Guest guest Posted December 7, 2001 Report Share Posted December 7, 2001 Hi Mike, Just wondering if your divorce has become final yet and how the custody issue was resolved. I know, kind of a personal question, but I've wondered how it turned out for you. My divorce was supposed to be final in August, then September, then November, now January. Big sigh, he is fighting the divorce because he says he will not provide for Karrie. Sue, mom to Kate 12 and Karrie 5, w/ds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2001 Report Share Posted December 7, 2001 Hi Mike, Just wondering if your divorce has become final yet and how the custody issue was resolved. I know, kind of a personal question, but I've wondered how it turned out for you. My divorce was supposed to be final in August, then September, then November, now January. Big sigh, he is fighting the divorce because he says he will not provide for Karrie. Sue, mom to Kate 12 and Karrie 5, w/ds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2001 Report Share Posted December 8, 2001 As the mother of a DS daughter who is 26-I must tell you that guardianship is a simple matter{at least in Iowa] you do need a lawyer, and go before a judge to establish this matter. Usually there is no waiting and the judge grants this the same day. My daughter was placed in a apartment at 18, plans were made for this well in advance-she has limited supervision, and holds a full time job which she has had since graduation from high school at 19. Unfortunately placement is'nt something most don't want to think about when kids are young, but I started making arrangements when she was 14. She has matured alot , and loves her home and its getting harder to get her home for a visit, as there is always something going on. This was not an easy thing to do, but something I did for her, and did'nt try to have my emotions make decisions for me. Yes I worry about her, but a least I know that she is somewhere she wants to be and when I am gone, she will have some place to call home, which is more important to me than anything else. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2001 Report Share Posted December 8, 2001 As the mother of a DS daughter who is 26-I must tell you that guardianship is a simple matter{at least in Iowa] you do need a lawyer, and go before a judge to establish this matter. Usually there is no waiting and the judge grants this the same day. My daughter was placed in a apartment at 18, plans were made for this well in advance-she has limited supervision, and holds a full time job which she has had since graduation from high school at 19. Unfortunately placement is'nt something most don't want to think about when kids are young, but I started making arrangements when she was 14. She has matured alot , and loves her home and its getting harder to get her home for a visit, as there is always something going on. This was not an easy thing to do, but something I did for her, and did'nt try to have my emotions make decisions for me. Yes I worry about her, but a least I know that she is somewhere she wants to be and when I am gone, she will have some place to call home, which is more important to me than anything else. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2001 Report Share Posted December 8, 2001 I was told that in some states guardianship takes away all of the child's rights as an adult. I want to provide for but I also want him to be able to make some of his own decisions. Elaine Re: guardianship > As the mother of a DS daughter who is 26-I must tell you that guardianship is > a simple matter{at least in Iowa] you do need a lawyer, and go before a judge > to establish this matter. Usually there is no waiting and the judge grants > this the same day. My daughter was placed in a apartment at 18, plans were > made for this well in advance-she has limited supervision, and holds a full > time job which she has had since graduation from high school at 19. > Unfortunately placement is'nt something most don't want to think about when > kids are young, but I started making arrangements when she was 14. She has > matured alot , and loves her home and its getting harder to get her home for > a visit, as there is always something going on. This was not an easy thing > to do, but something I did for her, and did'nt try to have my emotions make > decisions for me. Yes I worry about her, but a least I know that she is > somewhere she wants to be and when I am gone, she will have some place to > call home, which is more important to me than anything else. > > Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2001 Report Share Posted December 8, 2001 I was told that in some states guardianship takes away all of the child's rights as an adult. I want to provide for but I also want him to be able to make some of his own decisions. Elaine Re: guardianship > As the mother of a DS daughter who is 26-I must tell you that guardianship is > a simple matter{at least in Iowa] you do need a lawyer, and go before a judge > to establish this matter. Usually there is no waiting and the judge grants > this the same day. My daughter was placed in a apartment at 18, plans were > made for this