Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 I think has a great idea...I can explore this with JJ Hanley and see if jjslist is adaptable in this way...also...I can explore this with Laurie and Marie with as an advisor to see if IPADDU is adaptable. I hate to see yet another vehicle for communication developing which will add yet another huge slew of emails out there...I also think that, though IPADDU might be a perfect place to do this, we might need a fourth moderator to set up and manage this...perhaps would be willing...unless we keep it simpler...maybe just an every 3-6 month feature on IPADDU when we ask everyone to share their creative strategies for post-transition vocational, social, recreational, housing... And then, those who are interested can contact the innovators and creators to learn more about how to replicate the model and/or, the best innovations may result in an " Ask the Expert " feature on IPADDU. For example, in reference to the Our Place of New Trier Township program, which mentions, I did not create this program, but my son Noah is participating in it...we could have those families who created the program, explain why they created it, how they created it and what has been the result of their creation...again...an " Ask the Expert " segment... Our Place is not exclusively for those with autism...and now, you will get my special bias...I believe and have always believed that cross categorical programs produce better results for our loved ones. The Our Place program has a pretty wide mix of individuals, many of whom have known each other from school and the neighborhood. It seems to be working out quite well. There are work initiatives like the Perk Center Cafe through Great Potentials (they are now working on a bid/proposal for a second job site) and We Grow Dreams...we could have those folks on IPADDU, describing, explaining and mentoring... My concluding thoughts...we cannot wait for someone to do this for us...most of the great stuff out there has been via family initiatives...even the workshops and agencies that have been around 40, and 50 years, most were founded by families. Thoughts? Ideas? Ellen Ellen Garber Bronfeld egskb@... Re: Autism Needs Survey - Transition planning Something we do in D214 is have a meeting every month of the parents of the kids in the transition house program and, I think we're going to include recent " grad's " parents too. Ideas, networking, etc. As I learned this week, the New Trier area has several parent groups formed around transition goals - employment, activities, housing, whatever. Ellen can fill you in. But my point with these examples is that, especially with the uniqueness of autism, I think we could use a regionalized craigslist-type networking site so we can search each other's posts for similar interests, transition activities, and (now, but especially post-transition) social therapy, recreation, housing and employment development efforts. I realize for most general DD categories the groups of parents that start up a project or program do it within their district or suburb, etc. But for autism, I think we need wider areas to " cast the net " , yet not so wide as IPADDU as I been finding over the years (the potential matched interests always seem to be in Aurora or Midlothian or even downstate). A few of you have been " accosted " by my efforts to do this with your direct e-mail following your posting something here. It's always nice to make those contacts, of course, but it's not very efficient for doing productive networking. This site could do this if the Member's area was expanded with profiles, regionalized (e.g. " West " would get W, SW & NW; NW would get W, NW and N, etc.), and added a section for searchable posts -- and if we all filled it in. But I'd like to know if any existing sites have a structure even more adaptable (and are willing to consider). I envision something like a cross between craiglist, LifeMyWay, and autism-pdd/forum. Okay, now shoot me down. > > I can so empathize with you! My son's transition IEP is in 2 months. Meantime, I'm " shopping " for a good program for him in Lake Co. I guess deep down I've held out hope that at some point during transition, he will stumble upon a good fit for a job opportunity or that something will fall in our laps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 sounds like a fantastic idea ! I like the idea about parents meeting monthly too from the transition house, I will definitely keep this in mind and maybe my district already has this. H. PS: Autism is unique, isn't it? Re: Autism Needs Survey - Transition planning Something we do in D214 is have a meeting every month of the parents of the kids n the transition house program and, I think we're going to include recent grad's " parents too. Ideas, networking, etc. As I learned this week, the New Trier area has several parent groups formed round transition goals - employment, activities, housing, whatever. Ellen can ill you in. But my point with these examples is that, especially with the uniqueness of utism, I think we could use a regionalized craigslist-type networking site so e can search each other's posts for similar interests, transition activities, nd (now, but especially post-transition) social therapy, recreation, housing nd employment development efforts. I realize for most general DD categories the groups of parents that start up a roject or program do it within their district or suburb, etc. But for autism, think we need wider areas to " cast the net " , yet not so wide as IPADDU as I een finding over the years (the potential matched interests always seem to be n Aurora or Midlothian or even downstate). A few of you have been " accosted " by my efforts to do this with your direct -mail following your posting something here. It's always nice to make those ontacts, of course, but it's not very efficient for doing productive etworking. This site could do this if the Member's area was expanded with profiles, egionalized (e.g. " West " would get W, SW & NW; NW would get W, NW and N, etc.), nd added a section for searchable posts -- and if we all filled it in. But I'd ike to know if any existing sites have a structure even more adaptable (and are illing to consider). I envision something like a cross between craiglist, ifeMyWay, and autism-pdd/forum. Okay, now shoot me down. I can so empathize with you! My son's transition IEP is in 2 months. eantime, I'm " shopping " for a good program for him in Lake Co. I guess deep own I've held out hope that at some point during transition, he will stumble pon a good fit for a job opportunity or that something will fall in our laps. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 I think has a great idea...I can explore this with JJ Hanley and see if jjslist is adaptable in this way...also...I can explore this with Laurie and Marie with as an advisor to see if IPADDU is adaptable. I hate to see yet another vehicle for communication developing which will add yet another huge slew of emails out there...I also think that, though IPADDU might be a perfect place to do this, we might need a fourth moderator to set up and manage this...perhaps would be willing...unless we keep it simpler...maybe just an every 3-6 month feature on IPADDU when we ask everyone to share their creative strategies for post-transition vocational, social, recreational, housing... And then, those who are interested can contact the innovators and creators to learn more about how to replicate the model and/or, the best innovations may result in an " Ask the Expert " feature on IPADDU. For example, in reference to the Our Place of New Trier Township program, which mentions, I did not create this program, but my son Noah is participating in it...we could have those families who created the program, explain why they created it, how they created it and what has been the result of their creation...again...an " Ask the Expert " segment... Our Place is not exclusively for those with autism...and now, you will get my special bias...I believe and have always believed that cross categorical programs produce better results for our loved ones. The Our Place program has a pretty wide mix of individuals, many of whom have known each other from school and the neighborhood. It seems to be working out quite well. There are work initiatives like the Perk Center Cafe through Great Potentials (they are now working on a bid/proposal for a second job site) and We Grow Dreams...we could have those folks on IPADDU, describing, explaining and mentoring... My concluding thoughts...we cannot wait for someone to do this for us...most of the great stuff out there has been via family initiatives...even the workshops and agencies that have been around 40, and 50 years, most were founded by families. Thoughts? Ideas? Ellen Ellen Garber Bronfeld egskb@... Re: Autism Needs Survey - Transition planning Something we do in D214 is have a meeting every month of the parents of the kids in the transition house program and, I think we're going to include recent " grad's " parents too. Ideas, networking, etc. As I learned this week, the New Trier area has several parent groups formed around transition goals - employment, activities, housing, whatever. Ellen can fill you in. But my point with these examples is that, especially with the uniqueness of autism, I think we could use a regionalized craigslist-type networking site so we can search each other's posts for similar interests, transition activities, and (now, but especially post-transition) social therapy, recreation, housing and employment development efforts. I realize for most general DD categories the groups of parents that start up a project or program do it within their district or suburb, etc. But for autism, I think we need wider areas to " cast the net " , yet not so wide as IPADDU as I been finding over the years (the potential matched interests always seem to be in Aurora or Midlothian or even downstate). A few of you have been " accosted " by my efforts to do this with your direct e-mail following your posting something here. It's always nice to make those contacts, of course, but it's not very efficient for doing productive networking. This site could do this if the Member's area was expanded with profiles, regionalized (e.g. " West " would get W, SW & NW; NW would get W, NW and N, etc.), and added a section for searchable posts -- and if we all filled it in. But I'd like to know if any existing sites have a structure even more adaptable (and are willing to consider). I envision something like a cross between craiglist, LifeMyWay, and autism-pdd/forum. Okay, now shoot me down. > > I can so empathize with you! My son's transition IEP is in 2 months. Meantime, I'm " shopping " for a good program for him in Lake Co. I guess deep down I've held out hope that at some point during transition, he will stumble upon a good fit for a job opportunity or that something will fall in our laps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 sounds like a fantastic idea ! I like the idea about parents meeting monthly too from the transition house, I will definitely keep this in mind and maybe my district already has this. H. PS: Autism is unique, isn't it? Re: Autism Needs Survey - Transition planning Something we do in D214 is have a meeting every month of the parents of the kids n the transition house program and, I think we're going to include recent grad's " parents too. Ideas, networking, etc. As I learned this week, the New Trier area has several parent groups formed round transition goals - employment, activities, housing, whatever. Ellen can ill you in. But my point with these examples is that, especially with the uniqueness of utism, I think we could