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NOT privy to the exact method that was used to give out this info...I am

all about FOI. What about hipa...privacy, confidentiality. It is one more

thing to get boiled about..and how can I/my son be protected. we sign all

kinds of docuements spelling out who can/cannot get his info, and now the

state under Lilia's leadership, is giving out that kind of info. This

entire thing stinks. Lets keep blaming the governor..yet the person who

handed out the names and numbers should be held to some kind of

standard...perhaps letting us know that our privacy is about to be invided.

There are so many meetings between teh director and advocates, perhaps we

need to let the director know we really want privacy. I think I am

concerned with a director who answers a union FOI request, and we families

dont hear a peap from the director.

I am soo venting and even more now that I know this info was clearly handed

over like our kids lives without so much as a debate. Who'se side is the

drector on anyway...for too long we have protected unions..politicians..and

soft shoe every one, while our people with DD are dust. There is no answer.

friendlyu to this, but there is also no deffence to this either. I felt

ambushed by the call..not sure what country I was in if such info is so

available. Stop defending any of them in Springfield...we just keep ketting

worse and worse. We are to blame because we keep letting this crap happen

to us. Until we, the advocate, all of us get mad and stop defending ANY of

them, we have onlyourselves to blame.

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Hmmmm yet I thought we wanted our kids messages out yet we don't want their

identities known.....how have some of you felt when you received college info

for your kids who couldn't attend?

Sent via BlackBerry by AT & T

Re: caller ID said . . .

NOT privy to the exact method that was used to give out this info...I am

all about FOI. What about hipa...privacy, confidentiality. It is one more

thing to get boiled about..and how can I/my son be protected. we sign all

kinds of docuements spelling out who can/cannot get his info, and now the

state under Lilia's leadership, is giving out that kind of info. This

entire thing stinks. Lets keep blaming the governor..yet the person who

handed out the names and numbers should be held to some kind of

standard...perhaps letting us know that our privacy is about to be invided.

There are so many meetings between teh director and advocates, perhaps we

need to let the director know we really want privacy. I think I am

concerned with a director who answers a union FOI request, and we families

dont hear a peap from the director.

I am soo venting and even more now that I know this info was clearly handed

over like our kids lives without so much as a debate. Who'se side is the

drector on anyway...for too long we have protected unions..politicians..and

soft shoe every one, while our people with DD are dust. There is no answer.

friendlyu to this, but there is also no deffence to this either. I felt

ambushed by the call..not sure what country I was in if such info is so

available. Stop defending any of them in Springfield...we just keep ketting

worse and worse. We are to blame because we keep letting this crap happen

to us. Until we, the advocate, all of us get mad and stop defending ANY of

them, we have onlyourselves to blame.

------------------------------------

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Hmmmm yet I thought we wanted our kids messages out yet we don't want their

identities known.....how have some of you felt when you received college info

for your kids who couldn't attend?

Sent via BlackBerry by AT & T

Re: caller ID said . . .

NOT privy to the exact method that was used to give out this info...I am

all about FOI. What about hipa...privacy, confidentiality. It is one more

thing to get boiled about..and how can I/my son be protected. we sign all

kinds of docuements spelling out who can/cannot get his info, and now the

state under Lilia's leadership, is giving out that kind of info. This

entire thing stinks. Lets keep blaming the governor..yet the person who

handed out the names and numbers should be held to some kind of

standard...perhaps letting us know that our privacy is about to be invided.

There are so many meetings between teh director and advocates, perhaps we

need to let the director know we really want privacy. I think I am

concerned with a director who answers a union FOI request, and we families

dont hear a peap from the director.

I am soo venting and even more now that I know this info was clearly handed

over like our kids lives without so much as a debate. Who'se side is the

drector on anyway...for too long we have protected unions..politicians..and

soft shoe every one, while our people with DD are dust. There is no answer.

friendlyu to this, but there is also no deffence to this either. I felt

ambushed by the call..not sure what country I was in if such info is so

available. Stop defending any of them in Springfield...we just keep ketting

worse and worse. We are to blame because we keep letting this crap happen

to us. Until we, the advocate, all of us get mad and stop defending ANY of

them, we have onlyourselves to blame.

