Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 One last thought...we have an expert to discuss Managed Care, which is great. We will need to find an expert on the Health Care Reform bill and its impact on people with disabilities, at some point. A few of us debating the pros and cons of the bill will not give us the facts, which is what IPADDU is all about. I think the lines between Managed Care and the Health Care Reform bill will become blurred, here in Illinois as both will be affecting us at the same time, but the impact of each is independent of the other. So, we need to be aware of how both will affect our loved ones. Ellen Ellen Garber Bronfeld egskb@... Re: What We're About I have learned more about the new healthcare program by reading IPADD posts than anywhere else. Everything that I have read I can find an article with nearly the exact opposite perspective depending on which political party initiated the info. I very much appreciate everyone's input, including the differing opinions. : ) Can we get , , Ron and Pam together (Ellen can moderate! : )) to hammer all of this out for us? I very much enjoy all of the info they are providing and I would LOVE to be a fly on the wall as the four of them discussed this mess!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 I believe you are right and we need to have an Expert who is able to give us facts on the impact on our loved ones. I hope this happens as well and had planned to discuss this with Laurie later. However, things are just shaking out......physicians do not know what is happening and how it will impact them as well--rumors not withstanding.....I know from personal experience they are often the next-to-last to know, right before their patients! I hope we will line up a Health Care Reform person later this spring/early summer. I do have some connections through Chuck's hospital but will have to see who the best person for that will be. Marie > > One last thought...we have an expert to discuss Managed Care, which is great. We will need to find an expert on the Health Care Reform bill and its impact on people with disabilities, at some point. A few of us debating the pros and cons of the bill will not give us the facts, which is what IPADDU is all about. > I think the lines between Managed Care and the Health Care Reform bill will become blurred, here in Illinois as both will be affecting us at the same time, but the impact of each is independent of the other. So, we need to be aware of how both will affect our loved ones. > Ellen > Ellen Garber Bronfeld > egskb@... > Re: What We're About > > > > > > I have learned more about the new healthcare program by reading IPADD posts than anywhere else. Everything that I have read I can find an article with nearly the exact opposite perspective depending on which political party initiated the info. I very much appreciate everyone's input, including the differing opinions. : ) Can we get , , Ron and Pam together (Ellen can moderate! : )) to hammer all of this out for us? I very much enjoy all of the info they are providing and I would LOVE to be a fly on the wall as the four of them discussed this mess!!! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 I believe you are right and we need to have an Expert who is able to give us facts on the impact on our loved ones. I hope this happens as well and had planned to discuss this with Laurie later. However, things are just shaking out......physicians do not know what is happening and how it will impact them as well--rumors not withstanding.....I know from personal experience they are often the next-to-last to know, right before their patients! I hope we will line up a Health Care Reform person later this spring/early summer. I do have some connections through Chuck's hospital but will have to see who the best person for that will be. Marie > > One last thought...we have an expert to discuss Managed Care, which is great. We will need to find an expert on the Health Care Reform bill and its impact on people with disabilities, at some point. A few of us debating the pros and cons of the bill will not give us the facts, which is what IPADDU is all about. > I think the lines between Managed Care and the Health Care Reform bill will become blurred, here in Illinois as both will be affecting us at the same time, but the impact of each is independent of the other. So, we need to be aware of how both will affect our loved ones. > Ellen > Ellen Garber Bronfeld > egskb@... > Re: What We're About > > > > > > I have learned more about the new healthcare program by reading IPADD posts than anywhere else. Everything that I have read I can find an article with nearly the exact opposite perspective depending on which political party initiated the info. I very much appreciate everyone's input, including the differing opinions. : ) Can we get , , Ron and Pam together (Ellen can moderate! : )) to hammer all of this out for us? I very much enjoy all of the info they are providing and I would LOVE to be a fly on the wall as the four of them discussed this mess!!! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 I think the point is to move your adult son or daughter OFF of Medicaid since the parents are making private insurance available. This is a piece of the new healthcare reform bill Regarding Illinois, I understand that the new Medicaid managed care plan does not include people with private insurance. Pam Re: What We're About I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 I think the point is to move your adult son or daughter OFF of Medicaid since the parents are making private insurance available. This is a piece of the new healthcare reform bill Regarding Illinois, I understand that the new Medicaid managed care plan does not include people with private insurance. Pam Re: What We're About I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 This is so weird to me. I have insurance through my company and my son is on Medicare A B and D. Medicare is his primary and My insurance is secondary and Medicaid (HBDW) is third. I was told he had to be on Medicaid to get services. I got him on Medicaid and he had such a high spend down I had to put him on HBDW and he has to pay $81.00 a month and hardly uses it as he is (THANK GOD) healthy. I was told he had to have Medicaid or HBWD so if or when he wants to move into a living facility he would qualify. Now it looks like they want to get him off of Medicaid? Am I missing something? I was being told he would loose his Home Based Services if he didn't have Medicaid. So am I making him pay the $81.00 a month for nothing? Man o Man just when I think I know SOMETHING....... BAM! LOL Shirley From: pam_harris@... <pam_harris@...