well in advance-she has limited supervision, and holds a full > time job which she has had since graduation from high school at 19. > Unfortunately placement is'nt something most don't want to think about when > kids are young, but I started making arrangements when she was 14. She has > matured alot , and loves her home and its getting harder to get her home for > a visit, as there is always something going on. This was not an easy thing > to do, but something I did for her, and did'nt try to have my emotions make > decisions for me. Yes I worry about her, but a least I know that she is > somewhere she wants to be and when I am gone, she will have some place to > call home, which is more important to me than anything else. > > Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2001 Report Share Posted December 9, 2001 I agree and as I recall, Granny had some really good insight on the whole guardianship thing...maybe she'll chime in if she's still reading the list. Di, mom to Jake(19,nda) and 4 (DS) Pennsylvania Re: guardianship > As the mother of a DS daughter who is 26-I must tell you that guardianship is > a simple matter{at least in Iowa] you do need a lawyer, and go before a judge > to establish this matter. Usually there is no waiting and the judge grants > this the same day. My daughter was placed in a apartment at 18, plans were > made for this well in advance-she has limited supervision, and holds a full > time job which she has had since graduation from high school at 19. > Unfortunately placement is'nt something most don't want to think about when > kids are young, but I started making arrangements when she was 14. She has > matured alot , and loves her home and its getting harder to get her home for > a visit, as there is always something going on. This was not an easy thing > to do, but something I did for her, and did'nt try to have my emotions make > decisions for me. Yes I worry about her, but a least I know that she is > somewhere she wants to be and when I am gone, she will have some place to > call home, which is more important to me than anything else. > > Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2001 Report Share Posted December 9, 2001 I agree and as I recall, Granny had some really good insight on the whole guardianship thing...maybe she'll chime in if she's still reading the list. Di, mom to Jake(19,nda) and 4 (DS) Pennsylvania Re: guardianship > As the mother of a DS daughter who is 26-I must tell you that guardianship is > a simple matter{at least in Iowa] you do need a lawyer, and go before a judge > to establish this matter. Usually there is no waiting and the judge grants > this the same day. My daughter was placed in a apartment at 18, plans were > made for this well in advance-she has limited supervision, and holds a full > time job which she has had since graduation from high school at 19. > Unfortunately placement is'nt something most don't want to think about when > kids are young, but I started making arrangements when she was 14. She has > matured alot , and loves her home and its getting harder to get her home for > a visit, as there is always something going on. This was not an easy thing > to do, but something I did for her, and did'nt try to have my emotions make > decisions for me. Yes I worry about her, but a least I know that she is > somewhere she wants to be and when I am gone, she will have some place to > call home, which is more important to me than anything else. > > Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2001 Report Share Posted December 9, 2001 Mike, Have your friend contact Sharing Down Syndrome Arizona. The phone number is 480-926-6500 http://www.sharingds.org It is a great group of families with children who have Down syndrome of all ages! birth to ??? I know that we have some people with DS in our group who are 30-40ish and we also have a teen group who does social activities (dances, canoeing, etc) It is wonderful! You can also have your friend email me privately for more info and I can probably hook her/him up with some parents who have kids similar ages. Good luck! Kym...mom to 4, including 4 year old with DS ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2001 Report Share Posted December 9, 2001 Mike, Have your friend contact Sharing Down Syndrome Arizona. The phone number is 480-926-6500 http://www.sharingds.org It is a great group of families with children who have Down syndrome of all ages! birth to ??? I know that we have some people with DS in our group who are 30-40ish and we also have a teen group who does social activities (dances, canoeing, etc) It is wonderful! You can also have your friend email me privately for more info and I can probably hook her/him up with some parents who have kids similar ages. Good luck! Kym...mom to 4, including 4 year old with DS ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2009 Report Share Posted October 18, 2009 We did guardianship ourselves in Cook County. My husband took Noah downtown with him just after his 18th birthday in March. Taking Noah along to file the guardianship papers, which Asher got online, avoided having court papers served to Noah here at home. The court date was set