Re: Re: Remission story/protocol Update!

[Guest guest]

Dear Jim,

I just want to thank you for posting updates. You guys are my heros and i

think about you often. It's so uplifting to know things continue to go well

fro Pam. It offers so much hope to the rest of us.

Blessings,

Virginia

At 03:16 PM 10/23/2003 +0000, you wrote:

>For those who may be interested I would like to give a update on

>Pam's progress.

>

>Around 07/10/03 Pam was getting alot of discomfort in the chest area

>so she called her oncologist and he had a cat and a CEA done, she

>was due for a CEA in a few weeks anyway. The cat showed a large

>buildup of scare tissue from the radiation but no sign of cancer and

>the CEA was 4.3 . This was good news and kind of bad news at the

>same time, we asked the doc when will the scare tissue stop building

>and he didn't seem to have a answer for us, he said she would

>probably always have some discomfort there and then he seemed to

>want to change the subject. As far as the CEA , the doc was happy

>with it and although 4.3 is normal it kind of bothered us because it

>seemed to be creeping up little by little but all in all it was a

>good day, the doc just said see you in 3 months.

>

>On 10/21/03 Pam had a CEA done, It was 3.8 this was great news,

>finally it is going in the right direction. The doc seemed really

>happy that day he said to Pam, you are unbelievable, you are truly a

>miracle then he said your immune system must be working well, that's

>when I said I think all the supplements she takes helps alot, the

>nurse that was new to us asked what supplements? I just said alot of

>different ones about 90 a day in all, her eyes got big and I could

>see the wheels turning but she just looked at the doc and didn't say

>much, the doc's ears where wiggling but he made no comment. Oh well

>who cares Pam is going to stick to her protocol and we will continue

>to take things one step at a time.

>

> Pam is still on the same protocol, I plan to reduce it slowly

>probably around the first of the year.

>

>I wish everybody well.

>Take Care

>Jim

>

>

>-

[Guest guest]

Dear Jim,

I just want to thank you for posting updates. You guys are my heros and i

think about you often. It's so uplifting to know things continue to go well

fro Pam. It offers so much hope to the rest of us.

Blessings,

Virginia

At 03:16 PM 10/23/2003 +0000, you wrote:

>For those who may be interested I would like to give a update on

>Pam's progress.

>

>Around 07/10/03 Pam was getting alot of discomfort in the chest area

>so she called her oncologist and he had a cat and a CEA done, she

>was due for a CEA in a few weeks anyway. The cat showed a large

>buildup of scare tissue from the radiation but no sign of cancer and

>the CEA was 4.3 . This was good news and kind of bad news at the

>same time, we asked the doc when will the scare tissue stop building

>and he didn't seem to have a answer for us, he said she would

>probably always have some discomfort there and then he seemed to

>want to change the subject. As far as the CEA , the doc was happy

>with it and although 4.3 is normal it kind of bothered us because it

>seemed to be creeping up little by little but all in all it was a

>good day, the doc just said see you in 3 months.

>

>On 10/21/03 Pam had a CEA done, It was 3.8 this was great news,

>finally it is going in the right direction. The doc seemed really

>happy that day he said to Pam, you are unbelievable, you are truly a

>miracle then he said your immune system must be working well, that's

>when I said I think all the supplements she takes helps alot, the

>nurse that was new to us asked what supplements? I just said alot of

>different ones about 90 a day in all, her eyes got big and I could

>see the wheels turning but she just looked at the doc and didn't say

>much, the doc's ears where wiggling but he made no comment. Oh well

>who cares Pam is going to stick to her protocol and we will continue

>to take things one step at a time.

>

> Pam is still on the same protocol, I plan to reduce it slowly

>probably around the first of the year.

>

>I wish everybody well.

>Take Care

>Jim

>

>

>-

[Guest guest]

I am so very happy and pleased that Pam is doing miraculously well and you are

both an inspiration.....Blessings, Bev.

Re: Remission story/protocol Update!

For those who may be interested I would like to give a update on

Pam's progress.

Around 07/10/03 Pam was getting alot of discomfort in the chest area

so she called her oncologist and he had a cat and a CEA done, she

was due for a CEA in a few weeks anyway. The cat showed a large

buildup of scare tissue from the radiation but no sign of cancer and

the CEA was 4.3 . This was good news and kind of bad news at the

same time, we asked the doc when will the scare tissue stop building

and he didn't seem to have a answer for us, he said she would

probably always have some discomfort there and then he seemed to

want to change the subject. As far as the CEA , the doc was happy

with it and although 4.3 is normal it kind of bothered us because it

seemed to be creeping up little by little but all in all it was a

good day, the doc just said see you in 3 months.

On 10/21/03 Pam had a CEA done, It was 3.8 this was great news,

finally it is going in the right direction. The doc seemed really

happy that day he said to Pam, you are unbelievable, you are truly a

miracle then he said your immune system must be working well, that's

when I said I think all the supplements she takes helps alot, the

nurse that was new to us asked what supplements? I just said alot of

different ones about 90 a day in all, her eyes got big and I could

see the wheels turning but she just looked at the doc and didn't say

much, the doc's ears where wiggling but he made no comment. Oh well

who cares Pam is going to stick to her protocol and we will continue

to take things one step at a time.

Pam is still on the same protocol, I plan to reduce it slowly

probably around the first of the year.

I wish everybody well.

Take Care

Jim

> Disclaimer

>

> Below is the story of my wife Pam and her battle with cancer

and

> what she did to go into remission and what she is doing to stay

in

> remission. This is in no way to be taken as medical advice. This

is

> for the readers information only. I am not a Doctor or have any

> medical background what so ever. I'm just a guy trying to do

what's

> best for his wife and now feels I should share this

information.The

> reader will read in places where I have expressed my opinion and

> that is all it is, MY opinion, it does not mean I'm right. My

> opinion is based on studies done by professionals and observations

> made by Doctors,pharmacist,chemist,herbalist,researchers,myself

and

> others. There is new information coming out every day that can

> change mine and others opinion at any time so I suggest to the

> reader to do their own research, consult with a professional, and

> always keep an open mind.

>

> No matter if the reader believes in the bible or not I think

this

> verse still holds true.