> Subject: Re: Re: What We're About IPADDUnite Date: Sunday, March 28, 2010, 7:53 PM  I think the point is to move your adult son or daughter OFF of Medicaid since the parents are making private insurance available. This is a piece of the new healthcare reform bill Regarding Illinois, I understand that the new Medicaid managed care plan does not include people with private insurance. Pam Re: What We're About I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 This is so weird to me. I have insurance through my company and my son is on Medicare A B and D. Medicare is his primary and My insurance is secondary and Medicaid (HBDW) is third. I was told he had to be on Medicaid to get services. I got him on Medicaid and he had such a high spend down I had to put him on HBDW and he has to pay $81.00 a month and hardly uses it as he is (THANK GOD) healthy. I was told he had to have Medicaid or HBWD so if or when he wants to move into a living facility he would qualify. Now it looks like they want to get him off of Medicaid? Am I missing something? I was being told he would loose his Home Based Services if he didn't have Medicaid. So am I making him pay the $81.00 a month for nothing? Man o Man just when I think I know SOMETHING....... BAM! LOL Shirley From: pam_harris@... <pam_harris@...> Subject: Re: Re: What We're About IPADDUnite Date: Sunday, March 28, 2010, 7:53 PM  I think the point is to move your adult son or daughter OFF of Medicaid since the parents are making private insurance available. This is a piece of the new healthcare reform bill Regarding Illinois, I understand that the new Medicaid managed care plan does not include people with private insurance. Pam Re: What We're About I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 So, wait a minute, are you telling me that I should move my 30 year old, nonverbal, autistic son OFF OF MEDICAID? And since my husband is a HEALTH CARE PROFESSIONAL in private practice (he does accept Medicaid BTW)with our own insurance person on staff, this is not what we understand to be a good idea. It is my understanding that the health care reform bill allows parent's insurance to cover adult children until their 26th birthday, but no older. Marie > > I think the point is to move your adult son or daughter OFF of Medicaid since the parents are making private insurance available. This is a piece of the new healthcare reform bill > > > Regarding Illinois, I understand that the new Medicaid managed care plan does not include people with private insurance. > > Pam > > Re: What We're About > > > > > > > I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 So, wait a minute, are you telling me that I should move my 30 year old, nonverbal, autistic son OFF OF MEDICAID? And since my husband is a HEALTH CARE PROFESSIONAL in private practice (he does accept Medicaid BTW)with our own insurance person on staff, this is not what we understand to be a good idea. It is my understanding that the health care reform bill allows parent's insurance to cover adult children until their 26th birthday, but no older. Marie > > I think the point is to move your adult son or daughter OFF of Medicaid since the parents are making private insurance available. This is a piece of the new healthcare reform bill > > > Regarding Illinois, I understand that the new Medicaid managed care plan does not include people with private insurance. > > Pam > > Re: What We're About > > > > > > > I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 DON'T do anything! Sit tight. We are not sure what will happen. See my previous post. Marie > > This is so weird to me. I have insurance through my company and my son is on Medicare A B and D. Medicare is his primary and My insurance is secondary and Medicaid (HBDW) is third. I was told he had to be on Medicaid to get services. I got him on Medicaid and he had such a high spend down I had to put him on HBDW and he has to pay $81.00 a month and hardly uses it as he is (THANK GOD) healthy. I was told he had to have Medicaid or HBWD so if or when he wants to move into a living facility he would qualify. Now it looks like they want to get him off of Medicaid? Am I missing something? I was being told he would loose his Home Based Services if he didn't have Medicaid. So am I making him pay the $81.00 a month for nothing? Man o Man just when I think I know SOMETHING....... BAM! LOL > Shirley > > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 DON'T do anything! Sit tight. We are not sure what will happen. See my previous post. Marie > > This is so weird to me. I have insurance through my company and my son is on Medicare A B and D. Medicare is his primary and My insurance is secondary and Medicaid (HBDW) is third. I was told he had to be on Medicaid to get services. I got him on Medicaid and he had such a high spend down I had to put him on HBDW and he has to pay $81.00 a month and hardly uses it as he is (THANK GOD) healthy. I was told he had to have Medicaid or HBWD so if or when he wants to move into a living facility he would qualify. Now it looks like they want to get him off of Medicaid? Am I missing something? I was being told he would loose his Home Based Services if he didn't have Medicaid. So am I making him pay the $81.00 a month for nothing? Man o Man just when I think I know SOMETHING....... BAM! LOL > Shirley > > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 Excellent point, Marie. The new healthcare reform bill (FEDERAL - nothing to do with IL's shifting into Medicaid managed care) - says i f your son or daughter is covered under your insurance AND also receives coverage from Medicaid, the State cannot cut them from Medicaid until the exchanges start operating in 20104 UNLESS the State faces a budget shortfall. It also says that a son or daughter is covered until they are 26. This, too, has the potential to change a great deal but I haven't heard anyone address it. Josh is 21. And covered on our private insurance. Will IL deem him ineligible for Medicaid which would make him ineligible for the HBSSP because IL faces a budget shortfall? Or in 2014, will IL tell us to either have him dropped from our family insurance or lose eligibility? Or will they tell us 2014, he is ineligible for Medicaid until he is past age 26? http://www.nytimes.com/interactive/2010/03/21/us/health-care-reform.html Pam Re: What We're About > > > > > > > I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 Excellent point, Marie. The new healthcare reform bill (FEDERAL - nothing to do with IL's shifting into Medicaid managed care) - says i f your son or daughter is covered under your insurance AND also receives coverage from Medicaid, the State cannot cut them from Medicaid until the exchanges start operating in 20104 UNLESS the State faces a budget shortfall. It also says that a son or daughter is covered until they are 26. This, too, has the potential to change a great deal but I haven't heard anyone address it. Josh is 21. And covered on our private insurance. Will IL deem him ineligible for Medicaid which would make him ineligible for the HBSSP because IL faces a budget shortfall? Or in 2014, will IL tell us to either have him dropped from our family insurance or lose eligibility? Or will they tell us 2014, he is ineligible for Medicaid until he is past age 26? http://www.nytimes.com/interactive/2010/03/21/us/health-care-reform.html Pam Re: What We're About > > > > > > > I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 My insurance will cover him for life because he is disabled but as a secondary insurance (for now they could change that at any time I guess). As far as I am concerned, in our case I would be happy to drop the HBWD which costs him $81.00 a month if he can still get the HBS and qualify for any other services or housing that he needs in the future. I will not do anything until I am forced to but, wow things are a changing. Shirley From: pam_harris@... <pam_harris@...> Subject: Re: Re: What We're About IPADDUnite Date: Sunday, March 28, 2010, 8:26 PM  Excellent point, Marie. The new healthcare reform bill (FEDERAL - nothing to do with IL's shifting into Medicaid managed care) - says i f your son or daughter is covered under your insurance AND also receives coverage from Medicaid, the State cannot cut them from Medicaid until the exchanges start operating in 20104 UNLESS the State faces a budget shortfall. It also says that a son or daughter is covered until they are 26. This, too, has the potential to change a great deal but I haven't heard anyone address it. Josh is 21. And covered on our private insurance. Will IL deem him ineligible for Medicaid which would make him ineligible for the HBSSP because IL faces a budget shortfall? Or in 2014, will IL tell us to either have him dropped from our family insurance or lose eligibility? Or will they tell us 2014, he is ineligible for Medicaid until he is past age 26? http://www.nytimes. com/interactive/ 2010/03/21/ us/health- care-reform. html Pam Re: What We're About > > > > > > > I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 My insurance will cover him for life because he is disabled but as a secondary insurance (for now they could change that at any time I guess). As far as I am concerned, in our case I would be happy to drop the HBWD which costs him $81.00 a month if he can still get the HBS and qualify for any other services or housing that he needs in the future. I will not do anything until I am forced to but, wow things are a changing. Shirley From: pam_harris@... <pam_harris@...> Subject: Re: Re: What We're About IPADDUnite Date: Sunday, March 28, 2010, 8:26 PM  Excellent point, Marie. The new healthcare reform bill (FEDERAL - nothing to do with IL's shifting into Medicaid managed care) - says i f your son or daughter is covered under your insurance AND also receives coverage from Medicaid, the State cannot cut them from Medicaid until the exchanges start operating in 20104 UNLESS the State faces a budget shortfall. It also says that a son or daughter is covered until they are 26. This, too, has the potential to change a great deal but I haven't heard anyone address it. Josh is 21. And covered on our private insurance. Will IL deem him ineligible for Medicaid which would make him ineligible for the HBSSP because IL faces a budget shortfall? Or in 2014, will IL tell us to either have him dropped from our family insurance or lose eligibility? Or will they tell us 2014, he is ineligible for Medicaid until he is past age 26? http://www.nytimes. com/interactive/ 2010/03/21/ us/health- care-reform. html Pam Re: What We're About > > > > > > > I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 The change to 26 is for typical children that were required to be students to continue under their parent's coverage. Under the new law they will not have to be students, giving them time after they graduate to get their own coverage without a lapse. The bill does not change the qualification for diabled adult children at this point. On Sun, 28 Mar 2010 13:54:12 -0700 (PDT) Shirley Linden <slpanda2@...> writes: My insurance will cover him for life because he is disabled but as a secondary insurance (for now they could change that at any time I guess). As far as I am concerned, in our case I would be happy to drop the HBWD which costs him $81.00 a month if he can still get the HBS and qualify for any other services or housing that he needs in the future. I will not do anything until I am forced to but, wow things are a changing. Shirley From: pam_harris@... <pam_harris@...> Subject: Re: Re: What We're About IPADDUnite Date: Sunday, March 28, 2010, 8:26 PM Excellent point, Marie. The new healthcare reform bill (FEDERAL - nothing to do with IL's shifting into Medicaid managed care) - says i f your son or daughter is covered under your insurance AND also receives coverage from Medicaid, the State cannot cut them from Medicaid until the exchanges start operating in 20104 UNLESS the State faces a budget shortfall. It also says that a son or daughter is covered until they are 26. This, too, has the potential to change a great deal but I haven't heard anyone address it. Josh is 21. And covered on our private insurance. Will IL deem him ineligible for Medicaid which would make him ineligible for the HBSSP because IL faces a budget shortfall? Or in 2014, will IL tell us to either have him dropped from our family insurance or lose eligibility? Or will they tell us 2014, he is ineligible for Medicaid until he is past age 26? http://www.nytimes. com/interactive/ 2010/03/21/ us/health- care-reform. html Pam Re: What We're About > > > > > > > I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 The change to 26 is for typical children that were required to be students to continue under their parent's coverage. Under the new law they will not have to be students, giving them time after they graduate to get their own coverage without a lapse. The bill does not change the qualification for diabled adult children at this point. On Sun, 28 Mar 2010 13:54:12 -0700 (PDT) Shirley Linden <slpanda2@...