Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 In a message dated 7/14/2001 9:52:49 AM Eastern Daylight Time, gwenv@... writes: > > > Quick question, how many of you moms took a fetal protein test and amnio. > > test with your child born after your child with DS? > I didnt have the AFP test with Jaykob.. I did have 2 level 3 ultra sounds and a ton of lil ones.. none which showed any markers for ds... And since we just found out that someone new is due in 2002.. My ob asked if I wanted a CVS and I said no, He said that I could have an amino.. But really why we wont abort.. I have another 10 weeks to decied on the amino.. So we are thinking about it.. Stacee Mommy to Jaykob-Tyler 5-10-00 more than a step mom to twins 7 and one 31/2 AND SOMEONE NEW IN MARCH OF 2002 <A HREF= " http://www.geocities.com/mommy24greatkids/J.html?993220222840 " >jaykob</A> <A HREF= " http://www.babababies.com/view/view.cfm?SITEID=1239 " >Jaykob-Tyler's Webpage</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 In a message dated 7/14/2001 9:52:49 AM Eastern Daylight Time, gwenv@... writes: > > > Quick question, how many of you moms took a fetal protein test and amnio. > > test with your child born after your child with DS? > I didnt have the AFP test with Jaykob.. I did have 2 level 3 ultra sounds and a ton of lil ones.. none which showed any markers for ds... And since we just found out that someone new is due in 2002.. My ob asked if I wanted a CVS and I said no, He said that I could have an amino.. But really why we wont abort.. I have another 10 weeks to decied on the amino.. So we are thinking about it.. Stacee Mommy to Jaykob-Tyler 5-10-00 more than a step mom to twins 7 and one 31/2 AND SOMEONE NEW IN MARCH OF 2002 <A HREF= " http://www.geocities.com/mommy24greatkids/J.html?993220222840 " >jaykob</A> <A HREF= " http://www.babababies.com/view/view.cfm?SITEID=1239 " >Jaykob-Tyler's Webpage</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 In a message dated 7/14/01 10:09:52 AM Eastern Daylight Time, myangel0528@... writes: > > > Quick question, how many of you moms took a fetal protein test and amnio. > > > test with your child born after your child with DS? > > > > > I had an amnio with my daughter melisa, she was my pregnancy after eric > ds....but, mostly i did it to find out the sex, after all i already had 4 > sons and was hoping for a girl....and i was and i was tickled pink....she > is 6 now, nda. > > Debbie - NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 In a message dated 7/14/01 10:09:52 AM Eastern Daylight Time, myangel0528@... writes: > > > Quick question, how many of you moms took a fetal protein test and amnio. > > > test with your child born after your child with DS? > > > > > I had an amnio with my daughter melisa, she was my pregnancy after eric > ds....but, mostly i did it to find out the sex, after all i already had 4 > sons and was hoping for a girl....and i was and i was tickled pink....she > is 6 now, nda. > > Debbie - NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 My daughter had an amnio because her husband insisted on it. So she insisted he go with her. When they brought out the long needle, he started for the door, passed out on the floor and had to have 15 stitches in his chin. He is well over 6 feet and went down hard. The baby was fine. We all had a lot of laughs out of that one. He said he woke up and people were standing all around him and he wondered, " what are all these people doing standing on my bed? " Jessie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 My daughter had an amnio because her husband insisted on it. So she insisted he go with her. When they brought out the long needle, he started for the door, passed out on the floor and had to have 15 stitches in his chin. He is well over 6 feet and went down hard. The baby was fine. We all had a lot of laughs out of that one. He said he woke up and people were standing all around him and he wondered, " what are all these people doing standing on my bed? " Jessie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 > Quick question, how many of you moms took a fetal protein test and amnio. > test with your child born after your child with DS? I had a normal AFP test with Ian (though he did have enlarged kidneys and we had many ultrasounds with a doctor who was doing a study on diagnosing Down syndrome through ultrasound and missed every one of Ian's). With , I had an AFP test simply because the doctor wanted to screen with everyone (as he had with Ian), but we refused offers of an amnio unless the AFP came back with something. When the AFP came back high, we agreed to an amnio only to see if there was something special we needed to do in preparation for an as-close-to-healthy-as-possible birth: a C-section, surgery upon delivery, etc. As you know, a high result indicates a neural problem, not Down syndrome. In any case, the amnio came back normal, and so did . With Rose, we had the AFP test with the same conditions for an amnio as we had specified with . It never got to that point. CK, Mom to Ian (2/89), (9/90), and Rose (6/94) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 > Quick question, how many of you moms took a fetal protein test and amnio. > test with your child born after your child with DS? I had a normal AFP