Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 Representatives from SACNI will be marching in the parade.? Anyone is welcome to join us. Christensen, Advisor Self Advocacy Council of Northern Illinois 815-382-1530 clchristensen100@... www.sacni.org Re: Civil Disobedience. .. IPADDUnite@gro ups.com Date: Thursday, July 16, 2009, 9:34 PM ? These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 Ann, in May, when we were supposed to all rally at the Capitol...we knew then that there were MAJOR budget problems, yet, maybe 500 people showed up... I am not willing to spend my time organizing a demonstration or a rally...I am doubtful that we can get a big turn out given past experience. But feel free to give it a try... I think, in defense of families who have loved ones with disabilities, it is a bit harder to just drive to Springfield or anywhere else for that matter to rally...our loved ones who have disabilities take a lot out of us...they are a full time job, and then so many families work outside the home, in addition... Ellen Ellen Garber Bronfeld egskb@... Re: Civil Disobedience... IPADDUnite Date: Thursday, July 16, 2009, 9:34 PM These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 Ann, in May, when we were supposed to all rally at the Capitol...we knew then that there were MAJOR budget problems, yet, maybe 500 people showed up... I am not willing to spend my time organizing a demonstration or a rally...I am doubtful that we can get a big turn out given past experience. But feel free to give it a try... I think, in defense of families who have loved ones with disabilities, it is a bit harder to just drive to Springfield or anywhere else for that matter to rally...our loved ones who have disabilities take a lot out of us...they are a full time job, and then so many families work outside the home, in addition... Ellen Ellen Garber Bronfeld egskb@... Re: Civil Disobedience... IPADDUnite Date: Thursday, July 16, 2009, 9:34 PM These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 Noah and I are registered to walk in the Disability Pride Parade, but I don't want to organize anything... We may be willing to participate in something, if someone else wants to do the organizing. Noah returns from camp tomorrow. He is still averaging about 3-4 hours of sleep while at camp. I am anticipating major sleep deprivation in the coming days, and maybe weeks and months, so I am not committing to any new projects right now. Ellen Ellen Garber Bronfeld egskb@... Re: Civil Disobedience. .. IPADDUnite@gro ups.com Date: Thursday, July 16, 2009, 9:34 PM These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 Noah and I are registered to walk in the Disability Pride Parade, but I don't want to organize anything... We may be willing to participate in something, if someone else wants to do the organizing. Noah returns from camp tomorrow. He is still averaging about 3-4 hours of sleep while at camp. I am anticipating major sleep deprivation in the coming days, and maybe weeks and months, so I am not committing to any new projects right now. Ellen Ellen Garber Bronfeld egskb@... Re: Civil Disobedience. .. IPADDUnite@gro ups.com Date: Thursday, July 16, 2009, 9:34 PM These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 unfortunately, I will be out of town for that one. Certainly, we can start organizing for a march on Springfield for next year's budget. Ann From: Diane S <swedegrlaol (DOT) com> Subject: Re: Civil Disobedience. .. IPADDUnite@gro ups.com Date: Thursday, July 16, 2009, 9:34 PM Â These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 unfortunately, I will be out of town for that one. Certainly, we can start organizing for a march on Springfield for next year's budget. Ann From: Diane S <swedegrlaol (DOT) com> Subject: Re: Civil Disobedience. .. IPADDUnite@gro ups.com Date: Thursday, July 16, 2009, 9:34 PM Â These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 I think many feel the futility because it is a yearly event at budget time. I was in Springfield last year and the people in attendancewere much smaller numbers. I agree that many have problems with arranging caregiving. This would have to be on a massive scale to make any difference from previous years. Illinois needs to see how many families are impacted. Certainly, other family members, friends or volunteers could represent those unable to attend. Each person " representing " should carry a sign or poster with a picture of the individual(s) they represent. That many faces makes the issue more real in terms of humanity. Legislators see numbers in budget terms. Numbers represented by people en masse is very powerful (as we just saw in Iran). The legislators have more groups screaming for a piece of the pie than pies available for slices. Illinois is last because we have allowed it to be last. Everyone has got to step up to the challenge if they want change, or stop complaining and settle once again for last or worse. Your idea of working at the local level is just as important to promote lasting change within our communities. As you stated, that type of change happens over time.,A more immediate change for funding requires something more dramatic.  