> writes: My insurance will cover him for life because he is disabled but as a secondary insurance (for now they could change that at any time I guess). As far as I am concerned, in our case I would be happy to drop the HBWD which costs him $81.00 a month if he can still get the HBS and qualify for any other services or housing that he needs in the future. I will not do anything until I am forced to but, wow things are a changing. Shirley From: pam_harris@... <pam_harris@...> Subject: Re: Re: What We're About IPADDUnite Date: Sunday, March 28, 2010, 8:26 PM Excellent point, Marie. The new healthcare reform bill (FEDERAL - nothing to do with IL's shifting into Medicaid managed care) - says i f your son or daughter is covered under your insurance AND also receives coverage from Medicaid, the State cannot cut them from Medicaid until the exchanges start operating in 20104 UNLESS the State faces a budget shortfall. It also says that a son or daughter is covered until they are 26. This, too, has the potential to change a great deal but I haven't heard anyone address it. Josh is 21. And covered on our private insurance. Will IL deem him ineligible for Medicaid which would make him ineligible for the HBSSP because IL faces a budget shortfall? Or in 2014, will IL tell us to either have him dropped from our family insurance or lose eligibility? Or will they tell us 2014, he is ineligible for Medicaid until he is past age 26? http://www.nytimes. com/interactive/ 2010/03/21/ us/health- care-reform. html Pam Re: What We're About > > > > > > > I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 Illinois already had its own " 26 " statute, for, I think now 2 years. _____________________________________________________ Rubin Special Needs Future Planning The Law Offices of Rubin & Associates Office: 847.279.7999 Toll Free: 866-To-Rubin Fax: 847-279-0090 Email: brian@...<mailto:brian@...> Web Site: www.brianrubin.com<http://www.brianrubin.com/> Mail: Buffalo Grove Business Park 1110 West Lake Cook Road Buffalo Grove, Illinois 60089-1997 [cid:image001.gif@...] ® Rubin has received the dale Hubbell<http://www.martindale.com/> Peer Review Rating of AV Preeminent, the highest rating available. Click here for more information on AV Peer Review Rating<http://www.martindale.com/-N-Rubin/903577-lawyer.htm?view=cr>. ® Rubin is a member of The Special Needs Alliance<http://www.specialneedsalliance.org/> is a national, not for profit, association of experienced special needs planning attorneys. Membership is by invitation. Rubin serves on the Board of Directors of The Special Needs Alliance. ® Rubin is a member of the National Academy of Elder Law Attorneys<http://www.naela.org/> and serves on the Special Needs Law Section Steering Committee. Notices: 1. This message does not create an attorney-client relationship, and is not legal advice absent such a relationship with the recipient. This message may contain confidential information protected by the attorney-client and/or work product privilege. The information is only for the use of the intended recipient. If you are not such recipient, disclosure, copying, distribution or reliance upon this e-mail is strictly prohibited. If you have received this transmission in error, please notify The Law Offices of Rubin & Associates by e-mail and destroy the original message and all copies. 2. IRS CIRCULAR 230 NOTICE: TO THE EXTENT THAT THIS MESSAGE OR ANY ATTACHMENT CONCERNS TAX MATTERS, IT IS NOT INTENDED TO BE USED AND CANNOT BE USED BY A TAXPAYER FOR THE PURPOSE OF AVOIDING PENALTIES THAT MAY BE IMPOSED BY LAW. 3. Disclaimer Regarding Electronic Signature. If this communication concerns negotiation of a contract or agreement, electronic signature rules do not apply to this communication: contract formation in this matter shall occur only with manually-affixed original signatures on original documents. The Signature given hereon is not an electronic signature and is provided only for the purposes of providing information as to the identity of the sender and for no other purpose(s) whatsoever. ________________________________ From: IPADDUnite [mailto:IPADDUnite ] On Behalf Of grzywa Sent: Sunday, March 28, 2010 4:12 PM IPADDUnite Subject: Re: Re: What We're About The change to 26 is for typical children that were required to be students to continue under their parent's coverage. Under the new law they will not have to be students, giving them time after they graduate to get their own coverage without a lapse. The bill does not change the qualification for diabled adult children at this point. On Sun, 28 Mar 2010 13:54:12 -0700 (PDT) Shirley Linden <slpanda2@...<mailto:slpanda2%40sbcglobal.net>> writes: My insurance will cover him for life because he is disabled but as a secondary insurance (for now they could change that at any time I guess). As far as I am concerned, in our case I would be happy to drop the HBWD which costs him $81.00 a month if he can still get the HBS and qualify for any other services or housing that he needs in the future. I will not do anything until I am forced to but, wow things are a changing. Shirley From: pam_harris@...<mailto:pam_harris%40comcast.net> <pam_harris@...<mailto:pam_harris%40comcast.net>> Subject: Re: Re: What We're About IPADDUnite <mailto:IPADDUnite%40> Date: Sunday, March 28, 2010, 8:26 PM Excellent point, Marie. The new healthcare reform bill (FEDERAL - nothing to do with IL's shifting into Medicaid managed care) - says i f your son or daughter is covered under your insurance AND also receives coverage from Medicaid, the State cannot cut them from Medicaid until the exchanges start operating in 20104 UNLESS the State faces a budget shortfall. It also says that a son or daughter is covered until they are 26. This, too, has the potential to change a great deal but I haven't heard anyone address it. Josh is 21. And covered on our private insurance. Will IL deem him ineligible for Medicaid which would make him ineligible for the HBSSP because IL faces a budget shortfall? Or in 2014, will IL tell us to either have him dropped from our family insurance or lose eligibility? Or will they tell us 2014, he is ineligible for Medicaid until he is past age 26? http://www.nytimes. com/interactive/ 2010/03/21/ us/health- care-reform. html Pam Re: What We're About > > > > > > > I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 Illinois already had its own " 26 " statute, for, I think now 2 years. _____________________________________________________ Rubin Special Needs Future Planning The Law Offices of Rubin & Associates Office: 847.279.7999 Toll Free: 866-To-Rubin Fax: 847-279-0090 Email: brian@...