> Hosea 4:6 " My people perish for lack of knowledge "

>

> The reader will see in my wife's protocol where I have

supplied

> links to certain products.I have absolutely no connection with

these

> companies what so ever, I'm just telling the reader what and where

I

> get them. These links also have information that I find

interesting

> and the reader may find them interesting also. Again I suggest the

> reader do their own research.

>

> From the beginning

>

> Around 12/4/98 Pam felt a lump on the lower part of her neck. She

> called the doctor the next morning to get it checked and he made

an

> appointment with another doctor to take a biopsy .

>

> Around 12/20/98 the doctor did the biopsy

>

> Around 12/28/98 the results came back. It was cancer. The doctor

has

> no idea what kind. The doctor made an appointment for Pam to have

a

> CT scan.

>

> Around 01/04/99 the results of the cat scan were in. It showed

> something in the ovaries and two shadows in the mediastinum (in

the

> chest). The doctor made an appointment with a doctor that deals

with

> ovaries.

>

> Around 01/08/99 the doctor said there was definatly something in

the

> ovaries but because of the shadows in the mediastinum she was not

> sure what she was dealing with and thought it would be best to

send

> Pam to an ovarian cancer doctor at the Dana Farber cancer

institute.

> So she made a appointment for her.

>

> Around 01/12/99 the doctor at Dana Farber looked Pam over and then

> sent her to Brigham and Womens hospital down the street for some

> tests. The tests took about 3-4 hours and then back to Dana Farber

> we went. The doctor looked over the tests and said she wanted to

> take the ovaries out and that there is no way to tell if it's

> ovarian cancer or not until the ovaries are out. Pam had to go

back

> to Dana Farber one more time before the surgery and then the

surgery

> was set for 02/09/99.

>

> On 02/09/99 the surgery was done.The doctor said there were two

> tumors on one ovary and that she had another doctor look over the

> intestines and found nothing. The doctor said that it will take

some

> time to biopsy the tumors but she said she had a feeling it was

not

> the primary tumor and that it may not be ovarian cancer. The

doctor

> said they may never find the primary but she said we will have to

> wait for the results. This not finding the primary really confused

> us.The doctor gave Pam a prescription for Premarin and then Pam

went

> home a few days later and we waited for the results.

>

> Around 02/16/99 the doctor finely called, She said they checked

> three times to be sure and that was why it took so long. She said

> the tumors were not the primary and that she wanted to see her in

a

> few days.

>

> Around 02/22/99 we went back to Dana Farber to talk to the doctor,

> She looked Pam over and then we sat down to talk. She said she was

> going to set up a appointment to get a colonoscopy done in our

home

> town and then make an appontment with the cancer center in our

home

> town and send all Pam's records there. She said the oncologist's

> there was vary good. This sounded good to us not haveing to travel

> so far in all. We asked her about this unknown primary thing and

she

> just said sometimes you just don't find it. She seemed so casual

> about it that we got the feeling that it wasn't that bad, we

started

> thinking if it was so small that you can't find it then how hard

> could it be to get rid of it with a little chemo. Boy were we

dumb!!

> Anyway she said Pam was out of her field and that we were done

with

> her.

>

> Around 03/06/99 Pam got the colonoscopy done. The doctor only

found

> three polyps and he said that we would have to wait for the

results

> of the biopsy but he said I will tell you right now that they are

> not malignant. The results later showed he was right. At first we

> thought this was a good thing and then we started thinking, is

this

> good or is this bad?The fact was Pam still had a primary tumor

> somewhere and we still don't know where it was. This was getting

> very confusing but we were still telling ourselves things weren't

> that bad.

>

> Around 03/12/99 The big day has finally come. We had a appointment

> to see an oncologist at the cancer center in our home town and

> finely find out what Pam has and what they were going to do about

> it. When we got there a nurse started telling us all these things

> that made no sense to us and then the doctor came in and started

> saying things that made no sense to us and Pam and I looked at

each

> other like what in hell are they talking about? Finally Pam

stopped

> them and said well what do I have anyway? They both stopped and

then

> the doctor asked, have you been told the finel diagnoses? Pam said

> no, that's what I'm here for now, then she said again so what do I

> have? The doctor said he thought someone had already told her. We

> think Pam's primary care doctor was the one that was suppose to

tell

> her but somehow we went by him, anyway the doctor left the room

for

> about a half an hour and then came back. The doctor told Pam she

had

> adenocarcinoma of unknown primary stage IV metastasized to the

> ovaries, the lymph nodes in the neck and two places in the

> mediastinum. Pam asked what kind of treatment they had for it. The

> doctor said all they could do was to try to preserve the quality

of

> life and that anything they try would be a shot in the dark. He

said

> he had a feeling that the primary was in the small intestine and

> that the best bet was to go at it like colon cancer. He said that

he

> would start her with 5FU and leucovorin but he said she had only

> about a 20% chance of it working. Pam asked what if it does work?

> The doctor said all we can hope for is it can shrink the mets

> (metastasized or secondary tumors) but it will not get the primary

(

> the main tumor from where the cancer started). Pam said do you

mean

> I won't go into remission? He said no you won't, then he said

agian

> all we can do is try to preserve the quality of life. Pam said,

are

> you telling me I'm going to die? The doctor just sat there and

said

> nothing. Pam started to cry and then got up and went to the

> bathroom. At that time I looked at the doctor and said are you

> telling me there is nothing you can do? He raised his hand in the

> air and moved his fingers and said the seeds have spread too far

and

> it was too late. Pam came back and we asked more questions and the

> doctor could tell we were trying not to believe him. The doctor

> finely said he was going to send Pam back to Dana Farber to talk

to

> a gastrointestinal doctor for a second opinion and we said good.

The

> doctor said first he wanted Pam to have a CEA blood tumor marker

> done before she went. The CEA was 56.0, normal is 0.0 to 5.0 .

>

>

> Around 03/17/99 we headed for Dana Farber to talk to the

> gastrointestinal doctor. The doctor and his team went through all

> Pam's files and looked over the CT scans from back in Jan. and

then

> called us in to talk. The doctor said that he agreed 100% with

Pam's

> oncologist all the way down to it may be in the small intestine.

> That was not what we wanted to hear.

