You might be on the waiting list

[Guest guest]

From NOEWAIT:

 

The following posts recently raised questions about the difference between

people with a developmental disability on waiting lists and people in the

services system who are underserved. This difference is pretty clear to those of

us on waiting lists

I offer the following to help clarify this matter.  

 

You might be on the waiting list, if a bus goes by your house to pick up a

neighbor, just like your child and take them to a day program, while your child

is home alone, and you believe no one give a rats behind about your child.

 

 You might be on the waiting list, if a behavior therapist passes by your house

to attend to a neighbor just like your child, and you believe no one give a rats

behind about your child .

 

You might be on the waiting list, if the respite worker passes your house and

provides services for a family just like yours, and you believe no one give a

rats behind about your family.

 

You might be on the waiting list, if you do not know the name of your supports

coordinator and you think they do not give a rats behind about your family.

 

You might be on the waiting list, if your requests for help to eliminating the

waiting lists to the national state and local ARCs are ignored.

 

You might be on the waiting list, if you are paying for day program for your

child while families with much more money than you will ever have, get this

service for free.

 

You might be on a waiting list, if you yawn when you hear about families who are

receiving services complain about the limited number of service hours they are

receiving.

 

You might be on the waiting list, if you have no representation on the State DD

Council, on the boards of the protection and advocacy system, ARC's and UCP's

and not like to get any representation on these bodies.

 

You might be on the waiting list, if you only have NOEWAIT and Left Behind in

Florida speaking out for your interests. 

 

You might be on the waiting list, if you are indignant when you don't see the

waitlist mentioned on convention's agendas. You might feel like they don't give

a rat's behind about you or your family when they do not courtesy to mention

this issue on their agenda. 

 

 

 

Please add more so we can better define the people on the waiting lists.

 

Mike Coonan

Left Behind in Florida

 

 

 

 

I have updated Louisiana's information. Carol Calix

>

>

> These are two years old. As we all know, no one actually knows how many folks

are on a wait list either state-by-state or nationally. In addition to whatever

figures may be available, there are always those who are " hidden " - an 80

year-old mom who has never signed up for services, those who have heard about

the wait list and never tried to get on it because of exhaustion of effort,

etc., etc.

>

> The the question becomes - " Wait list for what? "

>

> For example, if a person desperately needs full comprehensive services, but

finally gets 5 hours per week of family support, is that person on a wait list?

>

> I say " Yes. " That person is on a wait list for what is needed, but some

counters would say " No " - the individual is getting services, so - no wait list.

>

> The wait list is NOT simple.

>

> Many folks in CO are on a wait list of sorts for CDASS/Comp - the program they

really need, but are being served - in a limited way - through the SLS waiver.

>

> Some are on the EBD waiver while waiting for the Comp Waiver - etc., etc.

>

> ============ ========= ========= =======

>

>

> The Colorado info doesn't look correct. We have 13,000 individuals on the

waiting list...last count that I recall.

> Deb

>

 

 

 

From: NOEWAIT@groups .com [mailto:NOEWAIT] On Behalf Of

noewaitaol (DOT) com

Sent: Tuesday, May 11, 2010 7:33 AM

NOEWAIT@groups .com; NOEWAITSC@grou ps.com; laurahbelieves@

aol.com; cathybedard@ ameritech. net; summeraloha (DOT) net; amazonbreneeb (DOT) net;

NOEWAITaol (DOT) com; lfaheyfamilycafe (DOT) net; mdevaney@visionfore quality.org;

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mikecoonancox (DOT) net

Subject: Re: [PAD-CO] Re: [NOEWAITSC] Re: (NOEWAIT) Re: For shame - The wait li

st once again ignored at national ( & state) conven...

 

 

These are two years old.  As we all know, no one actually knows how many folks

are on a wait list either state-by-state or nationally.  In addition to

whatever figures may be available, there are always those who are " hidden " - an

80 year-old mom who has never signed up for services, those who have heard about

the wait list and never tried to get on it because of exhaustion of effort,

etc., etc.

 

The the question becomes - " Wait list for what? "

 

For example, if a person desperately needs full comprehensive services, but

finally gets 5 hours per week of family support, is that person on a wait list?

 

I say " Yes. "   That person is on a wait list for what is needed, but some

counters would say " No " - the individual is getting services, so - no wait list.

 

The wait list is NOT simple.

 

Many folks in CO are on a wait list of sorts for CDASS/Comp - the program they

really need, but are being served - in a limited way - through the SLS waiver. 

 

Some are on the EBD waiver while waiting for the Comp Waiver - etc., etc.

 

============ ========= ========= =======

The Colorado info doesn't look correct. We have 13,000 individuals on the

waiting list...last count that I recall.

