Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 I live in Woodridge and has attended the YMCA teen camp (Indian Boundary)the since 7th grade ( he attended Woodridge park district prior to that). They have extended us the offer for him to attend last summer and this summer which is beyond their age limit(he'll be 18 next month). They told me that they love having him and it's been a godsend, he loves it and they love having him. I would be willing to pay for him forever if they'll let him come and the whole Junior Counselor thing is what my goal is. He loves reading stories to the younger kids, okay he loves reading the Tank Engine stories to the younger campers :-) and that is part of his day since he gets there at 7:45 before the main part of the daily activities begin. I would fight this . May I ask where you live? Do they realize what a horrible thing they are doing?? H. Re: Re: What We're About After many, many years of providing summer camp to children age 3 - 17 our park istrict has decided to change the age range to 14. I was told many years ago hat my children would be able to attend until age 21 due to the fact that our pecial Recreation provided them with a one on one aide so they could be ncluded in our park district. It was a fabulous collaboration between our Park nd Special Rec. called our Superintendent and he stated that since there was a lack of nterest in the teens in our area that the decision was made to cut the age of t 14. I asked him if I could pay for our daughter to attend and volunteer to ork. She was looking forward to becoming a Jr. Camp Councelor and working with he younger children. I tried to explain to him the heartbreak he was causing o many teens with disabilities who enjoyed attending because for once they felt part of their community. They belonged. He was sorry but there was nothing e could do about it. I also explained that due to his decision one parent ould now have to stay home during the summer and quit work. This decision had n impact on the entire family. He wasn't budging about this decision. did tell him that I would be bringing my daughter in to see him so he could xplain his decision to her. Bedard icky, andra and Tiffy's Mom Every person, regardless of whatever different abilities they may have, can ontribute, can be a source of joy, can beam with pride and love.†--Eunice ennedy Shriver We were lucky, our name was picked for HBSSP after our Governor gave out names d information to Union organizers. I'm sure that it would have bothered me be constantly bothered about joing a union. As far as privacy goes; doesn't bother me at all. My husband and I were ster Parents for over 15 years. We have lived in the perverbial goldfish bowl nce. I have had to have my home checked, nurses visit and be fingerprinted d have background checks etc. Literally, the State would come in and check r cleanliness, measurements, food, and of course the safety of the children at were placed with us. Never bothered me. After Ricky was born it just continued. I feel that having the services is re important than my privacy. I can see how it may bother some, but I look at as check and balance. I also find it comforting to know that someone is checking on our loved ones o are unable to speak for themselves. Someone needs to make sure that abuse not occuring. I guess that is a carryover of my Parent days. athy Bedard icky, andra and Tiffy's Mom “Every person, regardless of whatever different abilities they may have, can ntribute, can be a source of joy, can beam with pride and love.†--Eunice nnedy Shriver Non-text portions of this message have been removed] ------------ --------- --------- ------ ahoo! Groups Links ndividual Email | Traditional ttp://docs. / info/terms/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 We live in Bewryn. We actually moved to LaGrange Park at one time, and moved back because we missed the Berwyn Park District and WSSRA. Isn't that sad an ironic.  I am thinking about taking this to our local newspaper. Believe me, I am very angry and hurt. Bedard Ricky, andra and Tiffy's Mom  “Every person, regardless of whatever different abilities they may have, can contribute, can be a source of joy, can beam with pride and love.†--Eunice Kennedy Shriver We were lucky, our name was picked for HBSSP after our Governor gave out names d information to Union organizers. I'm sure that it would have bothered me be constantly bothered about joing a union. As far as privacy goes; doesn't bother me at all. My husband and I were ster Parents for over 15 years. We have lived in the perverbial goldfish bowl nce. I have had to have my home checked, nurses visit and be fingerprinted d have background checks etc. Literally, the State would come in and check r cleanliness, measurements, food, and of course the safety of the children at were placed with us. Never bothered me. After Ricky was born it just continued. I feel that having the services is re important than my privacy. I can see how it may bother some, but I look at as check and balance. I also find it comforting to know that someone is checking on our loved ones o are unable to speak for themselves. Someone needs to make sure that abuse not occuring. I guess that is a carryover of my Parent days. athy Bedard icky, andra and Tiffy's Mom “Every person, regardless of whatever different abilities they may have, can ntribute, can be a source of joy, can beam with pride and love.†--Eunice nnedy Shriver Non-text portions of this message have been removed] ------------ --------- --------- ------ ahoo! Groups Links ndividual Email | Traditional ttp://docs. / info/terms/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 We live in Bewryn. We actually moved to LaGrange Park at one time, and moved back because we missed the Berwyn Park District and WSSRA. Isn't that sad an ironic.  I am thinking about taking this to our local newspaper. Believe me, I am very angry and hurt. Bedard Ricky, andra and Tiffy's Mom  “Every person, regardless of whatever different abilities they may have, can contribute, can be a source of joy, can beam with pride and love.†--Eunice Kennedy Shriver We were lucky, our name was picked for HBSSP after our Governor gave out names d information to Union organizers. I'm sure that it would have bothered me be constantly bothered about joing a union. As far as privacy goes; doesn't bother me at all. My husband and I were ster Parents for over 15 years. We have lived in the perverbial goldfish bowl nce. I have had to have my home checked, nurses visit and be fingerprinted d have background checks etc. Literally, the State would come in and check r cleanliness, measurements, food, and of course the safety of the children at were placed with us. Never bothered me. After Ricky was born it just continued. I feel that having the services is re important than my privacy. I can see how it may bother some, but I look at as check and balance. I also find it comforting to know that someone is checking on our loved ones o are unable to speak for themselves. Someone needs to make sure that abuse not occuring. I guess that is a carryover of my Parent days. athy Bedard icky, andra and Tiffy's Mom “Every person, regardless of whatever different abilities they may have, can ntribute, can be a source of joy, can beam with pride and love.†--Eunice nnedy Shriver Non-text portions of this message have been removed] ------------ --------- --------- ------ ahoo! Groups Links ndividual Email | Traditional ttp://docs. / info/terms/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 My son was able to attend the park district as being a Junior Leader while in high school, only I still had to pay but on the books they could justify it as he was a junior leader. Shirley We were lucky, our name was picked for HBSSP after our Governor gave out names d information to Union organizers. I'm sure that it would have bothered me be constantly bothered about joing a union. As far as privacy goes; doesn't bother me at all. My husband and I were ster Parents for over 15 years. We have lived in the perverbial goldfish bowl nce. I have had to have my home checked, nurses visit and be fingerprinted d have background checks etc. Literally, the State would come in and check r cleanliness, measurements, food, and of course the safety of the children at were placed with us. Never bothered me. After Ricky was born it just continued. I feel that having the services is re important than my privacy. I can see how it may bother some, but I look at as check and balance. I also find it comforting to know that someone is checking on our loved ones o are unable to speak for themselves. Someone needs to make sure that abuse not occuring. I guess that is a carryover of my Parent days. athy Bedard icky, andra and Tiffy's Mom “Every person, regardless of whatever different abilities they may have, can ntribute, can be a source of joy, can beam with pride and love.†--Eunice nnedy Shriver Non-text portions of this message have been removed] ------------ --------- --------- ------ ahoo! Groups Links ndividual Email | Traditional ttp://docs. / info/terms/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 My son was able to attend the park district as being a Junior Leader while in high school, only I still had to pay but on the books they could justify it as he was a junior leader. Shirley We were lucky, our name was picked for HBSSP after our Governor gave out names d information to Union organizers. I'm sure that it would have bothered me be constantly bothered about joing a union. As far as privacy goes; doesn't bother me at all. My husband and I were ster Parents for over 15 years. We have lived in the perverbial goldfish bowl nce. I have had to have my home checked, nurses visit and be fingerprinted d have background checks etc. Literally, the State would come in and check r cleanliness, measurements, food, and of course the safety of the children at were placed with us. Never bothered me. After Ricky was born it just continued. I feel that having the services is re important than my privacy. I can see how it may bother some, but I look at as check and balance. I also find it comforting to know that someone is checking on our loved ones o are unable to speak for themselves. Someone needs to make sure that abuse not occuring. I guess that is a carryover of my Parent days. athy Bedard icky, andra and Tiffy's Mom “Every person, regardless of whatever different abilities they may have, can ntribute, can be a source of joy, can beam with pride and love.