Re: Madigan and other thoughts

[Guest guest]

Nora,

Love your message and I agree completely about the groups being splintered. I

am finding out almost daily about groups who are paralleling our efforts OR who

are fighting AGAINST change because they like the status quo and fear change

will take away jobs or security they feel they already have. Maybe we should

develop a list of the groups -- who is 'with us' and who is not. You often

can't tell by the names!

That said, collaboration is HARD. Someone wise once pointed out to me that the

very word 'collaboration' has the word 'labor' as a 'root' -- and she told me

'No one ever said collaboration would be easy!' And she was right!

Thanks for your thoughts, and especially your last line, it made me smile.

Laurie

Madigan and other thoughts

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

**************What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food.aol.com/dinner-tonight?ncid=emlcntusfood00000009)

[Guest guest]

Nora,

Love your message and I agree completely about the groups being splintered. I

am finding out almost daily about groups who are paralleling our efforts OR who

are fighting AGAINST change because they like the status quo and fear change

will take away jobs or security they feel they already have. Maybe we should

develop a list of the groups -- who is 'with us' and who is not. You often

can't tell by the names!

That said, collaboration is HARD. Someone wise once pointed out to me that the

very word 'collaboration' has the word 'labor' as a 'root' -- and she told me

'No one ever said collaboration would be easy!' And she was right!

Thanks for your thoughts, and especially your last line, it made me smile.

Laurie

Madigan and other thoughts

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

**************What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food.aol.com/dinner-tonight?ncid=emlcntusfood00000009)

[Guest guest]

Nora you are reading my mind. Just finished reading that paper and that is

exactly what I have clued in on. There are so many different groups in IL..we

truly want the same thing but we just didn't know how to work together. And it's

funny because we have been talking about that for a while...hoping that SIBS can

bring these groups together.

 

 I was just making a list of things of how to start making some changes and one

of them is getting more people with disabilities to vote. I know a while back

Community Support Services made it a point to get everyone registered that

wanted to register. AND they actually took their people to vote. I am disgusted

by the agencies around me that did not take their folks to vote who wanted to in

this last election. It is their right!

 Tara Kosieniak

www.sibsnetwork.org

 

 AdultSIBSNet listserv:  AdultSibsNet/

  SIBS Blogger:   http://sibsnetwork.blogspot.com/

  Face book group SIBS Network:

http://www.facebook.com/home.php?#/group.php?gid=9209702292

  Face book cause Supporting IL Brothers and Sisters: 

http://apps.facebook.com/causes/118226?m=63ef53bf

 

I isearchigive for SIBS (Supporting Illinois Brothers and Sisters)

Help me raise money for SIBS just by searching the Internet

with  www.isearchigive.com/SIBS and when shopping on line go to

www.igive.com/SIBS

From: Yoda84@... <Yoda84@...>

Subject: Madigan and other thoughts

IPADDUnite

Date: Wednesday, July 22, 2009, 8:07 AM

 

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

************ **What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food. aol.com/dinner- tonight?ncid= emlcntusfood0000 0009)

[Guest guest]

Nora you are reading my mind. Just finished reading that paper and that is

exactly what I have clued in on. There are so many different groups in IL..we

truly want the same thing but we just didn't know how to work together. And it's

funny because we have been talking about that for a while...hoping that SIBS can

bring these groups together.

 

 I was just making a list of things of how to start making some changes and one

of them is getting more people with disabilities to vote. I know a while back

Community Support Services made it a point to get everyone registered that

wanted to register. AND they actually took their people to vote. I am disgusted

by the agencies around me that did not take their folks to vote who wanted to in

this last election. It is their right!

 Tara Kosieniak

www.sibsnetwork.org

 

 AdultSIBSNet listserv:  AdultSibsNet/

  SIBS Blogger:   http://sibsnetwork.blogspot.com/

  Face book group SIBS Network:

http://www.facebook.com/home.php?#/group.php?gid=9209702292

  Face book cause Supporting IL Brothers and Sisters: 

http://apps.facebook.com/causes/118226?m=63ef53bf

 

I isearchigive for SIBS (Supporting Illinois Brothers and Sisters)

Help me raise money for SIBS just by searching the Internet

with  www.isearchigive.com/SIBS and when shopping on line go to

www.igive.com/SIBS

From: Yoda84@... <Yoda84@...>

Subject: Madigan and other thoughts

IPADDUnite

Date: Wednesday, July 22, 2009, 8:07 AM

 

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

************ **What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food. aol.com/dinner- tonight?ncid= emlcntusfood0000 0009)

[Guest guest]

very true, but i still think we should try....I have often thought about putting

that list together, but finding the time for that task is another thing. Anyone

want to take that on? I actually want that I my website...not actually the

with/without us but just as a resource for folks in IL.