test with Ian (though he did have enlarged kidneys and we had many ultrasounds with a doctor who was doing a study on diagnosing Down syndrome through ultrasound and missed every one of Ian's). With , I had an AFP test simply because the doctor wanted to screen with everyone (as he had with Ian), but we refused offers of an amnio unless the AFP came back with something. When the AFP came back high, we agreed to an amnio only to see if there was something special we needed to do in preparation for an as-close-to-healthy-as-possible birth: a C-section, surgery upon delivery, etc. As you know, a high result indicates a neural problem, not Down syndrome. In any case, the amnio came back normal, and so did . With Rose, we had the AFP test with the same conditions for an amnio as we had specified with . It never got to that point. CK, Mom to Ian (2/89), (9/90), and Rose (6/94) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 congrats Stacee..... when in 2002 is the new little flower in your life due to bloom?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 congrats Stacee..... when in 2002 is the new little flower in your life due to bloom?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 we had the cvs testing done. not sure why but i think we justed wanted to be prepared in case. the cvs test was done at 9 weeks and we had the results in two or three days. our second son alex arrived and is " normal " but he is a big pain in the but sometimes. especially at 13 and in love with his first girl!! lord help us! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 we had the cvs testing done. not sure why but i think we justed wanted to be prepared in case. the cvs test was done at 9 weeks and we had the results in two or three days. our second son alex arrived and is " normal " but he is a big pain in the but sometimes. especially at 13 and in love with his first girl!! lord help us! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 Hi everyone I usually just listen from everyone else but I thought I would reply to this. I was offered all the tests when I was PG with Lyndara and I was 30 when I got PG. We chose to decline all testing. We knew that God wouldn't give us anything that we could handle and we knew that it wouldn't make any difference what the results of the test were. Well Lyndara was born 4/17/92 5 weeks premature and with DS. She was our first baby but that didn't stop us. We had 2 more children all without problems. We were pushed alot with our last one Tatiana to have all the testing since I would be 38 when I had her. I am glad that I didn't do the testing with any of them. I hate to have undo worries. Of course this is just what is best for our family. I think that we all have to make the decisions that are the best for each of our families. Well that is my story thanks for letting me lurk most of the time. Love to read your stories. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 Hi everyone I usually just listen from everyone else but I thought I would reply to this. I was offered all the tests when I was PG with Lyndara and I was 30 when I got PG. We chose to decline all testing. We knew that God wouldn't give us anything that we could handle and we knew that it wouldn't make any difference what the results of the test were. Well Lyndara was born 4/17/92 5 weeks premature and with DS. She was our first baby but that didn't stop us. We had 2 more children all without problems. We were pushed alot with our last one Tatiana to have all the testing since I would be 38 when I had her. I am glad that I didn't do the testing with any of them. I hate to have undo worries. Of course this is just what is best for our family. I think that we all have to make the decisions that are the best for each of our families. Well that is my story thanks for letting me lurk most of the time. Love to read your stories. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 hello, I am new to your group. I have a little girl Myah with down syndrome. She is 7 months old. I was offered the triple screen like any normal pregnancy, but declined with the thinking if anything was wrong abortion would not be an option anyway. I must add that I was the ripe old age of 22, now 23. Something just told me it didn't matter. After routine ultrasounds the doctors suspected several things including down syndrome, cystic fibrosis, toxoplasmosis, & trisomy 18. After several trips for ultrasounds and seeing specialists I finally at 28 weeks opted for the amnio because I needed to know for myself if my baby would live or not. (A lot of times trisomy 18 isn't compatible with life.) 2 weeks later I found out that Myah had trisomy 21. I was so relieved! But I did go though the normal grieving process also and I think that period of time is needed by anyone in that situation. As a reply to your question when I do get pregnant again I will opt for the testing and if it comes back anything than normal I will know and deal with it then, and if it's OK I won't wonder at all. I was so against the amnio for so long that I lived questioning what was going on with my baby that I drove myself nuts. I read all there is to know about all of the things they thought were a possibility. Talk about a complete basketcase!! Try attending your babyshower when you