Deb

 

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Checked by AVG - www.avg.com

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06:26:00

[Guest guest]

From NOEWAIT:

 

The following posts recently raised questions about the difference between

people with a developmental disability on waiting lists and people in the

services system who are underserved. This difference is pretty clear to those of

us on waiting lists

I offer the following to help clarify this matter.  

 

You might be on the waiting list, if a bus goes by your house to pick up a

neighbor, just like your child and take them to a day program, while your child

is home alone, and you believe no one give a rats behind about your child.

 

 You might be on the waiting list, if a behavior therapist passes by your house

to attend to a neighbor just like your child, and you believe no one give a rats

behind about your child .

 

You might be on the waiting list, if the respite worker passes your house and

provides services for a family just like yours, and you believe no one give a

rats behind about your family.

 

You might be on the waiting list, if you do not know the name of your supports

coordinator and you think they do not give a rats behind about your family.

 

You might be on the waiting list, if your requests for help to eliminating the

waiting lists to the national state and local ARCs are ignored.

 

You might be on the waiting list, if you are paying for day program for your

child while families with much more money than you will ever have, get this

service for free.

 

You might be on a waiting list, if you yawn when you hear about families who are

receiving services complain about the limited number of service hours they are

receiving.

 

You might be on the waiting list, if you have no representation on the State DD

Council, on the boards of the protection and advocacy system, ARC's and UCP's

and not like to get any representation on these bodies.

 

You might be on the waiting list, if you only have NOEWAIT and Left Behind in

Florida speaking out for your interests. 

 

You might be on the waiting list, if you are indignant when you don't see the

waitlist mentioned on convention's agendas. You might feel like they don't give

a rat's behind about you or your family when they do not courtesy to mention

this issue on their agenda. 

 

 

 

Please add more so we can better define the people on the waiting lists.

 

Mike Coonan

Left Behind in Florida

 

 

 

 

I have updated Louisiana's information. Carol Calix

>

>

> These are two years old. As we all know, no one actually knows how many folks

are on a wait list either state-by-state or nationally. In addition to whatever

figures may be available, there are always those who are " hidden " - an 80

year-old mom who has never signed up for services, those who have heard about

the wait list and never tried to get on it because of exhaustion of effort,

etc., etc.

>

> The the question becomes - " Wait list for what? "

>

> For example, if a person desperately needs full comprehensive services, but

finally gets 5 hours per week of family support, is that person on a wait list?

>

> I say " Yes. " That person is on a wait list for what is needed, but some

counters would say " No " - the individual is getting services, so - no wait list.

>

> The wait list is NOT simple.

>

> Many folks in CO are on a wait list of sorts for CDASS/Comp - the program they

really need, but are being served - in a limited way - through the SLS waiver.

>

> Some are on the EBD waiver while waiting for the Comp Waiver - etc., etc.

>

> ============ ========= ========= =======

>

>

> The Colorado info doesn't look correct. We have 13,000 individuals on the

waiting list...last count that I recall.

> Deb

>

 

 

 

From: NOEWAIT@groups .com [mailto:NOEWAIT] On Behalf Of

noewaitaol (DOT) com

Sent: Tuesday, May 11, 2010 7:33 AM

NOEWAIT@groups .com; NOEWAITSC@grou ps.com; laurahbelieves@

aol.com; cathybedard@ ameritech. net; summeraloha (DOT) net; amazonbreneeb (DOT) net;

NOEWAITaol (DOT) com; lfaheyfamilycafe (DOT) net; mdevaney@visionfore quality.org;

halljohncomcast (DOT) net; DnvrFoxaol (DOT) com; pgeraldinohotmail (DOT) com;

mikecoonancox (DOT) net

Subject: Re: [PAD-CO] Re: [NOEWAITSC] Re: (NOEWAIT) Re: For shame - The wait li

st once again ignored at national ( & state) conven...

 

 

These are two years old.  As we all know, no one actually knows how many folks

are on a wait list either state-by-state or nationally.  In addition to

whatever figures may be available, there are always those who are " hidden " - an

80 year-old mom who has never signed up for services, those who have heard about

the wait list and never tried to get on it because of exhaustion of effort,

etc., etc.

 

The the question becomes - " Wait list for what? "

 

For example, if a person desperately needs full comprehensive services, but

finally gets 5 hours per week of family support, is that person on a wait list?

 

I say " Yes. "   That person is on a wait list for what is needed, but some

counters would say " No " - the individual is getting services, so - no wait list.

 

The wait list is NOT simple.

 

Many folks in CO are on a wait list of sorts for CDASS/Comp - the program they

really need, but are being served - in a limited way - through the SLS waiver. 

 

Some are on the EBD waiver while waiting for the Comp Waiver - etc., etc.

 

============ ========= ========= =======

The Colorado info doesn't look correct. We have 13,000 individuals on the

waiting list...last count that I recall.

Deb

 

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.437 / Virus Database: 271.1.1/2867 - Release Date: 05/11/10

06:26:00