 Tara Kosieniak

www.sibsnetwork.org

 

 AdultSIBSNet listserv:  AdultSibsNet/

  SIBS Blogger:   http://sibsnetwork.blogspot.com/

  Face book group SIBS Network:

http://www.facebook.com/home.php?#/group.php?gid=9209702292

  Face book cause Supporting IL Brothers and Sisters: 

http://apps.facebook.com/causes/118226?m=63ef53bf

 

I isearchigive for SIBS (Supporting Illinois Brothers and Sisters)

Help me raise money for SIBS just by searching the Internet

with  www.isearchigive.com/SIBS and when shopping on line go to

www.igive.com/SIBS

From: Jerue Family <jeruefamily@...>

Subject: Re: Madigan and other thoughts

IPADDUnite

Date: Wednesday, July 22, 2009, 8:36 AM

 

Nora,

Love your message and I agree completely about the groups being splintered. I am

finding out almost daily about groups who are paralleling our efforts OR who are

fighting AGAINST change because they like the status quo and fear change will

take away jobs or security they feel they already have. Maybe we should develop

a list of the groups -- who is 'with us' and who is not. You often can't tell by

the names!

That said, collaboration is HARD. Someone wise once pointed out to me that the

very word 'collaboration' has the word 'labor' as a 'root' -- and she told me

'No one ever said collaboration would be easy!' And she was right!

Thanks for your thoughts, and especially your last line, it made me smile.

Laurie

Madigan and other thoughts

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

************ **What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food. aol.com/dinner- tonight?ncid= emlcntusfood0000 0009)

[Guest guest]

very true, but i still think we should try....I have often thought about putting

that list together, but finding the time for that task is another thing. Anyone

want to take that on? I actually want that I my website...not actually the

with/without us but just as a resource for folks in IL.

 Tara Kosieniak

www.sibsnetwork.org

 

 AdultSIBSNet listserv:  AdultSibsNet/

  SIBS Blogger:   http://sibsnetwork.blogspot.com/

  Face book group SIBS Network:

http://www.facebook.com/home.php?#/group.php?gid=9209702292

  Face book cause Supporting IL Brothers and Sisters: 

http://apps.facebook.com/causes/118226?m=63ef53bf

 

I isearchigive for SIBS (Supporting Illinois Brothers and Sisters)

Help me raise money for SIBS just by searching the Internet

with  www.isearchigive.com/SIBS and when shopping on line go to

www.igive.com/SIBS

From: Jerue Family <jeruefamily@...>

Subject: Re: Madigan and other thoughts

IPADDUnite

Date: Wednesday, July 22, 2009, 8:36 AM

 

Nora,

Love your message and I agree completely about the groups being splintered. I am

finding out almost daily about groups who are paralleling our efforts OR who are

fighting AGAINST change because they like the status quo and fear change will

take away jobs or security they feel they already have. Maybe we should develop

a list of the groups -- who is 'with us' and who is not. You often can't tell by

the names!

That said, collaboration is HARD. Someone wise once pointed out to me that the

very word 'collaboration' has the word 'labor' as a 'root' -- and she told me

'No one ever said collaboration would be easy!' And she was right!

Thanks for your thoughts, and especially your last line, it made me smile.

Laurie

Madigan and other thoughts

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

************ **What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food. aol.com/dinner- tonight?ncid= emlcntusfood0000 0009)

[Guest guest]

Hi Nora,

I completely agree with what you wrote about how splintered we are.  Now I am

going to be outspoken and controversial.  Please ask for clarification if I

haven't been clear enough because I am not trying to bad mouth anyone here.  I

think if Ligas hadn't turned into ICF vs CILA we would have not seen the class

decertified--obvious, right?  When I was deposed for Ligas, Max Lapertosa tried

to make me say that CILA's were the better model.  I couldn't say that.  I have

seen CILA's that are very institutional and I have seen ICF's that offer tons of

opportunities to people.  What I think we need to be lobbying for is a high

quality continuum of care that offers real choice to people.  I think that was

what the Ligas lawsuit would have accomplished if ICF providers did not feel

threatened by it.  Of course I also understand why they felt threatened.  I

understand why the attorneys pursued a certain course in Ligas and I agree that

we need to

rebalance the system so that there is less reliance on SODC's and large

congregate settings.  But I also agree with you that the only way to do that is

to work together.  I think most ICF providers care about the quality of service

they provide and if there were incentives built in and if the regulations

allowed, I think that all providers would give people services they value. 

Somehow there has to be a way for us to work together to reach this end--where

the person with the disability decides what they want and they are able to find

a provider who can match that.    I know that the reason everyone is excited

about our new director at DDD is because she does have a vision but I feel like

we still don't have the political will to accomplish that vision and without

that we are nowhere.