for a couple of months after that downtown trip, in June, and we brought Noah to court and though he is relatively non-verbal he was able to answer yes to the Judge's question about whether Noah wanted his parents to be able to make decisions on his behalf. We did not require an ad litum attorney. Maybe this is a new requirement. We did not have any other representation. It was pretty straight forward. The Judge was respectful and quite nice. I have only heard of one particular difficult situation...as I recall, it had something to do with not having all the required paper work and they made the family reschedule their court date. Ellen Ellen Garber Bronfeld egskb@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2009 Report Share Posted October 18, 2009 We did guardianship ourselves in Cook County. My husband took Noah downtown with him just after his 18th birthday in March. Taking Noah along to file the guardianship papers, which Asher got online, avoided having court papers served to Noah here at home. The court date was set for a couple of months after that downtown trip, in June, and we brought Noah to court and though he is relatively non-verbal he was able to answer yes to the Judge's question about whether Noah wanted his parents to be able to make decisions on his behalf. We did not require an ad litum attorney. Maybe this is a new requirement. We did not have any other representation. It was pretty straight forward. The Judge was respectful and quite nice. I have only heard of one particular difficult situation...as I recall, it had something to do with not having all the required paper work and they made the family reschedule their court date. Ellen Ellen Garber Bronfeld egskb@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2009 Report Share Posted October 18, 2009 We live in Cook County and did the same. About a week after Ricky turned 18, my husband and I made a day of it. I filled out the paperwork on-line. We took Ricky with us down town to the Daley Center and filed the paperwork. After we filed the paperwork we took Ricky out to eat and made a day of it. Our court date was set one month later and we did it again. Ricky had the sweetest Judge. He actually sang to her. Everyone in the court room had a blast. When we were done, we went out to eat again. We did this two months ago. There really isn't any reason to get an attorney if it is a straight forward guardianship. I will be doing this again in 3 years for andra and the following year for . Bedard Ricky, andra and Tiffy's Mom “Every person, regardless of whatever different abilities they may have, can contribute, can be a source of joy, can beam with pride and love.†--Eunice Kennedy Shriver From: ELLEN BRONFELD <egskb@...> Subject: Guardianship IPADDUnite Date: Sunday, October 18, 2009, 10:59 PM  We did guardianship ourselves in Cook County. My husband took Noah downtown with him just after his 18th birthday in March. Taking Noah along to file the guardianship papers, which Asher got online, avoided having court papers served to Noah here at home. The court date was set for a couple of months after that downtown trip, in June, and we brought Noah to court and though he is relatively non-verbal he was able to answer yes to the Judge's question about whether Noah wanted his parents to be able to make decisions on his behalf. We did not require an ad litum attorney. Maybe this is a new requirement. We did not have any other representation. It was pretty straight forward. The Judge was respectful and quite nice. I have only heard of one particular difficult situation... as I recall, it had something to do with not having all the required paper work and they made the family reschedule their court date. Ellen Ellen Garber Bronfeld egskbsbcglobal (DOT) net .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2009 Report Share Posted October 18, 2009 We live in Cook County and did the same. About a week after Ricky turned 18, my husband and I made a day of it. I filled out the paperwork on-line. We took Ricky with us down town to the Daley Center and filed the paperwork. After we filed the paperwork we took Ricky out to eat and made a day of it. Our court date was set one month later and we did it again. Ricky had the sweetest Judge. He actually sang to her. Everyone in the court room had a blast. When we were done, we went out to eat again. We did this two months ago. There really isn't any reason to get an attorney if it is a straight forward guardianship. I will be doing this again in 3 years for andra and the following year for . Bedard Ricky, andra and Tiffy's Mom “Every person, regardless of whatever different abilities they may have, can contribute, can be a source of joy, can beam with pride and love.†--Eunice Kennedy Shriver From: ELLEN BRONFELD <egskb@...