> The doctor said that it would be best to wait and see if the

primary

> shows up or the mets get to big before she tried any chemo. He

said

> that it was a shot in the dark and that it might run her down for

no

> reason, he said if the primary showed up they would have a better

> way of knowing what may help or not, he said that this would be

the

> best way of inproving the quality of life. The doctor said Pam

> should have a cat done every 3 months starting from the last one

in

> Jan. so she only had about 2 more weeks before the next one. Pam

> asked if there was any hope of going into remission, he said no.

Pam

> said so your'e saying there is no hope? He said your'e young (46

at

> the time) and then he said he had a 70 year old women with almost

> the same diagnoses as her and she died within a month and said you

> are clearly doing a lot better then that. That didn't help. So Pam

> was told to do nothing untill something showed up.

>

> Around 03/21/99 we went back to see Pam's oncologist and told him

> what the gastrointestinal doctor said but I think he already knew,

> he just wanted to hear it from us so he knew we knew. He made a

> appointment for a cat in about a week.

>

> Around 03/25/99 Pam and I had watched a women on the show Hard

Copy

> that had terminal Breast cancer and was given 3 months to live and

> reversed the cancer with NasalCrom (Cromolyn sodium) or (Disodium

> Cromoglycate)or (Intal) With a little research I found that it

> helped inhibit protein kinase C for in turn inhibited angiogenesis

> and also helps to build or regulate white blood cells, so we said

> why not, It can't hurt, so Pam started snorting it 3 to 4 times a

> day. I even thought of getting the pill form from the doctor

> thinking it would get to the tumor in the small intestine better

but

> I never did. Jence the women on Hard Copy later started

> useing one of those mist pipes they use to clear the lungs 3 times

a

> day but Pam never did that either. Anyway I guess this was the

start

> of us doing something complimentary on our own.

>

> Around 04/01/99 Pam had the cat done and went in to see the

> oncologist. The doctor said that the cat showed that the tumors in

> the mediastinum had grown a lot and that he felt he should get her

> on 5FU now, today. Pam asked what the doctor at Dana Farber

thought

> and he said he would call him right now. The doctor agreed so Pam

> started weekly 5FU and leucovorin, 6 weeks on and 1 off, that day.

>

> Around 05/18/99 Pam finished her first round of 6 and than had

> another cat and CEA done on her off week and then she saw the

doctor

> The cat showed about a 30% drop in size to the tumors in the

> mediastinum and no new mets (matastases/spread) the CEA dropped to

> about 16.0 . This was the best news we had in about 5 months. Pam

> continued with the 5FU and snorting the NasalCrom.

>

> Around 06/28/99 Pam had another CEA done. It was about 13.0

>

> Around 08/10/99 Pam had another cat and CEA done. The cat showed a

> little drop in tumor size and no new mets and the CEA was about

11.0

> plus the lump in the lymph node in her neck was gone. This sounded

> good until the doctor said that the cat showed nothing in the

liver

> yet, but it will. Just like that (but it will) This told me I had

> better get searching for something, anything that might help

because

> this oncologist sounded to darn sure of himself. By the way, Pam's

> oncologist has been doing this for many years and has a lot of

> experience and that's what really scared us.

>

> Around 08/18/99 I had an appendix attack and had to have it taken

> out. I was out of work for some time and had a lot of time on my

> hands so I started searching the net for anything that might help.

> Up until then I was looking mostly into conventional medicine with

> no prevail. I started searching alternative and complementary

> treatments and found so many I didn't know where to start first.

> Laetrile or vitamin B17 was one that seemed to catch my interest

so

> I started to research it.

>

> Around 09/10/99 Pam had another CEA done. It was about 14.0

>

> Around 09/15/99 By this time I had read so much about laetrile,

> apricot seeds, pancreatic enzymes and antioxidants that I was sure

> there was something to it. I showed Pam a lot of the information I

> was reading and we both decided why not? So Pam started all of the

> following very slowly until she was up to 3000 mg of laetrile, 20

> seeds, 9 tab's of Megazyme, 1000 iu Vit. E, 2000 mg Ester Vit. C,

> 25000 iu beta carotene, 200 mcg of selenium, 100 mg Vit. B15,

shark

> cartilage about 10 grams, and a good multiple vitamin per day and

> stopped all refined sugar intake. Not long after Pam started this

> protocol she stopped snorting the NasalCrom, one is only supposed

to

> use it for no more then 6 weeks and Pam had been on it for 6

months.

> I still, to this day, don't know if it helped or not but looking

> back maybe it helped to stop it from spreading farther. See link

> below.

>

> http://www.cancerhelp.org.uk/help/default.asp?page=2513

>

> Around 10/10/99 Pam had another CEA done. It was about 18.0 and

the

> lump in her neck was back . The doctor said that the 5FU was not

> working anymore. He said in the begining that the 5FU would

probably

> only work for about 6 months or so and he was right. He told Pam

to

> wait about 2 weeks and then he will try something else.

>

> Around 10/24/99 I had read a lot about Premarin and found it was

bad

> stuff so Pam got off it.

>

> Around 10/25/99 Pam's oncologist started her on Camptosar 6 weeks

on

> 1 off.

>

> Around 12/05/99 Pam had a cat and a CEA done on her off week. The

> cat showed that the tumors in the mediastinum had grown some more

> but no new mets and the CEA was up to about 24.0 so the Camptosar

> was clearly not working. The doctor told Pam to take about 2 weeks

> off and then he will try something else. Pam was glad to get off

> that stuff because it made her very sick. In the meantime I added

> Maitake D Fraction 21 caps, IP6 2 scoops a day, 7 Keto DHEA 25

mg,

> grape seed extract 1000 mg, Co Q10 400 mg, MSM 2000 mg, milk

thistle

> 450 mg, Fish oil 4 grams, Lyprinol 150 mg, Cats Claw 1500 mg, zinc

> 30 mg and 200 more mcg of selenium to Pam's Protocol per day. By

the

> way Pam's Protocol was divided to 3 doses in the day.

> Note: Back when Pam started the Megazyme each tab had 10 mg of

zinc

> gluconate in them and now only has 2 1/2 mg per tab so I think

it's

> important that the reader knows that between the Megazyme, the

> multiple and the 30 mg Pam was getting 130 mg of zinc a day.