________________________________

From: " Yoda84@... " <Yoda84@...>

IPADDUnite

Sent: Wednesday, July 22, 2009 8:07:11 AM

Subject: Madigan and other thoughts

 

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

************ **What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food. aol.com/dinner- tonight?ncid= emlcntusfood0000 0009)

[Guest guest]

Hi Nora,

I completely agree with what you wrote about how splintered we are.  Now I am

going to be outspoken and controversial.  Please ask for clarification if I

haven't been clear enough because I am not trying to bad mouth anyone here.  I

think if Ligas hadn't turned into ICF vs CILA we would have not seen the class

decertified--obvious, right?  When I was deposed for Ligas, Max Lapertosa tried

to make me say that CILA's were the better model.  I couldn't say that.  I have

seen CILA's that are very institutional and I have seen ICF's that offer tons of

opportunities to people.  What I think we need to be lobbying for is a high

quality continuum of care that offers real choice to people.  I think that was

what the Ligas lawsuit would have accomplished if ICF providers did not feel

threatened by it.  Of course I also understand why they felt threatened.  I

understand why the attorneys pursued a certain course in Ligas and I agree that

we need to

rebalance the system so that there is less reliance on SODC's and large

congregate settings.  But I also agree with you that the only way to do that is

to work together.  I think most ICF providers care about the quality of service

they provide and if there were incentives built in and if the regulations

allowed, I think that all providers would give people services they value. 

Somehow there has to be a way for us to work together to reach this end--where

the person with the disability decides what they want and they are able to find

a provider who can match that.    I know that the reason everyone is excited

about our new director at DDD is because she does have a vision but I feel like

we still don't have the political will to accomplish that vision and without

that we are nowhere.

________________________________

From: " Yoda84@... " <Yoda84@...>

IPADDUnite

Sent: Wednesday, July 22, 2009 8:07:11 AM

Subject: Madigan and other thoughts

 

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

************ **What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food. aol.com/dinner- tonight?ncid= emlcntusfood0000 0009)

[Guest guest]

,

I completely agree with you, and what you say is not so controversial, at least

not here. I'm sorry if my earlier post with the 'with us or against us'

comment was divisive, because you and Nora are right that it's important for all

to work together.

Do you think the folks who showed up in droves from Miseracordia etal to protest

the Ligas class certification are thinking along these same lines? Are people

whose adult children are already 'placed' in a residential setting they're happy

with thinking 'how can we work with these families who are advocating for more

choice?' or 'How can we help advocate for more funding across the board so that

the families who have NO funding get some? " Or are they so fearful that their

own family members funding will be cut that they are driven purely from that

standpoint?

Lately I'm thinking of the divide as less 'ICF v. CILA' and more between the

'have's' and the 'have-not's'...and there's some very real animosity on both

sides. People who family members already have funding for day programs and/or

residential are on one side. People who have nothing or only part of the

equation are on another side. It might be important to shine some light on that

divide as we think about how to move forward. Clearly the 'have nots' have

strong motive to be at the table...the question for me is how do we bring the

'have's' to the table in a constructive way? What do they have to gain from

'working together'?

Just my perspective and one more thing to add to the list.

Laurie

Madigan and other thoughts

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

************ **What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food. aol.com/dinner- tonight?ncid= emlcntusfood0000 0009)

[Guest guest]

,

I completely agree with you, and what you say is not so controversial, at least

not here. I'm sorry if my earlier post with the 'with us or against us'

comment was divisive, because you and Nora are right that it's important for all

to work together.

Do you think the folks who showed up in droves from Miseracordia etal to protest

the Ligas class certification are thinking along these same lines? Are people

whose adult children are already 'placed' in a residential setting they're happy

with thinking 'how can we work with these families who are advocating for more

choice?' or 'How can we help advocate for more funding across the board so that

the families who have NO funding get some? " Or are they so fearful that their

own family members funding will be cut that they are driven purely from that

standpoint?

Lately I'm thinking of the divide as less 'ICF v. CILA' and more between the

'have's' and the 'have-not's'...and there's some very real animosity on both

sides. People who family members already have funding for day programs and/or

residential are on one side. People who have nothing or only part of the

equation are on another side. It might be important to shine some light on that

divide as we think about how to move forward. Clearly the 'have nots' have

strong motive to be at the table...the question for me is how do we bring the

'have's' to the table in a constructive way? What do they have to gain from

'working together'?

Just my perspective and one more thing to add to the list.

Laurie

Madigan and other thoughts

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

************ **What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food. aol.com/dinner- tonight?ncid= emlcntusfood0000 0009)

[Guest guest]

Here is the challenge. ICF's are an entitlement. CILA is not. Folks are

forced to accept ICF services where they do not have much control of their

lives. They are not person drive services.

I agree with that there is a huge grey area where they are very

similar. The difference is that if you are in CILA and you don't like the

services you can choose another provider and take your service dollars with

you. You must have an ISP. You must have ISSA.

Once you are in an ICF, it is very difficult to move out of ICF services.

LIGAS gave people in ICF services the opportunity to move out IF that is

what they wanted.

Charlotte

_____

From: IPADDUnite [mailto:IPADDUnite ] On

Behalf Of Jerue Family

Sent: Wednesday, July 22, 2009 10:10 AM

IPADDUnite

Subject: Re: Madigan and other thoughts

,

I completely agree with you, and what you say is not so controversial, at

least not here. I'm sorry if my earlier post with the 'with us or against

us' comment was divisive, because you and Nora are right that it's important

for all to work together.

