Re: Group home Special diet and food stamps

[Guest guest]

The amount of food stamps someone gets is based on:

- their income

        AND

- where they live

Unfortunately - NOT what they need.

By the way, food stamps are no longer called food stamps. This program is now

called S.N.A.P.

 Supplemental Nutrition Assistance Program (SNAP)

 

 

________________________________

From: Bruce <elmopetkus@...>

IPADDUnite

Sent: Fri, January 22, 2010 7:25:09 AM

Subject: Group home Special diet and food stamps

 

My son lives in a cila home. We found out that he has high cholesterol

is high. I want to know how much food stamps each person gets and do they have

special diet to go on. Guess I mean if your child need a special diet they

should at least try and take baby step They do not want to try diet just meds

they are worryed about my Son having to many melt downs if he can not have what

he wants to eat . We just found out a month later when we pick up meds and found

the new med. What are our rights

Than we took are Son to the hospital for Dental work we pick up are Son and

paper work from the house we get to the hospital 530 am in Chicago at the last

minute they cancelled every thing because we did not have guradianship

paper never had that happen to us before.

WHAT ARE THE RIGHT IN ILL

Petkus

[Guest guest]

The amount of food stamps someone gets is based on:

- their income

        AND

- where they live

Unfortunately - NOT what they need.

By the way, food stamps are no longer called food stamps. This program is now

called S.N.A.P.

 Supplemental Nutrition Assistance Program (SNAP)

 

 

________________________________

From: Bruce <elmopetkus@...>

IPADDUnite

Sent: Fri, January 22, 2010 7:25:09 AM

Subject: Group home Special diet and food stamps

 

My son lives in a cila home. We found out that he has high cholesterol

is high. I want to know how much food stamps each person gets and do they have

special diet to go on. Guess I mean if your child need a special diet they

should at least try and take baby step They do not want to try diet just meds

they are worryed about my Son having to many melt downs if he can not have what

he wants to eat . We just found out a month later when we pick up meds and found

the new med. What are our rights

Than we took are Son to the hospital for Dental work we pick up are Son and

paper work from the house we get to the hospital 530 am in Chicago at the last

minute they cancelled every thing because we did not have guradianship

paper never had that happen to us before.

WHAT ARE THE RIGHT IN ILL

Petkus

[Guest guest]

:

You are absolutely right that diet matters. It would probably be useful, if

you can, to take your son to a physician, if you can find one who accepts

Medicaid, to get a second opinion about the importance of diet...maybe staff

would listen and respond if there was a doctor's order for a specific reduced

cholesterol diet. ANother strategy, might be to try some different lower

cholesterol foods/meals when your son comes home for visits and if you meet with

success (no temper tantrums) maybe staff would be more willing to try those

changes in the CILA. I think it is unfortunate that staff added new medication

without letting you know...I am not sure what your rights are, in that regard...

I am no expert on guardianship. Are you guardian for your son? If you are not

a guardian for your son, I am not sure what rights you would have. If you are

guardian, not sure why you had a problem.

Can anyone on IPADDU comment about 's rights in regard to the

medication, diet and guardianship?

Ellen

Ellen Garber Bronfeld

egskb@...

Group home Special diet and food stamps

My son lives in a cila home. We found out that he has high cholesterol

is high. I want to know how much food stamps each person gets and do they have

special diet to go on. Guess I mean if your child need a special diet they

should at least try and take baby step They do not want to try diet just meds

they are worryed about my Son having to many melt downs if he can not have what

he wants to eat . We just found out a month later when we pick up meds and found

the new med. What are our rights

Than we took are Son to the hospital for Dental work we pick up are Son and

paper work from the house we get to the hospital 530 am in Chicago at the last

minute they cancelled every thing because we did not have guradianship

paper never had that happen to us before.

WHAT ARE THE RIGHT IN ILL

Petkus

[Guest guest]

:

You are absolutely right that diet matters. It would probably be useful, if

you can, to take your son to a physician, if you can find one who accepts

Medicaid, to get a second opinion about the importance of diet...maybe staff

would listen and respond if there was a doctor's order for a specific reduced

cholesterol diet. ANother strategy, might be to try some different lower

cholesterol foods/meals when your son comes home for visits and if you meet with

success (no temper tantrums) maybe staff would be more willing to try those

changes in the CILA. I think it is unfortunate that staff added new medication

without letting you know...I am not sure what your rights are, in that regard...