>

> Around 12/19/99 The Dr. started Pam on Gemcitabine (Gemzar) 6

weeks

> on 1 off. About this time I took Pam off the shark cartilage. From

> the research I had done I found that it didn't work well taken by

> mouth. I found that the best results were when one takes it in

large

> quantities by way of a enema two or three times a day and Pam

would

> have none of that. So much for that.

>

> Around 02/01/00 Pam had another cat and CEA done. The cat showed

> that the tumors in the mediastinum had shrunk by about 30% and

there

> were no new Mets and the CEA went down to about 16.0. This was

great

> news.

>

> Around 03/10/00 Pam had another CEA done. The CEA was about 14.0.

In

> the meantime I started Pam on Red21 Ellagic Acid and then a lot

> later changed to Ellagic plus 4 caps a day. I also had Pam on

about

> 500 mg of Vit.B3 niacin for a little while but then decided it may

> not be a good idea with the chemo so I took her off it.

>

> Around 03/15/00 I had done a lot of reading on Flax seed oil and

> cottage cheese and we decided to give it a try. Pam said there was

> no way she could eat the Flax oil and cottage cheese alone so I

had

> to make it into a smoothy. I used a 3/4 cup of low fat cottage

> cheese, 3 tablespoons of Barlean's flax oil, 1/2 cup frozen red

> raspberrys, 3 apricot seeds, 1 cup of concord grape juice, 1 cap

> Ellagic acid and a few ice cubes so the flax won't heat up in the

> blender. I did this twice a day. Pam really liked it a lot, in

fact

> I think she kind of looked forward to it. I dropped the Fish oil

to

> 2 grams a day and the Lyprinol to 50 mg a day when she started the

> Flax oil. If the reader is wondering why I was changing things and

> adding things when the CEA was going down I realized that the

chemo

> and my protocol was probably not going to put Pam into remission

(but

> I think the protocol stopped the Mets and was keeping her strong)

> and didn't know if there was any chemo left that would work at all

> so my only hope, and Pam's of course, was to find a protocol that

> would put Pam into remission before the chemo stopped working.

>

> Around 04/01/00 I droped the laetrile down to 2000 mg and Pam went

> down to eating 10 apricot seeds a day. I also dropped the maitake

d

> fraction down to 15 caps and I added 100 mg of vit. B6 a day.

Back

> on 9/15/99 Pam stopped all refined sugar, she started using

powdered

> Stevia in her coffee for awhile but didn't like the aftertaste so

> she had been using aspartame (bad stuff) untill I started thinking

> maybe even though raw honey is sugar it is probably better then

> aspartame. Personally I don't like any sugar when one has cancer

and

> I don't like aspartame period, and that goes for the other

synthetic

> sweeteners also. So Pam started putting raw honey in her coffee.

> While I'm on the subject of coffee/caffeine I just want to say

that

> I had done some research on caffeine and cancer and for everything

I

> found against it I would find something for it. It seems to be 6

of

> 1 and a 1/2 dozen of another. The jury is still out on this one.

> Personally I'm leaning towards it doing more good then harm but

I'm

> still not sure. I kind of like this explanation myself.

>

> http://www.lef.org/magazine/mag2002/aug2002_report_caffine_01.html

>

> Around 05/15/00 Pam had another CEA done. It was about 12.0

>

> Around 06/30/00 Pam had another CEA done. It was about 11.0. The

> doctor commented on how well Pam was doing and he couldn't seem to

> get over how well Pam was holding up to the chemo, he said you

must

> just be one of those people that have a high tolerance for it. He

> made these comments on a lot of visits, he would say things like,

> you are just plan amazing on a lot of visits. Pam told him of all

> the things she was takeing about 8 months earlier but maybe he

> forgot or just didn't give it a thought, anyway we never mentioned

> it again except when the nurse asked if Pam was taking anything

and

> Pam would answer, a whole lot of supplements, and the nurse would

> say, what, and Pam would say, way too many to write down now, then

> the nurse would just say OK, then she would write something down

and

> that would be it. This happened a lot with different nurses but

we

> could tell nobody really cared, so why talk about it. They did

their

> thing and we did ours. Well anyway, by this time I had done a lot

of

> reading on parasites and cancer. Now I don't know if parasites

cause

> cancer or not but I have always known that a lot of people get

them

> and there is no doubt in my mind if one has them, and can get rid

of

> them, one would be a whole lot better off. So I asked Pam if she

> would try the parasite cleanse and she said you first. So I

ordered

> the wormwood, the clove and the black walnut hull tincture and did

> the 21 day protocol. On about the 16th day I had a bowel movement

> that was very strange, it looked like something I can't explain,

and

> the methane smell was real bad. I had read that the methane smell

> was from dead Parasites and I had no reason not to think

otherwise.

> I don't think this was just some strange coincidence I really

think

> it worked. It was very strange to say the least. Pam did the 21

day

> protocol but didn't have anything dramatic happen like I did but

she

> did have some changing in color and a little diarrhea and all I

> could think was maybe everything came out so slowly it wasn't all

> that noticeable, anyway I was glad she did it.

>

> Around 08/15/00 Pam had another CEA done. It was about 14.0

>

> Around 09/15/00 Pam had another CEA done. It was about 24.0 and

the

> lump in her neck was back. The doctor said the Gemzar was not

> working anymore and he said that Pam should take some time off.

The

> doctor said that he was going to try Taxol ( Paclitaxel ) next but

> he said he wanted to wait until the first of the year to do it. I

> could tell that even though the doctor thought Pam had done really

> good up until then, he had never changed his thoughts from the

> beginning. He was still just trying to preserve the qualty of life.

>

> Around 10/10/00 Pam was haveing a hard time breathing and saw her

> oncologist. The doctor thought it may be a lung infection so he

put

> her on some antibiotics.

>

> Around 10/20/00 Pam and I was walking along the river and came to

a

> small hill, Pam could hardly breathe by the time we got to the

top.

> Something was wrong, it seemed to get a little worse every day and

> she couldn't stop coughing.

>

> Around 10/25/00 Pam saw her oncologist and he had a cat and a CEA

> done. The CEA was at 225.0 and the cat showed that one of the

tumors

> in the mediastinum was pressing on her windpipe cutting her air

off,

> but at least there were no new mets. The tumors for some reason

> started to grow real fast, faster than the doctor ever thought it

> would. The doctor told Pam she will need radiation right away.