Do you think the folks who showed up in droves from Miseracordia etal to

protest the Ligas class certification are thinking along these same lines?

Are people whose adult children are already 'placed' in a residential

setting they're happy with thinking 'how can we work with these families who

are advocating for more choice?' or 'How can we help advocate for more

funding across the board so that the families who have NO funding get some? "

Or are they so fearful that their own family members funding will be cut

that they are driven purely from that standpoint?

Lately I'm thinking of the divide as less 'ICF v. CILA' and more between the

'have's' and the 'have-not's'...and there's some very real animosity on both

sides. People who family members already have funding for day programs

and/or residential are on one side. People who have nothing or only part of

the equation are on another side. It might be important to shine some light

on that divide as we think about how to move forward. Clearly the 'have

nots' have strong motive to be at the table...the question for me is how do

we bring the 'have's' to the table in a constructive way? What do they have

to gain from 'working together'?

Just my perspective and one more thing to add to the list.

Laurie

Madigan and other thoughts

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know

that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents

them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

************ **What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food. aol.com/dinner- tonight?ncid= emlcntusfood0000 0009)

[Guest guest]

Here is the challenge. ICF's are an entitlement. CILA is not. Folks are

forced to accept ICF services where they do not have much control of their

lives. They are not person drive services.

I agree with that there is a huge grey area where they are very

similar. The difference is that if you are in CILA and you don't like the

services you can choose another provider and take your service dollars with

you. You must have an ISP. You must have ISSA.

Once you are in an ICF, it is very difficult to move out of ICF services.

LIGAS gave people in ICF services the opportunity to move out IF that is

what they wanted.

Charlotte

_____

From: IPADDUnite [mailto:IPADDUnite ] On

Behalf Of Jerue Family

Sent: Wednesday, July 22, 2009 10:10 AM

IPADDUnite

Subject: Re: Madigan and other thoughts

,

I completely agree with you, and what you say is not so controversial, at

least not here. I'm sorry if my earlier post with the 'with us or against

us' comment was divisive, because you and Nora are right that it's important

for all to work together.

Do you think the folks who showed up in droves from Miseracordia etal to

protest the Ligas class certification are thinking along these same lines?

Are people whose adult children are already 'placed' in a residential

setting they're happy with thinking 'how can we work with these families who

are advocating for more choice?' or 'How can we help advocate for more

funding across the board so that the families who have NO funding get some? "

Or are they so fearful that their own family members funding will be cut

that they are driven purely from that standpoint?

Lately I'm thinking of the divide as less 'ICF v. CILA' and more between the

'have's' and the 'have-not's'...and there's some very real animosity on both

sides. People who family members already have funding for day programs

and/or residential are on one side. People who have nothing or only part of

the equation are on another side. It might be important to shine some light

on that divide as we think about how to move forward. Clearly the 'have

nots' have strong motive to be at the table...the question for me is how do

we bring the 'have's' to the table in a constructive way? What do they have

to gain from 'working together'?

Just my perspective and one more thing to add to the list.

Laurie

Madigan and other thoughts

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know

that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents

them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

************ **What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food. aol.com/dinner- tonight?ncid= emlcntusfood0000 0009)

[Guest guest]

Nora, I'm with you on Madigan and as far as term limits, my own rep, Patti

Bellock, has been an avid supporter and I'd hate to lose her because of term

limits.

Maybe if we can give Republicans control of the House, we will then get a new

Speaker.

From: Yoda84@... <Yoda84@...>

Subject: Madigan and other thoughts

IPADDUnite

Date: Wednesday, July 22, 2009, 8:07 AM

 

Maybe Charlotte is right that we can't make an enemy of Magian

but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

************ **What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food. aol.com/dinner- tonight?ncid= emlcntusfood0000 0009)

[Guest guest]

Nora, I'm with you on Madigan and as far as term limits, my own rep, Patti

Bellock, has been an avid supporter and I'd hate to lose her because of term

limits.

Maybe if we can give Republicans control of the House, we will then get a new

Speaker.

From: Yoda84@... <Yoda84@...>

Subject: Madigan and other thoughts

IPADDUnite

Date: Wednesday, July 22, 2009, 8:07 AM

 

Maybe Charlotte is right that we can't make an enemy of Magian

but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

************ **What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food. aol.com/dinner- tonight?ncid= emlcntusfood0000 0009)

[Guest guest]

I was hoping that one of the things that would come out of Ligas is that we

would have to do ISSA for everyone in ICF's.  Though I hear from some folks that

visits are intrusive, I also hear the gratitude from families and individuals

because we absolutely do provide a safety net and have been useful to families

in private homes as well as CILA's.

Charlotte, that is exactly what I meant about real choice--people who discover

that an ICF is not for them should be allowed to move to a setting they want. 

