosage is 600-1200 milligrams. They have 600 milligram tablets, and they will not counter act with your medications. Since this is something your body produces naturally as we get older we produce less of it. you might want to get on CoQ10 also, that help with oxygenation of the viral organs too. CoQ10 is something else we produce less of as we age. > > From: DOUG MAN <dougman1@...> > Subject: Paripheral Neuropathy > cures for AIDS > Date: Thursday, June 9, 2011, 8:28 AM > > I have Peripheral Neuropathy which causes extreme pain in my shins (lower legs) and feet. Sometimes it makes it difficult to walk any distance at all... My doctor has me on Lyrica which stops my legs from jumping and twitching but does not help the pain much. He now increased the dose of Lyrica saying a higher does will stop the pain. > > What do you guys take or do for Neuropathic pain in your legs and feet? Any ideas and information will be helpful. > > Doug > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 yes it has gone up in price. I buy it for my mom. It would help you out, it would help anybody out lol. But a months supply has increased in price. > > From: DOUG MAN <dougman1@...> > Subject: Paripheral Neuropathy > cures for AIDS > Date: Thursday, June 9, 2011, 8:28 AM > > I have Peripheral Neuropathy which causes extreme pain in my shins (lower legs) and feet. Sometimes it makes it difficult to walk any distance at all... My doctor has me on Lyrica which stops my legs from jumping and twitching but does not help the pain much. He now increased the dose of Lyrica saying a higher does will stop the pain. > > What do you guys take or do for Neuropathic pain in your legs and feet? Any ideas and information will be helpful. > > Doug > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2011 Report Share Posted June 11, 2011 Is it proven effective for aids patients ? Sent from my iPhone On Jun 10, 2011, at 9:01 PM, " livingwithouthivmeds " <noreenelaine@...> wrote: > Prednisone, 5 to 10 mg, works for me for most of my aches and pain. I found that it keeps viruses, XMRV, under control too. It can be ordered online from Canada without a prescrition, as most doctors will not give it to AIDS patients. Order early, as due to customs it will take 3 weeks to get the product. However, it is just a little more expensive this way but when one factors in a doctor appointment otherwise, it is about the same. > > Quote Link to comment Share on other sites More sharing options...
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