Fevers

[Guest guest]

and All,

I noticed you mentioned in the early stages of Ampligen use you got fevers. I

have been taking Immunocal for many months now and still can only take 1/3 pack

a day or I will get fevers and sore

throat and swollen glands Have also been on the amino acid L-Glutamine which

gives glucose to the brain, helps me mentally and is also food for the immune

system. Now whenever I do too much I

seem to get fevers (normally have body temp of 97 degrees since CFS).

What I am wondering is if we need to get the fevers, sore throats, etc.-type

reaction to rid ourselves of whatever *bugs* we have causing the illness to

progress to recovery???? Maybe the fever is

a good thing and a sign of the immune system *waking up* and I should take a

higher dose of the Immunocal???

Does anybody know?????

Marcia

[Guest guest]

Ruby's glands are swollen and she had a flushed face and a fever which went up

to 40C last night. :-(

I have given her Belladonna once last night and twice today and am thankfully

now seeing improvement! Phew!.....Boy! it is very hard to accept the fever is

not to be tampered with and to try and trust! I was concerned a bit last night

cos of her high temp. and she looked so unwell. She is much better this

afternoon. Still has a big lump on right side of her throat though, just below

the ear. Im not sure if she has a cold with a nasty sore throat, mumps,

glandular fever or maybe strep........

Watching and waiting is difficult, isnt it........and having a mother that

hovers around suggesting now is the time to get the doctor doesnt help!! Gggrrr!

LOL.

Anyone have thoughts on if I should get the doc to come see her for a

confirmation of what it is? Thats all it would be. Suppose I'd like to know what

she has, specially if it is mumps, I have 2 friedns that want to bring their

kids for a visit! LOL!

Suzanne

dd Ruby 2.7yrs

South Wales

[Guest guest]

At 05:36 PM 02/11/2002 -0000, you wrote:

>

>Ruby's glands are swollen and she had a flushed face and a fever which

went up to 40C last night. :-(

>I have given her Belladonna once last night and twice today and am

thankfully now seeing improvement! Phew!.....Boy! it is very hard to accept

the fever is not to be tampered with and to try and trust! I was concerned

a bit last night cos of her high temp. and she looked so unwell. She is

much better this afternoon. Still has a big lump on right side of her

throat though, just below the ear. Im not sure if she has a cold with a

nasty sore throat, mumps, glandular fever or maybe strep........

>Watching and waiting is difficult, isnt it........and having a mother that

hovers around suggesting now is the time to get the doctor doesnt help!!

Gggrrr!

>LOL.

>Anyone have thoughts on if I should get the doc to come see her for a

confirmation of what it is? Thats all it would be. Suppose I'd like to know

what she has, specially if it is mumps, I have 2 friedns that want to bring

their kids for a visit! LOL!

YOu can give belladonna more frequently. If you don't see improvement you

don't have to wait.

My sweetie suddenly came down with a cold. he wouldn't take Vit c (but

wishes he had) and I started right away. I had sore throat times 1 day and

some congestion and swollen glands. Never went to my chest as it wouuld

have in years past before Vit C. So use the C and belladonna if need be -

or whatever matches.

I wouldn't want or need a diagnosis isf it wre me. No matter what it is,

shouldn't have friends visiting probably.

Sheri

>

>Suzanne

>dd Ruby 2.7yrs

>South Wales

>

>

>

[Guest guest]

Maya has been doing this for some time. I have since found out that

she has neutropenia. Before this they just said she had fevers of

unknown origin.

Carol

[Guest guest]

Carol,

my name is brandee, my sons name is caden, he is 4 and was recently diagnosed

with cvid. i have a question about the neutropenia, what is it? my son sometimes

has fevers and there not to sure why he runs them, and sometimes he can run up

to 107.2 fevers, i am not sure if this is something that i need to ask the

doctor about...thank you...

brandee davis

mother of caden (4)

camlo2k2001 <camlo2k@...> wrote:

Maya has been doing this for some time. I have since found out that

she has neutropenia. Before this they just said she had fevers of

unknown origin.

Carol

[Guest guest]

Carol,

my name is brandee, my sons name is caden, he is 4 and was recently diagnosed

with cvid. i have a question about the neutropenia, what is it? my son sometimes

has fevers and there not to sure why he runs them, and sometimes he can run up

to 107.2 fevers, i am not sure if this is something that i need to ask the

doctor about...thank you...

brandee davis

mother of caden (4)

camlo2k2001 <camlo2k@...> wrote:

Maya has been doing this for some time. I have since found out that

she has neutropenia. Before this they just said she had fevers of

unknown origin.