From: Diane S <swedegrlaol (DOT) com> Subject: Re: Civil Disobedience. .. IPADDUnite@gro ups.com Date: Thursday, July 16, 2009, 9:34 PM These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 I think many feel the futility because it is a yearly event at budget time. I was in Springfield last year and the people in attendancewere much smaller numbers. I agree that many have problems with arranging caregiving. This would have to be on a massive scale to make any difference from previous years. Illinois needs to see how many families are impacted. Certainly, other family members, friends or volunteers could represent those unable to attend. Each person " representing " should carry a sign or poster with a picture of the individual(s) they represent. That many faces makes the issue more real in terms of humanity. Legislators see numbers in budget terms. Numbers represented by people en masse is very powerful (as we just saw in Iran). The legislators have more groups screaming for a piece of the pie than pies available for slices. Illinois is last because we have allowed it to be last. Everyone has got to step up to the challenge if they want change, or stop complaining and settle once again for last or worse. Your idea of working at the local level is just as important to promote lasting change within our communities. As you stated, that type of change happens over time.,A more immediate change for funding requires something more dramatic.  From: Diane S <swedegrlaol (DOT) com> Subject: Re: Civil Disobedience. .. IPADDUnite@gro ups.com Date: Thursday, July 16, 2009, 9:34 PM These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 I think many feel the futility because it is a yearly event at budget time. I was in Springfield last year and the people in attendancewere much smaller numbers. I agree that many have problems with arranging caregiving. This would have to be on a massive scale to make any difference from previous years. Illinois needs to see how many families are impacted. Certainly, other family members, friends or volunteers could represent those unable to attend. Each person " representing " should carry a sign or poster with a picture of the individual(s) they represent. That many faces makes the issue more real in terms of humanity. Legislators see numbers in budget terms. Numbers represented by people en masse is very powerful (as we just saw in Iran). The legislators have more groups screaming for a piece of the pie than pies available for slices. Illinois is last because we have allowed it to be last. Everyone has got to step up to the challenge if they want change, or stop complaining and settle once again for last or worse. Your idea of working at the local level is just as important to promote lasting change within our communities. As you stated, that type of change happens over time.,A more immediate change for funding requires something more dramatic.  From: Diane S <swedegrlaol (DOT) com> Subject: Re: Civil Disobedience. .. IPADDUnite@gro ups.com Date: Thursday, July 16, 2009, 9:34 PM These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 I think many feel the futility because it is a yearly event at budget time. I was in Springfield last year and the people in attendancewere much smaller numbers. I agree that many have problems with arranging caregiving. This would have to be on a massive scale to make any difference from previous years. Illinois needs to see how many families are impacted. Certainly, other family members, friends or volunteers could represent those unable to attend. Each person " representing " should carry a sign or poster with a picture of the individual(s) they represent. That many faces makes the issue more real in terms of humanity. Legislators see numbers in budget terms. Numbers represented by people en masse is very powerful (as we just saw in Iran). The legislators have more groups screaming for a piece of the pie than pies available for slices. Illinois is last because we have allowed it to be last. Everyone has got to step up to the challenge if they want change, or stop complaining and settle once again for last or worse. Your idea of working at the local level is just as important to promote lasting change within our communities. As you stated, that type of change happens over time.,A more immediate change for funding requires something more dramatic.  