People should not be forced into an ICF because it is an entitlement and CILA is

not.

I think there are all sorts of family members out there and clearly what I heard

from both sides was fear--if you get your choice, I will lose mine.  The state

wins when they can divide and conquer because then we are stuck with the status

quo.

________________________________

From: Charlotte Cronin <fsn@...>

IPADDUnite

Sent: Wednesday, July 22, 2009 10:15:36 AM

Subject: RE: Madigan and other thoughts

 

Here is the challenge. ICF's are an entitlement. CILA is not. Folks are

forced to accept ICF services where they do not have much control of their

lives. They are not person drive services.

I agree with that there is a huge grey area where they are very

similar. The difference is that if you are in CILA and you don't like the

services you can choose another provider and take your service dollars with

you. You must have an ISP. You must have ISSA.

Once you are in an ICF, it is very difficult to move out of ICF services.

LIGAS gave people in ICF services the opportunity to move out IF that is

what they wanted.

Charlotte

_____

From: IPADDUnite@gro ups.com [mailto:IPADDUnite@gro ups.com] On

Behalf Of Jerue Family

Sent: Wednesday, July 22, 2009 10:10 AM

IPADDUnite@gro ups.com

Subject: Re: Madigan and other thoughts

,

I completely agree with you, and what you say is not so controversial, at

least not here. I'm sorry if my earlier post with the 'with us or against

us' comment was divisive, because you and Nora are right that it's important

for all to work together.

Do you think the folks who showed up in droves from Miseracordia etal to

protest the Ligas class certification are thinking along these same lines?

Are people whose adult children are already 'placed' in a residential

setting they're happy with thinking 'how can we work with these families who

are advocating for more choice?' or 'How can we help advocate for more

funding across the board so that the families who have NO funding get some? "

Or are they so fearful that their own family members funding will be cut

that they are driven purely from that standpoint?

Lately I'm thinking of the divide as less 'ICF v. CILA' and more between the

'have's' and the 'have-not's' ...and there's some very real animosity on both

sides. People who family members already have funding for day programs

and/or residential are on one side. People who have nothing or only part of

the equation are on another side. It might be important to shine some light

on that divide as we think about how to move forward. Clearly the 'have

nots' have strong motive to be at the table...the question for me is how do

we bring the 'have's' to the table in a constructive way? What do they have

to gain from 'working together'?

Just my perspective and one more thing to add to the list.

Laurie

Madigan and other thoughts

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know

that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents

them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

************ **What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food. aol.com/dinner- tonight?ncid= emlcntusfood0000 0009)

[Guest guest]

I was hoping that one of the things that would come out of Ligas is that we

would have to do ISSA for everyone in ICF's.  Though I hear from some folks that

visits are intrusive, I also hear the gratitude from families and individuals

because we absolutely do provide a safety net and have been useful to families

in private homes as well as CILA's.

Charlotte, that is exactly what I meant about real choice--people who discover

that an ICF is not for them should be allowed to move to a setting they want. 

People should not be forced into an ICF because it is an entitlement and CILA is

not.

I think there are all sorts of family members out there and clearly what I heard

from both sides was fear--if you get your choice, I will lose mine.  The state

wins when they can divide and conquer because then we are stuck with the status

quo.

________________________________

From: Charlotte Cronin <fsn@...>

IPADDUnite

Sent: Wednesday, July 22, 2009 10:15:36 AM

Subject: RE: Madigan and other thoughts

 

Here is the challenge. ICF's are an entitlement. CILA is not. Folks are

forced to accept ICF services where they do not have much control of their

lives. They are not person drive services.

I agree with that there is a huge grey area where they are very

similar. The difference is that if you are in CILA and you don't like the

services you can choose another provider and take your service dollars with

you. You must have an ISP. You must have ISSA.

Once you are in an ICF, it is very difficult to move out of ICF services.

LIGAS gave people in ICF services the opportunity to move out IF that is

what they wanted.

Charlotte

_____

From: IPADDUnite@gro ups.com [mailto:IPADDUnite@gro ups.com] On

Behalf Of Jerue Family

Sent: Wednesday, July 22, 2009 10:10 AM

IPADDUnite@gro ups.com

Subject: Re: Madigan and other thoughts

,

I completely agree with you, and what you say is not so controversial, at

least not here. I'm sorry if my earlier post with the 'with us or against

us' comment was divisive, because you and Nora are right that it's important

for all to work together.

Do you think the folks who showed up in droves from Miseracordia etal to

protest the Ligas class certification are thinking along these same lines?

Are people whose adult children are already 'placed' in a residential

setting they're happy with thinking 'how can we work with these families who

are advocating for more choice?' or 'How can we help advocate for more

funding across the board so that the families who have NO funding get some? "

Or are they so fearful that their own family members funding will be cut

that they are driven purely from that standpoint?