Carol

[Guest guest]

Try this link. I found it useful

http://www.ich.ucl.ac.uk/factsheets/diseases_conditions/severe_chronic

_neutropenia/

Carol

[Guest guest]

In a message dated 8/26/2003 4:25:37 AM Central Standard Time,

writes:

> Sometimes, I would get frustrated that the doctor's office considered his

> temp " low-grade " at 99.5....when he started at 96!!! They would not consider

> it a fever until it reached 100.5

This is exactly what happens with my son . He use to run VERY HIGH

temps with even the smallest of infections (ie, ear infections would result in

106 temp), now he runs NO temp with anything. It is very frustrating to take

him to the doctor's (even the immunology docs) because the very first question

they ask is " does he have a fever? " UGHHHH, he hasn't had a fever in over 3

years, despite having cellulitis, oral abcesses, an ear infection that was so

bad he had to be hospitalized and put on IV antibiotics for 14 days! I can

empathize with you, but don't have a solution. I don't know why he went from

running a fever for everything (usually had a fever once a week with croup,

ears,

sinuses, pneumonias, etc) to not running a fever for anything. All immune

studies are being re-run again in a few weeks since he is still very, very

fatigued and we are almost 6 months off of IVIG (we are trialing off right now).

The doc stated that they will wait until the winter is over though to consider

taking his port out irregardless of what his lab work comes back with. I felt

better with that approach.

Take Care and God Bless,

Mommy to Annette 13 (CP, developmental delay, g-tube, Selective Antibody

Deficiency, asthma, HIV+, GER, IVIG x 4 years), 7 (B-Cell dysfunction,

brain tumor survivor, seizure disorder, port-a-cath, trialing off of IVIG) and

Trayvon 4 (complex congenital heart defects, asplenia, severe GER, strokes x 2,

malrotated intestine) All wonderful and sent from God.

www.caringbridge.com/ny/my2angels

[Guest guest]

Hi ,

Seems to me like this absence of " fever " is something that doctors need to

be more aware of in PID kids. I know that when my daughter had endocarditis,

no one was at all worried because her temperature was not very high (in fact

at times it was subnormal). Since the body's response to infection is

different than for a " normal " child, it makes sense that the temperature

response

might also be different. I wonder if the PID foundation has done any studies to

show that the variabity is more, less than or the same with an infection for

PID vs non-PID.

--Martha (mom to IgA def, etc.)

[Guest guest]

From: Beth, Mom to Wade,16(CVID,etc)

Wade has never been a big temp runner but over the last 3 - 4 years he has

had multiple severe infections with little to no temp elevation. In fact,

the only 2 times he even had a temp above 100 was when his port was infected

& when he had sepsis & even then 103 was the highest. His " normal " temp is

96, so even 98 - 99 is a " fever " for him & he shows the " classic " fever

signs(glassy eyes,dry mouth, irritable, sweats & chills,etc.) once his temp

goes above 98.2 - 98.6. His ped knows & acknowledges this & has even been

heard to say to another clinician " this is a temp elevation for this child " .

Most of his specialists know & acknowledge this as well. I once asked his

immunologist about the low normal temp & elevations into the normal

range,etc. & he told us that since fever is a sign of activation of the

immune system, it makes sense that an altered or insufficient immune system

would not activate in the " normal " manner. He told us that the 96 range was

" normal " for Wade & when his temp goes into the 98 & up range, that should

be considered a fever for him & treated as such.

Just our experience for whatever it's worth!

Hope all are having a great day!

Love & Hugs,

Beth

>From: RCurk@...

>Reply-

>

>Subject: Re: fevers

>Date: Tue, 26 Aug 2003 09:04:13 EDT

>

>In a message dated 8/26/2003 4:25:37 AM Central Standard Time,

> writes:

>

> > Sometimes, I would get frustrated that the doctor's office considered

>his

> > temp " low-grade " at 99.5....when he started at 96!!! They would not

>consider

> > it a fever until it reached 100.5

>

>This is exactly what happens with my son . He use to run VERY HIGH

>temps with even the smallest of infections (ie, ear infections would result

>in

>106 temp), now he runs NO temp with anything. It is very frustrating to

>take

>him to the doctor's (even the immunology docs) because the very first

>question

>they ask is " does he have a fever? " UGHHHH, he hasn't had a fever in over

>3

>years, despite having cellulitis, oral abcesses, an ear infection that was

>so

>bad he had to be hospitalized and put on IV antibiotics for 14 days! I can

>empathize with you, but don't have a solution. I don't know why he went

>from

>running a fever for everything (usually had a fever once a week with croup,

>ears,

>sinuses, pneumonias, etc) to not running a fever for anything. All immune

>studies are being re-run again in a few weeks since he is still very, very

>fatigued and we are almost 6 months off of IVIG (we are trialing off right

>now).