>

> Around 10/26/00 I kind of panicked, I just couldn't figure out

what

> was causing the tumors to take off like that and my thoughts were

> bouncing everywhere. Finely I decided to drop the co Q10 to 200 mg

> and take Pam off the IP 6, B15 and the Flax oil, and told her to

> stop putting honey in her coffee. I brought her up to 4 grams of

> cold water salmon oil and 2400 mg of a omega 3 complex that

> included 800mg of flax oil shortly after. Now taking Pam off the

IP

> 6 and the B15 didn't bother me because I had been thinking of

taking

> her off them anyway and the raw honey/sugar was no question, it

had

> to go, but the Flax oil and cottage cheese has bothered me ever

> since I took her off it. In all the research I had done up until

> then I had come across many alternative doctors, herbalist and

> other people that say that many times when on something that works

> that the tumors will grow very large and the blood tumor marker

will

> go very high before it gets very small / low or goes away

> altogether. Doctor Kelley comes to mind. I wonder sometimes if it

> hadn't been for the tumor pressing on the windpipe would it have

run

> it's course and then disappeared? Or, if it wasn't for the tumor

> pressing on the windpipe would it of gone unnoticed until it was

to

> late? Another thought is, in my research, I had read that a lot

of

> times when the primary is killed before the mets the mets take on

a

> new life and start to grow much faster because they are not taking

> signals from the primary. Now if the primary is in the small

> intestine it would not be to inconceivable to think that maybe the

> FO/CC along with everything else killed the primary before the

mets

> because that's where everything goes first. I guess I will never

> know the real answer to these questions but Pam is OK and that's

> what counts. Anyway I never did put Pam on the FO/CC again but I

> really don't want to discourage it because, in my research, I have

> come across many people that I believe to be very sincere when

they

> say that it helped their cancer alot, so like I said at the top,

do

> your own research and keep an open mind. By the way sometime later

> Pam told me she really missed the smoothies I made her every day.

> She really liked it. It was too bad that the one thing in her

> protocol she really liked I took away.

>

> Around 11/01/00 Pam started the radiation.

>

> Around 11/07/00 Pam was starting to breathe better and the

coughing

> slowed down.

>

> Around 11/25/00 Pam was done with the radiation and had a cat

done.

> The cat showed that the tumors went down about 30% and no new

mets,

> the doctor said he will start her on Taxol the first of the year.

>

> Around 12/02/00 Pam was feeling a lot of tightening around her

> chest, she said it was like a band around it. We knew it was from

> the radiation. She also had to lean to one side to burp, we think

it

> was because the tumor was so close to the windpipe that the

> radiation hit the windpipe about the same amount as the tumor.

Pam's

> oncologist thinks so to. She still has this tightening and also

> leans to burp to this day, but it is not as bad as it was in the

> beginning.

>

> Around 12/07/00 Pam started getting heart palpitations and getting

> very dizzy almost to the point of blacking out but she didn't say

> anything to me until sometime later. She said she had hoped it

would

> go away. It didn't. Pam made an appointment with her oncologist.

>

> Around 12/14/00 Pam never made it to see her oncologist, the

> palpitations were so bad she had to go to the emergency room.

After

> all the tests, they found that she had a lot of liquid around her

> heart so they put her in ICU and put a port in her and started

> draning the liquid out. We think the radiologist went a little too

> far but of course he didn't think so. Later, Pam's oncologist

agreed

> with us.

>

> Around 12/18/00 Finally after 4 days in ICU the liquid stopped

> building and they let Pam go home. They took a sample of the cells

> in the liquid and said we would get the results later.

>

> On 12/26/00 Pam's primary care doctor wanted to see her. He said

he

> had the results of the cells in the liquid and that he had bad

news,

> he said that the liquid was full of live cancer cells and that

they

> had been seeping into her system. This scared the hell out of me

but

> for some odd reason it didn't seem to get Pam very upset at all.

> Maybe she had been at it for so long she was just getting used to

> bad news, I don't know. Anyway we just stayed positive, and didn't

> talk about it after that. While we were there the doctor asked Pam

> if she was taking any medication and Pam just said a lot of

> supplements, the doctor said that's good and then asked what she

was

> taking. Pam and I started to tell him all the different things she

> was taking and to our surprise he said that was great and then

made

> some comments on some of the things and also said that there were

> some things he didn't know about so he couldn't comment on them.

> Then the big one came,Pam said I'm also on laetrile. The doctor

> looked at Pam and said in a loud voice, I think that's great!

Well,

> Pam and I almost fell out of our chairs, then Pam asked in a very

> low voice, do you know what laetrile is? The doctor said in a even

> louder voice, yes I do and I think that's great, keep it up! He

> never elaborated on why he thought it was great but we sure liked

> the way he sounded. By the way while we were there the doctor gave

> Pam a great tip on how to stop palpitations. He said to close your

> eyes and then put your fingers on your eyeballs and apply a lot of

> pressure for about 30 to 60 seconds. You may have to do it 3 or 4

> times. Every once in a while I will get palpitations, probably

from

> too much coffee, anyway I have done this about three times and it

> worked every time. I just thought that would be good to know, I

> think it's pretty cool myself.

>

> On 12/28/00 Pam went in to see her oncologist. He said because of

> all that has happened that she needed to get on Taxol today.

(weekly

> taxol 135 mg 6 weeks on 1 off) He said that if the Taxol doesn't

> work there is nothing else out there at this time. Pam had read a

> few bad stories about Taxol and the allergic reactions one might

get

> from it (Pam has allergies) and was very nervous. Pam took a walk

> around the bulding to think about it. The doctor came up to me and

> told me that she has got to do it today and that he was worried

> about the live cancer cells that seeped into her system. I said I

> know and she will, just give her some time. Finally Pam got it

done,

> but I had never seen her that scared in my life. The other chemo's

> didn't seem to bother her much but for some reason Pam had a bad

> feeling that this stuff was going to kill her. As time went on it

> got easier for her.