Lately I'm thinking of the divide as less 'ICF v. CILA' and more between the

'have's' and the 'have-not's' ...and there's some very real animosity on both

sides. People who family members already have funding for day programs

and/or residential are on one side. People who have nothing or only part of

the equation are on another side. It might be important to shine some light

on that divide as we think about how to move forward. Clearly the 'have

nots' have strong motive to be at the table...the question for me is how do

we bring the 'have's' to the table in a constructive way? What do they have

to gain from 'working together'?

Just my perspective and one more thing to add to the list.

Laurie

Madigan and other thoughts

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know

that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents

them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

************ **What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food. aol.com/dinner- tonight?ncid= emlcntusfood0000 0009)

[Guest guest]

Perhaps a way to influence Mr. Madigan is to use a bigger hammer. Perhaps he

would listen to Daley. Mr. Daley and many other powerful political

interests in the State of Illinois are focused on getting The Olympics to

Chicago.

What if there were Civil Disobedience Demonstrations at the State of Illinois

Building in Chicago, which threatened to shut the use of the building. Police

would be called to remove the demonstrators. This would present the opportunity

to take pictures and video of the police and demonstrators.

This could go out on You-Tube and point to a web-site dedicated to the plight of

the disabled community in Illinois. The message of the website would need to be

directed at the International Olympics Committee. Perhaps the message could be

something like; how can Chicago claim to be the City That Works when it is part

of Illinois that does not work. Illinois Neglects Its Disabled Citizens and

Social Service Delivery System to pursue the Olympic Games. Information that

might be put on the web-site could show:

1.The statistics on how the state stacks up on housing for the disabled. The

cost to keep a person in a community setting versus the cost to keep a person in

a state institution,

2.How the states ranks for spending on the disabled. .

3.How the GDP of the State of Illinois is the 5th – 6th highest in the nation

and is more than some countries in the world.

4.The real tax rates in Illinois,

5.The deaths at Howe, and the federal government withdrawing federal funds

6.The 17,000 + people waiting for services in Illinois,

7.The number of layoffs at social service agencies in the state and the number

of people losing services as a consequence of the layoffs

8.Videos of people and families losing services telling their story and what the

loss of services does to them,

9.Interviews with caregivers in Illinois who are 60, 70 and 80 years old with no

state support.

Organization and preparation would be imperative!!! A group would be needed as

leaders; a group would be needed to take pictures and video; a group to be the

public face as spokespersons would be necessary; a group would be needed to

create, maintain and update the website; lawyers would be needed for advice and

demonstrators would be needed.

If this seems like political arson, so what. The disabled have been largely

abandon by all political parties in Illinois. Many of the legislators say one

thing to your face and vote another way. This might be something they

understand, Chicago style politics. If a big enough splash is made, to get into

the local and national news, it might be possible to get attention to the

web-site telling the story of the disabled in Illinois. Then Chicago political

leaders and other political interests in the state may be able to help Mr.

Madigan change his mind.

DEH

>

> Maybe Charlotte is right that we can't make an enemy of Magian but I can't

> see being nice to him. I hate the arrogant @#%$%! Term limits would take

> away the wonderful Sara enholtz who is my rep. I think maybe campaign

> finance reform is what we really need so we can get beyond pay to play.

>

> One of my fellow sibs wrote a 50 page paper titled " Community - based

> housing vs State Operated facilities Why is IL ranked 51st...... " I know

that

> one of her conclusions is that advocacy groups don't work well together. I

> think that is true and that we too fragmented. Both our local and national

> sib organizations are grappling with that issue right now. There are so many

> people out there not involved. It reminds me of the environmental movement

> that also struggles to make progress. It is too divided, too white and too

> upper middle class. In my sort of humble opinion we need to word together

> across disability, race, economic status and we need to work closely with

> all self advocacy groups. We need to register people to vote. Many people

> have just given up, they just don't believe it matters, no one represents them

> and they are struggling to get through the day. I think Obama won this way

> and maybe we can too. Never give up but that said take a break. Nora

> **************What's for dinner tonight? Find quick and easy dinner ideas

> for any occasion.

> (http://food.aol.com/dinner-tonight?ncid=emlcntusfood00000009)

>

>

>

[Guest guest]

Perhaps a way to influence Mr. Madigan is to use a bigger hammer. Perhaps he

would listen to Daley. Mr. Daley and many other powerful political

interests in the State of Illinois are focused on getting The Olympics to

Chicago.

What if there were Civil Disobedience Demonstrations at the State of Illinois

Building in Chicago, which threatened to shut the use of the building. Police

would be called to remove the demonstrators. This would present the opportunity

to take pictures and video of the police and demonstrators.

This could go out on You-Tube and point to a web-site dedicated to the plight of

the disabled community in Illinois. The message of the website would need to be

directed at the International Olympics Committee. Perhaps the message could be

something like; how can Chicago claim to be the City That Works when it is part

of Illinois that does not work. Illinois Neglects Its Disabled Citizens and

Social Service Delivery System to pursue the Olympic Games. Information that

might be put on the web-site could show:

1.The statistics on how the state stacks up on housing for the disabled. The

cost to keep a person in a community setting versus the cost to keep a person in

a state institution,

2.How the states ranks for spending on the disabled. .