don't know if you are bringing a baby home. I just really think it is a good idea to do testing so that you are prepared, not that you wouldn't accept your new baby no matter what. Re: Just for smiles > I was 39 when I became pregnant with Ellie and 40 before she was born. I > think the doctors offered my amnio about five times. I refused each time. > The only outcome I could see for having an amnio was to abort, and I wanted > this baby so bad, I wouldn't even consider it. > > Toward the end of my high risk pregnancy, the doctor did an amnio to see if > the baby's lungs were mature enough to survive an induced delivery. I asked > then if we could see if (s)he had ds, but the doctor said the results for > that test would take longer to get back than it would for the baby to be > born. > > Well her lungs were mature enough so I was induced and gave birth to an 8 lb > 6 oz preemie, (by 4 weeks). And the first thing I said when I saw her was > " At least she doesn't have down syndrome. " It was about three hours later > that the doctor came and dispelled my dillusion. > > I still wouldn't trade her in for anything. > > Gwen, mom to Ellie 5 > > Quick question, how many of you moms took a fetal protein test and amnio. > > test with your child born after your child with DS? > > -Rukiyah mom to KING Hassan 4(ds) and unborn (whom is kicking like a > soccer > > player) > > > > Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 hello, I am new to your group. I have a little girl Myah with down syndrome. She is 7 months old. I was offered the triple screen like any normal pregnancy, but declined with the thinking if anything was wrong abortion would not be an option anyway. I must add that I was the ripe old age of 22, now 23. Something just told me it didn't matter. After routine ultrasounds the doctors suspected several things including down syndrome, cystic fibrosis, toxoplasmosis, & trisomy 18. After several trips for ultrasounds and seeing specialists I finally at 28 weeks opted for the amnio because I needed to know for myself if my baby would live or not. (A lot of times trisomy 18 isn't compatible with life.) 2 weeks later I found out that Myah had trisomy 21. I was so relieved! But I did go though the normal grieving process also and I think that period of time is needed by anyone in that situation. As a reply to your question when I do get pregnant again I will opt for the testing and if it comes back anything than normal I will know and deal with it then, and if it's OK I won't wonder at all. I was so against the amnio for so long that I lived questioning what was going on with my baby that I drove myself nuts. I read all there is to know about all of the things they thought were a possibility. Talk about a complete basketcase!! Try attending your babyshower when you don't know if you are bringing a baby home. I just really think it is a good idea to do testing so that you are prepared, not that you wouldn't accept your new baby no matter what. Re: Just for smiles > I was 39 when I became pregnant with Ellie and 40 before she was born. I > think the doctors offered my amnio about five times. I refused each time. > The only outcome I could see for having an amnio was to abort, and I wanted > this baby so bad, I wouldn't even consider it. > > Toward the end of my high risk pregnancy, the doctor did an amnio to see if > the baby's lungs were mature enough to survive an induced delivery. I asked > then if we could see if (s)he had ds, but the doctor said the results for > that test would take longer to get back than it would for the baby to be > born. > > Well her lungs were mature enough so I was induced and gave birth to an 8 lb > 6 oz preemie, (by 4 weeks). And the first thing I said when I saw her was > " At least she doesn't have down syndrome. " It was about three hours later > that the doctor came and dispelled my dillusion. > > I still wouldn't trade her in for anything. > > Gwen, mom to Ellie 5 > > Quick question, how many of you moms took a fetal protein test and amnio. > > test with your child born after your child with DS? > > -Rukiyah mom to KING Hassan 4(ds) and unborn (whom is kicking like a > soccer > > player) > > > > Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2001 Report Share Posted July 15, 2001 I had the AFP test...results came back in the normal range. SURPRISE!!!! Wouldn't have changed it for the world! " Let us not be content to wait and see what will happen, but give us the determination to make the right things happen. " -- Marshall Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2001 Report Share Posted July 15, 2001 I had the AFP test...results came back in the normal range. SURPRISE!!!! Wouldn't have changed it for the world! " Let us not be content to wait and see what will happen, but give us the determination to make the right things happen. " -- Marshall Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2001 Report Share Posted July 15, 2001 In a message dated 7/14/01 6:40:00 PM Eastern Daylight Time, Ann@... writes: > congrats Stacee..... when in 2002 is the new little flower in your life due > to bloom?? > > March 10th is the due date.. But Jaykob was 4 weeks early so sometime in Feb or March of 2002.. My 26th birthday is March 11th.. I think that would be a great day to have a birthday