I am no expert on guardianship. Are you guardian for your son? If you are not

a guardian for your son, I am not sure what rights you would have. If you are

guardian, not sure why you had a problem.

Can anyone on IPADDU comment about 's rights in regard to the

medication, diet and guardianship?

Ellen

Ellen Garber Bronfeld

egskb@...

Group home Special diet and food stamps

My son lives in a cila home. We found out that he has high cholesterol

is high. I want to know how much food stamps each person gets and do they have

special diet to go on. Guess I mean if your child need a special diet they

should at least try and take baby step They do not want to try diet just meds

they are worryed about my Son having to many melt downs if he can not have what

he wants to eat . We just found out a month later when we pick up meds and found

the new med. What are our rights

Than we took are Son to the hospital for Dental work we pick up are Son and

paper work from the house we get to the hospital 530 am in Chicago at the last

minute they cancelled every thing because we did not have guradianship

paper never had that happen to us before.

WHAT ARE THE RIGHT IN ILL

Petkus

[Guest guest]

 

DEEP BREATH

 

As my daughter's medical / dental team shared with us -  thank God well before

she was 18, surgical procedures including dental done in hospital seetings

generally require a signature on the informed consent form before the

procedure can proceed.

 

It seems to me for whatever reasons, as I do not think I have ever had the

pleasure of meeting you or your son, someone connected the dots and felt your

son could not give informed consent and without guardianship in place -- STOP

THE PRESSES ! or in this instant case - the surgical procedure.

 

Not good, but it seems to me the person connecting the dots was trying even

though frustrating and ugly -- to protect your son's rights! This is a good

thing, really! 

 

Time and again I am reminded of the the great thing about this list is the

sharing and resources. Just recently someone published an offer of initial

free legal advice. My suggestion is you need to talk with an attorney about the

best way to respond to your situation. It may be guardianship is right or maybe

something else -- what I have no idea but use the resources.

 

Speaking of resources... there are resources and there are resources. As someone

else already posted, SNAP aka FOOD STAMPS reflects age, living location as well

as income. NO wiggle room really in that program -- BUT if its a CILA I am lost

as to the issue you are raising?

Forgive me but my experience says CILA = residents can control menu driven by

ability to pay

Help me get the issue...

 

Medically necessary dr referrals to a nutritionist/dietary consult may or may

not be provided. You need to talk with case manager. Menus inclusive of small

amounts of kids favs might be able to be built in -- just thinking out loud to

be of help

 

If your son's doctor writes a dr  order for specific dietary supplements as

medically necessary e.g. for nutrition and your son is on Medicaid -- guess who

gets to provide it then -- YUP, Medicaid  An example, a diabetic patient who

needs Glucera -- the non sugar equalivalent to Ensure or Boost -- as a medical

necessity for nutrition - BINGO!

 

Chloestral management issues much harder - I hear ya!

 

All I am trying to suggest is we all think outside of the box as we try to team

together to meet all our kids needs.

 

g 

Humbly grateful to be your companion

on the journey...

Gordon P. Stiefel

Phone: 708 246 5151

Fax: 708 246 9144

" All great change in America

begins at the dinner table " , Reagan.

" Now more than ever, in a world all too often deprived of light and

the courage of noble ideals, it is not the time to be ashamed of the Gospel (cf.

Rom 1: 16).

Rather, it is time to preach it from the rooftops (cf. Mt 10: 27)! "

National Meeting of Young Catholics of Switzerland (2004), Address of

II

..