3.How the GDP of the State of Illinois is the 5th – 6th highest in the nation

and is more than some countries in the world.

4.The real tax rates in Illinois,

5.The deaths at Howe, and the federal government withdrawing federal funds

6.The 17,000 + people waiting for services in Illinois,

7.The number of layoffs at social service agencies in the state and the number

of people losing services as a consequence of the layoffs

8.Videos of people and families losing services telling their story and what the

loss of services does to them,

9.Interviews with caregivers in Illinois who are 60, 70 and 80 years old with no

state support.

Organization and preparation would be imperative!!! A group would be needed as

leaders; a group would be needed to take pictures and video; a group to be the

public face as spokespersons would be necessary; a group would be needed to

create, maintain and update the website; lawyers would be needed for advice and

demonstrators would be needed.

If this seems like political arson, so what. The disabled have been largely

abandon by all political parties in Illinois. Many of the legislators say one

thing to your face and vote another way. This might be something they

understand, Chicago style politics. If a big enough splash is made, to get into

the local and national news, it might be possible to get attention to the

web-site telling the story of the disabled in Illinois. Then Chicago political

leaders and other political interests in the state may be able to help Mr.

Madigan change his mind.

DEH

>

> Maybe Charlotte is right that we can't make an enemy of Magian but I can't

> see being nice to him. I hate the arrogant @#%$%! Term limits would take

> away the wonderful Sara enholtz who is my rep. I think maybe campaign

> finance reform is what we really need so we can get beyond pay to play.

>

> One of my fellow sibs wrote a 50 page paper titled " Community - based

> housing vs State Operated facilities Why is IL ranked 51st...... " I know

that

> one of her conclusions is that advocacy groups don't work well together. I

> think that is true and that we too fragmented. Both our local and national

> sib organizations are grappling with that issue right now. There are so many

> people out there not involved. It reminds me of the environmental movement

> that also struggles to make progress. It is too divided, too white and too

> upper middle class. In my sort of humble opinion we need to word together

> across disability, race, economic status and we need to work closely with

> all self advocacy groups. We need to register people to vote. Many people

> have just given up, they just don't believe it matters, no one represents them

> and they are struggling to get through the day. I think Obama won this way

> and maybe we can too. Never give up but that said take a break. Nora

> **************What's for dinner tonight? Find quick and easy dinner ideas

> for any occasion.

> (http://food.aol.com/dinner-tonight?ncid=emlcntusfood00000009)

>

>

>

[Guest guest]

I also believe that collaboration, is the key, Nora. I agree that all of the

various groups often work against one another.

We would welcome some ideas about how to accomplish collaboration and if there

is to be a single mission, what should that mission be?

Ellen

Ellen Garber Bronfeld

egskb@...

Madigan and other thoughts

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

**************What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food.aol.com/dinner-tonight?ncid=emlcntusfood00000009)

[Guest guest]

I also believe that collaboration, is the key, Nora. I agree that all of the

various groups often work against one another.

We would welcome some ideas about how to accomplish collaboration and if there

is to be a single mission, what should that mission be?

Ellen

Ellen Garber Bronfeld

egskb@...

Madigan and other thoughts

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

**************What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food.aol.com/dinner-tonight?ncid=emlcntusfood00000009)

[Guest guest]

Single Mission:

To insure that individuals with disabilities have access to housing that

provides them with the most freedom possible

To insure that families caring for individuals with disabilities have access to

programs/funding/supports to keep their loved ones at home

To eliminate a wait list

To insure that individuals with disabilities in need of housing don't have to

wait to be neglected, abused, or their primary care giver DEAD before they get

housing

To provide opportunities for individuals with disabilities to volunteer or work

To provide adequate access to transportation

From: ELLEN BRONFELD <egskb@...>

Subject: Re: Madigan and other thoughts

IPADDUnite

Date: Wednesday, July 22, 2009, 1:29 PM

 

I also believe that collaboration, is the key, Nora. I agree

that all of the various groups often work against one another.

We would welcome some ideas about how to accomplish collaboration and if there

is to be a single mission, what should that mission be?

Ellen

Ellen Garber Bronfeld

egskbsbcglobal (DOT) net

Madigan and other thoughts

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play..

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

************ **What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food. aol.com/dinner- tonight?ncid= emlcntusfood0000 0009)

[Guest guest]

Single Mission:

To insure that individuals with disabilities have access to housing that

provides them with the most freedom possible

To insure that families caring for individuals with disabilities have access to

programs/funding/supports to keep their loved ones at home

To eliminate a wait list

To insure that individuals with disabilities in need of housing don't have to

wait to be neglected, abused, or their primary care giver DEAD before they get

housing

To provide opportunities for individuals with disabilities to volunteer or work

To provide adequate access to transportation

From: ELLEN BRONFELD <egskb@...>

Subject: Re: Madigan and other thoughts

IPADDUnite

Date: Wednesday, July 22, 2009, 1:29 PM

 

I also believe that collaboration, is the key, Nora. I agree

that all of the various groups often work against one another.