From: Diane S <swedegrlaol (DOT) com> Subject: Re: Civil Disobedience. .. IPADDUnite@gro ups.com Date: Thursday, July 16, 2009, 9:34 PM These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 I think many feel the futility because it is a yearly event at budget time. I was in Springfield last year and the people in attendancewere much smaller numbers. I agree that many have problems with arranging caregiving. This would have to be on a massive scale to make any difference from previous years. Illinois needs to see how many families are impacted. Certainly, other family members, friends or volunteers could represent those unable to attend. Each person " representing " should carry a sign or poster with a picture of the individual(s) they represent. That many faces makes the issue more real in terms of humanity. Legislators see numbers in budget terms. Numbers represented by people en masse is very powerful (as we just saw in Iran). The legislators have more groups screaming for a piece of the pie than pies available for slices. Illinois is last because we have allowed it to be last. Everyone has got to step up to the challenge if they want change, or stop complaining and settle once again for last or worse. Your idea of working at the local level is just as important to promote lasting change within our communities. As you stated, that type of change happens over time.,A more immediate change for funding requires something more dramatic.  From: Diane S <swedegrlaol (DOT) com> Subject: Re: Civil Disobedience. .. IPADDUnite@gro ups.com Date: Thursday, July 16, 2009, 9:34 PM These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 I think many feel the futility because it is a yearly event at budget time. I was in Springfield last year and the people in attendancewere much smaller numbers. I agree that many have problems with arranging caregiving. This would have to be on a massive scale to make any difference from previous years. Illinois needs to see how many families are impacted. Certainly, other family members, friends or volunteers could represent those unable to attend. Each person " representing " should carry a sign or poster with a picture of the individual(s) they represent. That many faces makes the issue more real in terms of humanity. Legislators see numbers in budget terms. Numbers represented by people en masse is very powerful (as we just saw in Iran). The legislators have more groups screaming for a piece of the pie than pies available for slices. Illinois is last because we have allowed it to be last. Everyone has got to step up to the challenge if they want change, or stop complaining and settle once again for last or worse. Your idea of working at the local level is just as important to promote lasting change within our communities. As you stated, that type of change happens over time.,A more immediate change for funding requires something more dramatic.  From: Diane S <swedegrlaol (DOT) com> Subject: Re: Civil Disobedience. .. IPADDUnite@gro ups.com Date: Thursday, July 16, 2009, 9:34 PM These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 How many of the ARC members have developmental disabilities? That is my point. We have organizations that have family members representing them, but very few of them can represent themselves. From: ELLEN BRONFELD <egskbsbcglobal (DOT) net> Subject: Re: Re: Civil Disobedience. .. IPADDUnite@gro ups.com Date: Thursday, July 16, 2009, 10:13 PM I may be wrong but I think if we start changing the way our neighbors, our friends and our families think about our loved ones who have disabilities and if we get municipalities and townships invested in supporting the individuals with disabilities in their communities, even in some small way, we will spread our sphere of influence... This may be slow...it may take a good long while (think in terms of years) but until we reach a point where the majority of voters recognize that disabilities issues matter, we will likely to continue fighting in a vacuum. Ellen Ellen Garber Bronfeld egskbsbcglobal (DOT) net Re: Civil Disobedience. .. These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 How many of the ARC members have developmental disabilities? That is my point. We have organizations that have family members representing them, but very few of them can represent themselves. From: ELLEN BRONFELD <egskbsbcglobal (DOT) net> Subject: Re: Re: Civil Disobedience. .. IPADDUnite@gro ups.com Date: Thursday, July 16, 2009, 10:13 PM I may be wrong but I think if we start changing the way our neighbors, our friends and our families think about our loved ones who have disabilities and if we get municipalities and townships invested in supporting the individuals with disabilities in their communities, even in some small way, we will spread our sphere of influence... This may be slow...it may take a good long while (think in terms of years) but until we reach a point where the majority of voters recognize that disabilities issues matter, we will likely to continue fighting in a vacuum. Ellen Ellen Garber Bronfeld egskbsbcglobal (DOT) net Re: Civil Disobedience. .. These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 Quite a few of the Arc's board members have disabilities. Ellen Ellen Garber Bronfeld egskb@... Re: Civil Disobedience. .. These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 Quite a few of the Arc's board members have disabilities. Ellen Ellen Garber Bronfeld egskb@... Re: Civil Disobedience. .. These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 I will try to