present ) stacee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2001 Report Share Posted July 15, 2001 In a message dated 7/14/01 6:40:00 PM Eastern Daylight Time, Ann@... writes: > congrats Stacee..... when in 2002 is the new little flower in your life due > to bloom?? > > March 10th is the due date.. But Jaykob was 4 weeks early so sometime in Feb or March of 2002.. My 26th birthday is March 11th.. I think that would be a great day to have a birthday present ) stacee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2001 Report Share Posted July 15, 2001 When pregnant with Isaac, I was 29 (my husband was 47). I did the AFP because I had done it with earlier pregnancies and didn't see any reason not to. It came back with a suggestion for DS so our OBGYN recommended an amnio. We never had any intention of terminating a pregnancy, but we just wanted peace of mind one way or the other. We are glad we did the amnio because we used the remaining 4-5 months of our pregnancy to read up on DS and educate our family and friends. That way, we weren't totally shocked at delivery time and could concentrate on Isaac, rather than hearing of DS just after giving birth and dealing with all the range of emotions, etc. that would accompany that. Our OBGYN called us in the evening when he had the results of the amnio. He is an incredibly KIND man and asked if my husband was home. I told him yes and he said well that was good and he just wanted to talk to me about the results. I thought it was very considerate that he made sure I wasn't alone upon hearing the results. Then he went on to tell me that the results were positive for DS and that as my doctor he needed to let me know that there are options if I did not want the baby. I reassured him that we definitely wanted our baby. He then continued with a wonderful speech about how he felt that this baby would be a blessing to our lives and that it would be difficult at times, just as with any other child, but that he knew that God would strengthen us through this child. He also told us that many times a child with a disability will either greatly strengthen a marriage or greatly harm it and we needed to be aware of that up front and be united. (Isaac has strengthened our marriage!) He also told us that we were to be this child's advocate for life and he was very positive. He presented the news of the DS so positively and tenderly and I really feel that made our attitude optimistic from the start. Sorry so long! Jill, Mom to (17), Lydia (8) and Isaac (2 1/2) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2001 Report Share Posted July 15, 2001 When pregnant with Isaac, I was 29 (my husband was 47). I did the AFP because I had done it with earlier pregnancies and didn't see any reason not to. It came back with a suggestion for DS so our OBGYN recommended an amnio. We never had any intention of terminating a pregnancy, but we just wanted peace of mind one way or the other. We are glad we did the amnio because we used the remaining 4-5 months of our pregnancy to read up on DS and educate our family and friends. That way, we weren't totally shocked at delivery time and could concentrate on Isaac, rather than hearing of DS just after giving birth and dealing with all the range of emotions, etc. that would accompany that. Our OBGYN called us in the evening when he had the results of the amnio. He is an incredibly KIND man and asked if my husband was home. I told him yes and he said well that was good and he just wanted to talk to me about the results. I thought it was very considerate that he made sure I wasn't alone upon hearing the results. Then he went on to tell me that the results were positive for DS and that as my doctor he needed to let me know that there are options if I did not want the baby. I reassured him that we definitely wanted our baby. He then continued with a wonderful speech about how he felt that this baby would be a blessing to our lives and that it would be difficult at times, just as with any other child, but that he knew that God would strengthen us through this child. He also told us that many times a child with a disability will either greatly strengthen a marriage or greatly harm it and we needed to be aware of that up front and be united. (Isaac has strengthened our marriage!) He also told us that we were to be this child's advocate for life and he was very positive. He presented the news of the DS so positively and tenderly and I really feel that made our attitude optimistic from the start. Sorry so long! Jill, Mom to (17), Lydia (8) and Isaac (2 1/2) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2001 Report Share Posted July 16, 2001 My AFP came back negative. Didn't want an amnio..... Nic didn't have the DS " signs " except for the " placement of the eyes " as our Ped (now since fired) put it. Di, mom to Jake(18,nda) and 4 (DS) Pennsylvania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2001 Report Share Posted July 16, 2001 My AFP came back negative. Didn't want an amnio..... Nic didn't have the DS " signs " except for the " placement of the eyes " as our Ped (now since fired) put it. Di, mom to Jake(18,nda) and 4 (DS) Pennsylvania Quote Link to comment Share on other sites More sharing options...
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