†--Eunice nnedy Shriver Non-text portions of this message have been removed] ------------ --------- --------- ------ ahoo! Groups Links ndividual Email | Traditional ttp://docs. / info/terms/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 I lived there for 13 years from 1982-1995, was born in MacNeal, I guess I'm glad I moved but I would definitely take it to the news! Re: Re: What We're About We live in Bewryn. We actually moved to LaGrange Park at one time, and moved ack because we missed the Berwyn Park District and WSSRA. Isn't that sad an ronic. am thinking about taking this to our local newspaper. Believe me, I am very ngry and hurt. Bedard icky, andra and Tiffy's Mom Every person, regardless of whatever different abilities they may have, can ontribute, can be a source of joy, can beam with pride and love.†--Eunice ennedy Shriver e were lucky, our name was picked for HBSSP after our Governor gave out names information to Union organizers. I'm sure that it would have bothered me e constantly bothered about joing a union. s far as privacy goes; doesn't bother me at all. My husband and I were ter Parents for over 15 years. We have lived in the perverbial goldfish bowl ce. I have had to have my home checked, nurses visit and be fingerprinted have background checks etc. Literally, the State would come in and check cleanliness, measurements, food, and of course the safety of the children t were placed with us. Never bothered me. fter Ricky was born it just continued. I feel that having the services is e important than my privacy. I can see how it may bother some, but I look at s check and balance. also find it comforting to know that someone is checking on our loved ones are unable to speak for themselves. Someone needs to make sure that abuse ot occuring. I guess that is a carryover of my Parent days. athy Bedard cky, andra and Tiffy's Mom Every person, regardless of whatever different abilities they may have, can tribute, can be a source of joy, can beam with pride and love.†--Eunice nedy Shriver Non-text portions of this message have been removed] ----------- --------- --------- ------ hoo! Groups Links dividual Email | Traditional tp://docs. / info/terms/ Non-text portions of this message have been removed] Non-text portions of this message have been removed] ------------ --------- --------- ------ ahoo! Groups Links ndividual Email | Traditional ttp://docs. / info/terms/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 I lived there for 13 years from 1982-1995, was born in MacNeal, I guess I'm glad I moved but I would definitely take it to the news! Re: Re: What We're About We live in Bewryn. We actually moved to LaGrange Park at one time, and moved ack because we missed the Berwyn Park District and WSSRA. Isn't that sad an ronic. am thinking about taking this to our local newspaper. Believe me, I am very ngry and hurt. Bedard icky, andra and Tiffy's Mom Every person, regardless of whatever different abilities they may have, can ontribute, can be a source of joy, can beam with pride and love.†--Eunice ennedy Shriver e were lucky, our name was picked for HBSSP after our Governor gave out names information to Union organizers. I'm sure that it would have bothered me e constantly bothered about joing a union. s far as privacy goes; doesn't bother me at all. My husband and I were ter Parents for over 15 years. We have lived in the perverbial goldfish bowl ce. I have had to have my home checked, nurses visit and be fingerprinted have background checks etc. Literally, the State would come in and check cleanliness, measurements, food, and of course the safety of the children t were placed with us. Never bothered me. fter Ricky was born it just continued. I feel that having the services is e important than my privacy. I can see how it may bother some, but I look at s check and balance. also find it comforting to know that someone is checking on our loved ones are unable to speak for themselves. Someone needs to make sure that abuse ot occuring. I guess that is a carryover of my Parent days. athy Bedard cky, andra and Tiffy's Mom Every person, regardless of whatever different abilities they may have, can tribute, can be a source of joy, can beam with pride and love.†--Eunice nedy Shriver Non-text portions of this message have been removed] ----------- --------- --------- ------ hoo! Groups Links dividual Email | Traditional tp://docs. / info/terms/ Non-text portions of this message have been removed] Non-text portions of this message have been removed] ------------ --------- --------- ------ ahoo! Groups Links ndividual Email | Traditional ttp://docs. / info/terms/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 Our local special ed coop, SEASPAR, does not rank high in my opinion of service delivery. In fact, we have encouraged our Park District to leave SEASPAR and move to Gateway with no success. For years, our daughter, Pamela, has attended GREAT summer camp programs delivered by Gateway. We just reviewed this year's program offerings for summer camp. OUCH. The flexibility and creativity in summer camp programming has vanished. The wrap around program with our local high school program to make a full day experience -- GONE! Its now buy 8 weeks, or choose the first half or second half but you can only buy 4 week sessions. When I called I thought I would hear it was a demand issue just as was told, I was more stunned at the response of the new program director, . She essentially said the wrap around program and previous method of service delivery was just too hard to manage and hire staff to deliver. I have a call into the new superintendent to discuss and explore 2010 options. Humbly grateful to be your companion on the journey... Gordon P. Stiefel Phone: 708 246 5151 Fax: 708 246 9144 " All great change in America begins at the dinner table " , Reagan. " Now more than ever, in a world all too often deprived of light and the courage of noble ideals, it is not the time to be ashamed of the Gospel (cf. Rom 1: 16). Rather, it is time to preach it from the rooftops (cf. Mt 10: 27)! " National Meeting of Young Catholics of Switzerland (2004), Address of II .. rom: teteme55 <tetemeameritech (DOT) net> ubject: Re: What We're About o: IPADDUnite@gro ups.com ate: Thursday, March 25, 2010, 10:57 PM Dear , I would also agree about a system of checks and balances but.....my son, ussell, is 30 years old and I am just plain tired of it. I am tired and while I ppreciate the whole concept of it, I am just tired. We get burned out and numb and......I use to have a set of Post-Its with the ollowing printed on it, " Crisis Du Jour " and I would use them, quite ften......some times, reading the paper or watching the news, I think to yself, " now what, what hoops will I have to jump through? " It gets a bit much. nd yet, I do it. Anyway, that's my reason for not liking it. Marie We were lucky, our name was picked for HBSSP after our Governor gave out names nd information to Union organizers. I'm sure that it would have bothered me o be constantly bothered about joing a union. As far as privacy goes; doesn't bother me at all. My husband and I were oster Parents for over 15 years. We have lived in the perverbial goldfish bowl ince. I have had to have my home checked, nurses visit and be fingerprinted nd have background checks etc. Literally, the State would come in and check or cleanliness, measurements, food, and of course the safety of the children hat were placed with us. Never bothered me. After Ricky was born it just continued. I feel that having the services is ore important than my privacy. I can see how it may bother some, but I look at t as check and balance. I also find it comforting to know that someone is checking on our loved ones ho are unable to speak for themselves. Someone needs to make sure that abuse s not occuring. I guess that is a carryover of my Parent days. Bedard Ricky, andra and Tiffy's Mom “Every person, regardless of whatever different abilities they may have, can ontribute, can be a source of joy, can beam with pride and love.