____________ _________ _________ __

From: Bruce <elmopetkus (DOT) com>

IPADDUnite@gro ups.com

Sent: Fri, January 22, 2010 7:25:09 AM

Subject: Group home Special diet and food stamps

 

My son lives in a cila home. We found out that he has high cholesterol

is high. I want to know how much food stamps each person gets and do they have

special diet to go on. Guess I mean if your child need a special diet they

should at least try and take baby step They do not want to try diet just meds

they are worryed about my Son having to many melt downs if he can not have what

he wants to eat . We just found out a month later when we pick up meds and found

the new med. What are our rights

Than we took are Son to the hospital for Dental work we pick up are Son and

paper work from the house we get to the hospital 530 am in Chicago at the last

minute they cancelled every thing because we did not have guradianship

paper never had that happen to us before.

WHAT ARE THE RIGHT IN ILL

Petkus

[Guest guest]

 

DEEP BREATH

 

As my daughter's medical / dental team shared with us -  thank God well before

she was 18, surgical procedures including dental done in hospital seetings

generally require a signature on the informed consent form before the

procedure can proceed.

 

It seems to me for whatever reasons, as I do not think I have ever had the

pleasure of meeting you or your son, someone connected the dots and felt your

son could not give informed consent and without guardianship in place -- STOP

THE PRESSES ! or in this instant case - the surgical procedure.

 

Not good, but it seems to me the person connecting the dots was trying even

though frustrating and ugly -- to protect your son's rights! This is a good

thing, really! 

 

Time and again I am reminded of the the great thing about this list is the

sharing and resources. Just recently someone published an offer of initial

free legal advice. My suggestion is you need to talk with an attorney about the

best way to respond to your situation. It may be guardianship is right or maybe

something else -- what I have no idea but use the resources.

 

Speaking of resources... there are resources and there are resources. As someone

else already posted, SNAP aka FOOD STAMPS reflects age, living location as well

as income. NO wiggle room really in that program -- BUT if its a CILA I am lost

as to the issue you are raising?

Forgive me but my experience says CILA = residents can control menu driven by

ability to pay

Help me get the issue...

 

Medically necessary dr referrals to a nutritionist/dietary consult may or may

not be provided. You need to talk with case manager. Menus inclusive of small

amounts of kids favs might be able to be built in -- just thinking out loud to

be of help

 

If your son's doctor writes a dr  order for specific dietary supplements as

medically necessary e.g. for nutrition and your son is on Medicaid -- guess who

gets to provide it then -- YUP, Medicaid  An example, a diabetic patient who

needs Glucera -- the non sugar equalivalent to Ensure or Boost -- as a medical

necessity for nutrition - BINGO!

 

Chloestral management issues much harder - I hear ya!

 

All I am trying to suggest is we all think outside of the box as we try to team

together to meet all our kids needs.

 

g 

Humbly grateful to be your companion

on the journey...

Gordon P. Stiefel

Phone: 708 246 5151

Fax: 708 246 9144

" All great change in America

begins at the dinner table " , Reagan.

" Now more than ever, in a world all too often deprived of light and

the courage of noble ideals, it is not the time to be ashamed of the Gospel (cf.

Rom 1: 16).

Rather, it is time to preach it from the rooftops (cf. Mt 10: 27)! "

National Meeting of Young Catholics of Switzerland (2004), Address of

II

..

____________ _________ _________ __

From: Bruce <elmopetkus (DOT) com>

IPADDUnite@gro ups.com

Sent: Fri, January 22, 2010 7:25:09 AM

Subject: Group home Special diet and food stamps

 

My son lives in a cila home. We found out that he has high cholesterol

is high. I want to know how much food stamps each person gets and do they have

special diet to go on. Guess I mean if your child need a special diet they

should at least try and take baby step They do not want to try diet just meds

they are worryed about my Son having to many melt downs if he can not have what

he wants to eat . We just found out a month later when we pick up meds and found

the new med. What are our rights

Than we took are Son to the hospital for Dental work we pick up are Son and

paper work from the house we get to the hospital 530 am in Chicago at the last

minute they cancelled every thing because we did not have guradianship

paper never had that happen to us before.

WHAT ARE THE RIGHT IN ILL

Petkus

[Guest guest]

Special diet for lowering colestrol is Honey Nut Cheerio!

Honey Nut Cheerio have 0 colestrol, excellent tasty cereal.

[Guest guest]

Special diet for lowering colestrol is Honey Nut Cheerio!

Honey Nut Cheerio have 0 colestrol, excellent tasty cereal.