Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Shirley, Had you been offered the option of what is termed '1619 B' medicaid? It has a lower financial threshold than HBWD and there is no premium. The benefit of HBWD is our peopel can have savings accounts and retirement accounts, 1619 is free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Shirley, Had you been offered the option of what is termed '1619 B' medicaid? It has a lower financial threshold than HBWD and there is no premium. The benefit of HBWD is our peopel can have savings accounts and retirement accounts, 1619 is free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Tweaking is difficult, which should have been all thought out from the beginning. Time is the essence for important changes. Any flaws can result in costly failure. The amount of money to fix it can varies but would put United States behind in schedule. Delivering while behind schedule is backlogging. Backlogging mean waiting list, waiting period,and priority. This is what part of the most American was afraid of not a " wives tale " or " fear mongering " . > > > > From what I hear (and not understand) this bill is hundreds/a few thousand > > pages.. I heard a political scientist point out Social Security was voted on > > and it took five years to iron out the details. And in reality the details > > of Social Security are still being worked out. That probably is the case > > with this health bill. It cannot seem unusual that there are going to be > > devils of details for generations. I do believe we had to take a first > > step, move forward and hammer things out or we will never get started. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Tweaking is difficult, which should have been all thought out from the beginning. Time is the essence for important changes. Any flaws can result in costly failure. The amount of money to fix it can varies but would put United States behind in schedule. Delivering while behind schedule is backlogging. Backlogging mean waiting list, waiting period,and priority. This is what part of the most American was afraid of not a " wives tale " or " fear mongering " . > > > > From what I hear (and not understand) this bill is hundreds/a few thousand > > pages.. I heard a political scientist point out Social Security was voted on > > and it took five years to iron out the details. And in reality the details > > of Social Security are still being worked out. That probably is the case > > with this health bill. It cannot seem unusual that there are going to be > > devils of details for generations. I do believe we had to take a first > > step, move forward and hammer things out or we will never get started. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Cindi, I never heard of it. In fact I did not know about HBWD until another parent suggested it to me. NOBODY gives you the info you need and if you are not knowledgeable about everything you do not know what to do. This website and other parents have helped me so much but I still do not know enough about anything. I will have to try to look into this 1619B that you talk about. Thanks for your advice. Shirley From: Cindi Swanson <cbswanson@...> Subject: Re: Re: What We're About IPADDUnite Date: Monday, March 29, 2010, 3:09 PM  Shirley, Had you been offered the option of what is termed '1619 B' medicaid? It has a lower financial threshold than HBWD and there is no premium. The benefit of HBWD is our peopel can have savings accounts and retirement accounts, 1619 is free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Cindi, I never heard of it. In fact I did not know about HBWD until another parent suggested it to me. NOBODY gives you the info you need and if you are not knowledgeable about everything you do not know what to do. This website and other parents have helped me so much but I still do not know enough about anything. I will have to try to look into this 1619B that you talk about. Thanks for your advice. Shirley From: Cindi Swanson <cbswanson@...> Subject: Re: Re: What We're About IPADDUnite Date: Monday, March 29, 2010, 3:09 PM  Shirley, Had you been offered the option of what is termed '1619 B' medicaid? It has a lower financial threshold than HBWD and there is no premium. The benefit of HBWD is our peopel can have savings accounts and retirement accounts, 1619 is free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Re 1619 B contact Health and Disabilities Advocates. Or perhaps Sweeney at Pact can help. I don't rememberif you are in DuPage, but your pas agency should be able to help you with th. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Re 1619 B contact Health and Disabilities Advocates. Or perhaps Sweeney at Pact can help. I don't rememberif you are in DuPage, but your pas agency should be able to help you with th. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Cindi, I have Home Based Services and am with PACT and they were the ones that told me I had to get my son on Medicaid to get Home Based Services, so I did that and the spend down was so high, he could not meet it. I just happened to talk to someone at the Adult Down Syndrome clinic who told me to put him on HBDW which I did. is on SSDI so maybe that has something to do with everything too. I will look into this next week anyway. Is there one person I can contact that can explain EVERYTHING that is out there and what to do to get it? Shirley From: Cindi Swanson <cbswanson@...> Subject: Re: Re: What We're About IPADDUnite Date: Monday, March 29, 2010, 7:42 PM  Re 1619 B contact Health and Disabilities Advocates. Or perhaps Sweeney at Pact can help. I don't rememberif you are in DuPage, but your pas agency should be able to help you with th. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Cindi, I have Home Based Services and am with PACT and they were the ones that told me I had to get my son on Medicaid to get Home Based Services, so I did that and the spend down was so high, he could not meet it. I just happened to talk to someone at the Adult Down Syndrome clinic who told me to put him on HBDW which I did. is on SSDI so maybe that has something to do with everything too. I will look into this next week anyway. Is there one person I can contact that can explain EVERYTHING that is out there and what to do to get it? Shirley From: Cindi Swanson <cbswanson@...