Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 CZ, First of all, illnesses are illnesses. We aren't given scores or keep scores. Something bothering you is just as important as something bothering someone else. Thank you for expressing your feelings. I'm glad to see how active you are on the group. I think it is normal for us all to feel like we aren't " normal " or to feel badly about the things we can't do. I'm sorry that I can't make you feel adequate, but I strongly believe that we are made who we are for a very special reason. I know that I tell my brother about you often, and it gives him hope to hear you have your own house, and you have your birds, and you are living your life. He asks about you, and he prays for you when you aren't doing well. I also feel like you have the right to be angry at people who make light of your accomplishments. Many of us think of you and wonder how you do it, that we might not be able to be as strong as you are. Lastly, I'm sorry that you don't see how wonderful you really are. If I had half of your conviction, I think I'd be set for life. It's okay to feel as you do, but I know you'll be okay. Just remember that its okay to ask for help, and its okay to need help. Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 thanks . your words mean a lot to me. it just does not seem that way from where i am though. and the pain and physical illness is just too much at times. it is very upsetting and frustrating. i think if my body worked i would be able to live a lot more of a normal life than i do now. CZ Don & wrote: > CZ, > > First of all, illnesses are illnesses. We aren't given scores or keep > scores. Something bothering you is just as important as something > bothering someone else. Thank you for expressing your feelings. I'm > glad to see how active you are on the group. I think it is normal for > us all to feel like we aren't " normal " or to feel badly about the things > we can't do. I'm sorry that I can't make you feel adequate, but I > strongly believe that we are made who we are for a very special reason. > I know that I tell my brother about you often, and it gives him hope to > hear you have your own house, and you have your birds, and you are > living your life. He asks about you, and he prays for you when you > aren't doing well. I also feel like you have the right to be angry at > people who make light of your accomplishments. Many of us think of you > and wonder how you do it, that we might not be able to be as strong as > you are. Lastly, I'm sorry that you don't see how wonderful you really > are. If I had half of your conviction, I think I'd be set for life. > It's okay to feel as you do, but I know you'll be okay. Just remember > that its okay to ask for help, and its okay to need help. > > Hugs, > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Being Sick Community > > > Message Archives and Digest Attachment Pictures:- > /messages > > Chat:- Scheduled Daily Chats at > /chat > > Bookmarks:- > Add a website URL you have found useful. > /links > > Personal Complaints or problems:- > Please contact a moderator > email: -owner > > Subscription Details:- > 1) Individual email - means that every email sent to the list you receive. > 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. > 3) Web only/No mail - means that you can pop into groups at your convenience and receive no email. > > To modify your subscription settings please visit:- > /join > > To subscribe or unsubscribe please email:- > -subscribe > -unsubscribe > > This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician. > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > When nothing is sure, everything is possible. > > --- Margaret Drabble > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2003 Report Share Posted April 9, 2003 CZ !!! YOU ARE NOT A PIECE OF CRUD NOR IS YOUR BODY STUPID !!! IT DOESN'T MATTER WHAT OTHERS SAY, REMEMBER WE HAVE ALL FOUGHT THE NEGATIVETY OF OTHERS FOR A LONG TIME... YOU KNOW YOU ARE ILL !!! YOU KNOW WHAT YOU CAN AND CAN NOT DO !!! PLEASE DEAR FRIEND, TAKE CARE OF YOUR SELF SO THAT YOU DON'T HEAD BACK DOWN AGAIN... YOU KNOW WHAT YOU CAN DO AND IT DOESN'T MATTER IF OTHERS AGREE WITH YOU OR NOT !!! YOUR BODY IS GIVING THE WARNING SIGNS TO SLOW DOWN... PLEASE HEED THEM.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2003 Report Share Posted April 9, 2003 Hello CZ You bother because you have to. You continue plodding away, putting one foot in front of the other as long as you can because with each step there's hope. Regards, Creepy Zucchini wrote: >please excuse me for whining here when i know that so many of you have >much worse things in life to deal with than i do. i am very frustrated >right now and quite upset. i guess i never want to believe that my >stupid body really is a piece of crud and that i am not and will not be >fit for work. i keep thinking if i am positive about it then it will be >like the doctors used to say and like my parents used to say and turn >out all in my head. i do not know how i will make ends meet or what will >happen but the pain and fog is starting to set in after 2 physically >active days that i have had. i must be so stupid to keep on trying >things and each time expecting myself not to end up in a flare. i think >i am getting a fever because i am wearing a long sleeved top and a >tracksuit and my beanie and i still feel cold. i know this drill so well >but i keep hoping it will change. i have been getting these flares since >i was about 12 and i just wish it would all go the hell away. next will >probably come the swelling and pain on my neck and under arms and