------------------------------------

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I guess I am just an easily annoyed middle aged woman. I dont like junk

mail invading my mail box or junk phone calls bugging me. I dont pay for

phone service so others can help their bottom line. I always had fun though

when the Marines would call and try to get Adam to enlist. Go right ahead.

I never found any college mail or phone call helpful. I like to get calls

really only from people I want to hear from.

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I guess I am just an easily annoyed middle aged woman. I dont like junk

mail invading my mail box or junk phone calls bugging me. I dont pay for

phone service so others can help their bottom line. I always had fun though

when the Marines would call and try to get Adam to enlist. Go right ahead.

I never found any college mail or phone call helpful. I like to get calls

really only from people I want to hear from.

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Guest guest

I understand Cindi...in spite of signing up for no solicitation calls, it is

amazing how many we still get.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: caller ID said . . .

I guess I am just an easily annoyed middle aged woman. I dont like junk

mail invading my mail box or junk phone calls bugging me. I dont pay for

phone service so others can help their bottom line. I always had fun though

when the Marines would call and try to get Adam to enlist. Go right ahead.

I never found any college mail or phone call helpful. I like to get calls

really only from people I want to hear from.

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Guest guest

I understand Cindi...in spite of signing up for no solicitation calls, it is

amazing how many we still get.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: caller ID said . . .

I guess I am just an easily annoyed middle aged woman. I dont like junk

mail invading my mail box or junk phone calls bugging me. I dont pay for

phone service so others can help their bottom line. I always had fun though

when the Marines would call and try to get Adam to enlist. Go right ahead.

I never found any college mail or phone call helpful. I like to get calls

really only from people I want to hear from.

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Guest guest

I felt a little sad, receiving college info for Noah, but then, he does audit

college classes at Trinity U...and I am very proud of his accomplishments there.

I had lots of fun with the armed forces call...I offered to sign him up for boot

camp...they got all excited until they heard the diagnosis...

Ellen

Ellen Garber Bronfeld

egskb@...

Re: caller ID said . . .

NOT privy to the exact method that was used to give out this info...I am

all about FOI. What about hipa...privacy, confidentiality. It is one more

thing to get boiled about..and how can I/my son be protected. we sign all

kinds of docuements spelling out who can/cannot get his info, and now the

state under Lilia's leadership, is giving out that kind of info. This

entire thing stinks. Lets keep blaming the governor..yet the person who

handed out the names and numbers should be held to some kind of

standard...perhaps letting us know that our privacy is about to be invided.

There are so many meetings between teh director and advocates, perhaps we

need to let the director know we really want privacy. I think I am

concerned with a director who answers a union FOI request, and we families

dont hear a peap from the director.

I am soo venting and even more now that I know this info was clearly handed

over like our kids lives without so much as a debate. Who'se side is the

drector on anyway...for too long we have protected unions..politicians..and

soft shoe every one, while our people with DD are dust. There is no answer.

friendlyu to this, but there is also no deffence to this either. I felt

ambushed by the call..not sure what country I was in if such info is so

available. Stop defending any of them in Springfield...we just keep ketting

worse and worse. We are to blame because we keep letting this crap happen

to us. Until we, the advocate, all of us get mad and stop defending ANY of

them, we have onlyourselves to blame.

------------------------------------

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Guest guest

I felt a little sad, receiving college info for Noah, but then, he does audit

college classes at Trinity U...and I am very proud of his accomplishments there.

I had lots of fun with the armed forces call...I offered to sign him up for boot

camp...they got all excited until they heard the diagnosis...

Ellen

Ellen Garber Bronfeld

egskb@...

Re: caller ID said . . .

NOT privy to the exact method that was used to give out this info...I am

all about FOI. What about hipa...privacy, confidentiality. It is one more

thing to get boiled about..and how can I/my son be protected. we sign all

kinds of docuements spelling out who can/cannot get his info, and now the

state under Lilia's leadership, is giving out that kind of info. This

entire thing stinks. Lets keep blaming the governor..yet the person who

handed out the names and numbers should be held to some kind of

standard...perhaps letting us know that our privacy is about to be invided.

