Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Sharon, What state are you in? You need to contact Pilot Parent, ARC, something,,,,and get some advocates to help you. Inclusion is a RIGHT...not a method a state or district uses....(although they will have you believe otherwise.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 In a message dated 11/1/2001 2:07:50 PM US Mountain Standard Time, kldoll@... writes: > . When I was preparing for my " inclusion " discussions > with the school, I knew they would be bringing their experts who have only > seen my child for a short period of time. So I made it a point to bring my > experts. The school had 7 people sitting at the table. I had 8 not > including myself. When we were fighting to have Maverick fully included in Headstart at age 3, we had an IEP meeting. Present were, my husband, myself, the Dir. of Sp Ed. the Speech therapist, and the Physical therapist. They wanted self-contained preschool, we refused. and I refused to sign the IEP but those 3 did. Then the Dir of Sp Ed. said.... " Majority rules. He goes to self-contained. " We called another IEP meeting and brought the masses with us. As we filed in with our " supports " ... they had to move it to another room. The Dir of Sp Ed asked our casemanger why all the people were there...and she said... " Does majority rules ring any bells? " Maverick DID end up attending the Headstart program with an aide provided by the district. Now, in reality, majority Rules is NOT a rule, and most of the people I brought with me had no SAY in the matter, but.... it opened their eyes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 In a message dated 11/1/2001 2:07:50 PM US Mountain Standard Time, kldoll@... writes: > . When I was preparing for my " inclusion " discussions > with the school, I knew they would be bringing their experts who have only > seen my child for a short period of time. So I made it a point to bring my > experts. The school had 7 people sitting at the table. I had 8 not > including myself. When we were fighting to have Maverick fully included in Headstart at age 3, we had an IEP meeting. Present were, my husband, myself, the Dir. of Sp Ed. the Speech therapist, and the Physical therapist. They wanted self-contained preschool, we refused. and I refused to sign the IEP but those 3 did. Then the Dir of Sp Ed. said.... " Majority rules. He goes to self-contained. " We called another IEP meeting and brought the masses with us. As we filed in with our " supports " ... they had to move it to another room. The Dir of Sp Ed asked our casemanger why all the people were there...and she said... " Does majority rules ring any bells? " Maverick DID end up attending the Headstart program with an aide provided by the district. Now, in reality, majority Rules is NOT a rule, and most of the people I brought with me had no SAY in the matter, but.... it opened their eyes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 - I definitely am planning to go for it. This is a decision we have made since birth when she was included in Mom's Day Out at our church. Sometimes it can be slightly intimidating when you have a group of " professionals " lined up telling you what they think is right for your child. But then, she is my child, and I do what I feel is right. But I am sticking to my guns (so to speak, should find a different way to put it now). -- Sharon, Mom to (10, DS) and (6) > In a message dated 11/1/01 10:34:51 AM Eastern Standard Time, > sharonhughes@... writes: > > > > They don't do inclusion here, it was done in the state we moved from. I > > have made my wishes known, but I already feel they are going to want her in > > self contained. > > Ummmmm, Sharon......the right to be included is FEDERAL law.....it's not > something that a state has a choice about. If you think that it is most > appropriate for to be included in a regular ed classroom, then GO FOR > IT! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 - I definitely am planning to go for it. This is a decision we have made since birth when she was included in Mom's Day Out at our church. Sometimes it can be slightly intimidating when you have a group of " professionals " lined up telling you what they think is right for your child. But then, she is my child, and I do what I feel is right. But I am sticking to my guns (so to speak, should find a different way to put it now). -- Sharon, Mom to (10, DS) and (6) > In a message dated 11/1/01 10:34:51 AM Eastern Standard Time, > sharonhughes@... writes: > > > > They don't do inclusion here, it was done in the state we moved from. I > > have made my wishes known, but I already feel they are going to want her in > > self contained. > > Ummmmm, Sharon......the right to be included is FEDERAL law.....it's not > something that a state has a choice about. If you think that it is most > appropriate for to be included in a regular ed classroom, then GO FOR > IT! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 << Sometimes it can be slightly intimidating when you have a group of " professionals " lined up telling you what they think is right for your child. >> Sharon, my reply to your comments about " their group of professionals " is to bring your own group of " professionals " . This group could include your pediatrician, care giver, any outside therapists your child may use, your child's Sunday School Teacher (if appropriate), your child's' friends from the neighborhood or any family member who can speak to what your child can do outside of school. When I was preparing for my " inclusion " discussions with the school, I knew they would be bringing their experts who have only seen my child for a short period of time. So I made it a point to bring my experts. The school had 7 people sitting at the table. I had 8 not including myself. Just my 2c. Kim ~ Mom to Jordan 6 who is fully included in K for the second year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 << Sometimes it can be slightly intimidating when you have a group of " professionals " lined up telling you what they think is right for your child. >> Sharon, my reply to your comments about " their group of professionals " is to bring your own group of " professionals " . This group could include your pediatrician, care giver, any outside therapists your child may use, your child's Sunday School Teacher (if appropriate), your child's' friends from the neighborhood or any family member who can speak to what your child can do outside of school. When I was preparing for my " inclusion " discussions with the school, I knew they would be bringing their experts who have only seen my child for a short period of time. So I made it a point to bring my experts. The school had 7 people sitting at the table. I had 8 not including myself. Just my 2c. Kim ~ Mom to Jordan 6 who is fully included in K for the second year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Kim This is a great idea. When we lived in Alabama, we did. That is where was born, and we had a great number of people to call on. The school there was also actively wanting to do inclusion, and was voluntarily doing away with the self contained classroom. We just moved to South Carolina, and don't really have anyone here that knows well enough. Our special ed. teacher from Alabama though has volunteered to call in during the IEP, sort of a conference call. The school here does inclusion only for LD. The rest are self contained with mainstreaming. So, we will see. But I do not plan to give up on fighting for inclusion. has been included since birth, and we aren't stopping now. Sharon > << Sometimes it can be slightly intimidating when you have > a group of " professionals " lined up telling you what > they think is right for your child. >> > > Sharon, my reply to your comments about " their group of professionals " is to > bring your own group of " professionals " . This group could include your > pediatrician, care giver, any outside therapists your child may use, your > child's Sunday School Teacher (if appropriate), your child's' friends from > the neighborhood or any family member who can speak to what your child can > do outside of school. When I was preparing for my " inclusion " discussions > with the school, I knew they would be bringing their experts who have only > seen my child for a short period of time. So I made it a point to bring my > experts. The school had 7 people sitting at the table. I had 8 not > including myself. Just my 2c. > > Kim ~ Mom to Jordan 6 who is fully included in K for the second year. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Kim This is a great idea. When we lived in Alabama, we did. That is where was born, and we had a great number of people to call on. The school there was also actively wanting to do inclusion, and was voluntarily doing away with the self contained classroom. We just moved to South Carolina, and don't really have anyone here that knows well enough. Our special ed. teacher from Alabama though has volunteered to call in during the IEP, sort of a conference call. The school here does inclusion only for LD. The rest are self contained with mainstreaming. So, we will see. But I do not plan to give up on fighting for inclusion. has been included since birth, and we aren't stopping now. Sharon > << Sometimes it can be slightly intimidating when you have > a group of " professionals " lined up telling you what > they think is right for your child. >> > > Sharon, my reply to your comments about " their group of professionals " is to > bring your own group of " professionals " . This group could include your > pediatrician, care giver, any outside therapists your child may use, your > child's Sunday School Teacher (if appropriate), your child's' friends from > the neighborhood or any family member who can speak to what your child can > do outside of school. When I was preparing for my " inclusion " discussions > with the school, I knew they would be bringing their experts who have only > seen my child for a short period of time. So I made it a point to bring my > experts. The school had 7 people sitting at the table. I had 8 not > including myself. Just my 2c. > > Kim ~ Mom to Jordan 6 who is fully included in K for the second year. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 That's great. Even though Jordan is only in K... it is and has been my belief that Jordan should be included in all areas where I have included my other children without giving it a thought. The statement I always use with the school is that Jordan will only be in the school system for such a short time and that " Life is not a special day class " so why would I want to separate him from the people he will some day have to live with and interact with??? The school has no answer other then it is easier for them. Of course this statement is always veiled in the " but we can do so much more with Jordan in SDC with mainstreaming for non-academic tasks " . To that I say " Booooooo " . Again my son will need to be able to function with nda individuals for the rest of his life and I don't want him to fear those that are different from him. I need to keep reminding the school that to my son, he is the normal one and everyone else is different or strange. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 That's great. Even though Jordan is only in K... it is and has been my belief that Jordan should be included in all areas where I have included my other children without giving it a thought. The statement I always use with the school is that Jordan will only be in the school system for such a short time and that " Life is not a special day class " so why would I want to separate him from the people he will some day have to live with and interact with??? The school has no answer other then it is easier for them. Of course this statement is always veiled in the " but we can do so much more with Jordan in SDC with mainstreaming for non-academic tasks " . To that I say " Booooooo " . Again my son will need to be able to function with nda individuals for the rest of his life and I don't want him to fear those that are different from him. I need to keep reminding the school that to my son, he is the normal one and everyone else is different or strange. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 In a message dated 11/1/01 7:31:16 AM Central Standard Time, lauralk38@... writes: > And don't worry about comparing Sara to other kids......I think at some > point, we do that regarding ALL of our kids. I think that it's just more > conscious with our kids with DS....since the differences are so > great.....even between our own kid and other kids with DS. Our best > friends > have a daughter who speaks SO well, and is SO socially appropriate.....I > frequently think " gee, I wish..... " after we get together with them. With any child, whatever your child is slow at your neighbor or best friend or someone near will have one who is fast it that. Whether it's walking or talking or whatever. I think it's a law of nature or something. And it's not fair to compare but it's natural sometimes too. But you know, I remember sitting in my car, in a line of other parents' cars outside 's preschool, waiting for the kids to come out and the thought came to me, unbidden as they say, " I am so lucky! I am waiting for and the rest are just getting ordinary kids " . And it was true, they might have been quicker at some things but there has always been a special quality about him that the others don't have. Something to treasure. Jessie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 In a message dated 11/1/01 7:31:16 AM Central Standard Time, lauralk38@... writes: > And don't worry about comparing Sara to other kids......I think at some > point, we do that regarding ALL of our kids. I think that it's just more > conscious with our kids with DS....since the differences are so > great.....even between our own kid and other kids with DS. Our best > friends > have a daughter who speaks SO well, and is SO socially appropriate.....I > frequently think " gee, I wish..... " after we get together with them. With any child, whatever your child is slow at your neighbor or best friend or someone near will have one who is fast it that. Whether it's walking or talking or whatever. I think it's a law of nature or something. And it's not fair to compare but it's natural sometimes too. But you know, I remember sitting in my car, in a line of other parents' cars outside 's preschool, waiting for the kids to come out and the thought came to me, unbidden as they say, " I am so lucky! I am waiting for and the rest are just getting ordinary kids " . And it was true, they might have been quicker at some things but there has always been a special quality about him that the