†--Eunice ennedy Shriver Non-text portions of this message have been removed] ------------ --------- --------- ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 Our local special ed coop, SEASPAR, does not rank high in my opinion of service delivery. In fact, we have encouraged our Park District to leave SEASPAR and move to Gateway with no success. For years, our daughter, Pamela, has attended GREAT summer camp programs delivered by Gateway. We just reviewed this year's program offerings for summer camp. OUCH. The flexibility and creativity in summer camp programming has vanished. The wrap around program with our local high school program to make a full day experience -- GONE! Its now buy 8 weeks, or choose the first half or second half but you can only buy 4 week sessions. When I called I thought I would hear it was a demand issue just as was told, I was more stunned at the response of the new program director, . She essentially said the wrap around program and previous method of service delivery was just too hard to manage and hire staff to deliver. I have a call into the new superintendent to discuss and explore 2010 options. Humbly grateful to be your companion on the journey... Gordon P. Stiefel Phone: 708 246 5151 Fax: 708 246 9144 " All great change in America begins at the dinner table " , Reagan. " Now more than ever, in a world all too often deprived of light and the courage of noble ideals, it is not the time to be ashamed of the Gospel (cf. Rom 1: 16). Rather, it is time to preach it from the rooftops (cf. Mt 10: 27)! " National Meeting of Young Catholics of Switzerland (2004), Address of II .. rom: teteme55 <tetemeameritech (DOT) net> ubject: Re: What We're About o: IPADDUnite@gro ups.com ate: Thursday, March 25, 2010, 10:57 PM Dear , I would also agree about a system of checks and balances but.....my son, ussell, is 30 years old and I am just plain tired of it. I am tired and while I ppreciate the whole concept of it, I am just tired. We get burned out and numb and......I use to have a set of Post-Its with the ollowing printed on it, " Crisis Du Jour " and I would use them, quite ften......some times, reading the paper or watching the news, I think to yself, " now what, what hoops will I have to jump through? " It gets a bit much. nd yet, I do it. Anyway, that's my reason for not liking it. Marie We were lucky, our name was picked for HBSSP after our Governor gave out names nd information to Union organizers. I'm sure that it would have bothered me o be constantly bothered about joing a union. As far as privacy goes; doesn't bother me at all. My husband and I were oster Parents for over 15 years. We have lived in the perverbial goldfish bowl ince. I have had to have my home checked, nurses visit and be fingerprinted nd have background checks etc. Literally, the State would come in and check or cleanliness, measurements, food, and of course the safety of the children hat were placed with us. Never bothered me. After Ricky was born it just continued. I feel that having the services is ore important than my privacy. I can see how it may bother some, but I look at t as check and balance. I also find it comforting to know that someone is checking on our loved ones ho are unable to speak for themselves. Someone needs to make sure that abuse s not occuring. I guess that is a carryover of my Parent days. Bedard Ricky, andra and Tiffy's Mom “Every person, regardless of whatever different abilities they may have, can ontribute, can be a source of joy, can beam with pride and love.†--Eunice ennedy Shriver Non-text portions of this message have been removed] ------------ --------- --------- ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 Too hard??? TOO HARD!??? It's time to hire administrators who are not deterred by their job being hard. It's SUPPOSED to be hard; that's why administrators are needed. If it were easy, volunteers would do it. Jean muttering to herself On Fri, Mar 26, 2010 at 9:58 AM, GORDON STIEFEL <taggroup@...>wrote: > > ... > When I called I thought I would hear it was a demand issue just as > was told, I was more stunned at the response of the new program director, > . > > She essentially said the wrap around program and previous method of service > delivery was just too hard to manage and hire staff to deliver. > > I have a call into the new superintendent to discuss and explore 2010 > options. > > Humbly grateful to be your companion > on the journey... > > Gordon P. Stiefel > Phone: 708 246 5151 > Fax: 708 246 9144 > > " All great change in America > begins at the dinner table " , Reagan. > > " Now more than ever, in a world all too often deprived of light and > the courage of noble ideals, it is not the time to be ashamed of the Gospel > (cf. Rom 1: 16). > Rather, it is time to preach it from the rooftops (cf. Mt 10: 27)! " > National Meeting of Young Catholics of Switzerland (2004), Address of > II > > . > > > > rom: teteme55 <tetemeameritech (DOT) net> > > ubject: Re: What We're About > > o: IPADDUnite@gro ups.com > > ate: Thursday, March 25, 2010, 10:57 PM > > Dear , > > I would also agree about a system of checks and balances but.....my son, > > ussell, is 30 years old and I am just plain tired of it. I am tired and > while I > > ppreciate the whole concept of it, I am just tired. > > We get burned out and numb and......I use to have a set of Post-Its with > the > > ollowing printed on it, " Crisis Du Jour " and I would use them, quite > > ften......some times, reading the paper or watching the news, I think to > > yself, " now what, what hoops will I have to jump through? " It gets a bit > much. > > nd yet, I do it. > > Anyway, that's my reason for not liking it. > > Marie > > > > We were lucky, our name was picked for HBSSP after our Governor gave out > names > > nd information to Union organizers. I'm sure that it would have bothered me > > > o be constantly bothered about joing a union. > > As far as privacy goes; doesn't bother me at all. My husband and I were > > oster Parents for over 15 years. We have lived in the perverbial goldfish > bowl > > ince. I have had to have my home checked, nurses visit and be fingerprinted > > > nd have background checks etc. Literally, the State would come in and check > > > or cleanliness, measurements, food, and of course the safety of the > children > > hat were placed with us. Never bothered me. > > After Ricky was born it just continued. I feel that having the services is > > ore important than my privacy. I can see how it may bother some, but I look > at > > t as check and balance. > > I also find it comforting to know that someone is checking on our loved > ones > > ho are unable to speak for themselves. Someone needs to make sure that > abuse > > s not occuring. I guess that is a carryover of my Parent days. > > Bedard > > Ricky, andra and Tiffy's Mom > > “Every person, regardless of whatever different abilities they may have, > can > > ontribute, can be a source of joy, can beam with pride and love.” --Eunice > > ennedy Shriver > > Non-text portions of this message have been removed] > > ------------ --------- --------- ------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 Too hard??? TOO HARD!??? It's time to hire administrators who are not deterred by their job being hard. It's SUPPOSED to be hard; that's why administrators are needed. If it were easy, volunteers would do it. Jean muttering to herself On Fri, Mar 26, 2010 at 9:58 AM, GORDON STIEFEL <taggroup@...>wrote: > > ... > When I called I thought I would hear it was a demand issue just as > was told, I was more stunned at the response of the new program director, > . > > She essentially said the wrap around program and previous method of service > delivery was just too hard to manage and hire staff to deliver. > > I have a call into the new superintendent to discuss and explore 2010 > options. > > Humbly grateful to be your companion > on the journey... > > Gordon P. Stiefel > Phone: 708 246 5151 > Fax: 708 246 9144 > > " All great change in America > begins at the dinner table " , Reagan. > > " Now more than ever, in a world all too often deprived of light and > the courage of noble ideals, it is not the time to be ashamed of the Gospel > (cf. Rom 1: 16). > Rather, it is time to preach it from the rooftops (cf. Mt 10: 27)! " > National Meeting of Young Catholics of Switzerland (2004), Address of > II > > . > > > > rom: teteme55 <tetemeameritech (DOT) net> > > ubject: Re: What We're About > > o: IPADDUnite@gro ups.com > > ate: Thursday, March 25, 2010, 10:57 PM > > Dear , > > I would also agree about a system of checks and balances but.....my son, > > ussell, is 30 years old and I am just plain tired of it. I am tired and > while I > > ppreciate the whole concept of it, I am just tired. > > We get burned out and numb and......I use to have a set of Post-Its with > the > > ollowing printed on it, " Crisis Du Jour " and I would use them, quite > > ften......some times, reading the paper or watching the news, I think to > > yself, " now what, what hoops will I have to jump through? " It gets a bit > much. > > nd yet, I do it. > > Anyway, that's my reason for not liking it. > > Marie > > > > We were lucky, our name was picked for HBSSP after our Governor gave out > names > > nd information to Union organizers. I'm sure that it would have bothered me > > > o be constantly bothered about joing a union. > > As far as privacy goes; doesn't bother me at all. My husband and I were > > oster Parents for over 15 years. We have lived in the perverbial goldfish > bowl > > ince. I have had to have my home checked, nurses visit and be fingerprinted > > > nd have background checks etc. Literally, the State would come in and check > > > or cleanliness, measurements, food, and of course the safety of the > children > > hat were placed with us. Never bothered me. > > After Ricky was born it just continued. I feel that having the services is > > ore important than my privacy. I can see how it may bother some, but I look > at > > t as check and balance. > > I also find it comforting to know that someone is checking on our loved > ones > > ho are unable to speak for themselves. Someone needs to make sure that > abuse > > s not occuring. I guess that is a carryover of my Parent days. > > Bedard > > Ricky, andra and Tiffy's Mom > > “Every person, regardless of whatever different abilities they may have, > can > > ontribute, can be a source of joy, can beam with pride and love.” --Eunice > > ennedy Shriver > > Non-text portions of this message have been removed] > > ------------ --------- --------- ------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 Some of the things I read from IPADDUnited has been political matters even if it doesn't involved with Senators, House of Representative, and President. For example, you can talk about the Union, I can see that their has been rivalry that involved showing up at hearing because the civil liberty has been violated. Talking non-politically isn't going to win a legal battle in a long run that has enraged in the community relating to solving problem. If government or important figure can't give an ear, you are nothing but being ignored. You are your own lawyer, you practiced your personal laws to help your kids get needs. Lobbying is political because it carry agenda that influences important figure and government. > > I would echo what Laurie