There are so many meetings between teh director and advocates, perhaps we

need to let the director know we really want privacy. I think I am

concerned with a director who answers a union FOI request, and we families

dont hear a peap from the director.

I am soo venting and even more now that I know this info was clearly handed

over like our kids lives without so much as a debate. Who'se side is the

drector on anyway...for too long we have protected unions..politicians..and

soft shoe every one, while our people with DD are dust. There is no answer.

friendlyu to this, but there is also no deffence to this either. I felt

ambushed by the call..not sure what country I was in if such info is so

available. Stop defending any of them in Springfield...we just keep ketting

worse and worse. We are to blame because we keep letting this crap happen

to us. Until we, the advocate, all of us get mad and stop defending ANY of

them, we have onlyourselves to blame.

------------------------------------

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Guest guest

I get upset when I receive calls that are sales pitches and the caller has a

young voice and asks to 'speak with Angelina'.  My daughter is non verbal.

From: ELLEN BRONFELD <egskb@...>

Subject: Re: caller ID said . . .

IPADDUnite

Date: Tuesday, August 4, 2009, 10:11 PM

 

I felt a little sad, receiving college info for Noah, but

then, he does audit college classes at Trinity U...and I am very proud of his

accomplishments there. I had lots of fun with the armed forces call...I offered

to sign him up for boot camp...they got all excited until they heard the

diagnosis...

Ellen

Ellen Garber Bronfeld

egskbsbcglobal (DOT) net

Re: caller ID said . . .

NOT privy to the exact method that was used to give out this info...I am

all about FOI. What about hipa...privacy, confidentiality. It is one more

thing to get boiled about..and how can I/my son be protected. we sign all

kinds of docuements spelling out who can/cannot get his info, and now the

state under Lilia's leadership, is giving out that kind of info. This

entire thing stinks. Lets keep blaming the governor..yet the person who

handed out the names and numbers should be held to some kind of

standard...perhaps letting us know that our privacy is about to be invided.

There are so many meetings between teh director and advocates, perhaps we

need to let the director know we really want privacy. I think I am

concerned with a director who answers a union FOI request, and we families

dont hear a peap from the director.

I am soo venting and even more now that I know this info was clearly handed

over like our kids lives without so much as a debate. Who'se side is the

drector on anyway...for too long we have protected unions..politicians ..and

soft shoe every one, while our people with DD are dust. There is no answer.

friendlyu to this, but there is also no deffence to this either. I felt

ambushed by the call..not sure what country I was in if such info is so

available. Stop defending any of them in Springfield. ..we just keep ketting

worse and worse. We are to blame because we keep letting this crap happen

to us. Until we, the advocate, all of us get mad and stop defending ANY of

them, we have onlyourselves to blame.

------------ --------- --------- ------

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Guest guest

I get upset when I receive calls that are sales pitches and the caller has a

young voice and asks to 'speak with Angelina'.  My daughter is non verbal.

From: ELLEN BRONFELD <egskb@...>

Subject: Re: caller ID said . . .

IPADDUnite

Date: Tuesday, August 4, 2009, 10:11 PM

 

I felt a little sad, receiving college info for Noah, but

then, he does audit college classes at Trinity U...and I am very proud of his

accomplishments there. I had lots of fun with the armed forces call...I offered

to sign him up for boot camp...they got all excited until they heard the

diagnosis...

Ellen

Ellen Garber Bronfeld

egskbsbcglobal (DOT) net

Re: caller ID said . . .

NOT privy to the exact method that was used to give out this info...I am

all about FOI. What about hipa...privacy, confidentiality. It is one more

thing to get boiled about..and how can I/my son be protected. we sign all

kinds of docuements spelling out who can/cannot get his info, and now the

state under Lilia's leadership, is giving out that kind of info. This

entire thing stinks. Lets keep blaming the governor..yet the person who

handed out the names and numbers should be held to some kind of

standard...perhaps letting us know that our privacy is about to be invided.

There are so many meetings between teh director and advocates, perhaps we

need to let the director know we really want privacy. I think I am

concerned with a director who answers a union FOI request, and we families

dont hear a peap from the director.