others don't have. Something to treasure. Jessie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Hi :-) Just a quick note to say " please be careful giving your children diet drinks " . Up until 5 months ago I was a diet coke " addict " and then became aware of how dangerous Aspartame (one of the leading sweeteners) is. I no longer touch anything with Aspartame in it and will not allow my children to either... Great hearing about ! Our is only 8years and has always been " chunky " to look at. I took a good look at her a couple of years ago and determined that she is actually quite slim, but because her arms and legs a little short she looks " chunky " even though she's not. Am hoping that her arms and legs stretch out.... or maybe we should get some " monkey bars " for her to hang off lololol. With regards tonjen@... Re: Just a whine Gail, Before amanda got diabetes i was looking into a nutritionist because she was a little over weight. And all that I've read about people with ds and their weight, I didnt want her to have any problems. And because all my life I blamed my mother for my weight problems as a kid because I felt that it was her responsibility to do something about it. well, now 2 years later after having diabetes, amanda has grown like 3 inches and lost like 3 pounds. She also developed this really cute teenager body. With a waist and boobs. Well, she looks so good now, that she can even be said to be " thin " . I look at pics of her right before she got diabetes and she was really heavy! I cant believe how much she's changed. She even went down a size in her jeans!!!!! So my point is, anything is possible to do. too is a picky eater. But we worked on it and now shes used to the foods she eats and those she cant have. I dont really deny her anything, (like she had a piece of Halloween candy), but its all in moderation. I still have to bring food for her to many places because she's sooo picky! Oh, one more thing. My son, jesse gained 17 lbs in one year! and hes only 7. so the pediatrician just took him off soda and juices. he can only have one glass of juice a day and that includes his juice box at lunch. So now he has a lot of water and some diet drinks. It's tough but if we have to do it for our kids sake, well then we do! ~ mom to amanda 11 ds and jesse 7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Hi :-) Just a quick note to say " please be careful giving your children diet drinks " . Up until 5 months ago I was a diet coke " addict " and then became aware of how dangerous Aspartame (one of the leading sweeteners) is. I no longer touch anything with Aspartame in it and will not allow my children to either... Great hearing about ! Our is only 8years and has always been " chunky " to look at. I took a good look at her a couple of years ago and determined that she is actually quite slim, but because her arms and legs a little short she looks " chunky " even though she's not. Am hoping that her arms and legs stretch out.... or maybe we should get some " monkey bars " for her to hang off lololol. With regards tonjen@... Re: Just a whine Gail, Before amanda got diabetes i was looking into a nutritionist because she was a little over weight. And all that I've read about people with ds and their weight, I didnt want her to have any problems. And because all my life I blamed my mother for my weight problems as a kid because I felt that it was her responsibility to do something about it. well, now 2 years later after having diabetes, amanda has grown like 3 inches and lost like 3 pounds. She also developed this really cute teenager body. With a waist and boobs. Well, she looks so good now, that she can even be said to be " thin " . I look at pics of her right before she got diabetes and she was really heavy! I cant believe how much she's changed. She even went down a size in her jeans!!!!! So my point is, anything is possible to do. too is a picky eater. But we worked on it and now shes used to the foods she eats and those she cant have. I dont really deny her anything, (like she had a piece of Halloween candy), but its all in moderation. I still have to bring food for her to many places because she's sooo picky! Oh, one more thing. My son, jesse gained 17 lbs in one year! and hes only 7. so the pediatrician just took him off soda and juices. he can only have one glass of juice a day and that includes his juice box at lunch. So now he has a lot of water and some diet drinks. It's tough but if we have to do it for our kids sake, well then we do! ~ mom to amanda 11 ds and jesse 7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 In a message dated 11/1/01 9:36:02 PM Eastern Standard Time, tonjen@... writes: > Just a quick note to say " please be careful giving your children diet > drinks " . Up until 5 months ago I was a diet coke " addict " and then became > aware of how dangerous Aspartame (one of the leading sweeteners) is. I no > longer touch