> Subject: Guardianship IPADDUnite Date: Sunday, October 18, 2009, 10:59 PM  We did guardianship ourselves in Cook County. My husband took Noah downtown with him just after his 18th birthday in March. Taking Noah along to file the guardianship papers, which Asher got online, avoided having court papers served to Noah here at home. The court date was set for a couple of months after that downtown trip, in June, and we brought Noah to court and though he is relatively non-verbal he was able to answer yes to the Judge's question about whether Noah wanted his parents to be able to make decisions on his behalf. We did not require an ad litum attorney. Maybe this is a new requirement. We did not have any other representation. It was pretty straight forward. The Judge was respectful and quite nice. I have only heard of one particular difficult situation... as I recall, it had something to do with not having all the required paper work and they made the family reschedule their court date. Ellen Ellen Garber Bronfeld egskbsbcglobal (DOT) net .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 We did guardianship in DuPage County. My husband went with Neal to the courthouse to have the summons done, like others did. What my husband thought was funny was that plenty of people there knew the lawyer (a specialist in the field) and greeted him by name...and plenty of cops in Wheaton and West Chicago said hi to Neal, because they'd seen him on his bike on the Prairie Path and with his camera, photographing trains. My husband was the only nobody in the trio! Before we went for the guardianship hearing, we did chat with Neal that you can't behave in the courtroom like the 3 Stooges do. So he was serious. The judge, it turned out, was the father of a teammate of Neal's brother. The judge asked Neal if we were good to him, and made a few nice remarks to Neal that he was fortunate to have parents who cared a lot to become his guardians. I thought we were likely to get one type of guardianship, but he granted both types. Now I wish I'd been bold enough to ask a few questions when he did so. -Gail From: ELLEN BRONFELD <egskb@...> Subject: Guardianship IPADDUnite Date: Sunday, October 18, 2009, 5:59 PM  We did guardianship ourselves in Cook County. My husband took Noah downtown with him just after his 18th birthday in March. Taking Noah along to file the guardianship papers, which Asher got online, avoided having court papers served to Noah here at home. The court date was set for a couple of months after that downtown trip, in June, and we brought Noah to court and though he is relatively non-verbal he was able to answer yes to the Judge's question about whether Noah wanted his parents to be able to make decisions on his behalf. We did not require an ad litum attorney. Maybe this is a new requirement. We did not have any other representation. It was pretty straight forward. The Judge was respectful and quite nice. I have only heard of one particular difficult situation... as I recall, it had something to do with not having all the required paper work and they made the family reschedule their court date. Ellen Ellen Garber Bronfeld egskbsbcglobal (DOT) net .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 We did guardianship in DuPage County. My husband went with Neal to the courthouse to have the summons done, like others did. What my husband thought was funny was that plenty of people there knew the lawyer (a specialist in the field) and greeted him by name...and plenty of cops in Wheaton and West Chicago said hi to Neal, because they'd seen him on his bike on the Prairie Path and with his camera, photographing trains. My husband was the only nobody in the trio! Before we went for the guardianship hearing, we did chat with Neal that you can't behave in the courtroom like the 3 Stooges do. So he was serious. The judge, it turned out, was the father of a teammate of Neal's brother. The judge asked Neal if we were good to him, and made a few nice remarks to Neal that he was fortunate to have parents who cared a lot to become his guardians. I thought we were likely to get one type of guardianship, but he granted both types. Now I wish I'd been bold enough to ask a few questions when he did so. -Gail From: ELLEN BRONFELD <egskb@...> Subject: Guardianship IPADDUnite Date: Sunday, October 18, 2009, 5:59 PM  We did guardianship ourselves in Cook County. My husband took Noah downtown with him just after his 18th birthday in March. Taking Noah along to file the guardianship papers, which Asher got online, avoided having court papers served to Noah here at home. The court date was set for a couple of months after that downtown trip, in June, and we brought Noah to court and though he is relatively non-verbal he was able to answer yes to the Judge's question about whether Noah wanted his parents to be able to make decisions on his behalf. We did not require an ad litum attorney. Maybe this is a new requirement. We did not have any other representation. It was pretty straight forward. The Judge was respectful and quite nice. I have only heard of one particular difficult situation... as I recall, it had something to do with not having all the required paper work and they made the family reschedule their court date. Ellen Ellen Garber Bronfeld egskbsbcglobal (DOT) net .