I am soo venting and even more now that I know this info was clearly handed

over like our kids lives without so much as a debate. Who'se side is the

drector on anyway...for too long we have protected unions..politicians ..and

soft shoe every one, while our people with DD are dust. There is no answer.

friendlyu to this, but there is also no deffence to this either. I felt

ambushed by the call..not sure what country I was in if such info is so

available. Stop defending any of them in Springfield. ..we just keep ketting

worse and worse. We are to blame because we keep letting this crap happen

to us. Until we, the advocate, all of us get mad and stop defending ANY of

them, we have onlyourselves to blame.

------------ --------- --------- ------

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Guest guest

Years ago got an " invitation " to be a foreign exchange student. He

had been " picked " as part of an " exclusive " group. I think the letter was

" signed " by then President Clinton. I thought about accepting and demanding

appropriate supports and accommodations. Ahem. more chagrin at the mail box.

Charlotte

_____

From: IPADDUnite [mailto:IPADDUnite ] On

Behalf Of sunshinebeaches3@...

Sent: Tuesday, August 04, 2009 6:11 PM

IPADDUnite

Subject: Re: caller ID said . . .

Hmmmm yet I thought we wanted our kids messages out yet we don't want their

identities known.....how have some of you felt when you received college

info for your kids who couldn't attend?

Sent via BlackBerry by AT & T

Re: caller ID said . . .

NOT privy to the exact method that was used to give out this info...I am

all about FOI. What about hipa...privacy, confidentiality. It is one more

thing to get boiled about..and how can I/my son be protected. we sign all

kinds of docuements spelling out who can/cannot get his info, and now the

state under Lilia's leadership, is giving out that kind of info. This

entire thing stinks. Lets keep blaming the governor..yet the person who

handed out the names and numbers should be held to some kind of

standard...perhaps letting us know that our privacy is about to be invided.

There are so many meetings between teh director and advocates, perhaps we

need to let the director know we really want privacy. I think I am

concerned with a director who answers a union FOI request, and we families

dont hear a peap from the director.

I am soo venting and even more now that I know this info was clearly handed

over like our kids lives without so much as a debate. Who'se side is the

drector on anyway...for too long we have protected unions..politicians..and

soft shoe every one, while our people with DD are dust. There is no answer.

friendlyu to this, but there is also no deffence to this either. I felt

ambushed by the call..not sure what country I was in if such info is so

available. Stop defending any of them in Springfield...we just keep ketting

worse and worse. We are to blame because we keep letting this crap happen

to us. Until we, the advocate, all of us get mad and stop defending ANY of

them, we have onlyourselves to blame.

------------------------------------

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Guest guest

Years ago got an " invitation " to be a foreign exchange student. He

had been " picked " as part of an " exclusive " group. I think the letter was

" signed " by then President Clinton. I thought about accepting and demanding

appropriate supports and accommodations. Ahem. more chagrin at the mail box.

Charlotte

_____

From: IPADDUnite [mailto:IPADDUnite ] On

Behalf Of sunshinebeaches3@...

Sent: Tuesday, August 04, 2009 6:11 PM

IPADDUnite

Subject: Re: caller ID said . . .

Hmmmm yet I thought we wanted our kids messages out yet we don't want their

identities known.....how have some of you felt when you received college

info for your kids who couldn't attend?

Sent via BlackBerry by AT & T

Re: caller ID said . . .

NOT privy to the exact method that was used to give out this info...I am

all about FOI. What about hipa...privacy, confidentiality. It is one more

thing to get boiled about..and how can I/my son be protected. we sign all

kinds of docuements spelling out who can/cannot get his info, and now the

state under Lilia's leadership, is giving out that kind of info. This

entire thing stinks. Lets keep blaming the governor..yet the person who

handed out the names and numbers should be held to some kind of

standard...perhaps letting us know that our privacy is about to be invided.

There are so many meetings between teh director and advocates, perhaps we

need to let the director know we really want privacy. I think I am

concerned with a director who answers a union FOI request, and we families

dont hear a peap from the director.

