Guest guest Posted March 15, 2001 Report Share Posted March 15, 2001 About the constant runny noses... used to be the same way until we started him on Nutrivene-D. He was 7 years old and now he's 12. And I know it's the Nutrivene-D because if he's off it for a week the runny nose starts up again. He is rarely sick anymore. Most of us in the household get sick more often then he does. I don't claim that Nutrivene-D does anything more than helping him to be healthy but to me it is worth it just for that. I don't know if you guys are using it but this has just been my experience. And please nobody get mad at me. I just want to help if my experience can. I actually don't expect anyone on this list to be mean because you all are so wonderful here but there are other lists that are just darn scary... Mom to 12 --- Connie Curran <ccurran1@...> wrote: > > " Poor Maddie!!! Her little face is all chapped > and red and her nose is > running constantly. I had to pull over three > times to wipe her > nose.......she just blows when it gets full; who > needs a tissue.....LOLOL " > > Donna, > > Maybe the trip is just what Maddie needs. > has chronic sinus problems and his nose has been > crusty and running since January. We do everything > imaginable... he has had 3 sinus surgeries, tonsils, > adenoids, constant antibiotocs, both oral and nasal > spray. But we just got back from a four day mini > vacation at one of the Disney resorts and after 4 > days baking in the sun and swimming in the pools and > playing in the sand, he looks like a different > person. His face was soooo broken out and chapped, > and now his skin is beautiful and the puffiness is > gone. Ironically, we live 30 minutes from the > Mouse, but this was my first vacation with the boys > as a single mom and I didn't want to venture too > far. We really had a great time. I hope things go > well for you. If you need anything, let me know. > > Connie Mom to (7), and Austin(5), > (5)DS-ASD and (5). > > > PS When I drive to school in the morning > and afternoon, I sometimes try to get " red lights " > so I can unbuckle and reach in the back to wipe his > nose. LOL!!! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 In a message dated 3/16/01 1:31:39 AM Eastern Standard Time, mmgraybill@... writes: << About the constant runny noses... used to be the same way until we started him on Nutrivene-D. >> , What is it? I've never heard of it. I know I've had my fill of wiping noses this year! LOL Oh, why on Earth would we get mad? You're right, people on this list are wonderful! Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 Hi , Nutrivene D? Is that a decongestant? Is it a prescription or can you buy it over the counter? Terry Mom to , 14 yrs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 , what is nutrivene D? From oct thru april, nick has a runny nose and his face is always chapped...he does take flonase nasal spray but that can be pretty strong for a little kid and i worry about long term use. always looking for options so would be interested in what nutivene is? thanks, cheri Re: Runny noses About the constant runny noses... used to be the same way until we started him on Nutrivene-D. He was 7 years old and now he's 12. And I know it's the Nutrivene-D because if he's off it for a week the runny nose starts up again. He is rarely sick anymore. Most of us in the household get sick more often then he does. I don't claim that Nutrivene-D does anything more than helping him to be healthy but to me it is worth it just for that. I don't know if you guys are using it but this has just been my experience. And please nobody get mad at me. I just want to help if my experience can. I actually don't expect anyone on this list to be mean because you all are so wonderful here but there are other lists that are just darn scary... Mom to 12 --- Connie Curran <ccurran1@...> wrote: > > " Poor Maddie!!! Her little face is all chapped > and red and her nose is > running constantly. I had to pull over three > times to wipe her > nose.......she just blows when it gets full; who > needs a tissue.....LOLOL " > > Donna, > > Maybe the trip is just what Maddie needs. > has chronic sinus problems and his nose has been > crusty and running since January. We do everything > imaginable... he has had 3 sinus surgeries, tonsils, > adenoids, constant antibiotocs, both oral and nasal > spray. But we just got back from a four day mini > vacation at one of the Disney resorts and after 4 > days baking in the sun and swimming in the pools and > playing in the sand, he looks like a different > person. His face was soooo broken out and chapped, > and now his skin is beautiful and the puffiness is > gone. Ironically, we live 30 minutes from the > Mouse, but this was my first vacation with the boys > as a single mom and I didn't want to venture too > far. We really had a great time. I hope things go > well for you. If you need anything, let me know. > > Connie Mom to (7), and Austin(5), > (5)DS-ASD and (5). > > > PS When I drive to school in the morning > and afternoon, I sometimes try to get " red lights " > so I can unbuckle and reach in the back to wipe his > nose. LOL!!! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 Hey guys, I'm surprised you haven't heard of it. It's a very controversial thing on this other list that I'm on. Nutrivene D is a vitamin formula specially made for people with Down Syndrome. The theory behind it is that the extra 21st chromosome over expresses certain enzymes and things which cause certain vitamin and mineral deficiencies. So the formulation is supposed to compensate for those. You can get your child tested to find exactly what they might be lacking in and get the formula specially made for your child. But it is costly and might not be very accurate. I didn't get tested. I think the controversy stems from the claims that some people (and the company) make some pretty big claims about what this can do for people with ds. All I know is that is much much healthier with it than without. I didn't get on it expecting a miracle but his quality of health is definitely better. They now have many products but all I give is the Nutrivene powder and the enzymes. The cost works out to be approximately $50 per month for but it is more or less for how much you child takes as to how much they weigh. The company is called International Nutrition Inc. Their website is www.Nutrivene.com Telephone (800)899-3413 I haven't been to the website. Hope this helps. Mom to 12 --- Cheryl Turco <ct616@...