and Ellen have posted about recent posts and add my own comments. > > We are Illinois Parents of Adults with Developmental Disabilities Unite! and our focus is sharing information, strategies, and commiserating about our state and it's woeful stance and services for those with disabilities. We hope we're a place to vent when our loved one is having problems. We hope we can be a place to come together (remember the " Unite! " part of our name?)to lobby our local, state and national law makers when items come up that affect our loved ones. We want you share news in your part of the state, news of your children and news of your lives--this is not an easy life and we all do the best we can and it's great we can come together to share the ride. > > We try to be as apolitical as we can be......in Illinois, that can be a hard thing to do! But we must, or we will turn into something other that what Laurie intended IPADDUnite! to be. Partisan politics have no place here--no matter what side you're on. > > The ONE THING we all agree on is---Illinois SUCKS when it comes to services/programs etc. etc. for those with special needs. I bring up the " Unite! " part of our name again--we are united in our belief we can make it better and be a force in Illinois if WE ARE UNITED IN OUR GOAL TO MAKE IT BETTER FOR OUR CHILDREN. We don't have to agree how to, but we have to trust each other that we all want just about the same thing. > > I have many, many friends who do not share my political beliefs and I try to avoid talking politics with them. I have always been political, since my days at Illini Girls State when I ran for office and in my time " off list " , I am very political. But politics can be polarizing and being polarized from each other is exactly what we can't afford to be if we want to change this state. > > So, be nice. I'll get off my soapbox and leave you and have another cup of coffee. We can all agree that coffee and chocolate can fix anything. > > Marie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 Some of the things I read from IPADDUnited has been political matters even if it doesn't involved with Senators, House of Representative, and President. For example, you can talk about the Union, I can see that their has been rivalry that involved showing up at hearing because the civil liberty has been violated. Talking non-politically isn't going to win a legal battle in a long run that has enraged in the community relating to solving problem. If government or important figure can't give an ear, you are nothing but being ignored. You are your own lawyer, you practiced your personal laws to help your kids get needs. Lobbying is political because it carry agenda that influences important figure and government. > > I would echo what Laurie and Ellen have posted about recent posts and add my own comments. > > We are Illinois Parents of Adults with Developmental Disabilities Unite! and our focus is sharing information, strategies, and commiserating about our state and it's woeful stance and services for those with disabilities. We hope we're a place to vent when our loved one is having problems. We hope we can be a place to come together (remember the " Unite! " part of our name?)to lobby our local, state and national law makers when items come up that affect our loved ones. We want you share news in your part of the state, news of your children and news of your lives--this is not an easy life and we all do the best we can and it's great we can come together to share the ride. > > We try to be as apolitical as we can be......in Illinois, that can be a hard thing to do! But we must, or we will turn into something other that what Laurie intended IPADDUnite! to be. Partisan politics have no place here--no matter what side you're on. > > The ONE THING we all agree on is---Illinois SUCKS when it comes to services/programs etc. etc. for those with special needs. I bring up the " Unite! " part of our name again--we are united in our belief we can make it better and be a force in Illinois if WE ARE UNITED IN OUR GOAL TO MAKE IT BETTER FOR OUR CHILDREN. We don't have to agree how to, but we have to trust each other that we all want just about the same thing. > > I have many, many friends who do not share my political beliefs and I try to avoid talking politics with them. I have always been political, since my days at Illini Girls State when I ran for office and in my time " off list " , I am very political. But politics can be polarizing and being polarized from each other is exactly what we can't afford to be if we want to change this state. > > So, be nice. I'll get off my soapbox and leave you and have another cup of coffee. We can all agree that coffee and chocolate can fix anything. > > Marie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 I just started signing up for Seaspar programs, Gordon. I've been very pleased but I heard they are all taking cuts too. I guess this is when I'm happy that I kept in inclusion programs with his peers. H. Re: Re: What We're About Our local special ed coop, SEASPAR, does not rank high in my opinion of service elivery. n fact, we have encouraged our Park District to leave SEASPAR and move to ateway with no success. For years, our daughter, Pamela, has attended GREAT summer camp programs elivered by Gateway. We just reviewed this year's program offerings for summer camp. OUCH. The lexibility and creativity in summer camp programming has vanished. The wrap round program with our local high school program to make a full day experience - GONE! Its now buy 8 weeks, or choose the first half or second half but you an only buy 4 week sessions. When I called I thought I would hear it was a demand issue just as was old, I was more stunned at the response of the new program director, . She essentially said the wrap around program and previous method of service elivery was just too hard to manage and hire staff to deliver. I have a call into the new superintendent to discuss and explore 2010 options. Humbly grateful to be your companion n the journey... Gordon P. Stiefel hone: 708 246 5151 ax: 708 246 9144 " All great change in America egins at the dinner table " , Reagan. " Now more than ever, in a world all too often eprived of light and the courage of noble ideals, it is not the time o be ashamed of the Gospel (cf. Rom 1: 16). ather, it is time to preach it from the ooftops (cf. Mt 10: 27)! " ational Meeting of Young Catholics of witzerland (2004), Address of II .. rom: teteme55 <tetemeameritech (DOT) net> ubject: Re: What We're About o: IPADDUnite@gro ups.com ate: Thursday, March 25, 2010, 10:57 PM Dear , I would also agree about a system of checks and balances but.....my son, ussell, is 30 years old and I am just plain tired of it. I am tired and while I ppreciate the whole concept of it, I am just tired. We get burned out and numb and......I use to have a set of Post-Its with the ollowing printed on it, " Crisis Du Jour " and I would use them, quite ften......some times, reading the paper or watching the news, I think to yself, " now what, what hoops will I have to jump through? " It gets a bit much. nd yet, I do it. Anyway, that's my reason for not liking it. Marie We were lucky, our name was picked for HBSSP after our Governor gave out names nd information to Union organizers. I'm sure that it would have bothered me o be constantly bothered about joing a union. As far as privacy goes; doesn't bother me at all. My husband and I were oster Parents for over 15 years. We have lived in the perverbial goldfish bowl ince. I have had to have my home checked, nurses visit and be fingerprinted nd have background checks etc. Literally, the State would come in and check or cleanliness, measurements, food, and of course the safety of the children hat were placed with us. Never bothered me. After Ricky was born it just continued. I feel that having the services is ore important than my privacy. I can see how it may bother some, but I look at t as check and balance. I also find it comforting to know that someone is checking on our loved ones ho are unable to speak for themselves. Someone needs to make sure that abuse s not occuring. I guess that is a carryover of my Parent days. Bedard Ricky, andra and Tiffy's Mom “Every person, regardless of whatever different abilities they may have, can ontribute, can be a source of joy, can beam with pride and love.†--Eunice ennedy Shriver Non-text portions of this message have been removed] ------------ --------- --------- ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 I just started signing up for Seaspar programs, Gordon. I've been very pleased but I heard they are all taking cuts too. I guess this is when I'm happy that I kept in inclusion programs with his peers. H. Re: Re: What We're About Our local special ed coop, SEASPAR, does not rank high in my opinion of service elivery. n fact, we have encouraged our Park District to leave SEASPAR and move to ateway with no success. For years, our daughter, Pamela, has attended GREAT summer camp programs elivered by Gateway. We just reviewed this year's program offerings for summer camp. OUCH. The lexibility and creativity in summer camp programming has vanished. The wrap round program with our local high school program to make a full day experience - GONE! Its now buy 8 weeks, or choose the first half or second half but you an only buy 4 week sessions. When I called I thought I would hear it was a demand issue just as was old, I was more stunned at the response of the new program director, . She essentially said the wrap around program and previous method of service elivery was just too hard to manage and hire staff to deliver. I have a call into the new superintendent to discuss and explore 2010 options. Humbly grateful to be your companion n the journey... Gordon P. Stiefel hone: 708 246 5151 ax: 708 246 9144 " All great change in America egins at the dinner table " , Reagan. " Now more than ever, in a world all too often eprived of light and