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 We did not do guardianship. We left our son as his own guardian as we did not want to have to account for everything to the court. We do have medical guardianship but our lawyer said we really did not have to be his guardian. Chances are that if anything ever happened it really would not matter. Just what we decided to do and is DS and functions at about a 1st grader. He can only read some sight words, does not understand money or time. Shirley From: ELLEN BRONFELD <egskbsbcglobal (DOT) net> Subject: Guardianship IPADDUnite@gro ups.com Date: Sunday, October 18, 2009, 5:59 PM  We did guardianship ourselves in Cook County. My husband took Noah downtown with him just after his 18th birthday in March. Taking Noah along to file the guardianship papers, which Asher got online, avoided having court papers served to Noah here at home. The court date was set for a couple of months after that downtown trip, in June, and we brought Noah to court and though he is relatively non-verbal he was able to answer yes to the Judge's question about whether Noah wanted his parents to be able to make decisions on his behalf. We did not require an ad litum attorney. Maybe this is a new requirement. We did not have any other representation. It was pretty straight forward. The Judge was respectful and quite nice. I have only heard of one particular difficult situation... as I recall, it had something to do with not having all the required paper work and they made the family reschedule their court date. Ellen Ellen Garber Bronfeld egskbsbcglobal (DOT) net ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 We did not do guardianship. We left our son as his own guardian as we did not want to have to account for everything to the court. We do have medical guardianship but our lawyer said we really did not have to be his guardian. Chances are that if anything ever happened it really would not matter. Just what we decided to do and is DS and functions at about a 1st grader. He can only read some sight words, does not understand money or time. Shirley From: ELLEN BRONFELD <egskbsbcglobal (DOT) net> Subject: Guardianship IPADDUnite@gro ups.com Date: Sunday, October 18, 2009, 5:59 PM  We did guardianship ourselves in Cook County. My husband took Noah downtown with him just after his 18th birthday in March. Taking Noah along to file the guardianship papers, which Asher got online, avoided having court papers served to Noah here at home. The court date was set for a couple of months after that downtown trip, in June, and we brought Noah to court and though he is relatively non-verbal he was able to answer yes to the Judge's question about whether Noah wanted his parents to be able to make decisions on his behalf. We did not require an ad litum attorney. Maybe this is a new requirement. We did not have any other representation. It was pretty straight forward. The Judge was respectful and quite nice. I have only heard of one particular difficult situation... as I recall, it had something to do with not having all the required paper work and they made the family reschedule their court date. Ellen Ellen Garber Bronfeld egskbsbcglobal (DOT) net ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 We had an attorney help us with guardianship and we too were lucky in court. We appeared in Tazewell county and thankfully a judge who knows us went and spoke to the judge who was seeing Jack's case and they took us first. The judge apologized to Jack for having to read that he was not mentally competent to make his own decisions he told Jack that was the way the law said it and he had to do it. I thought that was cool. My usually stimming,anxious non verbal son, sat nicely until this ordeal was over. Now the SSI,medicaid is another story altogether. Guardianship We did guardianship ourselves in Cook County. My husband took Noah downtown with him just after his 18th birthday in March. Taking Noah along to file the guardianship papers, which Asher got online, avoided having court papers served to Noah here at home. The court date was set for a couple of months after that downtown trip, in June, and we brought Noah to court and though he is relatively non-verbal he was able to answer yes to the Judge's question about whether Noah wanted his parents to be able to make decisions on his behalf. We did not require an ad litum attorney. Maybe this is a new requirement. We did not have any other representation. It was pretty straight forward. The Judge was respectful and quite nice. I have only heard of one particular difficult situation...as I recall, it had something to do with not having all the required paper work and they made the family reschedule their court date. Ellen Ellen Garber Bronfeld egskb@... .