<mailto:brian@...> Web Site: www.brianrubin.com<http://www.brianrubin.com/> Mail: Buffalo Grove Business Park 1110 West Lake Cook Road Buffalo Grove, Illinois 60089-1997 [cid:image001.gif@...] ® Rubin has received the dale Hubbell<http://www.martindale.com/> Peer Review Rating of AV Preeminent, the highest rating available. Click here for more information on AV Peer Review Rating<http://www.martindale.com/-N-Rubin/903577-lawyer.htm?view=cr>. ® Rubin is a member of The Special Needs Alliance<http://www.specialneedsalliance.org/> is a national, not for profit, association of experienced special needs planning attorneys. Membership is by invitation. Rubin serves on the Board of Directors of The Special Needs Alliance. ® Rubin is a member of the National Academy of Elder Law Attorneys<http://www.naela.org/> and serves on the Special Needs Law Section Steering Committee. Notices: 1. This message does not create an attorney-client relationship, and is not legal advice absent such a relationship with the recipient. This message may contain confidential information protected by the attorney-client and/or work product privilege. The information is only for the use of the intended recipient. If you are not such recipient, disclosure, copying, distribution or reliance upon this e-mail is strictly prohibited. If you have received this transmission in error, please notify The Law Offices of Rubin & Associates by e-mail and destroy the original message and all copies. 2. IRS CIRCULAR 230 NOTICE: TO THE EXTENT THAT THIS MESSAGE OR ANY ATTACHMENT CONCERNS TAX MATTERS, IT IS NOT INTENDED TO BE USED AND CANNOT BE USED BY A TAXPAYER FOR THE PURPOSE OF AVOIDING PENALTIES THAT MAY BE IMPOSED BY LAW. 3. Disclaimer Regarding Electronic Signature. If this communication concerns negotiation of a contract or agreement, electronic signature rules do not apply to this communication: contract formation in this matter shall occur only with manually-affixed original signatures on original documents. The Signature given hereon is not an electronic signature and is provided only for the purposes of providing information as to the identity of the sender and for no other purpose(s) whatsoever. ________________________________ From: IPADDUnite [mailto:IPADDUnite ] On Behalf Of grzywa Sent: Sunday, March 28, 2010 4:12 PM IPADDUnite Subject: Re: Re: What We're About The change to 26 is for typical children that were required to be students to continue under their parent's coverage. Under the new law they will not have to be students, giving them time after they graduate to get their own coverage without a lapse. The bill does not change the qualification for diabled adult children at this point. On Sun, 28 Mar 2010 13:54:12 -0700 (PDT) Shirley Linden <slpanda2@...<mailto:slpanda2%40sbcglobal.net>> writes: My insurance will cover him for life because he is disabled but as a secondary insurance (for now they could change that at any time I guess). As far as I am concerned, in our case I would be happy to drop the HBWD which costs him $81.00 a month if he can still get the HBS and qualify for any other services or housing that he needs in the future. I will not do anything until I am forced to but, wow things are a changing. Shirley From: pam_harris@...<mailto:pam_harris%40comcast.net> <pam_harris@...<mailto:pam_harris%40comcast.net>> Subject: Re: Re: What We're About IPADDUnite <mailto:IPADDUnite%40> Date: Sunday, March 28, 2010, 8:26 PM Excellent point, Marie. The new healthcare reform bill (FEDERAL - nothing to do with IL's shifting into Medicaid managed care) - says i f your son or daughter is covered under your insurance AND also receives coverage from Medicaid, the State cannot cut them from Medicaid until the exchanges start operating in 20104 UNLESS the State faces a budget shortfall. It also says that a son or daughter is covered until they are 26. This, too, has the potential to change a great deal but I haven't heard anyone address it. Josh is 21. And covered on our private insurance. Will IL deem him ineligible for Medicaid which would make him ineligible for the HBSSP because IL faces a budget shortfall? Or in 2014, will IL tell us to either have him dropped from our family insurance or lose eligibility? Or will they tell us 2014, he is ineligible for Medicaid until he is past age 26? http://www.nytimes. com/interactive/ 2010/03/21/ us/health- care-reform. html Pam Re: What We're About > > > > > > > I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 Don't forget that we need Medicaid not just for " medical " but for programs, like residential... and one by one due to conversion, day programs. _____________________________________________________ Rubin Special Needs Future Planning The Law Offices of Rubin & Associates Office: 847.279.7999 Toll Free: 866-To-Rubin Fax: 847-279-0090 Email: brian@...<mailto:brian@...> Web Site: www.brianrubin.com<http://www.brianrubin.com/> Mail: Buffalo Grove Business Park 1110 West Lake Cook Road Buffalo Grove, Illinois 60089-1997 [cid:image001.gif@...] ® Rubin has received the dale Hubbell<http://www.martindale.com/> Peer Review Rating of AV Preeminent, the highest rating available. Click here for more information on AV Peer Review Rating<http://www.martindale.com/-N-Rubin/903577-lawyer.htm?view=cr>. ® Rubin is a member of The Special Needs Alliance<http://www.specialneedsalliance.org/> is a national, not for profit, association of experienced special needs planning attorneys. Membership is by invitation. Rubin serves on the Board of Directors of The Special Needs Alliance. ® Rubin is a member of the National Academy of Elder Law Attorneys<http://www.naela.org/> and serves on the Special Needs Law Section Steering Committee. Notices: 1. This message does not create an attorney-client relationship, and is not legal advice absent such a relationship with the recipient. This message may contain confidential information protected by the attorney-client and/or work product privilege. The information is only for the use of the intended recipient. If you are not such recipient, disclosure, copying, distribution or reliance upon this e-mail is strictly prohibited. If you have received this transmission in error, please notify The Law Offices of Rubin & Associates by e-mail and destroy the original message and all copies. 