>

> On 12/28/00 Pam had to see a heart doctor right after her first

> Taxol treatment. The doctor looked Pam over and then asked if she

> was taking any antioxidants. Pam told him what she was taking and

he

> said that's good and then started to write it all down. He

commented

> on some and said he couldn't comment on others but all in all he

had

> no problem with anything. We never said anything about the

laetrile,

> it had been a long day and we just didn't want to get into it. The

> doctor told Pam she should be taking at least 1000 mg of calcium,

> she was only getting about 200 mg at that time. The doctor

> prescribed Digitek and Atenolol. The next day I dropped the co Q10

> down to 100 mg because I was not sure if 200 mg was too much or

not

> enough with the beta blocker, and I added 1000 mg of calcium with

> 400 iu Vitamin D3 and 500 mg of magnesium. I also, around this

time,

> took Pam off the Ellagic Acid. In my research I found that Ellagic

> Acid has the ability to inhibit a lot of the phase 1 P450 enzymes

> that are responsible for drug/pharmaceutical matabolism and at the

> same time it has the ability to enhance the phase 2 P450 enzymes

> responsible for detoxification ( although some phase 1's do

> detoxify ). Now to me this is absolutely great, it helps to stop

> chemicals/toxins from entering the cells, and then when some do

get

> through it enhances the ability to detoxify them, but when one is

on

> chemo one wants the opposite effect in the short term. I believe

> Ellagic Acid has the ability to stimulate the efflux pumps in the

> cells, these are tiny little pumps in the cells that pump out

> toxins. The cancer cell or cells making up a tumor over time have

> the ability to grow more pumps which in turn gives the cells/tumor

> the ability to pump out more toxins/chemo. This is the main reason

> for chemo resistance but not the only one. The longer the tumor is

> there, the more pumps it will have, and the more resistant it will

> be, this is why both Pam's oncologist and the gastrointestinal

> doctor at Dana Farber said that they may shrink or even get the

> mets/secondary tumors but they can't get the primary because the

> mets have not been there as long as the primary. They think Pam's

> primary, as small as it is, has been there for a long time.

Anyway,

> my thoughts on it is hold back until after chemo and then go for

it.

> This is just my take on it, it does not mean I'm right, It is

> interesting to note that LEF recommends their multiple that has

130

> mg of Ellagic acid in it for chemo and they know a heck of alot

more

> then I do on the subject, so please do your own research. Below is

> some info on detoxification and the P450 enzymes.

>

> http://www.thorne.com/altmedrev/fulltext/detox3-3.html

>

> Around 01/02/01 I found that selenium worked well with taxol so I

> went from 400 mcg to 800 mcg a day and gave Pam 400 mcg 2 hours

> before taxol. Below is some info on selenium and taxol. At one

time

> over 2 1/2 years ago there was a news article of a study done by

> Dana Farber where they were very excited with the results of using

> selenium 2 hours before taxol. Oddly it disappeared. I wonder why?

>

> http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

> cmd=Retrieve & db=PubMed & list_uids=10928049 & dopt=Abstract

>

> On 01/03/01 Pam had a CEA done. Her oncologist needed a starting

> point because they never got a CEA done after the radiation. It

was

> 96.0

>

> On 01/24/01 Pam's oncologist said her white blood cells were kind

of

> low( borderline ) and he wanted to make sure she got through all 6

> treatments so Pam got one of those booster shots ( I forgot what

you

> call it ) and was fine after that. That was the first and only

time

> Pam had to have the booster. In the meantime I ran out of Liprinol

> and I never did order more. Looking back I think that was kind of

> stupid. Liprinol is a unique omega 3 with a whole different chain

> and supposed to be a good cox 2 inhibitor, but anyway things

turned

> out ok so I guess it didn't make that much difference. I also

> dropped the grape seed extract, I don't really know why, I guess I

> had chemo resistance on my mind, but looking back I don't think it

> would have hurt anything and probably would of helped some.

>

> Let me recap Pam's protocol at this point because I had made so

many

> changes I think I should regroup. At Pam's request on the first of

> the year the dosage was divided to twice a day instead of three

> times a day. I like three myself. I will put M for morning, N for

> night and 0 for none.

>

> Multiple Vitamin Solgar no iron M & 0, laetrile 1000 mg M & N,

Magnizyme

> Forte Plus 4 tabs M & N (now called Omnizyme), Ester C 1000 mg M & N,

> Matake D Fraction 7 caps M & N, Cold water Salmon oil 2 grams M & N,

> Omega 3 complex 1200 mg M & N, Co Q10 100 mg M & 0, Calcium 500 mg

with

> Vitamin D3 200 iu and Magnesium 250 mg M & N, Cat's Claw 500 mg M & N,

> Zinc Chelate 30 mg M & 0, Selenium from yeast 400 mcg with 100 iu

> vitamin E M & N, Vitamin E 400 iu M & 0, MSM 1000 mg M & N, Vitamin B6

> 100 mg M & 0, Vitamin A 10,000 iu M & 0 every other day,

> 7*Keto DHEA 25 mg M & 0, Milk Thistle 150 mg M & N, B complex 50 mg

M & 0,

> Apricot seeds 10 divided in the day, Drug Atenolol 25 mg M & 0, Drug

> Digitek 0.125 mg M & 0, Pam would take a 1/2 a Valium once in a

great

> while when she felt some stress coming on. Stress can excellarate

> cancer. Pam tried to eliminate stress as much as possible.

>

> Note: On Chemo/taxol day Pam would only take 400 mcg of selenium

> with 100 iu Vit. E 2 hours before. Pam would skip the rest of the

> morning dose and only take the nightly dose that night and then

back

> to normal the next day.

>

> On 02/08/01 Pam had a cat and a CEA done. The cat showed that the

> tumors in the medistinum had srunk well over 50% and no new mets

and

> the CEA was 13.4 . Plus the lump in her neck was gone. This was a

> really good day.

>

> On 04/05/01 Pam had a CEA done. It was 2.6 ( NORMAL!!!!!!! ) This

> surprised us and the doctor, then to top it off a few days earlier

> Pam had a follow up with her heart doctor and he had some blood

work

> done and unknown to us he had a CA-125 blood tumor marker done and

> sent it to Pam's oncologist. It was 13.0 . Normal is 0 to 35 .