> Subject: Re: Re: What We're About IPADDUnite Date: Monday, March 29, 2010, 7:42 PM  Re 1619 B contact Health and Disabilities Advocates. Or perhaps Sweeney at Pact can help. I don't rememberif you are in DuPage, but your pas agency should be able to help you with th. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 I dont know of one person who knows all this stuf, but Health and Disabilities Advocates has people there who have a great deal of knowledge. I dont think you can have assets with 1619 B, so if your son has savings it probably is well worth paying for the HBWD so he can keep his assets. And yes he would have to have had Medicaid to get on the HBS. You probably have the best of what can be available. He has savings, medicaid probably medicare and ssdi. Your son is probably in the bestshape with all that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 I dont know of one person who knows all this stuf, but Health and Disabilities Advocates has people there who have a great deal of knowledge. I dont think you can have assets with 1619 B, so if your son has savings it probably is well worth paying for the HBWD so he can keep his assets. And yes he would have to have had Medicaid to get on the HBS. You probably have the best of what can be available. He has savings, medicaid probably medicare and ssdi. Your son is probably in the bestshape with all that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Marie, I am not sure about diasabled adult dependents, as far as coverage past the age of 26. I believe if I am correct, that my insurance, a federal BCBS PPO will cover my son as long as I have the insurance (alive actually). Even after I retire as long as I maintain the BCBS family plan for the last 5 years I am employed, I continue to be able to purchase my insurance at the rate of the currently employed and my family members whom have been covered (for the last 5 years of my employment) continue to be covered as well, as long as I continue to pay for this same coverage. Now, this is a benefit for federal employees, which I am, not sure about any other private insurance offered to non fed employees. Diane S. > > > > I think the point is to move your adult son or daughter OFF of Medicaid since the parents are making private insurance available. This is a piece of the new healthcare reform bill > > > > > > Regarding Illinois, I understand that the new Medicaid managed care plan does not include people with private insurance. > > > > Pam > > > > Re: What We're About > > > > > > > > > > > > > > I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Marie, I am not sure about diasabled adult dependents, as far as coverage past the age of 26. I believe if I am correct, that my insurance, a federal BCBS PPO will cover my son as long as I have the insurance (alive actually). Even after I retire as long as I maintain the BCBS family plan for the last 5 years I am employed, I continue to be able to purchase my insurance at the rate of the currently employed and my family members whom have been covered (for the last 5 years of my employment) continue to be covered as well, as long as I continue to pay for this same coverage. Now, this is a benefit for federal employees, which I am, not sure about any other private insurance offered to non fed employees. Diane S. > > > > I think the point is to move your adult son or daughter OFF of Medicaid since the parents are making private insurance available. This is a piece of the new healthcare reform bill > > > > > > Regarding Illinois, I understand that the new Medicaid managed care plan does not include people with private insurance. > > > > Pam > > > > Re: What We're About > > > > > > > > > > > > > > I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Here is the scoop on 1619: If you are on SSI and your earnings are so much that your SSI payment goes down to 0, you are allowed to keep your Medicaid - without a spend-down - as long as your earnings are under the state threshold. 1619 does not apply to SSDI - unfortunately. ________________________________ From: Cindi Swanson <cbswanson@...> IPADDUnite Sent: Mon, March 29, 2010 10:09:01 AM Subject: Re: Re: What We're About  Shirley, Had you been offered the option of what is termed '1619 B' medicaid? It has a lower financial threshold than HBWD and there is no premium. The benefit of HBWD is our peopel can have savings accounts and retirement accounts, 1619 is free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Here is the scoop on 1619: If you are on SSI and your earnings are so much that your SSI payment goes down to 0, you are allowed to keep your Medicaid - without a spend-down - as long as your earnings are under the state threshold. 1619 does not apply to SSDI - unfortunately. ________________________________ From: Cindi Swanson <cbswanson@...> IPADDUnite Sent: Mon, March 29, 2010 10:09:01 AM Subject: Re: Re: What We're About  Shirley, Had you been offered the option of what is termed '1619 B' medicaid? It has a lower financial threshold than HBWD and there is no premium. The benefit of HBWD is our peopel can have savings accounts and retirement accounts, 1619 is free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Thanks Sherry. I know SSI and SSDI have different rules. Shirley From: Sherri Schneider <benefithelpss@...> Subject: Re: Re: What We're About IPADDUnite Date: Tuesday, March 30, 2010, 3:43 AM  Here is the scoop on 1619: If you are on SSI and your earnings are so much that your SSI payment goes down to 0, you are allowed to keep your Medicaid - without a spend-down - as long as your earnings are under the state threshold. 