2. IRS CIRCULAR 230 NOTICE: TO THE EXTENT THAT THIS MESSAGE OR ANY ATTACHMENT CONCERNS TAX MATTERS, IT IS NOT INTENDED TO BE USED AND CANNOT BE USED BY A TAXPAYER FOR THE PURPOSE OF AVOIDING PENALTIES THAT MAY BE IMPOSED BY LAW. 3. Disclaimer Regarding Electronic Signature. If this communication concerns negotiation of a contract or agreement, electronic signature rules do not apply to this communication: contract formation in this matter shall occur only with manually-affixed original signatures on original documents. The Signature given hereon is not an electronic signature and is provided only for the purposes of providing information as to the identity of the sender and for no other purpose(s) whatsoever. ________________________________ From: IPADDUnite [mailto:IPADDUnite ] On Behalf Of pam_harris@... Sent: Sunday, March 28, 2010 3:26 PM IPADDUnite Subject: Re: Re: What We're About Excellent point, Marie. The new healthcare reform bill (FEDERAL - nothing to do with IL's shifting into Medicaid managed care) - says i f your son or daughter is covered under your insurance AND also receives coverage from Medicaid, the State cannot cut them from Medicaid until the exchanges start operating in 20104 UNLESS the State faces a budget shortfall. It also says that a son or daughter is covered until they are 26. This, too, has the potential to change a great deal but I haven't heard anyone address it. Josh is 21. And covered on our private insurance. Will IL deem him ineligible for Medicaid which would make him ineligible for the HBSSP because IL faces a budget shortfall? Or in 2014, will IL tell us to either have him dropped from our family insurance or lose eligibility? Or will they tell us 2014, he is ineligible for Medicaid until he is past age 26? http://www.nytimes.com/interactive/2010/03/21/us/health-care-reform.html Pam Re: What We're About > > > > > > > I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 Don't forget that we need Medicaid not just for " medical " but for programs, like residential... and one by one due to conversion, day programs. _____________________________________________________ Rubin Special Needs Future Planning The Law Offices of Rubin & Associates Office: 847.279.7999 Toll Free: 866-To-Rubin Fax: 847-279-0090 Email: brian@...<mailto:brian@...> Web Site: www.brianrubin.com<http://www.brianrubin.com/> Mail: Buffalo Grove Business Park 1110 West Lake Cook Road Buffalo Grove, Illinois 60089-1997 [cid:image001.gif@...] ® Rubin has received the dale Hubbell<http://www.martindale.com/> Peer Review Rating of AV Preeminent, the highest rating available. Click here for more information on AV Peer Review Rating<http://www.martindale.com/-N-Rubin/903577-lawyer.htm?view=cr>. ® Rubin is a member of The Special Needs Alliance<http://www.specialneedsalliance.org/> is a national, not for profit, association of experienced special needs planning attorneys. Membership is by invitation. Rubin serves on the Board of Directors of The Special Needs Alliance. ® Rubin is a member of the National Academy of Elder Law Attorneys<http://www.naela.org/> and serves on the Special Needs Law Section Steering Committee. Notices: 1. This message does not create an attorney-client relationship, and is not legal advice absent such a relationship with the recipient. This message may contain confidential information protected by the attorney-client and/or work product privilege. The information is only for the use of the intended recipient. If you are not such recipient, disclosure, copying, distribution or reliance upon this e-mail is strictly prohibited. If you have received this transmission in error, please notify The Law Offices of Rubin & Associates by e-mail and destroy the original message and all copies. 2. IRS CIRCULAR 230 NOTICE: TO THE EXTENT THAT THIS MESSAGE OR ANY ATTACHMENT CONCERNS TAX MATTERS, IT IS NOT INTENDED TO BE USED AND CANNOT BE USED BY A TAXPAYER FOR THE PURPOSE OF AVOIDING PENALTIES THAT MAY BE IMPOSED BY LAW. 3. Disclaimer Regarding Electronic Signature. If this communication concerns negotiation of a contract or agreement, electronic signature rules do not apply to this communication: contract formation in this matter shall occur only with manually-affixed original signatures on original documents. The Signature given hereon is not an electronic signature and is provided only for the purposes of providing information as to the identity of the sender and for no other purpose(s) whatsoever. ________________________________ From: IPADDUnite [mailto:IPADDUnite ] On Behalf Of pam_harris@... Sent: Sunday, March 28, 2010 3:26 PM IPADDUnite Subject: Re: Re: What We're About Excellent point, Marie. The new healthcare reform bill (FEDERAL - nothing to do with IL's shifting into Medicaid managed care) - says i f your son or daughter is covered under your insurance AND also receives coverage from Medicaid, the State cannot cut them from Medicaid until the exchanges start operating in 20104 UNLESS the State faces a budget shortfall. It also says that a son or daughter is covered until they are 26. This, too, has the potential to change a great deal but I haven't heard anyone address it. Josh is 21. And covered on our private insurance. Will IL deem him ineligible for Medicaid which would make him ineligible for the HBSSP because IL faces a budget shortfall? Or in 2014, will IL tell us to either have him dropped from our family insurance or lose eligibility? Or will they tell us 2014, he is ineligible for Medicaid until he is past age 26? http://www.nytimes.com/interactive/2010/03/21/us/health-care-reform.html Pam Re: What We're About > > > > > > > I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 I would agree, 100% with you, . It is important to sit tight for the moment, until we all know what is IN THE BEST INTEREST OF OUR OWN CHILDREN. My husband, who is a surgical sub-specialist and the only ENT who accepts Medicaid in the south suburbs, doesn't know what will concern him as yet. We are in the middle of converting to electronic records for his practice and it's a mess. Marie > > > > I think the point is to move your adult son or daughter OFF of Medicaid since the parents are making private insurance available. This is a piece of the new healthcare reform bill > > > > > > Regarding Illinois, I understand that the new Medicaid managed care plan does not include people with private insurance. > > > > Pam > > > > Re: What We're About > > > > > > > > > > > > > > I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 I would agree, 100% with