Guardianship

[Guest guest]

A far as the book,it kind of reminds of the time at one of Jack's IEP when the

brand new, fresh out of grad school special ed teacher in order to make me " feel

better " told me she wrote her thesis on Autism and I replyed back that unless

she wrote her thesis on " Jack Valentine " I was'nt impressed...I used to be more

of a rebel, now I am just tired.

S

Re: Re: having guardianship papers served

Hi Kate,

What a wonderful story about your son's comments to the judge. Imagine what they

see and hear every day...kind of makes you take pause, doesn't it?

Thanks for sharing that info about being served, too. Down here in Will County,

our attorney had served right there in the family courthouse while we

waited. It was painless. And they let us wait in a private little room until her

case was called that morning, too.

Still, kind of a depressing situation all around, right? For those of you who

are still considering whether to file for guardianship or not, be prepared for a

flood of emotion as you stand in that courtroom and have your child, in essence,

declared unable to care for him/her self. My whole life as 's mom flashed

in front of me, felt like the biggest failure on earth for not having been able

to help her more...really really a sad moment, at least for me. The only thing

that lessened my own pain was believing that she did not understand what was

being said about her, and also, of course, that like your son, likes

having me and her dad taking care of her. Most days, anyway!

Laurie

[Guest guest]

>

>

> A far as the book,it kind of reminds of the time at one of Jack's IEP when the

brand new, fresh out of grad school special ed teacher in order to make me " feel

better " told me she wrote her thesis on Autism and I replyed back that unless

she wrote her thesis on " Jack Valentine " I was'nt impressed...I used to be more

of a rebel, now I am just tired.

> S

>

> Your comment reminds me of 's intermediate school classroom teacher. I

was told when Russ was assigned to this guy's classroom he was an " expert " on

autism and I had should have no worries. He was the worst, least understanding

teacher ever had and arrogant to boot. Turns out, he worked with kids

with autism for ONE SUMMER 12 years before and was touting himself as an expert.

I think not!

I hear ya about being tired. Autism takes its toll.

Marie

[Guest guest]

>

>

> A far as the book,it kind of reminds of the time at one of Jack's IEP when the

brand new, fresh out of grad school special ed teacher in order to make me " feel

better " told me she wrote her thesis on Autism and I replyed back that unless

she wrote her thesis on " Jack Valentine " I was'nt impressed...I used to be more

of a rebel, now I am just tired.

> S

>

> Your comment reminds me of 's intermediate school classroom teacher. I

was told when Russ was assigned to this guy's classroom he was an " expert " on

autism and I had should have no worries. He was the worst, least understanding

teacher ever had and arrogant to boot. Turns out, he worked with kids

with autism for ONE SUMMER 12 years before and was touting himself as an expert.

I think not!

I hear ya about being tired. Autism takes its toll.

Marie

[Guest guest]

, for us, it was a no brainer. Our daughter needs to be cared for.

Guardianship was the first application we filled out, then SSI, then Medicaid.

>

>

> Dear Parents:

> I wonder if any of you would be willing to share your thoughts on why or why

you did not become your child's guardian? I'm getting some other things in line

for and I'm still torn on this.

> Thanks,

>

>

>

>

>

>

>

[Guest guest]

, I think everyone has to decide what is best for them.  We decided to not

be our son's guardian.  He is 29 with DS and we just decided to get power of

attorney for money and medical at this time as he lives at home and that is what

our lawyer advised.  Talk with your lawyer decide what is best for you.  It

depends on their disability and their abilities.

Shirley

From: sunshinebeaches3@... <sunshinebeaches3@...>

Subject: guardianship

ipaddunite

Date: Tuesday, November 23, 2010, 8:01 PM

 

Dear Parents:

I wonder if any of you would be willing to share your thoughts on why or why you

did not become your child's guardian? I'm getting some other things in line for

and I'm still torn on this.

Thanks,

[Guest guest]

We had absolutely no second thoughts about becoming Noah's guardians. Noah has

very little language and he is not a great AC user, so, he has some difficulty

making his needs known. Over the years we concluded that he would never be able

to advocate for himself, make medical decisions or be completely safe on his

own. We let our experiences and observations over the years, guide us.