>The doc stated that they will wait until the winter is over though to

>consider

>taking his port out irregardless of what his lab work comes back with. I

>felt

>better with that approach.

>

>Take Care and God Bless,

>

>Mommy to Annette 13 (CP, developmental delay, g-tube, Selective Antibody

>Deficiency, asthma, HIV+, GER, IVIG x 4 years), 7 (B-Cell

>dysfunction,

>brain tumor survivor, seizure disorder, port-a-cath, trialing off of IVIG)

>and

>Trayvon 4 (complex congenital heart defects, asplenia, severe GER, strokes

>x 2,

>malrotated intestine) All wonderful and sent from God.

>www.caringbridge.com/ny/my2angels

>

>

>

[Guest guest]

At 01:15 PM 12/19/2003 EST, you wrote:

>I have a question to any of you whom can answer it. I have 4 children as you

>all know they have all ru high fevers and stay up they are all vaxed and

were

>sick quite a bit. The baby is not vaxed and when she has a fever it is

stange

>what her body does. She will get the fever say 101 it will go down some and

>then alittle higher she will keep going up and down like that and you can

feel

>it in her to her skin will start to feel cool and temp is down then it

will go

>up again.

>I am not saying this is cause she isnt vaxed but could it be her immune

>system is alittle better intacked or is it the homeopathy that does it or

JUST her

>has any one seen a childs fever so that. Just curious

>Amy

>

No answer Amy - its just her

--------------------------------------------------------

Sheri Nakken, R.N., MA, Classical Homeopath

Vaccination Information & Choice Network, Nevada City CA & Wales UK

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" Just look at us. Everything is backwards; everything is upside down.

Doctors destroy health, lawyers destroy justice, universities destroy

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and religions destroy spirituality " .... Ellner

[Guest guest]

I think fevers are as different in individuals as the individuals themselves.

My 2 children always ran high fevers (104 -105 degrees). They were fully vaxed

until 3 years ago.

My sister's children, also fully vaxed, never run high fevers. If they have a

temp of 101 you can bet they're very ill.

It varies.

Kay

****************

I have a question to any of you whom can answer it. I have 4 children as you

all know they have all ru high fevers and stay up they are all vaxed and were

sick quite a bit. The baby is not vaxed and when she has a fever it is stange

what her body does. She will get the fever say 101 it will go down some and

then alittle higher she will keep going up and down like that and you can feel

it in her to her skin will start to feel cool and temp is down then it will go

up again.

Amy

[Guest guest]

>I have a question to any of you whom can answer it. I have 4 children as

you

>all know they have all ru high fevers and stay up they are all vaxed and

were

>sick quite a bit. The baby is not vaxed and when she has a fever it is

stange

>what her body does. She will get the fever say 101 it will go down some and

>then alittle higher she will keep going up and down like that and you can

feel

>it in her to her skin will start to feel cool and temp is down then it

will go

>up again.

>I am not saying this is cause she isnt vaxed but could it be her immune

>system is alittle better intacked or is it the homeopathy that does it or

JUST her

>has any one seen a childs fever so that. Just curious

>Amy

Amy, my dd has only been sick twice in her 17 months but yes her fever does the

same exact thing. I thought it was odd too, but she's so healthy that I just

figured it was normal for her. She's totally not vaxxed either. ~

[Guest guest]

Misty -

All three of my kids run constant low grade fevers. They are all PI - and I

have two on IVIG and one on Sub-q. I could go into odd stories about fevers -

but yes, mine have low grade fevers too.

Dayna

Fevers

I am just wondering if any of your children run low grade temps...Jake

Always has a low grade temp (100.3-101) at all times...even when he

does not have an active infection. for instance my little girl is sick

and I took her temp and he was playing and asked me to take his to and

it was 101 and he is running around playing and feels fine. His Dr.

says he has Selective Antibody Def (IGA) and he is treated with IVIG

for it. I was just wondering if anyone else has this going on to and

if it is fairly typical...

Thanks

Misty

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to: /messages

[Guest guest]

Thank you and thanks to the other response I had from this. I

decided to grit my teeth and did nothing (even though her

temperature was still soaring all the way to bedtime). After a

sleepless for me - sat up watching her all night panicking LOL! -

she has woken this morning much better, still pale, tired and a bit

grumpy, but eating and drinking better and laughing at Daddy.

Many thanks again it just helps to have you all to turn to.