you, . It is important to sit tight for the moment, until we all know what is IN THE BEST INTEREST OF OUR OWN CHILDREN. My husband, who is a surgical sub-specialist and the only ENT who accepts Medicaid in the south suburbs, doesn't know what will concern him as yet. We are in the middle of converting to electronic records for his practice and it's a mess. Marie > > > > I think the point is to move your adult son or daughter OFF of Medicaid since the parents are making private insurance available. This is a piece of the new healthcare reform bill > > > > > > Regarding Illinois, I understand that the new Medicaid managed care plan does not include people with private insurance. > > > > Pam > > > > Re: What We're About > > > > > > > > > > > > > > I am with Diane on this. I pay substantially to keep my daughter on my insurance because the Medicaid providers in this area were USELESS. I called my provider and they said they were unaware of this being a problem. The bottom line is we save the state plenty by paying for this ourselves. This last year alone my insurance paid over $5,000 (at their negotiated rates) for her. How would the state benefit by forcing us to use Medicaid? Gloria > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 Yes Ellen, I share your concerns. Let's face it, I have workde in healthcare for 23 years and worked in many area. I work very closely with many different kinds of doctors, of whom many have become my personal friends. They share a lot with me about medicine, healthcare, and their insecurities, and am aware of their weaknesses. Those weaknesses are different for different individual physicians. Let's face it folks, not all doctors have the same skill and educational level, or ablities to practice the medicine that they are trained to know, and the trainings have not all been the same, and not all received in this country for that matter. I mean nothing about the in this country statement, you take it how each one of you feel you should. if you think it makes no difference, then it doesn't. If you think it does, then it does, etc. A doctor is not a doctor.( just as a nurse is not a nurse, a lawyer is not a lawyer, and not all teachers are the same. We all know that). Sometimes the difference in care can even mean life and death. I personally will always need to be in control of my own as well as that of my disabled son's healthcare, that is as long as I am still breathing. IF..... IFFFFFFF, that is any part of health care reform- then we are all in danger. Disabled or not. I am not saying it is, I'm saying I would like someone to answer that question for me, cause I currently do not know the answer to that question. Scarey. Diane S. > > > > > > > > > > > > Hi - > > > > > > Will you please then set some parameters or describe how discussions about lobbying local, state and national law makers can occur without a discussion of the issue ALL while remaining apolitical? > > > > > > > > > > > > How about this for apolitical discussion: > > > > > > > > > > > > Several months ago, I was shaken to learn that because my son Josh participates in IL Home Based Support Services Program, the State and Federal government have increased access to his privacy - that is, what is beyond the protections provided to a citizen not participating in a Medicaid waiver program. > > > > > > > > > > > > > > > The State of Illinois gave my name and home address to union organizers. And the reason they were able to do so was because I receive a check that comes from the IL HBSSP program. > > > > > > > > > > > > This intrusion on my privacy motivated me to stand up and loudly protest what I felt was the state of IL forcing me to join a union and pay money to a union via dues or fair share. In turn, the union could use the money to exercise their political muscle on policies that I may agree or disagree with. > > > > > > > > > > > > Again, I am shaken to learn that the State of Illinois can force us to drop Josh from our private health insurance if he is to continue participating in the IL HBSSP. I don’t know when or if this happen but this is a part of the new healthcare reform law. > > > > > > > > > > > > I can’t help but to ask: > > > > > > Is it worth it? Is the small monetary support worth all of the heavy, inflexible strings that it comes with? Is it worth giving up our privacy? > > > > > > > > > > > > I am tired of the quarterly visits and the review of our records. I am wondering why Josh has to have an individualized service plan that identifies life goals and documents his progress towards these goals. I don’t have an individualized service plan. I don’t have to report monthly on my progress made towards my life goals. People don't have to sit down at least once a year and examine all aspects of my life - medical, social, familial and discuss it. > > > > > > > > > > > > Some days, I am shaken to realize what we give up because Josh participates in a Medicaid waiver program. > > > > > > > > > > > > Thoughts? > > > Pam > > > > > > What We're About > > > > > > > > > > > > > > > > > > > > > I would echo what Laurie and Ellen have posted about recent posts and add my own comments. > > > > > > We are Illinois Parents of Adults with Developmental Disabilities Unite! and our focus is sharing information, strategies, and commiserating about our state and it's woeful stance and services for those with disabilities. We hope we're a place to vent when our loved one is having problems. We hope we can be a place to come together (remember the " Unite! " part of our name?)to lobby our local, state and national law makers when items come up that affect our loved ones. We want you share news in your part of the state, news of your children and news of your lives--this is not an easy life and we all do the best we can and it's great we can come together to share the ride. > > > > > > We try to be as apolitical as we can be......in Illinois, that can be a hard thing to do! But we must, or we will turn into something other that what Laurie intended IPADDUnite! to be. Partisan politics have no place here--no matter what side you're on. > > > > > > The ONE THING we all agree on is---Illinois SUCKS when it comes to services/programs etc. etc. for those with special needs. I bring up the " Unite! " part of our name again--we are united in our belief we can make it better and be a force in Illinois if WE ARE UNITED IN OUR GOAL TO MAKE IT BETTER FOR OUR CHILDREN. We don't have to agree how to, but we have to trust each other that we all want just about the same