I am soo venting and even more now that I know this info was clearly handed

over like our kids lives without so much as a debate. Who'se side is the

drector on anyway...for too long we have protected unions..politicians..and

soft shoe every one, while our people with DD are dust. There is no answer.

friendlyu to this, but there is also no deffence to this either. I felt

ambushed by the call..not sure what country I was in if such info is so

available. Stop defending any of them in Springfield...we just keep ketting

worse and worse. We are to blame because we keep letting this crap happen

to us. Until we, the advocate, all of us get mad and stop defending ANY of

them, we have onlyourselves to blame.

------------------------------------

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Guest guest

I did the same thing with the Army. apparently Kim had signed up for them to

contact her when they had a presentation at her school. The gentleman calling

just wanted to know if he had my permission to come and interview Kim. I let

him go on for a while, until he started asking some medical questions - that put

an end to it!

Re: caller ID said . . .

NOT privy to the exact method that was used to give out this info...I am

all about FOI. What about hipa...privacy, confidentiality. It is one more

thing to get boiled about..and how can I/my son be protected. we sign all

kinds of docuements spelling out who can/cannot get his info, and now the

state under Lilia's leadership, is giving out that kind of info. This

entire thing stinks. Lets keep blaming the governor..yet the person who

handed out the names and numbers should be held to some kind of

standard...perhaps letting us know that our privacy is about to be invided.

There are so many meetings between teh director and advocates, perhaps we

need to let the director know we really want privacy. I think I am

concerned with a director who answers a union FOI request, and we families

dont hear a peap from the director.

I am soo venting and even more now that I know this info was clearly handed

over like our kids lives without so much as a debate. Who'se side is the

drector on anyway...for too long we have protected unions..politicians..and

soft shoe every one, while our people with DD are dust. There is no answer.

friendlyu to this, but there is also no deffence to this either. I felt

ambushed by the call..not sure what country I was in if such info is so

available. Stop defending any of them in Springfield...we just keep ketting

worse and worse. We are to blame because we keep letting this crap happen

to us. Until we, the advocate, all of us get mad and stop defending ANY of

them, we have onlyourselves to blame.

------------------------------------

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Guest guest

I did the same thing with the Army. apparently Kim had signed up for them to

contact her when they had a presentation at her school. The gentleman calling

just wanted to know if he had my permission to come and interview Kim. I let

him go on for a while, until he started asking some medical questions - that put

an end to it!

Re: caller ID said . . .

NOT privy to the exact method that was used to give out this info...I am

all about FOI. What about hipa...privacy, confidentiality. It is one more

thing to get boiled about..and how can I/my son be protected. we sign all

kinds of docuements spelling out who can/cannot get his info, and now the

state under Lilia's leadership, is giving out that kind of info. This

entire thing stinks. Lets keep blaming the governor..yet the person who

handed out the names and numbers should be held to some kind of

standard...perhaps letting us know that our privacy is about to be invided.

There are so many meetings between teh director and advocates, perhaps we

need to let the director know we really want privacy. I think I am

concerned with a director who answers a union FOI request, and we families

dont hear a peap from the director.

I am soo venting and even more now that I know this info was clearly handed

over like our kids lives without so much as a debate. Who'se side is the

drector on anyway...for too long we have protected unions..politicians..and

soft shoe every one, while our people with DD are dust. There is no answer.

friendlyu to this, but there is also no deffence to this either. I felt

ambushed by the call..not sure what country I was in if such info is so

available. Stop defending any of them in Springfield...we just keep ketting

worse and worse. We are to blame because we keep letting this crap happen

to us. Until we, the advocate, all of us get mad and stop defending ANY of

them, we have onlyourselves to blame.

------------------------------------

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Guest guest

Just reread this and realize that I accused the Department of giving out phone

numbers...obviously, according to Charlotte, they did not...sorry for any

misunderstanding...still...I wish nothing had been given out!

Ellen

Ellen Garber Bronfeld

egskb@...

Re: caller ID said . . .

We got the call tonight. Wanted to talk to Art, who is the worker for Adam.