use a regionalized craigslist-type networking site so e can search each other's posts for similar interests, transition activities, nd (now, but especially post-transition) social therapy, recreation, housing nd employment development efforts. I realize for most general DD categories the groups of parents that start up a roject or program do it within their district or suburb, etc. But for autism, think we need wider areas to " cast the net " , yet not so wide as IPADDU as I een finding over the years (the potential matched interests always seem to be n Aurora or Midlothian or even downstate). A few of you have been " accosted " by my efforts to do this with your direct -mail following your posting something here. It's always nice to make those ontacts, of course, but it's not very efficient for doing productive etworking. This site could do this if the Member's area was expanded with profiles, egionalized (e.g. " West " would get W, SW & NW; NW would get W, NW and N, etc.), nd added a section for searchable posts -- and if we all filled it in. But I'd ike to know if any existing sites have a structure even more adaptable (and are illing to consider). I envision something like a cross between craiglist, ifeMyWay, and autism-pdd/forum. Okay, now shoot me down. I can so empathize with you! My son's transition IEP is in 2 months. eantime, I'm " shopping " for a good program for him in Lake Co. I guess deep own I've held out hope that at some point during transition, he will stumble pon a good fit for a job opportunity or that something will fall in our laps. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 " " PS: Autism is unique, isn't it? " In response to the above comment about autism... The more I meet other individuals with developmental disabilities, e.g.; individuals with Down Syndrome, Rett's Syndrome, cerebral palsy and other challenges, the more I see that each and every one of them have " stuff " ...we all do, in fact... You are right...most of the non-autism folks don't make a lot of odd noises, they don't have a lot of the heavy duty sensory issues, but, the modifications necessary to put individuals with autism at ease and assist them in being successful would not be disruptive or harmful to others for the most part...so...keeping that in mind, cross categorical programs can work very well, as long as there is a general overarching theme of creating welcoming and therapeutic environments that work for all... or at least for most everyone. Ellen Ellen Garber Bronfeld egskb@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 " " PS: Autism is unique, isn't it? " In response to the above comment about autism... The more I meet other individuals with developmental disabilities, e.g.; individuals with Down Syndrome, Rett's Syndrome, cerebral palsy and other challenges, the more I see that each and every one of them have " stuff " ...we all do, in fact... You are right...most of the non-autism folks don't make a lot of odd noises, they don't have a lot of the heavy duty sensory issues, but, the modifications necessary to put individuals with autism at ease and assist them in being successful would not be disruptive or harmful to others for the most part...so...keeping that in mind, cross categorical programs can work very well, as long as there is a general overarching theme of creating welcoming and therapeutic environments that work for all... or at least for most everyone. Ellen Ellen Garber Bronfeld egskb@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 I agree 100% Ellen. 's Seaspar bowling group has many varying disabilities and levels of those disabilities. H. Re: Re: Autism Needs Survey - Transition planning " " PS: Autism is unique, isn't it? " In response to the above comment about autism... he more I meet other individuals with developmental disabilities, e.g.; ndividuals with Down Syndrome, Rett's Syndrome, cerebral palsy and other hallenges, the more I see that each and every one of them have " stuff " ...we all o, in fact... ou are right...most of the non-autism folks don't make a lot of odd noises, hey don't have a lot of the heavy duty sensory issues, but, the modifications ecessary to put individuals with autism at ease and assist them in being uccessful would not be disruptive or harmful to others for the most art...so...keeping that in mind, cross categorical programs can work very well, s long as there is a general overarching theme of creating welcoming and herapeutic environments that work for all... r at least for most everyone. llen llen Garber Bronfeld gskb@... Non-text portions of this message have been removed] ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 I agree 100% Ellen. 's Seaspar bowling group has many varying disabilities and levels of those disabilities. H. Re: Re: Autism Needs Survey - Transition planning " " PS: Autism is unique, isn't it? " In response to the above comment about autism... he more I meet other individuals with developmental disabilities, e.g.; ndividuals with Down Syndrome, Rett's Syndrome, cerebral palsy and other hallenges, the more I see that each and every one of them have " stuff " ...we all o, in fact... ou are right...most of the non-autism folks don't make a lot of odd noises, hey don't have a lot of the heavy duty sensory issues, but, the modifications ecessary to put individuals with autism at ease and assist them in being uccessful would not be disruptive or harmful to others for the most art...so...keeping that in mind, cross categorical programs can work very well, s long as there is a general overarching theme of creating welcoming and herapeutic environments that work for all... r at least for most everyone. llen llen Garber Bronfeld gskb@... Non-text portions of this message have been removed] ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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