For example, Noah would readily go out in the cold without his coat without

being reminded to wear one. He would not put up his hood automatically if it

was raining. Noah waits for prompts and instructions in almost every phase of

his life.

I wish Noah could be his own guardian. I think it is important that every

person is very carefully evaluated and given every opportunity for as much

independence as possible. Noah does sign his own paychecks and I never sign him

up for anything or make any decisions about him, without his input. So, in

spite of being his guardians and rep payee, he is still very much in control of

his life.

Ellen

Ellen Garber Bronfeld

egskb@...

[Guest guest]

I don't have Tony's email, so I will make a suggestion here.

Don't know if it's still true, but when I went to sign my son up for PUNS, the

local PUNS agency told me that I first had to get him on Medicaid. We have

never used Medicaid, so I wasted the state's time and effort because of a rule.

Considering the length of the waiting list in IL, I think that my answer to

question #2 would be " Do not require Medicaid to get on waiting lists for

residential & other services unless placement is likely to occur within 12

months. "

-Gail

Gail:

Determination for services is based on eligibility for Medicaid. I will pass

this on to Tony, but, I believe this is based on what the feds require and it is

probably not something Illinois law can rectify.

Ellen

Ellen Garber Bronfeld

egskb@...

[Guest guest]

 I had to get my son on Medicaid before we could fill out the PUNS.  He has

Medicare A B and D as well as my Medical and Dental coverage through my company

and really doesn't need the Medicaid and could not get it without a huge SPEND

DOWN.  So we decided to go with the HBWD and pays $81.00 a month for it so we

could get Home Based Services.  I guess we may need it in the future and it was

worth it to get the Home Based Services but seems a waste if you are getting it

only to do the PUNS.

Shirley

From: ELLEN BRONFELD <egskb@...>

Subject: Re: guardianship

IPADDUnite

Date: Friday, November 26, 2010, 2:14 PM

 

I don't have Tony's email, so I will make a suggestion here.

Don't know if it's still true, but when I went to sign my son up for PUNS, the

local PUNS agency told me that I first had to get him on Medicaid. We have

never used Medicaid, so I wasted the state's time and effort because of a rule.

Considering the length of the waiting list in IL, I think that my answer to

question #2 would be " Do not require Medicaid to get on waiting lists for

residential & other services unless placement is likely to occur within 12

months. "

-Gail

Gail:

Determination for services is based on eligibility for Medicaid. I will pass

this on to Tony, but, I believe this is based on what the feds require and it is

probably not something Illinois law can rectify.

Ellen

Ellen Garber Bronfeld

egskb@...

[Guest guest]

If the " program " is funded by Medicaid, our kids need Medicaid. The state is

" moving away " from " grant " (State money only - no Medicaid required), since

Medicaid means the Federal Government is matching dollars, and costs the state

1/2 as much, which in theory means more of our kids can be served.

Notwithstanding, the PUNS statute does NOT require the person to have Medicaid

to be on PUNS. But if picked off of PUNS - selected for a Medicaid or Medicaid

Waiver program, the individual must have Medicaid, either " traditional " or HBWD

to be able to participate in the program offered.

Rubin

The Law Offices of

Rubin & Associates

Law practice limited to

" future " & legal planning for Illinois families of children & adults with

intellectual or developmental disabilities, & /or mental illness...

(E) brian@...

(W) www.SNFP.net

(O) 847-279-7999

(F) 847-279-0090

(TF) 866-TO-RUBIN

Member by invitation of SNA, Special Needs Alliance

(www.specialneedsalliance.org association of experienced " Special Needs

Planning " Attorneys (member of the SNA Board of Directors), as well as a member

of NAELA, the National Academy of Elder Law Attorneys (www.NAELA.org), and

serves on NAELA's Special Needs Law Section Steering Committee.

Rubin has been awarded the dale Hubbell Peer Review Rating of AV

Preeminent (www.martindale.com).

PLEASE NOTE:

Rubin is not in his office. This message was sent from his Blackberry.

The information contained in this transmission is privileged, confidential, and

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not the intended recipient, you are hereby notified that any disclosure,

copying, distribution, or the taking of any action in reliance on the contents

of this transmission is strictly prohibited. If you received this transmission

in error, please notify Rubin by email, delete the message, and destroy

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or written to be used, and may not be used, for the purpose of avoiding any

penalties which may be imposed by the I.R.S.