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 We had an attorney help us with guardianship and we too were lucky in court. We appeared in Tazewell county and thankfully a judge who knows us went and spoke to the judge who was seeing Jack's case and they took us first. The judge apologized to Jack for having to read that he was not mentally competent to make his own decisions he told Jack that was the way the law said it and he had to do it. I thought that was cool. My usually stimming,anxious non verbal son, sat nicely until this ordeal was over. Now the SSI,medicaid is another story altogether. Guardianship We did guardianship ourselves in Cook County. My husband took Noah downtown with him just after his 18th birthday in March. Taking Noah along to file the guardianship papers, which Asher got online, avoided having court papers served to Noah here at home. The court date was set for a couple of months after that downtown trip, in June, and we brought Noah to court and though he is relatively non-verbal he was able to answer yes to the Judge's question about whether Noah wanted his parents to be able to make decisions on his behalf. We did not require an ad litum attorney. Maybe this is a new requirement. We did not have any other representation. It was pretty straight forward. The Judge was respectful and quite nice. I have only heard of one particular difficult situation...as I recall, it had something to do with not having all the required paper work and they made the family reschedule their court date. Ellen Ellen Garber Bronfeld egskb@... .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 I agree with everyone else that my lifelong coures work " Called raising Pamela " there have been no lecture notes or text books on this process called guardianship.  IEP, due process, OCR complaints, ISBE complaints, Social Security, Medicaid, full spine fusion surgery, dental surgery, more surgery, specialists, three medical centers for Dr appt's, meet and greet researchers from Europe, consider residential placement options, etc. -- NO PROBLEM.  We used to joke that when I would take Pam to have her fitted for her numerous TLSO's (body jacket) prior to surgery -- it was similar to going with her to be fitted for prom dresses or wedding dresses -- we enjoy life!  BUT even though it was really fairly easy to do and like other folks on the list once the court realized we were there as it was the right thing to do, the court piece was rather easy, the only time Pamela's Dad (me) has been upset since Pam was first diagnosed with RETT Syndrome was over this vital and necessary step of guardianship.  Please, if you have not yet done it, DO IT TODAY! Humbly grateful to be your companion on the journey... Gordon P. Stiefel Phone: 708 246 5151 Fax: 708 246 9144 " All great change in America begins at the dinner table " , Reagan. " Now more than ever, in a world all too often deprived of light and the courage of noble ideals, it is not the time to be ashamed of the Gospel (cf. Rom 1: 16). Rather, it is time to preach it from the rooftops (cf. Mt 10: 27)! " National Meeting of Young Catholics of Switzerland (2004), Address of II .. From: ajv1952@... <ajv1952@...> Subject: Re: Re: having guardianship papers served IPADDUnite Date: Wednesday, October 21, 2009, 8:13 AM  This hit home Laurie, I had someone " congratulate " me after we got guardianship of Jack and I told her I did not feel any joy out of this. It was emotional for us as well. They don't tell you that in the " Raising a Kid with Special Needs Book " do they? Sandy Re: Re: having guardianship papers served Hi Kate, What a wonderful story about your son's comments to the judge. Imagine what they see and hear every day...kind of makes you take pause, doesn't it? Thanks for sharing that info about being served, too. Down here in Will County, our attorney had served right there in the family courthouse while we waited. It was painless. And they let us wait in a private little room until her case was called that morning, too. Still, kind of a depressing situation all around, right? For those of you who are still considering whether to file for guardianship or not, be prepared for a flood of emotion as you stand in that courtroom and have your child, in essence, declared unable to care for him/her self. My whole life as 's mom flashed in front of me, felt like the biggest failure on earth for not having been able to help her more...really really a sad moment, at least for me. The only thing that lessened my own pain was believing that she did not understand what was being said about her, and also, of course, that like your son, likes having me and her dad taking care of her. Most days, anyway! Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 I agree with everyone else that my lifelong coures work " Called raising Pamela " there have been no lecture notes or text books on this process called guardianship.  IEP, due process, OCR complaints, ISBE complaints, Social Security, Medicaid, full spine fusion surgery, dental surgery, more surgery, specialists, three medical centers for Dr appt's, meet and greet researchers from Europe, consider residential placement options, etc. -- NO PROBLEM.  We used to joke that when I would take Pam to have her fitted for her numerous TLSO's (body jacket) prior to surgery -- it was similar to going with her to be fitted for prom dresses or wedding dresses -- we enjoy life!  BUT even though it was really fairly easy to do and like other folks on the list once the court realized we were there as it was the right thing to do, the court piece was rather easy, the only time Pamela's Dad (me) has been upset since Pam was first diagnosed with RETT Syndrome was over this vital and necessary step of guardianship.  