This

> was a great day but we never heard the word we had been longing to

> hear ( remission ) still a great day anyway. We can wait. From

here

> the oncologist started slowly bringing Pam down to a maintenance

> dose. Pam went 4 on 1 off, 4 on 1 off, 3 on 1 off, 2 on 1 off, and

> finally around 08/10/01 she was down to 1 treatment of 135 mg

every

> other week from then on. I don't know what Pam's oncologist was

> thinking when he put Pam on a maintenance dose of every other week

> but I had read that low dose Chemo/Taxol for a extended period of

> time, 1 year or more, has had much better results with chemo

> resistant tumors, held remissions longer (if not forever), and had

a

> lot less side effects. It is thought that when one goes from high

> dose to low dose chemo, the chemo goes from killing cancer cells

to

> cutting off the blood supply to the tumor called angiogenesis

> inhibition, although it will still kill cancer cells the

> conventional way to some degree, new mets for instance. The link

> below explains this concept better and although taxol at 135 mg

> every other week for a extended period of time dosn't seem the

same,

> to me it seems similar.

>

> http://www.cancerprotocol.com/low_dose_chemotherapy.html

>

> Around 06/05/01 Pam had a CEA done. It was 1.8 . We still didn't

> hear that word but it was another great day.

>

> Around 08/10/01 Pam had a CEA done. It was 1.9 . We still didn't

> hear that word.

>

> Around 11/01/01 Pam's oncologist wanted to do another CEA. Pam

said

> no. Pam told the doctor that she has had the last three holiday

> seasons ruined and that she just didn't want to know antthing or

> even think about it until after the first of the year. The doctor

> just said ok, he didn't seem to have a problem with it so Pam

> continued with the Taxol every other week, stuck with her

protocol,

> and we had a good holiday season.

>

> Around 01/10/02 Pam had a CEA done. It was 1.6 . This was great

> news. I don't mind saying that I was getting kind of nervous

because

> it had been so long. What a relief!! I always try to refrain

myself

> from negative thoughts when I'm around Pam. I stay positive

thinking

> most of the time for it helps Pam to stay positive, although Pam

> dosn't need much help in that department. Pam is one incredible

> women, and I'm not just saying that because she is my wife, I

really

> mean it, she is incredible, right from the beginning when she was

> getting all kinds of bad news I would watch her go into a kind of

> low for a short period, sometimes only minutes, and then shrug it

> off and then put a smile on her face and crack a joke or two. The

> doctors and nurses always seemed to be amazed with her attitude

and

> friends, family and the people she works with never seemed to

really

> realize how serious Pam's situation was and I think that was just

> what she was trying to do. It helped to keep negative thoughts

away,

> although most people were positive thinking around Pam and I think

> that helped alot. Over this whole ordeal Pam had alot of the usual

> signs of someone on chemo like with the 5FU she lost her eyebrows

> and had some black and blues, her hair thinned on the gemzar and

she

> lost her hair alltogether on Taxol and had to wear a wig, she had

> lost a lot of weight but with her attitude and joking about her

> overall appearance it seemed to make everybody think that things

> were just fine, myself included. I don't know what I would do if

Pam

> didn't have this positive attitude, it sure helped to keep me

calm,

> and still does. Pam told me not too long after the final diagnosis

> that she was not going to let it eat at her and that she was going

> to try and stay positive and not dwell on it. Pam has done that

very

> well. Some people have this ability to switch things off when they

> want to. I know things enter Pam's head a lot but then she manages

> to switch it off and go on, I beleive that this ability

contributed

> a lot to Pam's remission, I don't know if I could do the same if I

> was in the same situation. I guess I will never know unless I have

> been there.

>

> On Pam's last visit with her oncologist he said he was going to go

8

> more weeks (that's 4 more treatments) and then give her a break.

Yup

> that's what he said, a break. I knew then that's why he wouldn't

say

> the word remission because he thought the taxol was just holding

the

> cancer back, but I can't help but think by this time that deep

> inside he thought remission was possible. I think he just didn't

> want to get Pam's hopes up too high only to be let down a short

time

> later. I remember saying to myself, break my ass, Pam's going to

> show him a long break, like forever.

>

> Around 01/15/02 I started to hit the net hard, or harder, I should

> say. Pam thinks I spend way to much time on the net researching,

> about 4 or 5 hours a day, but I just can't stop, I'm always afraid

> I'm going to miss something important. I feel that one usually

only

> gets one chance at this so one had better make it a good one. All

I

> can say is thank God for the net. Anyway I discovered that Pau d

> Arco/Beta lapachone and vitamin D3 was synergistic to taxol. Beats

> me how that got by me but I figured better late then never, so I

> made some strong Pau d Arco tea and Pam started drinking 8 oz of

it

> twice a day and then later once a day. I also got some Pau d Arco

> extract, Pam put a teaspoon in her coffee every morning. Pam was

> getting 800 iu of vitamin D3 a day and I remember thinking maybe

it

> helped a little bit, but I added 2000 more IU's from then on. Pam

> drank the tea just before bed the night before taxol day and then

> put the extract in her coffee 2 hours before taxol that morning.

Pam

> would also drink coffee during treatment. I would like to remind

the

> reader of the earlier link on caffein and chemotherapy. In my

> research on taxol I made an observation that I'm not really sure

> about, but in my research I would find little bits and pieces

> indicating the ability of calcium and zinc to actually enter the

> microtubule and straiten, open and stabilize them and let the

taxol

> enter. This is how taxol works, although it is a lot more

> complicated than this, It enters the tiny tubes called microtubles

> in the cell, then stabilizes them, then when the immortal cancer

> cell goes to divide in two it dies naturally instead of

continually

> multiplying into a tumor or a larger tumor. I have read a lot of

> testimonials of people on taxol along with taking a complementary

> protocol and the ones that had really good results I noticed they

> all had one thing in common, they all took 1000 to 2000 mg of

> calcium and at least 50 mg of zinc or more. Of course they where

> doing a lot of the same antioxidants also. Now I'm sure these

people

> wasn't thinking of this microtuble thing when they started taking

> calcium and zinc but they may have added a little extra punch

> without knowing it. Anyway, Pam was already on 1000 mg of calcium

> and 120 mg of zinc from the beginning of taxol so maybe she got

that

> little extra punch also. Like I say, this is just a observation

and

> who knows, maybe I'm all wet, but in my opinion when one is on

chemo

> one has to replace the calcium and zinc that the chemo sucks out

> anyway. And also a high intake of calcium has been connected with

a

> high PH and a high intake of zinc has been connected with

rebuilding

> the thymic gland that is responsible for a major part of the

immune

> system, chemo depletes the thymic gland. And high zinc has also

been

> connected with copper inhibition which, in turn, causes

angiogenesis

> inhibition. So to me it's a win win situation. Remember, this is

> just my own theory, do your own research.