Jacqui

> > >

> > > I think Jess has one of these fever bugs that have been doing

the

> > > rounds but her temp has been " bouncing " around 38 - 40ish for

the

> > last

> > > two days and I can't seem to bring it down for very long.

> > >

> > > I have reservations about using something like childrens

ibuprofen

> > for

> > > obvious reasons but am seriously beginning to consider it.

> > >

> > > Can anyone give any advice/suggestions/their thoughs on

ibuprofen.

> > >

> > > Thanks

> > >

> > > Jacqui

> >

>

[Guest guest]

One thing the hospital does with children's fevers is to strip them off and to have a fan running near them (but not directly on their skin). This makes the environment a bit cooler. It seemed to work well with Henry. I have a portable air conditioning unit which can be called into play in an emergency during the summer.

It is important not to shock the system by making things suddenly cold, so no cold baths (though slightly cooler than blood temperature is OK for a while). Sudden cold gives a message to the body to put more fuel into the furnace, and the temperature then goes even higher.

And, the younger the child, the more important it is to keep encouraging them to drink frequent sips of fluid. H. got dehydrated once and had a serious seizure which came on 5 minutes after a trip to the GP who found him OK. A & E couldn't find a vein and had to put a line into a leg bone to inject fluids and sugars. H was 12 months old at the time.

Margaret

Have used paracetamol suppositories in the past with high fever (when H was younger and we were very worried about seizures). They bring the temperature down very quickly - within 5 minutes, if I recall correctly. We got the GP to prescribe them.

Re: fevers

Thank you and thanks to the other response I had from this. I decided to grit my teeth and did nothing (even though her temperature was still soaring all the way to bedtime). After a sleepless for me - sat up watching her all night panicking LOL! - she has woken this morning much better, still pale, tired and a bit grumpy, but eating and drinking better and laughing at Daddy.Many thanks again it just helps to have you all to turn to.Jacqui> > >> > > I think Jess has one of these fever bugs that have been doing the> > > rounds but her temp has been "bouncing" around 38 - 40ish for the> > last> > > two days and I can't seem to bring it down for very long.> > >> > > I have reservations about using something like childrens ibuprofen> > for> > > obvious reasons but am seriously beginning to consider it.> > >> > > Can anyone give any advice/suggestions/their thoughs on ibuprofen.> > >> > > Thanks> > >> > > Jacqui> >>__________ NOD32 1.1355 (20060106) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com

[Guest guest]

We use homeopathic

seemed to work

> > > >

> > > > I think Jess has one of these fever bugs that have been

doing

> the

> > > > rounds but her temp has been " bouncing " around 38 - 40ish

for

> the

> > > last

> > > > two days and I can't seem to bring it down for very long.

> > > >

> > > > I have reservations about using something like childrens

> ibuprofen

> > > for

> > > > obvious reasons but am seriously beginning to consider it.

> > > >

> > > > Can anyone give any advice/suggestions/their thoughs on

> ibuprofen.

> > > >

> > > > Thanks

> > > >

> > > > Jacqui

> > >

> >

>

>

>

>

>

>

> DISCLAIMER

> No information contained in this post is to be construed as

medical advice. If you need medical advice, please seek it from a

suitably qualified practitioner.

>

>

>

>

>

[Guest guest]

When I was growing up, my Mom always bundled us up to make us " sweat it out. "

When I worked as an RN in pediatrics, we only used a thin sheet or blanket so

the fever wouldn't get high artificially. I think the important thing is to do

whatever is comfortable for the person. Some want to be bundled under lots of

covers, others want very little. You want to avoid letting the person get

chilled, as that stimulates the body to retain heat.

HTH

Kay

fevers

I thought i read some articles before on fevers and whether one should

bundle a child up with blankets or just a thin one to ensure the fever does

not get too high. Does anyone know the right answer? To bundle up or not?

jen c

[Guest guest]

Sorry you're not feeling well. The only thing I can think of that

would be of any help would be prednisone. It would control the

inflammation and keep the fever " down " . I'm hoping you still have

some or can get your hands on a prescription.

Take care and be well.

Ellen

[Guest guest]

This seems weird to me, but I only seem to get the high fevers in the

winter. When I first became ill the fevers went over 105 many times and

peaked at 106.8 once. They rarely go over 103 now, but do occasionally hit

104-105 when I get hit hard....but again only in winter. (Winter to me is

from November thru April)

Kirk

>

> I only had very high fevers in the beginning, about 9 years ago. Now, I

> never do.