Please, if you have not yet done it, DO IT TODAY! Humbly grateful to be your companion on the journey... Gordon P. Stiefel Phone: 708 246 5151 Fax: 708 246 9144 " All great change in America begins at the dinner table " , Reagan. " Now more than ever, in a world all too often deprived of light and the courage of noble ideals, it is not the time to be ashamed of the Gospel (cf. Rom 1: 16). Rather, it is time to preach it from the rooftops (cf. Mt 10: 27)! " National Meeting of Young Catholics of Switzerland (2004), Address of II .. From: ajv1952@... <ajv1952@...> Subject: Re: Re: having guardianship papers served IPADDUnite Date: Wednesday, October 21, 2009, 8:13 AM  This hit home Laurie, I had someone " congratulate " me after we got guardianship of Jack and I told her I did not feel any joy out of this. It was emotional for us as well. They don't tell you that in the " Raising a Kid with Special Needs Book " do they? Sandy Re: Re: having guardianship papers served Hi Kate, What a wonderful story about your son's comments to the judge. Imagine what they see and hear every day...kind of makes you take pause, doesn't it? Thanks for sharing that info about being served, too. Down here in Will County, our attorney had served right there in the family courthouse while we waited. It was painless. And they let us wait in a private little room until her case was called that morning, too. Still, kind of a depressing situation all around, right? For those of you who are still considering whether to file for guardianship or not, be prepared for a flood of emotion as you stand in that courtroom and have your child, in essence, declared unable to care for him/her self. My whole life as 's mom flashed in front of me, felt like the biggest failure on earth for not having been able to help her more...really really a sad moment, at least for me. The only thing that lessened my own pain was believing that she did not understand what was being said about her, and also, of course, that like your son, likes having me and her dad taking care of her. Most days, anyway! Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 You all do such a great job with your your adults, I agree about the book too, there are no chapters in anyone's book who are the same. H. Re: Re: guardianship I agree with everyone else that my lifelong coures work " Called raising Pamela " here have been no lecture notes or text books on this process called uardianship. EP, due process, OCR complaints, ISBE complaints, Social Security, Medicaid, ull spine fusion surgery, dental surgery, more surgery, specialists, three edical centers for Dr appt's, meet and greet researchers from Europe, consider esidential placement options, etc. -- NO PROBLEM. e used to joke that when I would take Pam to have her fitted for her numerous LSO's (body jacket) prior to surgery -- it was similar to going with her to be itted for prom dresses or wedding dresses -- we enjoy life! UT even though it was really fairly easy to do and like other folks on the list nce the court realized we were there as it was the right thing to do, the court iece was rather easy, he only time Pamela's Dad (me) has been upset since Pam was first diagnosed ith RETT Syndrome was over this vital and necessary step of guardianship. lease, if you have not yet done it, DO IT TODAY! Humbly grateful to be your companion n the journey... Gordon P. Stiefel hone: 708 246 5151 ax: 708 246 9144 " All great change in America egins at the dinner table " , Reagan. " Now more than ever, in a world all too often deprived of light and he courage of noble ideals, it is not the time to be ashamed of the Gospel (cf. om 1: 16). ather, it is time to preach it from the rooftops (cf. Mt 10: 27)! " ational Meeting of Young Catholics of Switzerland (2004), Address of I .. rom: ajv1952@... <ajv1952@...> ubject: Re: Re: having guardianship papers served o: IPADDUnite ate: Wednesday, October 21, 2009, 8:13 AM his hit home Laurie, I had someone " congratulate " me after we got guardianship f Jack and I told her I did not feel any joy out of this. It was emotional for s as well. They don't tell you that in the " Raising a Kid with Special Needs ook " do they? andy -----Original Message----- rom: Jerue Family <jeruefamily@ comcast.net> o: IPADDUnite@gro ups.com ent: Tue, Oct 20, 2009 5:18 pm ubject: Re: Re: having guardianship papers served Hi Kate, What a wonderful story about your son's comments to the judge. Imagine what they ee and hear every day...kind of makes you take pause, doesn't it? Thanks for sharing that info about being served, too. Down here in Will County, ur attorney had served right there in the family courthouse while we aited. It was painless. And they let us wait in a private little room until her ase was called that morning, too. Still, kind of a depressing situation all around, right? For those of you who re still considering whether to file for guardianship or not, be prepared for a lood of emotion as you stand in that courtroom and have your child, in essence, eclared unable to care for him/her self. My whole life as 's mom flashed n front of me, felt like the biggest failure on earth for not having been able o help her more...really really a sad moment, at least for me. The only thing hat lessened my own pain was believing that she did not understand what was eing said about her, and also, of course, that like your son, likes aving me and her dad taking care of her. Most days, anyway! Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 You all do such a great job with your your adults, I agree about the book too, there are no chapters in anyone's book who are the same. H. Re: Re: guardianship I agree with everyone else that my lifelong coures work " Called raising Pamela " here have been no lecture notes or text books on this process called uardianship. EP, due process, OCR complaints, ISBE complaints, Social Security, Medicaid, ull spine fusion surgery, dental surgery, more surgery, specialists, three edical centers for Dr appt's, meet and greet researchers from Europe, consider esidential placement options, etc. -- NO PROBLEM. e used to joke that when I would take Pam to have her fitted for her numerous LSO's (body jacket) prior to surgery -- it was similar to going with her to be itted for prom dresses or wedding dresses -- we enjoy life! UT even though it was really fairly easy to do and like other folks on the list nce the court realized we were there as it was the right thing to do, the court iece was rather easy, he only time Pamela's Dad (me) has been upset since Pam was first diagnosed ith RETT Syndrome was over this vital and necessary step of guardianship. lease, if you have not yet done it, DO IT TODAY! Humbly grateful to be your companion n the journey... Gordon P. Stiefel hone: 708 246 5151 ax: 708 246 9144 " All great change in America egins at the dinner table " , Reagan. " Now more than ever, in a world all too often deprived of light and he courage of noble ideals, it is not the time to be ashamed of the Gospel (cf. om 1: 16). ather, it is time to preach it from the rooftops (cf. Mt 10: 27)! " ational Meeting of Young Catholics of Switzerland (2004), Address of I .. rom: ajv1952@... <ajv1952@...> ubject: Re: Re: having guardianship papers served o: IPADDUnite ate: Wednesday, October 21, 2009, 8:13 AM his hit home Laurie, I had someone " congratulate " me after we got guardianship f Jack and I told her I did not feel any joy out of this. It was emotional for s as well. They don't tell you that in the " Raising a Kid with Special Needs ook " do they? andy -----Original Message----- rom: Jerue Family <jeruefamily@ comcast.net> o: IPADDUnite@gro ups.com ent: Tue, Oct 20, 2009 5:18 pm ubject: Re: Re: having guardianship papers served Hi Kate, What a wonderful story about your son's comments to the judge. Imagine what they ee and hear every day...kind of makes you take pause, doesn't it? Thanks for sharing that info about being served, too. Down here in Will County, ur attorney had served right there in the family courthouse while we aited. It was painless. And they let us wait in a private little room until her ase was called that morning, too. Still, kind of a depressing situation all around, right? For those of you who re still considering whether to file for guardianship or not, be prepared for a lood of emotion as you stand in that courtroom and have your child, in essence, eclared unable to care for him/her self. My whole life as 's mom flashed n front of me, felt like the biggest failure on earth for not having been able o help her more...really really a sad moment, at least for me. The only thing hat lessened my own pain was believing that she did not understand what was eing said about her, and also, of course, that like your son, likes aving me and her dad taking care of her. Most days, anyway! Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 A far as the book,it kind of reminds of the time at one of Jack's IEP when the brand new, fresh out of grad school special ed teacher in order to make me " feel better " told me she wrote her thesis on Autism and I replyed back that unless she wrote her thesis on " Jack Valentine " I was'nt impressed...I used to be more of a rebel, now I am just tired. S Re: Re: having guardianship papers served Hi Kate, What a wonderful story about your son's comments to the judge. Imagine what they see and hear every day...kind of makes you take pause, doesn't it? Thanks for sharing that info about being served, too. Down here in Will County, our attorney had served right there in the family courthouse while we waited. It was painless. And they let us wait in a private little room until her case was called that morning, too. Still, kind of a depressing situation all around, right? For those of you who are still considering whether to file for guardianship or not, be prepared for a flood of emotion as you stand in that courtroom and have your child, in essence, declared unable to care for him/her self. My whole life as 's mom flashed in front of me, felt like the biggest failure on earth for not having been able to help her more...really really a sad moment, at least for me. The only thing that lessened my own pain was believing that she did not understand what was being said about her, and also, of course, that like your son, likes having me and her dad taking care of her. Most days, anyway! Laurie Quote Link to comment Share on other sites More sharing options...
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