anything with Aspartame in it and will not allow my children > to either... > - I've never heard that aspartame is dangerous. I did see an urban legend to that effect once, but never any " real " information. Where did you get this info? Please share.....as we drink literally gallons of diet soda in our house. (Yes, yes, I know water is better.....but soda tastes so good!) Thanks - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 In a message dated 11/1/01 9:36:02 PM Eastern Standard Time, tonjen@... writes: > Just a quick note to say " please be careful giving your children diet > drinks " . Up until 5 months ago I was a diet coke " addict " and then became > aware of how dangerous Aspartame (one of the leading sweeteners) is. I no > longer touch anything with Aspartame in it and will not allow my children > to either... > - I've never heard that aspartame is dangerous. I did see an urban legend to that effect once, but never any " real " information. Where did you get this info? Please share.....as we drink literally gallons of diet soda in our house. (Yes, yes, I know water is better.....but soda tastes so good!) Thanks - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 oh yes, aspartame is very dangerous...let me find my articles. Our priest drank 1/2 a case a day of Diet Coke until I showed him the reports.. Di, mom to Jake(18,nda) and 4 (DS) Pennsylvania Re: Just a whine In a message dated 11/1/01 9:36:02 PM Eastern Standard Time, tonjen@... writes: > Just a quick note to say " please be careful giving your children diet > drinks " . Up until 5 months ago I was a diet coke " addict " and then became > aware of how dangerous Aspartame (one of the leading sweeteners) is. I no > longer touch anything with Aspartame in it and will not allow my children > to either... > - I've never heard that aspartame is dangerous. I did see an urban legend to that effect once, but never any " real " information. Where did you get this info? Please share.....as we drink literally gallons of diet soda in our house. (Yes, yes, I know water is better.....but soda tastes so good!) Thanks - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 oh yes, aspartame is very dangerous...let me find my articles. Our priest drank 1/2 a case a day of Diet Coke until I showed him the reports.. Di, mom to Jake(18,nda) and 4 (DS) Pennsylvania Re: Just a whine In a message dated 11/1/01 9:36:02 PM Eastern Standard Time, tonjen@... writes: > Just a quick note to say " please be careful giving your children diet > drinks " . Up until 5 months ago I was a diet coke " addict " and then became > aware of how dangerous Aspartame (one of the leading sweeteners) is. I no > longer touch anything with Aspartame in it and will not allow my children > to either... > - I've never heard that aspartame is dangerous. I did see an urban legend to that effect once, but never any " real " information. Where did you get this info? Please share.....as we drink literally gallons of diet soda in our house. (Yes, yes, I know water is better.....but soda tastes so good!) Thanks - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 Same with Nutra Sweet! If it's dangerous to a pregnant woman's unborn child, I don't think I want it anywhere near me or my children...(Plus, when I have tried it in times of desperation, it gives me a headache...heehee) Kym...mom to 4, including 4 year old with DS ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ <<<I no longer touch anything with Aspartame in it and will not allow my children to either... >>> ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 Same with Nutra Sweet! If it's dangerous to a pregnant woman's unborn child, I don't think I want it anywhere near me or my children...(Plus, when I have tried it in times of desperation, it gives me a headache...heehee) Kym...mom to 4, including 4 year old with DS ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ <<<I no longer touch anything with Aspartame in it and will not allow my children to either... >>> ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 In a message dated 11/2/01 7:31:36 AM Central Standard Time, drf218@... writes: > oh yes, aspartame is very dangerous...let me find my articles. Our priest > drank 1/2 a case a day of Diet Coke until I showed him the reports.. > > Di, mom to Jake(18,nda) and 4 (DS) > Pennsylvania > I expect in those amounts almost anything could be dangerous. Jessie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 In a message dated 11/2/01 7:31:36 AM Central Standard Time, drf218@... writes: > oh yes, aspartame is very dangerous...let me find my articles. Our priest > drank 1/2 a case a day of Diet Coke until I showed him the reports.. > > Di, mom to Jake(18,nda) and 4 (DS) > Pennsylvania > I expect in those amounts almost anything could be dangerous. Jessie Quote Link to comment Share on other sites More sharing options...
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