1619 does not apply to SSDI - unfortunately. ____________ _________ _________ __ From: Cindi Swanson <cbswansonjuno (DOT) com> IPADDUnite@gro ups.com Sent: Mon, March 29, 2010 10:09:01 AM Subject: Re: Re: What We're About  Shirley, Had you been offered the option of what is termed '1619 B' medicaid? It has a lower financial threshold than HBWD and there is no premium. The benefit of HBWD is our peopel can have savings accounts and retirement accounts, 1619 is free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Thanks Sherry. I know SSI and SSDI have different rules. Shirley From: Sherri Schneider <benefithelpss@...> Subject: Re: Re: What We're About IPADDUnite Date: Tuesday, March 30, 2010, 3:43 AM  Here is the scoop on 1619: If you are on SSI and your earnings are so much that your SSI payment goes down to 0, you are allowed to keep your Medicaid - without a spend-down - as long as your earnings are under the state threshold. 1619 does not apply to SSDI - unfortunately. ____________ _________ _________ __ From: Cindi Swanson <cbswansonjuno (DOT) com> IPADDUnite@gro ups.com Sent: Mon, March 29, 2010 10:09:01 AM Subject: Re: Re: What We're About  Shirley, Had you been offered the option of what is termed '1619 B' medicaid? It has a lower financial threshold than HBWD and there is no premium. The benefit of HBWD is our peopel can have savings accounts and retirement accounts, 1619 is free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Our United Healthcare non-fed private employer plan has sent us a letter ( that is in the safe deposit box) stating as long as we are enrolled in the current plan or a successor retiree plan, our daughter due to her disabilities has coverage in force regardless of her age for life or the policy cap.  This is good news but the bad news is it reduces interest or really ability to move to another employer because of the lack of portability.  I find no language in the new law that even addresses this issue. Anyone else see it?    Humbly grateful to be your companion on the journey... Gordon P. Stiefel Phone: 708 246 5151 Fax: 708 246 9144 " All great change in America begins at the dinner table " , Reagan. " Now more than ever, in a world all too often deprived of light and the courage of noble ideals, it is not the time to be ashamed of the Gospel (cf. Rom 1: 16). Rather, it is time to preach it from the rooftops (cf. Mt 10: 27)! " National Meeting of Young Catholics of Switzerland (2004), Address of II .. From: swedegrl2005 <swedegrl@...> Subject: Re: What We're About IPADDUnite Date: Monday, March 29, 2010, 10:33 PM  Marie, I am not sure about diasabled adult dependents, as far as coverage past the age of 26. I believe if I am correct, that my insurance, a federal BCBS PPO will cover my son as long as I have the insurance (alive actually). Even after I retire as long as I maintain the BCBS family plan for the last 5 years I am employed, I continue to be able to purchase my insurance at the rate of the currently employed and my family members whom have been covered (for the last 5 years of my employment) continue to be covered as well, as long as I continue to pay for this same coverage. Now, this is a benefit for federal employees, which I am, not sure about any other private insurance offered to non fed employees. Diane S. > > > > I think the point is to move your adult son or daughter OFF of Medicaid since the parents are making private insurance available. This is a piece of the new healthcare reform bill > > > > > > Regarding Illinois, I understand that the new Medicaid managed care plan does not include people with private insurance. > > > > Pam > > > > Re: What We're About > > > > > > > > > > > > > > I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Our United Healthcare non-fed private employer plan has sent us a letter ( that is in the safe deposit box) stating as long as we are enrolled in the current plan or a successor retiree plan, our daughter due to her disabilities has coverage in force regardless of her age for life or the policy cap.  This is good news but the bad news is it reduces interest or really ability to move to another employer because of the lack of portability.  I find no language in the new law that even addresses this issue. Anyone else see it?    Humbly grateful to be your companion on the journey... Gordon P. Stiefel Phone: 708 246 5151 Fax: 708 246 9144 " All great change in America begins at the dinner table " , Reagan. " Now more than ever, in a world all too often deprived of light and the courage of noble ideals, it is not the time to be ashamed of the Gospel (cf. Rom 1: 16). Rather, it is time to preach it from the rooftops (cf. Mt 10: 27)! " National Meeting of Young Catholics of Switzerland (2004), Address of II .. From: swedegrl2005 <swedegrl@...> Subject: Re: What We're About IPADDUnite Date: Monday, March 29, 2010, 10:33 PM  Marie, I am not sure about diasabled adult dependents, as far as coverage past the age of 26. I believe if I am correct, that my insurance, a federal BCBS PPO will cover my son as long as I have the insurance (alive actually). Even after I retire as long as I maintain the BCBS family plan for the last 5 years I am employed, I continue to be able to purchase my insurance at the rate of the currently employed and my family members whom have been covered (for the last 5 years of my employment) continue to be covered as well, as long as I continue to pay for this same coverage. Now, this is a benefit for federal employees, which I am, not sure about any other private insurance offered to non fed employees. Diane S. > > > > I think the point is to move your adult son or daughter OFF of Medicaid since the parents are making private insurance available. This is a piece of the new healthcare reform bill > > > > > > Regarding Illinois, I understand that the new Medicaid managed care plan does not include people with private insurance. > > > > Pam > > > > Re: What We're About > > > > > > > > > > > > > > I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria > > > > Quote Link to comment Share on other sites More sharing options...
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