I was right there when teh call came in and Art kept answering " I have not

been asked anything by AFSCME..no union has contacted me. I got on the

line, because of course I am a control freak,and I asked who is conducting

the survey, " the union " and I said we are not interested. I am annoyed, not

surprised the state sells our private contact data to the union. Cindi

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Just reread this and realize that I accused the Department of giving out phone

numbers...obviously, according to Charlotte, they did not...sorry for any

misunderstanding...still...I wish nothing had been given out!

Ellen

Ellen Garber Bronfeld

egskb@...

Re: caller ID said . . .

We got the call tonight. Wanted to talk to Art, who is the worker for Adam.

I was right there when teh call came in and Art kept answering " I have not

been asked anything by AFSCME..no union has contacted me. I got on the

line, because of course I am a control freak,and I asked who is conducting

the survey, " the union " and I said we are not interested. I am annoyed, not

surprised the state sells our private contact data to the union. Cindi

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Guest guest

Just rereading some emails and this one got me thinking, Cindi. Keep in mind

that the Governor is responsible for having given the ok for unions to try to

organize personal support workers to individuals with developmental disabilities

and once he made that decision, Director Teninty probably didn't have a choice

about releasing names. Maybe her silence has something to do with being on our

side but unable to protest or comment publicly? Just a thought...

Ellen

Ellen Garber Bronfeld

egskb@...

Re: caller ID said . . .

NOT privy to the exact method that was used to give out this info...I am

all about FOI. What about hipa...privacy, confidentiality. It is one more

thing to get boiled about..and how can I/my son be protected. we sign all

kinds of docuements spelling out who can/cannot get his info, and now the

state under Lilia's leadership, is giving out that kind of info. This

entire thing stinks. Lets keep blaming the governor..yet the person who

handed out the names and numbers should be held to some kind of

standard...perhaps letting us know that our privacy is about to be invided.

There are so many meetings between teh director and advocates, perhaps we

need to let the director know we really want privacy. I think I am

concerned with a director who answers a union FOI request, and we families

dont hear a peap from the director.

I am soo venting and even more now that I know this info was clearly handed

over like our kids lives without so much as a debate. Who'se side is the

drector on anyway...for too long we have protected unions..politicians..and

soft shoe every one, while our people with DD are dust. There is no answer.

friendlyu to this, but there is also no deffence to this either. I felt

ambushed by the call..not sure what country I was in if such info is so

available. Stop defending any of them in Springfield...we just keep ketting

worse and worse. We are to blame because we keep letting this crap happen

to us. Until we, the advocate, all of us get mad and stop defending ANY of

them, we have onlyourselves to blame.

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Guest guest

Just rereading some emails and this one got me thinking, Cindi. Keep in mind

that the Governor is responsible for having given the ok for unions to try to

organize personal support workers to individuals with developmental disabilities

and once he made that decision, Director Teninty probably didn't have a choice

about releasing names. Maybe her silence has something to do with being on our

side but unable to protest or comment publicly? Just a thought...

Ellen

Ellen Garber Bronfeld

egskb@...

Re: caller ID said . . .

NOT privy to the exact method that was used to give out this info...I am

all about FOI. What about hipa...privacy, confidentiality. It is one more

thing to get boiled about..and how can I/my son be protected. we sign all

kinds of docuements spelling out who can/cannot get his info, and now the

state under Lilia's leadership, is giving out that kind of info. This

entire thing stinks. Lets keep blaming the governor..yet the person who

handed out the names and numbers should be held to some kind of

standard...perhaps letting us know that our privacy is about to be invided.

There are so many meetings between teh director and advocates, perhaps we

need to let the director know we really want privacy. I think I am

concerned with a director who answers a union FOI request, and we families

dont hear a peap from the director.

I am soo venting and even more now that I know this info was clearly handed

over like our kids lives without so much as a debate. Who'se side is the

drector on anyway...for too long we have protected unions..politicians..and

soft shoe every one, while our people with DD are dust. There is no answer.

friendlyu to this, but there is also no deffence to this either. I felt

ambushed by the call..not sure what country I was in if such info is so

available. Stop defending any of them in Springfield...we just keep ketting

worse and worse. We are to blame because we keep letting this crap happen

to us. Until we, the advocate, all of us get mad and stop defending ANY of

them, we have onlyourselves to blame.

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