the courage of noble ideals, it is not the time o be ashamed of the Gospel (cf. Rom 1: 16). ather, it is time to preach it from the ooftops (cf. Mt 10: 27)! " ational Meeting of Young Catholics of witzerland (2004), Address of II .. rom: teteme55 <tetemeameritech (DOT) net> ubject: Re: What We're About o: IPADDUnite@gro ups.com ate: Thursday, March 25, 2010, 10:57 PM Dear , I would also agree about a system of checks and balances but.....my son, ussell, is 30 years old and I am just plain tired of it. I am tired and while I ppreciate the whole concept of it, I am just tired. We get burned out and numb and......I use to have a set of Post-Its with the ollowing printed on it, " Crisis Du Jour " and I would use them, quite ften......some times, reading the paper or watching the news, I think to yself, " now what, what hoops will I have to jump through? " It gets a bit much. nd yet, I do it. Anyway, that's my reason for not liking it. Marie We were lucky, our name was picked for HBSSP after our Governor gave out names nd information to Union organizers. I'm sure that it would have bothered me o be constantly bothered about joing a union. As far as privacy goes; doesn't bother me at all. My husband and I were oster Parents for over 15 years. We have lived in the perverbial goldfish bowl ince. I have had to have my home checked, nurses visit and be fingerprinted nd have background checks etc. Literally, the State would come in and check or cleanliness, measurements, food, and of course the safety of the children hat were placed with us. Never bothered me. After Ricky was born it just continued. I feel that having the services is ore important than my privacy. I can see how it may bother some, but I look at t as check and balance. I also find it comforting to know that someone is checking on our loved ones ho are unable to speak for themselves. Someone needs to make sure that abuse s not occuring. I guess that is a carryover of my Parent days. Bedard Ricky, andra and Tiffy's Mom “Every person, regardless of whatever different abilities they may have, can ontribute, can be a source of joy, can beam with pride and love.†--Eunice ennedy Shriver Non-text portions of this message have been removed] ------------ --------- --------- ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 I was also going to start seaspar programs but found out there is not a one on one and my daughter needs constants supervision in all areas so if they cant provide that then I will not send her, and as she reaches the adults programs, the school tells me there is no more one on one so they are trying to wean her away from one one assistants now but as I see it, she will always need that one on one so where does she go when she gets in her 20:s and cant get the help she needs?  I have seen some of the adults programs and some of them are very sad and depressing to me and don't think I like any of them for her. Safety is our main concern for attending any of these programs and without that we as parents do not feel comfortable sending our kids to them if we do not feel comfortable. My daughter is vulnerable and unaware of any dangers so its frightening sending her out her alone unless you really can trust the place you are sending her too. ________________________________ From: " sunshinebeaches3@... " <sunshinebeaches3@...> IPADDUnite Sent: Fri, March 26, 2010 10:19:35 AM Subject: Re: Re: What We're About  I just started signing up for Seaspar programs, Gordon. I've been very pleased but I heard they are all taking cuts too. I guess this is when I'm happy that I kept in inclusion programs with his peers. H. Re: Re: What We're About Our local special ed coop, SEASPAR, does not rank high in my opinion of service elivery. n fact, we have encouraged our Park District to leave SEASPAR and move to ateway with no success. For years, our daughter, Pamela, has attended GREAT summer camp programs elivered by Gateway. We just reviewed this year's program offerings for summer camp. OUCH. The lexibility and creativity in summer camp programming has vanished. The wrap round program with our local high school program to make a full day experience - GONE! Its now buy 8 weeks, or choose the first half or second half but you an only buy 4 week sessions. When I called I thought I would hear it was a demand issue just as was old, I was more stunned at the response of the new program director, . She essentially said the wrap around program and previous method of service elivery was just too hard to manage and hire staff to deliver. I have a call into the new superintendent to discuss and explore 2010 options. Humbly grateful to be your companion n the journey... Gordon P. Stiefel hone: 708 246 5151 ax: 708 246 9144 " All great change in America egins at the dinner table " , Reagan. " Now more than ever, in a world all too often eprived of light and the courage of noble ideals, it is not the time o be ashamed of the Gospel (cf. Rom 1: 16). ather, it is time to preach it from the ooftops (cf. Mt 10: 27)! " ational Meeting of Young Catholics of witzerland (2004), Address of II .. rom: teteme55 <tetemeameritech (DOT) net> ubject: Re: What We're About o: IPADDUnite@gro ups.com ate: Thursday, March 25, 2010, 10:57 PM Dear , I would also agree about a system of checks and balances but.....my son, ussell, is 30 years old and I am just plain tired of it. I am tired and while I ppreciate the whole concept of it, I am just tired. We get burned out and numb and......I use to have a set of Post-Its with the ollowing printed on it, " Crisis Du Jour " and I would use them, quite ften......some times, reading the paper or watching the news, I think to yself, " now what, what hoops will I have to jump through? " It gets a bit much. nd yet, I do it. Anyway, that's my reason for not liking it. Marie We were lucky, our name was picked for HBSSP after our Governor gave out names nd information to Union organizers. I'm sure that it would have bothered me o be constantly bothered about joing a union. As far as privacy goes; doesn't bother me at all. My husband and I were oster Parents for over 15 years. We have lived in the perverbial goldfish bowl ince. I have had to have my home checked, nurses visit and be fingerprinted nd have background checks etc. Literally, the State would come in and check or cleanliness, measurements, food, and of course the safety of the children hat were placed with us. Never bothered me. After Ricky was born it just continued. I feel that having the services is ore important than my privacy. I can see how it may bother some, but I look at t as check and balance. I also find it comforting to know that someone is checking on our loved ones ho are unable to speak for themselves. Someone needs to make sure that abuse s not occuring. I guess that is a carryover of my Parent days. Bedard Ricky, andra and Tiffy's Mom “Every person, regardless of whatever different abilities they may have, can ontribute, can be a source of joy, can beam with pride and love.†--Eunice ennedy Shriver Non-text portions of this message have been removed] ------------ --------- --------- ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 I was also going to start seaspar programs but found out there is not a one on one and my daughter needs constants supervision in all areas so if they cant provide that then I will not send her, and as she reaches the adults programs, the school tells me there is no more one on one so they are trying to wean her away from one one assistants now but as I see it, she will always need that one on one so where does she go when she gets in her 20:s and cant get the help she needs?  I have seen some of the adults programs and some of them are very sad and depressing to me and don't think I like any of them for her. Safety is our main concern for attending any of these programs and without that we as parents do not feel comfortable sending our kids to them if we do not feel comfortable. My daughter is vulnerable and unaware of any dangers so its frightening sending her out her alone unless you really can trust the place you are sending her too. ________________________________ From: " sunshinebeaches3@... " <sunshinebeaches3@...> IPADDUnite Sent: Fri, March 26, 2010 10:19:35 AM Subject: Re: Re: What We're About  I just started signing up for Seaspar programs, Gordon. I've been very pleased but I heard they are all taking cuts too. I guess this is when I'm happy that I kept in inclusion programs with his peers. H. Re: Re: What We're About Our local special ed coop, SEASPAR, does not rank high in my opinion of service elivery. n fact, we have encouraged our Park District to leave SEASPAR and move to ateway with no success. For years, our daughter, Pamela, has attended GREAT summer camp programs elivered by Gateway. We just reviewed this year's program offerings for summer camp. OUCH. The lexibility and creativity in summer camp programming has vanished. The wrap round program with our local high school program to make a full day experience - GONE! Its now buy 8 weeks, or choose the first half or second half but you an only buy 4 week sessions. When I called I thought I would hear it was a demand issue just as was old, I was more stunned at the response of the new program director, . She essentially said the wrap around program and previous method of service elivery was just too hard to manage and hire staff to deliver. I have a call into the new superintendent to discuss and explore 2010 options. Humbly grateful to be your companion n the journey... Gordon P. Stiefel hone: 708 246 5151 ax: 708 246 9144 " All great change in America egins at the dinner table " , Reagan. " Now more than ever, in a world all too often eprived of light and the courage of noble ideals, it is not the time o be ashamed of the Gospel (cf. Rom 1: 16). ather, it is time to preach it from the ooftops (cf. Mt 10: 27)! " ational Meeting of Young Catholics of witzerland (2004), Address of II .. rom: teteme55 <tetemeameritech (DOT) net> ubject: Re: What We're About o: IPADDUnite@gro ups.com ate: Thursday, March 25, 2010, 10:57 PM Dear , I would also agree about a system of checks and balances but.....my son, ussell, is 30 years old and I am just plain tired of it. I am tired and while I ppreciate the whole concept of it, I am just tired. We get burned out and numb and......I use to have a set of Post-Its with the ollowing printed on it, " Crisis Du Jour " and I would use them, quite ften......some times, reading the paper or watching the news, I think to yself, " now what, what hoops will I have to jump through? " It gets a bit much. nd yet, I do it. Anyway, that's my reason for not liking it. Marie We were lucky, our name was picked for HBSSP after our Governor gave out names nd information to Union organizers. I'm sure that it would have bothered me o be constantly bothered about joing a union. As far as privacy goes; doesn't bother me at all. My husband and I were oster Parents for over 15 years. We have lived in the perverbial goldfish bowl ince. I have had to have my home checked, nurses visit and be fingerprinted nd have background checks etc. Literally, the State would come in and check or cleanliness, measurements, food, and of course the safety of the children hat were placed with us. Never bothered me. After Ricky was born it just continued. I feel that having the services is ore important than my privacy. I can see how it may bother some, but I look at t as check and balance. I also find it comforting to know that someone is checking on our loved ones ho are unable to speak for themselves. Someone needs to make sure that abuse s not occuring. I guess that is a carryover of my Parent days. Bedard Ricky, andra and Tiffy's Mom “Every person, regardless of whatever different abilities they may have, can ontribute, can be a source of joy, can beam with pride and love.†--Eunice ennedy Shriver Non-text portions of this message have been removed] ------------ --------- --------- ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 We lived in Berwyn while my husband was a resident---from 1985 to 1991. My Mom grew up there and I have many fond memories. If you've seen my husband's book, " is Extra-Special.... " the picture where he's swinging is in Proska Park and the swimming pictures were of him at a WSSRA program. Anyway, I would take it to the local paper---is it still the " Berwyn Life " ? That's really crummy. Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 We lived in Berwyn while my husband was a resident---from 1985 to 1991. My Mom grew up there and I have many fond memories. If you've seen my husband's book, " is Extra-Special.... " the picture where he's swinging is in Proska Park and the swimming pictures were of him at a WSSRA program. Anyway, I would take it to the local paper---is it still the " Berwyn Life " ? That's really crummy. Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 I would suggest you call Gateway and see what they can provide. You would have to pay out of district price but it may be worth it if they meet your needs. Shirley rom: teteme55 <tetemeameritech (DOT) net> ubject: Re: What We're About o: IPADDUnite@gro ups.com ate: Thursday, March 25, 2010, 10:57 PM Dear , I would also agree about a system of checks and balances but.....my son, ussell, is 30 years old and I am just plain tired of it. I am tired and while I ppreciate the whole concept of it, I am just tired. We get burned out and numb and......I use to have a set of Post-Its with the ollowing printed on it, " Crisis Du Jour " and I would use them, quite ften......some times, reading the paper or watching the news, I think to yself, " now what, what hoops will I have to jump through? " It gets a bit much. nd yet, I do it. Anyway, that's my reason for not liking it. Marie We were lucky, our name was picked for HBSSP after our Governor gave out names nd information to Union organizers. I'm sure that it would have bothered me o be constantly bothered about joing a union. As far as privacy goes; doesn't bother me at all. My husband and I were oster Parents for over 15 years. We have lived in the perverbial goldfish bowl ince. I have had to have my home checked, nurses visit and be fingerprinted nd have background checks etc. Literally, the State would come in and check or cleanliness, measurements, food, and of course the safety of the children hat were placed with us. Never bothered me. After Ricky was born it just continued. I feel that having the services is ore important than my privacy. I can see how it may bother some, but I look at t as check and balance. I also find it comforting to know that someone is checking on our loved ones ho are unable to speak for themselves. Someone needs to make sure that abuse s not occuring. I guess that is a carryover of my Parent days. Bedard Ricky, andra and Tiffy's Mom “Every person, regardless of whatever different abilities they may have, can ontribute, can be a source of joy, can beam with pride and love.†--Eunice ennedy Shriver Non-text portions of this message have been removed] ------------ --------- --------- ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 I would suggest you call Gateway and see what they can provide. You would have to pay out of district price but it may be worth it if they meet your needs. Shirley rom: teteme55 <tetemeameritech (DOT) net> ubject: Re: What We're About o: IPADDUnite@gro ups.com ate: Thursday, March 25, 2010, 10:57 PM Dear , I would also agree about a system of checks and balances but.....my son, ussell, is 30 years old and I am just plain tired of it. I am tired and while I ppreciate the whole concept of it, I am just tired. We get burned out and numb and......I use to have a set of Post-Its with the ollowing printed on it, " Crisis Du Jour " and I would use them, quite ften......some times, reading the paper or watching the news, I think to yself, " now what, what hoops will I have to jump through? " It gets a bit much. nd yet, I do it. Anyway, that's my reason for not liking it. Marie We were lucky, our name was picked for HBSSP after our Governor gave out names nd information to Union organizers. I'm sure that it would have bothered me o be constantly bothered about joing a union. As far as privacy goes; doesn't bother me at all. My husband and I were oster Parents for over 15 years. We have lived in the perverbial goldfish bowl ince. I have had to have my home checked, nurses visit and be fingerprinted nd have background checks etc. Literally, the State would come in and check or cleanliness, measurements, food, and of course the safety of the children hat were placed with us. Never bothered me. After Ricky was born it just continued. I feel that having the services is ore important than my privacy. I can see how it may bother some, but I look at t as check and balance. I also find it comforting to know that someone is checking on our loved ones ho are unable to speak for themselves. Someone needs to make sure that abuse s not occuring. I guess that is a carryover of my Parent days. Bedard Ricky, andra and Tiffy's Mom “Every person, regardless of whatever different abilities they may have, can ontribute, can be a source of joy, can beam with pride and love.†--Eunice ennedy Shriver Non-text portions of this message have been removed] ------------ --------- --------- ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 OH PAM!!!! I so am with you!!!!! The visits from people 'overseeing' how we the parents are applying the funds/assistance, whatever! I too have thought many, many times, is it all worth it??? For years I never applied for SSI for my son because I felt he was my son, and my responsibility and as a single parent it has been very difficult. We are lucky that my son has access to a small 'special needs' trust when needed but that has so many hoops and ifs/ands/buts that many times you have to be a lawyer to understand it, and even our attorney MANY times says, 'I dont know, try it'. When was turning 18 because I was so tired of hearing people tell me that we 'should' seek help for things I applied for the SSI, he was rejected the first time, I took it all the way to the court level and FINALLY WON! A victory for , finally! Then a friend told me about one program that led to another and now we are in the Home Based program that allows us to have more support for in the community. Since being in this program I am amazed at how many people have to check out and check in with us, the process of payment through Pennsylvania based ACES$ still mystifies me. Who over sees the people that NEED to be looked into?? NOBODY! I hate to say it but the system is not right, and that all goes back to politics, it is why it is sat up like it is. is my son and I always have his needs first and foremost, many times these other people dont know him from Adam, they dont know what he needs or not and if anyone would misjudge his needs its more likely they will! I feel we have enough to deal with in life, HE has enough to deal with in life, why does everyone want a piece of running it?! What is wrong with this picture??? They are supposed to be helping your young adults, seems to me they are just taking control. Just my thoughts! Kathy, mother of > > > > Hi - > > Will you please then set some parameters or describe how discussions about lobbying local, state and national law makers can occur without a discussion of the issue ALL while remaining apolitical? > > > > How about this for apolitical discussion: > > > > Several months ago, I was shaken to learn that because my son Josh participates in IL Home Based Support Services Program, the State and Federal government have increased access to his privacy - that is, what is beyond the protections provided to a citizen not participating in a Medicaid waiver program. > > > > > The State of Illinois gave my name and home address to union organizers. And the reason they were able to do so was because I receive a check that comes from the IL HBSSP program. > > > > This