be at any rally that anyone cares to organize. A good friend and experienced advocate, Allan Bergman points out, " We cannot talk about community integration, valued roles and valued lives, social capitol, community contributions and employment and at the same time talk about putting up pictures of our children on signs because " they have no voice " and are dependent. Although our children have support needs, they do have voices and express themselves and their preferences in many different ways. If we lose that, we are back to pity, etc. Allan also points out that a cohesive set of values and guiding principles will help us stay on message as we advocate in our communities and in the state. Ellen Ellen Garber Bronfeld egskb@... Re: Civil Disobedience. .. IPADDUnite@gro ups.com Date: Thursday, July 16, 2009, 9:34 PM These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 I will try to be at any rally that anyone cares to organize. A good friend and experienced advocate, Allan Bergman points out, " We cannot talk about community integration, valued roles and valued lives, social capitol, community contributions and employment and at the same time talk about putting up pictures of our children on signs because " they have no voice " and are dependent. Although our children have support needs, they do have voices and express themselves and their preferences in many different ways. If we lose that, we are back to pity, etc. Allan also points out that a cohesive set of values and guiding principles will help us stay on message as we advocate in our communities and in the state. Ellen Ellen Garber Bronfeld egskb@... Re: Civil Disobedience. .. IPADDUnite@gro ups.com Date: Thursday, July 16, 2009, 9:34 PM These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 I believe every person with a disability can be supported to be a Self Advocate and represent themselves.? It all boils down to support.? Everyone needs support--some need more than others.? The Arc has been a leader in supporting people with developmental disabilities to participate as members of their Board of Directors. Fortunately for IPADD, Ellen posts The Arc's email notifications.? Everyone should be a member of The Arc of Illinois. Tony auski, of The Arc of Illinois, and Charlotte Cronin, of The Family Support Network, are some of my heroes.? Christensen, Advisor Self Advocacy Council of Northern Illinois 815-382-1530 clchristensen100@... www.sacni.org Re: Re: Civil Disobedience. .. IPADDUnite@gro ups.com Date: Thursday, July 16, 2009, 10:13 PM I may be wrong but I think if we start changing the way our neighbors, our friends and our families think about our loved ones who have disabilities and if we get municipalities and townships invested in supporting the individuals with disabilities in their communities, even in some small way, we will spread our sphere of influence... This may be slow...it may take a good long while (think in terms of years) but until we reach a point where the majority of voters recognize that disabilities issues matter, we will likely to continue fighting in a vacuum. Ellen Ellen Garber Bronfeld egskbsbcglobal (DOT) net Re: Civil Disobedience. .. These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 I believe every person with a disability can be supported to be a Self Advocate and represent themselves.? It all boils down to support.? Everyone needs support--some need more than others.? The Arc has been a leader in supporting people with developmental disabilities to participate as members of their Board of Directors. Fortunately for IPADD, Ellen posts The Arc's email notifications.? Everyone should be a member of The Arc of Illinois. Tony auski, of The Arc of Illinois, and Charlotte Cronin, of The Family Support Network, are some of my heroes.? Christensen, Advisor Self Advocacy Council of Northern Illinois 815-382-1530 clchristensen100@... www.sacni.org Re: Re: Civil Disobedience. .. IPADDUnite@gro ups.com Date: Thursday, July 16, 2009, 10:13 PM I may be wrong but I think if we start changing the way our neighbors, our friends and our families think about our loved ones who have disabilities and if we get municipalities and townships invested in supporting the individuals with disabilities in their communities, even in some small way, we will spread our sphere of influence... This may be slow...it may take a good long while (think in terms of years) but until we reach a point where the majority of voters recognize that disabilities issues matter, we will likely to continue fighting in a vacuum. Ellen Ellen Garber Bronfeld egskbsbcglobal (DOT) net Re: Civil Disobedience. .. These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2009 Report Share Posted July 18, 2009 That is true! We are still recovering emotionally from the last budget, and they are starting to work on the next! We need to plan further in advance, and not just hope it will all work out becasue of our phone calls and e-mails. But it is hard to get worked up for the FIGHT EVERY YEAR!!!! From: Diane S <swedegrlaol (DOT) com> Subject: Re: Civil Disobedience. .. IPADDUnite@gro ups.com Date: Thursday, July 16, 2009, 9:34 PM These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2009 Report Share Posted July 18, 2009 That is true! We are still recovering emotionally from the last budget, and they are starting to work on the next! We need to plan further in advance, and not just hope it will all work out becasue of our phone calls and e-mails. But it is hard to get worked up for the FIGHT EVERY YEAR!!!! From: Diane S <swedegrlaol (DOT) com> Subject: Re: Civil Disobedience. .. IPADDUnite@gro ups.com Date: Thursday, July 16, 2009, 9:34 PM These very road blocks to making ourselves and our voices be publically visable is why they pray upon our families. They see us as unable to fight long term, and therefore not powerful, s this is why we are chosen to be screwed. We are an easy target I'm afraind. Diane S > > Many families are talking about a plan to mount a civil disobedience campaign. > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > Do we: > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2009 Report Share Posted July 18, 2009 I too will show up at a largely single rally. I think there should be just one, the capitol on a day when lawmakers are in session, preferably on a day they vote. And Ellen you are absolutely right 500 in attendance is not gonna do it. If there is anyone who feels they are able to orginize something of this magnitude I will be there!!!!!!! I wish it could be me, but I would rather someone who is sure they could se the planning all the way through, it would be great. I work full time outside of the home as well as with my son, as well as still have other children at home as well. I can't organize something of this magnitude, BUT with a fair amount of notice I will definately take the day off from work!!!!!! Fair notice for me is a few weeks notice as I work with patients and as the only nurse in my area, I don't like to cancel patients getting their possibly life saving biopsies for any reason, short of I physically can't get to work due to a big time illness- however I will schedule cases around my days off. So that is my time frame. I can promise I would be there. Any takers for organizing and choice of a strategic date? There may be some thing I could do to help if I were not the primary organizer. I do have a computer and late weekend nights. Diane S. > > > > Many families are talking about a plan to mount a civil disobedience campaign. > > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > > Do we: > > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > > Ellen > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2009 Report Share Posted July 18, 2009 I too will show up at a largely single rally. I think there should be just one, the capitol on a day when lawmakers are in session, preferably on a day they vote. And Ellen you are absolutely right 500 in attendance is not gonna do it. If there is anyone who feels they are able to orginize something of this magnitude I will be there!!!!!!! I wish it could be me, but I would rather someone who is sure they could se the planning all the way through, it would be great. I work full time outside of the home as well as with my son, as well as still have other children at home as well. I can't organize something of this magnitude, BUT with a fair amount of notice I will definately take the day off from work!!!!!! Fair notice for me is a few weeks notice as I work with patients and as the only nurse in my area, I don't like to cancel patients getting their possibly life saving biopsies for any reason, short of I physically can't get to work due to a big time illness- however I will schedule cases around my days off. So that is my time frame. I can promise I would be there. Any takers for organizing and choice of a strategic date? There may be some thing I could do to help if I were not the primary organizer. I do have a computer and late weekend nights. Diane S. > > > > Many families are talking about a plan to mount a civil disobedience campaign. > > I haven't a clue how to do this since we don't have any seats on the bus to begin with... > > Do we: > > a. Sit on legislators doorsteps with our kids for the day (pulling them out of programs that still exist and disrupting their lives further...) > > b. schlep to Springfield, spending what little money we all have on hotels, further disrupting our lives and those of our children??? > > > > How do we conduct civil disobedience when we need to be home with our kids who have disabilities and be parents to our other children? What about those of us who work to put food on the table? Parks did not have a child with a disability.. .how do we match her vision with deeds that make sense for us? > > I am going to bed but I guarantee I will go to sleep thinking about this and I will wake up in the morning thinking about this... > > Ellen > > > > Quote Link to comment Share on other sites More sharing options...
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