> wrote: > , what is nutrivene D? From oct thru > april, nick has a runny nose and his face is always > chapped...he does take flonase nasal spray but that > can be pretty strong for a little kid and i worry > about long term use. always looking for options so > would be interested in what nutivene is? thanks, > cheri > > > > Re: Runny noses > > > About the constant runny noses... used to be > the same way until we started him on Nutrivene-D. He > was 7 years old and now he's 12. And I know it's the > Nutrivene-D because if he's off it for a week the > runny nose starts up again. He is rarely sick > anymore. > Most of us in the household get sick more often then > he does. I don't claim that Nutrivene-D does > anything > more than helping him to be healthy but to me it is > worth it just for that. > I don't know if you guys are using it but this has > just been my experience. > And please nobody get mad at me. I just want to help > if my experience can. I actually don't expect anyone > on this list to be mean because you all are so > wonderful here but there are other lists that are > just > darn scary... > > > Mom to 12 > > --- Connie Curran <ccurran1@...> wrote: > > > > " Poor Maddie!!! Her little face is all chapped > > and red and her nose is > > running constantly. I had to pull over three > > times to wipe her > > nose.......she just blows when it gets full; who > > needs a tissue.....LOLOL " > > > > Donna, > > > > Maybe the trip is just what Maddie needs. > > > has chronic sinus problems and his nose has been > > crusty and running since January. We do > everything > > imaginable... he has had 3 sinus surgeries, > tonsils, > > adenoids, constant antibiotocs, both oral and > nasal > > spray. But we just got back from a four day mini > > vacation at one of the Disney resorts and after 4 > > days baking in the sun and swimming in the pools > and > > playing in the sand, he looks like a different > > person. His face was soooo broken out and > chapped, > > and now his skin is beautiful and the puffiness is > > gone. Ironically, we live 30 minutes from the > > Mouse, but this was my first vacation with the > boys > > as a single mom and I didn't want to venture too > > far. We really had a great time. I hope things go > > well for you. If you need anything, let me know. > > > > Connie Mom to (7), and Austin(5), > > (5)DS-ASD and (5). > > > > > > PS When I drive to school in the > morning > > and afternoon, I sometimes try to get " red lights " > > so I can unbuckle and reach in the back to wipe > his > > nose. LOL!!! > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 its a vitamin supplement suppose to be made just for kids with ds, but it costs over 70 dollars a month and that was when nathan was 3years old and i was checking into it. our doc said its basically the same as like a centrum vitamin, but i know many who use it with great resuots an dothers withouth the hint of results, it depends on the child. shawna. >From: Imaddenmom@... >Reply- > >Subject: Re: Re: Runny noses >Date: Fri, 16 Mar 2001 11:17:17 EST > >Hi , >Nutrivene D? Is that a decongestant? Is it a prescription or can you buy >it >over the counter? >Terry >Mom to , 14 yrs. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2001 Report Share Posted December 13, 2001 Hi All, I got a note today asking me to come in tomorrow to talk to them about Maverick's Hygiene. His nose is really running a ton. He takes clariton daily, and also pulsitilla, and any over the counter meds I have on hand and it still runs. Probably 80% of the year. We just deal with it. Well, he doesn't do well blowing his nose. He actually seems to not realize that his nose is running quite often. If he does blow it, he makes a bigger mess than it was. So, it runs and someone has to help him blow it. After I got the note from the teacher, the mom of one of his classmates called me. While we were on the phone I asked her to ask her daughter if Mav got yelled at much today. She said he did a little. I asked what it was about. She said it was about his nose. The aide was telling him that her 3 yr old could blow his nose so Maverick should be able to blow his. This is not the first time that she has compared him in less than favorable terms to her son. I do not appreciate it. Also, I know that they want me to come in to discuss some punitive program that they have come up with for him if he doesn't blow his nose. That's always their first resort. The inclusion specialist and I are always turning them around to how to deal with things in a more positive manner. I am REALLY steamed about this whole situation. I am really feeling that the aide is burnt out. She used to be great with him, this is her 4th yr as his aide, but this year she seems to have no patience with him at all. In our inclusion meetings she will tell me that he is being a brat or that he is being lazy. I am so ready to tell her off. SO READY! So, I need some input on what to say to them tomorrow, without blowing my top. Any suggestions on how to get them to see how negative they are being or any suggestions on how to get Maverick to know learn to blow his nose. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2001 Report Share Posted December 13, 2001 Hi All, I got a note today asking me to come in tomorrow to talk to them about Maverick's Hygiene. His nose is really running a ton. He takes clariton daily, and also pulsitilla, and any over the counter meds I have on hand and it still runs. Probably 80% of the year. We just deal with it. Well, he doesn't do well blowing his nose. He actually seems to not realize that his nose is running quite often. If he does blow it, he makes a bigger mess than it was. So, it runs and someone has to help him blow it. After I got the note from the teacher, the mom of one of his classmates called me. While we were on the phone I asked her to ask her daughter if Mav got yelled at much today. She said he did a little. I asked what it was about. She said it was about his nose. The aide was telling him that her 3 yr old could blow his nose so Maverick should be able to blow his. This is not the first time that she has compared him in less than favorable terms to her son. I do not appreciate it. Also, I know that they want me to come in to discuss some punitive program that they have come up with for him if he doesn't blow his nose. That's always their first resort. The inclusion specialist and I are always turning them around to how to deal with things in a more positive manner. I am REALLY steamed about this whole situation. I am really feeling that the aide is burnt out. She used to be great with him, this is her 4th yr as his aide, but this year she seems to have no patience with him at all. In our inclusion meetings she will tell me that he is being a brat or that he is being lazy. I am so ready to tell her off. SO READY! So, I need some input on what to say to them tomorrow, without blowing my top. Any suggestions on how to get them to see how negative they are being or any suggestions on how to get Maverick to know learn to blow his nose. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2001 Report Share Posted December 14, 2001 , that is unacceptable to use " punitive " measure to TEACH a child a lifeskill. I would have this aide tossed. She should be made to see that her methods humiliate, not teach Mav. Blowing a nose uses a great deal of fine motor skills. It also requires channeling air a different way other than through the mouth. Touch base with his speech therapist and does he have an OT that could help out with this? Pinching a tissue is not an easy task for some of our kids. is 14 and can wipe his nose but I dont think he can actually " blow " air out unless I am there to explain and guide. Don't let them PUNISH the little guy! I wonder sometimes.......... Jackie, Mom to 14ds, 11, and Bradley 7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2001 Report Share Posted December 14, 2001 , that is unacceptable to use " punitive " measure to TEACH a child a lifeskill. I would have this aide tossed. She should be made to see that her methods humiliate, not teach Mav. Blowing a nose uses a great deal of fine motor skills. It also requires channeling air a different way other than through the mouth. Touch base with his speech therapist and does he have an OT that could help out with this? Pinching a tissue is not an easy task for some of our kids. is 14 and can wipe his nose but I dont think he can actually " blow " air out unless I am there to explain and guide. Don't let them PUNISH the little guy! I wonder sometimes.......... Jackie, Mom to 14ds, 11, and Bradley 7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 In a message dated 5/20/02 12:04:34 AM Central Daylight Time, writes: > Hi & , > Zeb is the same way with the school lunches. He just loves to stand in line > > with the rest of the kids. If I ever refused to pick him up in this > district > I would have the police at my door for neglect. They sent him home for a > runny nose once. One less kid one less problem. Your both fortune the > school > with meet you halfway. > Charlyne > Mom to Zeb 9 DS/OCD ? > > Charlyne, When I managed the group home we had a teacher that sent kids home whenever she could I finally ended up calling the sp. ed. director and discussing the issue of discrimination if only sp. ed. children were sent home for runny noses and that I was sure there were a few kids in that building that weren't being sent home. That was the end. I wish things were as easy in your district but I know they aren't. Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 Runny noses were a constant problem when we first moved here. And my kids ran the green stuff. After we started them on the vitamins they got better. Except of course JJ. Before the CD dx we took him to the allergist. This dx was no allergies but it is the structure of the person with ds face. Sinus are small, poor drainage and he was will ing to put it in writing. The school does not even call anymore for this. But this is not because of the doctors letter.......for a while we had a great nurse who had a under 2yo with CP. She told the staff " If I sent home every kids with a runny nose, you would have no one to teach " After that only with a fever were kids sent home. It was great having Nurse , she was able to educate the other nurses about what parents of special need kids do all day--like call doctors, therapy appts., and all the other stuff we do. & Garry, parents of (11 ds), (10 ds), JJ (8 ds/autism/celiac), (7 ds/ADHD/Celiac), and Esther (5 ds). All adopted. --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 In a message dated 5/20/2002 11:59:02 AM Eastern Daylight Time, Scherb@... writes: > It was great having Nurse , she was able to educate > the other nurses about what parents of special need kids do all day--like > call doctors, therapy appts., and all the other stuff we do. Hi , I am going to barrow your nurse and Karyn's principal LOL Charlyne Mom to Zeb 9 DS/OCD? Quote Link to comment Share on other sites More sharing options...
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