intrusion on my privacy motivated me to stand up and loudly protest what I felt was the state of IL forcing me to join a union and pay money to a union via dues or fair share. In turn, the union could use the money to exercise their political muscle on policies that I may agree or disagree with. > > > > Again, I am shaken to learn that the State of Illinois can force us to drop Josh from our private health insurance if he is to continue participating in the IL HBSSP. I don’t know when or if this happen but this is a part of the new healthcare reform law. > > > > I can’t help but to ask: > > Is it worth it? Is the small monetary support worth all of the heavy, inflexible strings that it comes with? Is it worth giving up our privacy? > > > > I am tired of the quarterly visits and the review of our records. I am wondering why Josh has to have an individualized service plan that identifies life goals and documents his progress towards these goals. I don’t have an individualized service plan. I don’t have to report monthly on my progress made towards my life goals. People don't have to sit down at least once a year and examine all aspects of my life - medical, social, familial and discuss it. > > > > Some days, I am shaken to realize what we give up because Josh participates in a Medicaid waiver program. > > > > Thoughts? > Pam > > What We're About > > > > > > > I would echo what Laurie and Ellen have posted about recent posts and add my own comments. > > We are Illinois Parents of Adults with Developmental Disabilities Unite! and our focus is sharing information, strategies, and commiserating about our state and it's woeful stance and services for those with disabilities. We hope we're a place to vent when our loved one is having problems. We hope we can be a place to come together (remember the " Unite! " part of our name?)to lobby our local, state and national law makers when items come up that affect our loved ones. We want you share news in your part of the state, news of your children and news of your lives--this is not an easy life and we all do the best we can and it's great we can come together to share the ride. > > We try to be as apolitical as we can be......in Illinois, that can be a hard thing to do! But we must, or we will turn into something other that what Laurie intended IPADDUnite! to be. Partisan politics have no place here--no matter what side you're on. > > The ONE THING we all agree on is---Illinois SUCKS when it comes to services/programs etc. etc. for those with special needs. I bring up the " Unite! " part of our name again--we are united in our belief we can make it better and be a force in Illinois if WE ARE UNITED IN OUR GOAL TO MAKE IT BETTER FOR OUR CHILDREN. We don't have to agree how to, but we have to trust each other that we all want just about the same thing. > > I have many, many friends who do not share my political beliefs and I try to avoid talking politics with them. I have always been political, since my days at Illini Girls State when I ran for office and in my time " off list " , I am very political. But politics can be polarizing and being polarized from each other is exactly what we can't afford to be if we want to change this state. > > So, be nice. I'll get off my soapbox and leave you and have another cup of coffee. We can all agree that coffee and chocolate can fix anything. > > Marie > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 OH PAM!!!! I so am with you!!!!! The visits from people 'overseeing' how we the parents are applying the funds/assistance, whatever! I too have thought many, many times, is it all worth it??? For years I never applied for SSI for my son because I felt he was my son, and my responsibility and as a single parent it has been very difficult. We are lucky that my son has access to a small 'special needs' trust when needed but that has so many hoops and ifs/ands/buts that many times you have to be a lawyer to understand it, and even our attorney MANY times says, 'I dont know, try it'. When was turning 18 because I was so tired of hearing people tell me that we 'should' seek help for things I applied for the SSI, he was rejected the first time, I took it all the way to the court level and FINALLY WON! A victory for , finally! Then a friend told me about one program that led to another and now we are in the Home Based program that allows us to have more support for in the community. Since being in this program I am amazed at how many people have to check out and check in with us, the process of payment through Pennsylvania based ACES$ still mystifies me. Who over sees the people that NEED to be looked into?? NOBODY! I hate to say it but the system is not right, and that all goes back to politics, it is why it is sat up like it is. is my son and I always have his needs first and foremost, many times these other people dont know him from Adam, they dont know what he needs or not and if anyone would misjudge his needs its more likely they will! I feel we have enough to deal with in life, HE has enough to deal with in life, why does everyone want a piece of running it?! What is wrong with this picture??? They are supposed to be helping your young adults, seems to me they are just taking control. Just my thoughts! Kathy, mother of > > > > Hi - > > Will you please then set some parameters or describe how discussions about lobbying local, state and national law makers can occur without a discussion of the issue ALL while remaining apolitical? > > > > How about this for apolitical discussion: > > > > Several months ago, I was shaken to learn that because my son Josh participates in IL Home Based Support Services Program, the State and Federal government have increased access to his privacy - that is, what is beyond the protections provided to a citizen not participating in a Medicaid waiver program. > > > > > The State of Illinois gave my name and home address to union organizers. And the reason they were able to do so was because I receive a check that comes from the IL HBSSP program. > > > > This intrusion on my privacy motivated me to stand up and loudly protest what I felt was the state of IL forcing me to join a union and pay money to a union via dues or fair share. In turn, the union could use the money to exercise their political muscle on policies that I may agree or disagree with. > > > > Again, I am shaken to learn that the State of Illinois can force us to drop Josh from our private health insurance if he is to continue participating in the IL HBSSP. I don’t know when or if this happen but this is a part of the new healthcare reform law. > > > > I can’t help but to ask: > > Is it worth it? Is the small monetary support worth all of the heavy, inflexible strings that it comes with? Is it worth giving up our privacy? > > > > I am tired of the quarterly visits and the review of our records. I am wondering why Josh has to have an individualized service plan that identifies life goals and documents his progress towards these goals. I don’t have an individualized service plan. I don’t have to report monthly on my progress made towards my life goals. People don't have to sit down at least once a year and examine all aspects of my life - medical, social, familial and discuss it. > > > > Some days, I am shaken to realize what we give up because Josh participates in a Medicaid waiver program. > > > > Thoughts? > Pam > > What We're About > > > > > > > I would echo what Laurie and Ellen have posted about recent posts and add my own comments. > > We are Illinois Parents of Adults with Developmental Disabilities Unite! and our focus is sharing information, strategies, and commiserating about our state and it's woeful stance and services for those with disabilities. We hope we're a place to vent when our loved one is having problems. We hope we can be a place to come together (remember the " Unite! " part of our name?)to lobby our local, state and national law makers when items come up that affect our loved ones. We want you share news in your part of the state, news of your children and news of your lives--this is not an easy life and we all do the best we can and it's great we can come together to share the ride. > > We try to be as apolitical as we can be......in Illinois, that can be a hard thing to do! But we must, or we will turn into something other that what Laurie intended IPADDUnite! to be. Partisan politics have no place here--no matter what side you're on. > > The ONE THING we all agree on is---Illinois SUCKS when it comes to services/programs etc. etc. for those with special needs. I bring up the " Unite! " part of our name again--we are united in our belief we can make it better and be a force in Illinois if WE ARE UNITED IN OUR GOAL TO MAKE IT BETTER FOR OUR CHILDREN. We don't have to agree how to, but we have to trust each other that we all want just about the same thing. > > I have many, many friends who do not share my political beliefs and I try to avoid talking politics with them. I have always been political, since my days at Illini Girls State when I ran for office and in my time " off list " , I am very political. But politics can be polarizing and being polarized from each other is exactly what we can't afford to be if we want to change this state. > > So, be nice. I'll get off my soapbox and leave you and have another cup of coffee. We can all agree that coffee and chocolate can fix anything. > > Marie > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2010 Report Share Posted March 27, 2010 Hi Pam. So something you said leaves me wanting some clarification. It is in regards to Josh receiving Il HBSSP. Are you stating that you will be required to drop JOsh from your private insurance coverage OR HAVE TO CHOSE TO STOP RECEIVING IL HOME BASED SERVICES? (Because it is a Medicaid waiver program? ) I knew that when they forced us to apply for Medicaid that we were gonna get screwed some way some how. So we get punished for paying privately to get private insurance (hence, most often BETTER health insurance coverage) than Medicaid? So Sad. Why can't we get the Home based service money MINUS THE MEDICAID. Quite frankly I don't even use the medicaid coverage my son HAS TO RECEIVE AGAINST MY WISHES THAT IS.....), because none of our current doctors or dentists take the damn thing! Pam, please clarify if I am wrong, or tell me that I have this right? Either way I can stop the chest pain I am currently feeling, or will start getting chest pains. Wow! Diane S > > > > Hi - > > Will you please then set some parameters or describe how discussions about lobbying local, state and national law makers can occur without a discussion of the issue ALL while remaining apolitical? > > > > How about this for apolitical discussion: > > > > Several months ago, I was shaken to learn that because my son Josh participates in IL Home Based Support Services Program, the State and Federal government have increased access to his privacy - that is, what is beyond the protections provided to a citizen not participating in a Medicaid waiver program. > > > > > The State of Illinois gave my name and home address to union organizers. And the reason they were able to do so was because I receive a check that comes from the IL HBSSP program. > > > > This intrusion on my privacy motivated me to stand up and loudly protest what I felt was the state of IL forcing me to join a union and pay money to a union via dues or fair share. In turn, the union could use the money to exercise their political muscle on policies that I may agree or disagree with. > > > > Again, I am shaken to learn that the State of Illinois can force us to drop Josh from our private health insurance if he is to continue participating in the IL HBSSP. I don’t know when or if this happen but this is a part of the new healthcare reform law. > > > > I can’t help but to ask: > > Is it worth it? Is the small monetary support worth all of the heavy, inflexible strings that it comes with? Is it worth giving up our privacy? > > > > I am tired of the quarterly visits and the review of our records. I am wondering why Josh has to have an individualized service plan that identifies life goals and documents his progress towards these goals. I don’t have an individualized service plan. I don’t have to report monthly on my progress made towards my life goals. People don't have to sit down at least once a year and examine all aspects of my life - medical, social, familial and discuss it. > > > > Some days, I am shaken to realize what we give up because Josh participates in a Medicaid waiver program. > > > > Thoughts? > Pam > > What We're About > > > > > > > I would echo what Laurie and Ellen have posted about recent posts and add my own comments. > > We are Illinois Parents of Adults with Developmental Disabilities Unite! and our focus is sharing information, strategies, and commiserating about our state and it's woeful stance and services for those with disabilities. We hope we're a place to vent when our loved one is having problems. We hope we can be a place to come together (remember the " Unite! " part of our name?)to lobby our local, state and national law makers when items come up that affect our loved ones. We want you share news in your part of the state, news of your children and news of your lives--this is not an easy life and we all do the best we can and it's great we can come together to share the ride. > > We try to be as apolitical as we can be......in Illinois, that can be a hard thing to do! But we must, or we will turn into something other that what Laurie intended IPADDUnite! to be. Partisan politics have no place here--no matter what side you're on. > > The ONE THING we all agree on is---Illinois SUCKS when it comes to services/programs etc. etc. for those with special needs. I bring up the " Unite! " part of our name again--we are united in our belief we can make it better and be a force in Illinois if WE ARE UNITED IN OUR GOAL TO MAKE IT BETTER FOR OUR CHILDREN. We don't have to agree how to, but we have to trust each other that we all want just about the same thing. > > I have many, many friends who do not share my political beliefs and I try to avoid talking politics with them. I have always been political, since my days at Illini Girls State when I ran for office and in my time " off list " , I am very political. But politics can be polarizing and being polarized from each other is exactly what we can't afford to be if we want to change this state. > > So, be nice. I'll get off my soapbox and leave you and have another cup of coffee. We can all agree that coffee and chocolate can fix anything. > > Marie > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2010 Report Share Posted March 27, 2010 Hi Pam. So something you said leaves me wanting some clarification. It is in regards to Josh receiving Il HBSSP. Are you stating that you will be required to drop JOsh from your private insurance coverage OR HAVE TO CHOSE TO STOP RECEIVING IL HOME BASED SERVICES? (Because it is a Medicaid waiver program? ) I knew that when they forced us to apply for Medicaid that we were gonna get screwed some way some how. So we get punished for paying privately to get private insurance (hence, most often BETTER health insurance coverage) than Medicaid? So Sad. Why can't we get the Home based service money MINUS THE MEDICAID. Quite frankly I don't even use the medicaid coverage my son HAS TO RECEIVE AGAINST MY WISHES THAT IS.....), because none of our current doctors or dentists take the damn thing! Pam, please clarify if I am wrong, or tell me that I have this right? Either way I can stop the chest pain I am currently feeling, or will start getting chest pains. Wow! Diane S > > > > Hi - > > Will you please then set some parameters or describe how discussions about lobbying local, state and national law makers can occur without a discussion of the issue ALL while remaining apolitical? > > > > How about this for apolitical discussion: > > > > Several months ago, I was shaken to learn that because my son Josh participates in IL Home Based Support Services Program, the State and Federal government have increased access to his privacy - that is, what is beyond the protections provided to a citizen not participating in a Medicaid waiver program. > > > > > The State of Illinois gave my name and home address to union organizers. And the reason they were able to do so was because I receive a check that comes from the IL HBSSP program. > > > > This intrusion on my privacy motivated me to stand up and loudly protest what I felt was the state of IL forcing me to join a union and pay money to a union via dues or fair share. In turn, the union could use the money to exercise their political muscle on policies that I may agree or disagree with. > > > > Again, I am shaken to learn that the State of Illinois can force us to drop Josh from our private health insurance if he is to continue participating in the IL HBSSP. I don’t know when or if this happen but this is a part of the new healthcare reform law. > > > > I can’t help but to ask: > > Is it worth it? Is the small monetary support worth all of the heavy, inflexible strings that it comes with? Is it worth giving up our privacy? > > > > I am tired of the quarterly visits and the review of our records. I am wondering why Josh has to have an individualized service plan that identifies life goals and documents his progress towards these goals. I don’t have an individualized service plan. I don’t have to report monthly on my progress made towards my life goals. People don't have to sit down at least once a year and examine all aspects of my life - medical, social, familial and discuss it. > > > > Some days, I am shaken to realize what we give up because Josh participates in a Medicaid waiver program. > > > > Thoughts? > Pam > > What We're About > > > > > > > I would echo what Laurie and Ellen have posted about recent posts and add my own comments. > > We are Illinois Parents of Adults with Developmental Disabilities Unite! and our focus is sharing information, strategies, and commiserating about our state and it's woeful stance and services for those with disabilities. We hope we're a place to vent when our loved one is having problems. We hope we can be a place to come together (remember the " Unite! " part of our name?)to lobby our local, state and national law makers when items come up that affect our loved ones. We want you share news in your part of the state, news of your children and news of your lives--this is not an easy life and we all do the best we can and it's great we can come together to share the ride. > > We try to be as apolitical as we can be......in Illinois, that can be a hard thing to do! But we must, or we will turn into something other that what Laurie intended IPADDUnite! to be. Partisan politics have no place here--no matter what side you're on. > > The ONE THING we all agree on is---Illinois SUCKS when it comes to services/programs etc. etc. for those with special needs. I bring up the " Unite! " part of our name again--we are united in our belief we can make it better and be a force in Illinois if WE ARE UNITED IN OUR GOAL TO MAKE IT BETTER FOR OUR CHILDREN. We don't have to agree how to, but we have to trust each other that we all want just about the same thing. > > I have many, many friends who do not share my political beliefs and I try to avoid talking politics with them. I have always been political, since my days at Illini Girls State when I ran for office and in my time " off list " , I am very political. But politics can be polarizing and being polarized from each other is exactly what we can't afford to be if we want to change this state. > > So, be nice. I'll get off my soapbox and leave you and have another cup of coffee. We can all agree that coffee and chocolate can fix anything. > > Marie > > > > > Quote Link to comment Share on other sites More sharing options...
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