>

>

>

[Guest guest]

This seems weird to me, but I only seem to get the high fevers in the

winter. When I first became ill the fevers went over 105 many times and

peaked at 106.8 once. They rarely go over 103 now, but do occasionally hit

104-105 when I get hit hard....but again only in winter. (Winter to me is

from November thru April)

Kirk

>

> I only had very high fevers in the beginning, about 9 years ago. Now, I

> never do.

>

>

>

[Guest guest]

I also only had fevers at the beginning, which for this flair was about 8

years ago. They lasted for about 5 months I think and were regularly as

clockwork!

General " normal " temperature was usually 101-102F (38.3-38.9c) with a spike

in the morning of around 104F (40c) and the same in the evening. Overnight

is when I would get the bed drenching spike (euuuwww!) which was usually in

excess of 106F (41.1c) and recorded on a couple of occasions during my

delirium of over 107F (41.7c) - just right for cooking on!

Fortunately I've not had temperatures like that for years now and in fact

very rarely had temperatures above the normal 98.6F (37c) and for me

" normal " is around 96.8F (36c)

Graham (39)

West Sussex, UK

At 02:11 07/08/2007, you wrote:

>I only had very high fevers in the beginning, about 9 years ago. Now, I

>never do.

[Guest guest]

I also only had fevers at the beginning, which for this flair was about 8

years ago. They lasted for about 5 months I think and were regularly as

clockwork!

General " normal " temperature was usually 101-102F (38.3-38.9c) with a spike

in the morning of around 104F (40c) and the same in the evening. Overnight

is when I would get the bed drenching spike (euuuwww!) which was usually in

excess of 106F (41.1c) and recorded on a couple of occasions during my

delirium of over 107F (41.7c) - just right for cooking on!

Fortunately I've not had temperatures like that for years now and in fact

very rarely had temperatures above the normal 98.6F (37c) and for me

" normal " is around 96.8F (36c)

Graham (39)

West Sussex, UK

At 02:11 07/08/2007, you wrote:

>I only had very high fevers in the beginning, about 9 years ago. Now, I

>never do.

[Guest guest]

I also only had fevers at the beginning, which for this flair was about 8

years ago. They lasted for about 5 months I think and were regularly as

clockwork!

General " normal " temperature was usually 101-102F (38.3-38.9c) with a spike

in the morning of around 104F (40c) and the same in the evening. Overnight

is when I would get the bed drenching spike (euuuwww!) which was usually in

excess of 106F (41.1c) and recorded on a couple of occasions during my

delirium of over 107F (41.7c) - just right for cooking on!

Fortunately I've not had temperatures like that for years now and in fact

very rarely had temperatures above the normal 98.6F (37c) and for me

" normal " is around 96.8F (36c)

Graham (39)

West Sussex, UK

At 02:11 07/08/2007, you wrote:

>I only had very high fevers in the beginning, about 9 years ago. Now, I

>never do.

[Guest guest]

Hi Gang,

It is funny sitting here posting, after all this time in remission. A lot of

people remember me from the being of our stills group. There were only a

hand full of us, back in the early 1990's. I was super sick for almost 14

years,

had everything everybody has, In and out of the hospital all the time,

almost died several times.

Maui, is very isolated when it comes to rare diseases, and the doctors tend

to dismiss something they don't understand. I went through so much,, and so

much pain!

I am just trying to explain in as short a detail as possible right now. I

went into a spontaneous remission,for almost five years.

I started feeling like I was having bladder infections all the time and

always had a fever over the last couple of month, then the sore throat, achy

joints,very dry eyes.

I have Fibromyalgia, Srjogen syndrome, SVT, pernicious anemia etc. the list

goes on.

Anyway, my big question is, when I realized I was going out of remission

this time, I have not had a lot of pain, I am having really high fevers, dry

eyes, and just feeling punk. My sed rate, and inflammatory markers are all

really high.

Has anyone gone out of remission with just the high spiking fevers, with

very little other symptoms?

I don't want to go on any med's! But, I am not sure if there is anything I

can do to keep the inflammation and fevers down, without the med's? I also

lost almost 20 pounds, which I didn't have to lose in the first place. I am

down to 108 and 5'5. I have been prescribed Naperson, and Predisone, but, have

not taken it yet. I am taking asprin for the fevers. I am sitting here with a

103 fever and I feel like my brain is frying, I just feel so punk! I have

been trying to live as normally as possible. I am a weightlifter( nothing

accomplished like you Kirk, but I do look great for my age.(SO I am told) LOL!

I hope this ,makes since and if anyone has any advice. When I went into

remission I had been sick for 13 years, and never had a remission, so I don't

really know what I expect to happen.

Thanks for your advice, I better try to get a few hours of sleep.

much aloha, Dottie

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