thing. > > > > > > I have many, many friends who do not share my political beliefs and I try to avoid talking politics with them. I have always been political, since my days at Illini Girls State when I ran for office and in my time " off list " , I am very political. But politics can be polarizing and being polarized from each other is exactly what we can't afford to be if we want to change this state. > > > > > > So, be nice. I'll get off my soapbox and leave you and have another cup of coffee. We can all agree that coffee and chocolate can fix anything. > > > > > > Marie > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 Yes Ellen, I share your concerns. Let's face it, I have workde in healthcare for 23 years and worked in many area. I work very closely with many different kinds of doctors, of whom many have become my personal friends. They share a lot with me about medicine, healthcare, and their insecurities, and am aware of their weaknesses. Those weaknesses are different for different individual physicians. Let's face it folks, not all doctors have the same skill and educational level, or ablities to practice the medicine that they are trained to know, and the trainings have not all been the same, and not all received in this country for that matter. I mean nothing about the in this country statement, you take it how each one of you feel you should. if you think it makes no difference, then it doesn't. If you think it does, then it does, etc. A doctor is not a doctor.( just as a nurse is not a nurse, a lawyer is not a lawyer, and not all teachers are the same. We all know that). Sometimes the difference in care can even mean life and death. I personally will always need to be in control of my own as well as that of my disabled son's healthcare, that is as long as I am still breathing. IF..... IFFFFFFF, that is any part of health care reform- then we are all in danger. Disabled or not. I am not saying it is, I'm saying I would like someone to answer that question for me, cause I currently do not know the answer to that question. Scarey. Diane S. > > > > > > > > > > > > Hi - > > > > > > Will you please then set some parameters or describe how discussions about lobbying local, state and national law makers can occur without a discussion of the issue ALL while remaining apolitical? > > > > > > > > > > > > How about this for apolitical discussion: > > > > > > > > > > > > Several months ago, I was shaken to learn that because my son Josh participates in IL Home Based Support Services Program, the State and Federal government have increased access to his privacy - that is, what is beyond the protections provided to a citizen not participating in a Medicaid waiver program. > > > > > > > > > > > > > > > The State of Illinois gave my name and home address to union organizers. And the reason they were able to do so was because I receive a check that comes from the IL HBSSP program. > > > > > > > > > > > > This intrusion on my privacy motivated me to stand up and loudly protest what I felt was the state of IL forcing me to join a union and pay money to a union via dues or fair share. In turn, the union could use the money to exercise their political muscle on policies that I may agree or disagree with. > > > > > > > > > > > > Again, I am shaken to learn that the State of Illinois can force us to drop Josh from our private health insurance if he is to continue participating in the IL HBSSP. I don’t know when or if this happen but this is a part of the new healthcare reform law. > > > > > > > > > > > > I can’t help but to ask: > > > > > > Is it worth it? Is the small monetary support worth all of the heavy, inflexible strings that it comes with? Is it worth giving up our privacy? > > > > > > > > > > > > I am tired of the quarterly visits and the review of our records. I am wondering why Josh has to have an individualized service plan that identifies life goals and documents his progress towards these goals. I don’t have an individualized service plan. I don’t have to report monthly on my progress made towards my life goals. People don't have to sit down at least once a year and examine all aspects of my life - medical, social, familial and discuss it. > > > > > > > > > > > > Some days, I am shaken to realize what we give up because Josh participates in a Medicaid waiver program. > > > > > > > > > > > > Thoughts? > > > Pam > > > > > > What We're About > > > > > > > > > > > > > > > > > > > > > I would echo what Laurie and Ellen have posted about recent posts and add my own comments. > > > > > > We are Illinois Parents of Adults with Developmental Disabilities Unite! and our focus is sharing information, strategies, and commiserating about our state and it's woeful stance and services for those with disabilities. We hope we're a place to vent when our loved one is having problems. We hope we can be a place to come together (remember the " Unite! " part of our name?)to lobby our local, state and national law makers when items come up that affect our loved ones. We want you share news in your part of the state, news of your children and news of your lives--this is not an easy life and we all do the best we can and it's great we can come together to share the ride. > > > > > > We try to be as apolitical as we can be......in Illinois, that can be a hard thing to do! But we must, or we will turn into something other that what Laurie intended IPADDUnite! to be. Partisan politics have no place here--no matter what side you're on. > > > > > > The ONE THING we all agree on is---Illinois SUCKS when it comes to services/programs etc. etc. for those with special needs. I bring up the " Unite! " part of our name again--we are united in our belief we can make it better and be a force in Illinois if WE ARE UNITED IN OUR GOAL TO MAKE IT BETTER FOR OUR CHILDREN. We don't have to agree how to, but we have to trust each other that we all want just about the same thing. > > > > > > I have many, many friends who do not share my political beliefs and I try to avoid talking politics with them. I have always been political, since my days at Illini Girls State when I ran for office and in my time " off list " , I am very political. But politics can be polarizing and being polarized from each other is exactly what we can't afford to be if we want to change this state. > > > > > > So, be nice. I'll get off my soapbox and leave you and have another cup of coffee. We can all agree that coffee and chocolate can fix anything. > > > > > > Marie > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.