We would welcome some ideas about how to accomplish collaboration and if there

is to be a single mission, what should that mission be?

Ellen

Ellen Garber Bronfeld

egskbsbcglobal (DOT) net

Madigan and other thoughts

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play..

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

************ **What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food. aol.com/dinner- tonight?ncid= emlcntusfood0000 0009)

[Guest guest]

In defense of the " haves " ..some of whom I could name, but won't...

Some of the very best and hardest working advocates in the northern suburbs

already have funding, housing and programming....they are strong advocates for

supports and services in the community because:

1. They know that in this state, having funding today doesn't mean you will

have funding tomorrow.

2. They know that without vigilance and advocacy, great programs and even just

good programs, can degenerate over time...people get lax, lazy,

unmotivated...staff changes, funding shifts, etc...those affected will be, after

all, their own loved ones, along with many others...

3. They care enough about individuals with disabilities to realize that

whatever their own loved ones get from the state, is owed to all...This comes

from equal measures of responsibility and guilt...

There will always be selfish people in the world, but I believe that having a

loved one with a disability often makes us more caring people..I work alongside

many families who could rest on their laurels, but chose to share, help,

give...they are the hardest workers I know...

In my opinion, it is because of the continued efforts of many of the community

focused " haves " , that our system is at least hanging on by a thread...if it was

up to the state, aside for DHS/DDD, we would be a totally institutional

state...

Ellen Garber Bronfeld

egskb@...

Madigan and other thoughts

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

************ **What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food. aol.com/dinner- tonight?ncid= emlcntusfood0000 0009)

[Guest guest]

In defense of the " haves " ..some of whom I could name, but won't...

Some of the very best and hardest working advocates in the northern suburbs

already have funding, housing and programming....they are strong advocates for

supports and services in the community because:

1. They know that in this state, having funding today doesn't mean you will

have funding tomorrow.

2. They know that without vigilance and advocacy, great programs and even just

good programs, can degenerate over time...people get lax, lazy,

unmotivated...staff changes, funding shifts, etc...those affected will be, after

all, their own loved ones, along with many others...

3. They care enough about individuals with disabilities to realize that

whatever their own loved ones get from the state, is owed to all...This comes

from equal measures of responsibility and guilt...

There will always be selfish people in the world, but I believe that having a

loved one with a disability often makes us more caring people..I work alongside

many families who could rest on their laurels, but chose to share, help,

give...they are the hardest workers I know...

In my opinion, it is because of the continued efforts of many of the community

focused " haves " , that our system is at least hanging on by a thread...if it was

up to the state, aside for DHS/DDD, we would be a totally institutional

state...

Ellen Garber Bronfeld

egskb@...

Madigan and other thoughts

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

************ **What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food. aol.com/dinner- tonight?ncid= emlcntusfood0000 0009)

[Guest guest]

Whoa, I didn't mean to offend anyone. You're right...lots of people in the

'haves' category are tireless advocates for all. And lots of 'have nots' are

both tired AND tireless.

I'm just saying I see a largely silent MINORITY of families in this state

(minority if you look at the number of people with DDs who have residential

funding compared to the number on the waiting list) who can be galvanized quite

effectively and in more powerful numbers when necessary to come out in

opposition to change.

Do we need to improve our numbers in getting out to Lobby Days, demonstrations,

letters to the Editor, active in involvement etc? Yes.

Do we need to expand the proverbial 'tent' and recruit non-social service orgs

to our cause? I'd like to think we can.

Should we also think about whether we can 'tip' some of the current 'opposers'

into either a 'stay neutral' or 'don't oppose' column? I'd like to think we can

work on that, too.

L.

Madigan and other thoughts

Maybe Charlotte is right that we can't make an enemy of Magian but I can't

see being nice to him. I hate the arrogant @#%$%! Term limits would take

away the wonderful Sara enholtz who is my rep. I think maybe campaign

finance reform is what we really need so we can get beyond pay to play.

One of my fellow sibs wrote a 50 page paper titled " Community - based

housing vs State Operated facilities Why is IL ranked 51st...... " I know that

one of her conclusions is that advocacy groups don't work well together. I

think that is true and that we too fragmented. Both our local and national

sib organizations are grappling with that issue right now. There are so many

people out there not involved. It reminds me of the environmental movement

that also struggles to make progress. It is too divided, too white and too

upper middle class. In my sort of humble opinion we need to word together

across disability, race, economic status and we need to work closely with

all self advocacy groups. We need to register people to vote. Many people

have just given up, they just don't believe it matters, no one represents them

and they are struggling to get through the day. I think Obama won this way

and maybe we can too. Never give up but that said take a break. Nora

************ **What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food. aol.com/dinner- tonight?ncid= emlcntusfood0000 0009)