the >depression. i hope i have not done myself in for the next few months or >something. i am so f'ing sick of having other people tell me if only i >just tried i could do anything and i am sure my interview success will >make them say that even more " see they loved you if you got off your ass >you could do a lot with your life " and i swear the next person that says >that to me i will probably slap them. i wonder if my stupid body will >ever let me have a life. quite apart from autism which is enough >problems without physical ones to add to it. > >in tears, > >CZ > > >~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Being Sick Community > > >Message Archives and Digest Attachment Pictures:- >/messages > >Chat:- Scheduled Daily Chats at >/chat > >Bookmarks:- >Add a website URL you have found useful. >/links > >Personal Complaints or problems:- >Please contact a moderator >email: -owner > >Subscription Details:- >1) Individual email - means that every email sent to the list you receive. >2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. >3) Web only/No mail - means that you can pop into groups at your convenience and receive no email. > >To modify your subscription settings please visit:- >/join > >To subscribe or unsubscribe please email:- >-subscribe >-unsubscribe > >This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician. >~~~~ *** ~~~ *** ~~~ *** ~~~~ >When nothing is sure, everything is possible. > >--- Margaret Drabble > >~~~~ *** ~~~ *** ~~~ *** ~~~~ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 CZ! No matter what remember life is never easy and that down the road may come a solution you never ever dreamed would happen is right, keep those feet going! People who do not walk in your shoes and criticize unjustly and it is unjust,are not worth the effort it takes to acknowledge them. Keep on truckin' girl you are worth a lot Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2009 Report Share Posted October 28, 2009 Liz, I think I'm gonna go have a piece of chocolate, too, as a sign of solidarity...not to mention that I had a pretty crappy day, too. Where IS the communication between people who care for and about your son? Just glad he was with you, so you didn't have to worry this time. Going to raid the pantry now -- L. Why do I bother Last Friday, I had a meeting at the facility my son is in. It was me, the team leader & 3 supervisors. One of my complaints was lack of communication. My son usually gets home about 3:30. Today I had picked him up at work. I went to the facility to sign the THV form (didn't sign the visitor's book, because the pen was gone AGAIN & I get so tired of having to run after one.) Got a phone call about 4:50 wanting to know where my son was at. Apparently, the team leader WHO WAS AT THE MEETING didn't let the other staff know. They do have a communication book....don't know if they use it, but they have one. Sure glad I knew where he was.....Guess I'm gonna HAVE to sign the book. My hubby doesn't always remember to sign it though, either. Gonna go find chocolate. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2009 Report Share Posted October 28, 2009 Liz, I think I'm gonna go have a piece of chocolate, too, as a sign of solidarity...not to mention that I had a pretty crappy day, too. Where IS the communication between people who care for and about your son? Just glad he was with you, so you didn't have to worry this time. Going to raid the pantry now -- L. Why do I bother Last Friday, I had a meeting at the facility my son is in. It was me, the team leader & 3 supervisors. One of my complaints was lack of communication. My son usually gets home about 3:30. Today I had picked him up at work. I went to the facility to sign the THV form (didn't sign the visitor's book, because the pen was gone AGAIN & I get so tired of having to run after one.) Got a phone call about 4:50 wanting to know where my son was at. Apparently, the team leader WHO WAS AT THE MEETING didn't let the other staff know. They do have a communication book....don't know if they use it, but they have one. Sure glad I knew where he was.....Guess I'm gonna HAVE to sign the book. My hubby doesn't always remember to sign it though, either. Gonna go find chocolate. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 I read Liz's and Laurie's postings before I went to bed last night. I kept thinking--if we forget something, we parents are the ones called on the carpet, etc. but if the people working with our kids forget something or are not readily available to us, it's all right and perfectly understandable. Liz's travails with her son's living situation--I always read yours post because I think, surely this time, your news will be better--especially strike me as a situation that reeks of this double standard. I posted one of my essays last week and mentioned I am editing my book, trying to get the whiny-ness out. What I mean is this--we are all held, we parents of those with disabilities, to a higher standard than the general public and even some of the professionals working with our kids. Why is that? This is meant to be rhetorical question but I do think it's a discussion worth having every once in a while. I did just eat a whole bag of Halloween M & Ms--and I do feel better! Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 I read Liz's and Laurie's postings before I went to bed last night. I kept thinking--if we forget something, we parents are the ones called on the carpet, etc. but if the people working with our kids forget something or are not readily available to us, it's all right and perfectly understandable. Liz's travails with her son's living situation--I always read yours post because I think, surely this time, your news will be better--especially strike me as a situation that reeks of this double standard. I posted one of my essays last week and mentioned I am editing my book, trying to get the whiny-ness out. What I mean is this--we are all held, we parents of those with disabilities, to a higher standard than the general public and even some of the professionals working with our kids. Why is that? This is meant to be rhetorical question but I do think it's a discussion worth having every once in a while. I did just eat a whole bag of Halloween M & Ms--and I do feel better! Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 A little trick I started playing some years ago around Halloween...I buy candy I don't like...but those M & M's sure sounded good, Marie! Sometimes you just have to give in to the temptation! Ellen Ellen Garber Bronfeld egskb@... ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 A little trick I started playing some years ago around Halloween...I buy candy I don't like...but those M & M's sure sounded good, Marie! Sometimes you just have to give in to the temptation! Ellen Ellen Garber Bronfeld egskb@... ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2009 Report Share Posted October 30, 2009 There may be a place in that book--or somebody's book--about the double standard. And I'll say that it extends to our kids, too. Everything they ever did that looked atypical was a Problem to be Addressed, instead of fatigue or crabbiness or just a family trait. As if we didn't have enough to worry about when they were growing up. I'm tired of explaining that Neal has a volunteer job and not a paid one. Plenty of other men in their early 20's aren't working, either. -Gail From: teteme55 <teteme@...> Subject: Re: Why do I bother IPADDUnite Date: Thursday, October 29, 2009, 11:26 AM  I read Liz's and Laurie's postings before I went to bed last night. I kept thinking--if we forget something, we parents are the ones called on the carpet, etc. but if the people working with our kids forget something or are not readily available to us, it's all right and perfectly understandable. Liz's travails with her son's living situation--I always read yours post because I think, surely this time, your news will be better--especially strike me as a situation that reeks of this double standard. I posted one of my essays last week and mentioned I am editing my book, trying to get the whiny-ness out. What I mean is this--we are all held, we parents of those with disabilities, to a higher standard than the general public and even some of the professionals working with our kids. Why is that? This is meant to be rhetorical question but I do think it's a discussion worth having every once in a while. I did just eat a whole bag of Halloween M & Ms--and I do feel better! Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2009 Report Share Posted October 30, 2009 There may be a place in that book--or somebody's book--about the double standard. And I'll say that it extends to our kids, too. Everything they ever did that looked atypical was a Problem to be Addressed, instead of fatigue or crabbiness or just a family trait. As if we didn't have enough to worry about when they were growing up. I'm tired of explaining that Neal has a volunteer job and not a paid one. Plenty of other men in their early 20's aren't working, either. -Gail From: teteme55 <teteme@...> Subject: Re: Why do I bother IPADDUnite Date: Thursday, October 29, 2009, 11:26 AM  I read Liz's and Laurie's postings before I went to bed last night. I kept thinking--if we forget something, we parents are the ones called on the carpet, etc. but if the people working with our kids forget something or are not readily available to us, it's all right and perfectly understandable. Liz's travails with her son's living situation--I always read yours post because I think, surely this time, your news will be better--especially strike me as a situation that reeks of this double standard. I posted one of my essays last week and mentioned I am editing my book, trying to get the whiny-ness out. What I mean is this--we are all held, we parents of those with disabilities, to a higher standard than the general public and even some of the professionals working with our kids. Why is that? This is meant to be rhetorical question but I do think it's a discussion worth having every once in a while. I did just eat a whole bag of Halloween M & Ms--and I do feel better! Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2009 Report Share Posted October 30, 2009 I also think that double standard applies not only to our kids with disabilities but to their non-disabled siblings. It is one of those things we wouldn't believe if we didn't live it. I will post my essay on this subject next week, after my Sunday concert--you caught me writing program notes! Marie > > There may be a place in that book--or somebody's book--about the double standard. > > -Gail > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2009 Report Share Posted October 30, 2009 I also think that double standard applies not only to our kids with disabilities but to their non-disabled siblings. It is one of those things we wouldn't believe if we didn't live it. I will post my essay on this subject next week, after my Sunday concert--you caught me writing program notes! Marie > > There may be a place in that book--or somebody's book--about the double standard. > > -Gail > Quote Link to comment Share on other sites More sharing options...
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