From: ELLEN BRONFELD [mailto:egskb@...]

Sent: Friday, November 26, 2010 09:14 AM

IPADDUnite <IPADDUnite >

Subject: Re: guardianship

I don't have Tony's email, so I will make a suggestion here.

Don't know if it's still true, but when I went to sign my son up for PUNS, the

local PUNS agency told me that I first had to get him on Medicaid. We have

never used Medicaid, so I wasted the state's time and effort because of a rule.

Considering the length of the waiting list in IL, I think that my answer to

question #2 would be " Do not require Medicaid to get on waiting lists for

residential & other services unless placement is likely to occur within 12

months. "

-Gail

Gail:

Determination for services is based on eligibility for Medicaid. I will pass

this on to Tony, but, I believe this is based on what the feds require and it is

probably not something Illinois law can rectify.

Ellen

Ellen Garber Bronfeld

egskb@...<mailto:egskb%40sbcglobal.net>

[Guest guest]

Hi , that was my understanding too that I will need to have enrolled

on Medicaid to get any future funding. I was encouraged when he started high

school to get him on the PUNS list so we'd at least have our spot since I've

heard the waiting list is about 11 years at this point for non-emergency cases.

H.

Re: Re: guardianship

If the " program " is funded by Medicaid, our kids need Medicaid. The state is

moving away " from " grant " (State money only - no Medicaid required), since

edicaid means the Federal Government is matching dollars, and costs the state

/2 as much, which in theory means more of our kids can be served.

otwithstanding, the PUNS statute does NOT require the person to have Medicaid

o be on PUNS. But if picked off of PUNS - selected for a Medicaid or Medicaid

aiver program, the individual must have Medicaid, either " traditional " or HBWD

o be able to participate in the program offered.

rian Rubin

The Law Offices of

rian Rubin & Associates

Law practice limited to

future " & legal planning for Illinois families of children & adults with

ntellectual or developmental disabilities, & /or mental illness...

(E) brian@...

W) www.SNFP.net

O) 847-279-7999

F) 847-279-0090

TF) 866-TO-RUBIN

Member by invitation of SNA, Special Needs Alliance

(www.specialneedsalliance.org

ssociation of experienced " Special Needs Planning " Attorneys (member of the SNA

oard of Directors), as well as a member of NAELA, the National Academy of Elder

aw Attorneys (www.NAELA.org), and serves on NAELA's Special Needs Law Section

teering Committee.

Rubin has been awarded the dale Hubbell Peer Review Rating of AV

reeminent (www.martindale.com).

PLEASE NOTE:

rian Rubin is not in his office. This message was sent from his Blackberry.

The information contained in this transmission is privileged, confidential, and

ntended only for the use of the individual or entity named above. If you are

ot the intended recipient, you are hereby notified that any disclosure,

opying, distribution, or the taking of any action in reliance on the contents

f this transmission is strictly prohibited. If you received this transmission

n error, please notify Rubin by email, delete the message, and destroy

nd/or delete the original message and all copies. This message is not intended

r written to be used, and may not be used, for the purpose of avoiding any

enalties which may be imposed by the I.R.S.

From: ELLEN BRONFELD [mailto:egskb@...]

ent: Friday, November 26, 2010 09:14 AM

o: IPADDUnite <IPADDUnite >

ubject: Re: guardianship

I don't have Tony's email, so I will make a suggestion here.

Don't know if it's still true, but when I went to sign my son up for PUNS, the

ocal PUNS agency told me that I first had to get him on Medicaid. We have

ever used Medicaid, so I wasted the state's time and effort because of a rule.

Considering the length of the waiting list in IL, I think that my answer to

uestion #2 would be " Do not require Medicaid to get on waiting lists for

esidential & other services unless placement is likely to occur within 12

onths. "

-Gail

Gail:

etermination for services is based on eligibility for Medicaid. I will pass

his on to Tony, but, I believe this is based on what the feds require and it is

robably not something Illinois law can rectify.

llen

Ellen Garber Bronfeld

gskb@...<mailto:egskb%40sbcglobal.net>