>

> Here is some info on Pau D Arco/Beta Lapachone and Taxol. Notice

on

> the first link where they say beta lapachone alone worked about

the

> same as taxol alone. To me that's a mouthfull. Dana Farber made

the

> same comment about selenium and taxol in the news article that

> disappeared. I just find that very interesting.

>

> http://www.dana-farber.org/abo/news/pressarchive/110899_b.asp

>

> The reader will see on the next link where Dana Farber sold the

> rights to beta lapachone under the name CO-501.

>

> http://atlas.pharmalicensing.com/news/adisp/981071183_3a79f54f91d29

>

> The reader will see on the next link where CO-501 is going into

> clinical trials in mid 2003. Yup, this year.

>

> http://216.239.37.100/search?

> q=cache:0D5pfOzwEUEC:www.cyclispharma.com/about/+co-

> 501+cancer & hl=en & ie=UTF-8

>

> Another news article

>

> http://www.annieappleseedproject.org/paudarandtax.html

>

> Go below to PubMed and type in beta lapachone to see all the

studies

> being done.

>

> http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?CMD=search & DB=PubMed

>

> Below is some info on Vitamin D3 and Taxol. Notice in the first 2

> links where they say that Vitamin D3 worked better alone then

Taxol

> alone. They have been using different D3 analogs in the studies

but

> I would almost be willing to bet that the more natural form from

> supplements would work as well. Notice I said more natural, the

real

> natural form you get from the sun and your own body.

>

> http://www.annieappleseedproject.org/comefofvitd3.html

>

> http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

> cmd=Retrieve & db=PubMed & list_uids=10326788 & dopt=Abstract

>

> http://www.annieappleseedproject.org/vitdanditsan.html

>

> http://www.annieappleseedproject.org/vitd3anclaso.html

>

> http://www.lef.org/protocols/prtcl-027e.shtml?GO.X=8\ & GO.Y=6

>

> Around 01/20/02 I had about 10 days worth of wormwood left with

> about 2 months left on them so Pam used them up.

>

> On 02/28/02 Pam had her last taxol treatment.

>

> On 03/13/02 Pam was off chemo and Pam and I were bound and

> determined she was going to stay off it. We decided to add and

> change a lot of things in the protocol, a sort of post chemo

> protocol athough there is a lot of things in it that I probably

> should have had her on right along. I also made a big change in

the

> brands I buy. It had always been hard enough to figure out what

type

> of supplements to buy but to figure out from who was just about as

> hard. I used a lot of different brands and I'm sure most of them

> were just fine but I was getting tired of going all over for this

> that and the other thing and still not sure of the quality.

> Throughout all my research I would always come across the Life

> Extension Foundation and people speaking very highly of them. I

> thought many times in the past year or so of going with them but I

> didn't want to change anything when things where starting to look

> good. Now Pam was going into a new ballgame and I just decided to

> heck with it, I'm going to go with them for the most part and also

> pick out a lot of their reconmmendations from their cancer

adjuvant

> protocol. So on 03/13/02 I made a big change but I stuck with a

lot

> of things I couldn't get through them and some things I just

didn't

> want to change. I guess I added to the protocol more then changed

it.

>

> Pam takes a lot of things in this protocol in the link below plus

a

> lot of other things she was already taking.

> The LEF protocol on the link below has been updated on 03/04/03

>

> Updates: Over the past year I have tweaked Pam's protocol. I have

> added and subtracted some things so I will put the updates in red

> below.

>

> http://www.lef.org/protocols/prtcl-027.shtml

>

> Here is a list of what Pam is taking. The first number will be the

> AM dose, the second number will be the afternoon dose, and the

third

> will be the late PM dose. I will put 0 for none.

>

> 1- http://www.lef.org/prod_hp/prod00585.html 3-3-3

> LEF MIX

>

> 2- http://www.lef.org/newshop/items/item00298.html 1 Tbs-0-

> 0

> LEF Herbal Mix

> Update: As of about 08/01/02 Pam stopped taking the herbal mix

> altogether. It didn't mix well and she really didn't like it so I

> didn't push her to take it because she was already doing a lot.

>

> 3- http://www.lef.org/newshop/items/item00567.html 0-1-0

> se-methlyselenocysteine or LEF's Se MSC

> Note: LEF came out with this around april 02. I started Pam on

this

> around the end of april 02.

>

> 4- http://nutri.com/selenium/ 2-0-2

> se-methlyselenocysteine or seleniumMC

> Note: Before LEF came out with their SeMSC, Wholesale Nutrition

was

> the only one in the world (I think) you could get this kind of

> selenium and because Pam is doing so well I did not want to change

> completely over to LEF's but I'm pretty sure LEF's is just as good

> and it cost less.

>

> Update: As of about 02/01/03 Pam went to 1-0-1

>

> 5- http://shop.store./vitanet/7ket60capphy.html 1-0-0

> 7-Keto DHEA

> Note: Pam takes 7-Keto DHEA in the place of the regular DHEA

because

> it well not raise Testosterone or estrogen. It cost more but I

think

> it's worth it.

>

> 6- http://www.lef.org/prod_hp/php200.html 0-0-1

> Melatonin

>

> 7- http://store./holistic-

alternatives/magforplushi.html

> 3-3-3

> Magnizyme Forte Plus

> Note: Pam has been doing these since around 09/15/99 and I think

> they are one of the most important things in her protocol.

> Pancreatic enzymes can eat away the protective protein coating

that

> protects the cancer cell and let's the immune system and any

cancer

> fighting supplements one may be taking in to kill the bad cell.

This

> also includes chemo. I buy my enzymes from the above link because

I

> get them cheaper there, but I like the explanation on the link

> below . The label will say Omnizyme, It's the same thing as

> Magnizyme or Megazyme just a different label. If one ordered from

> the above link it will also come with the Omnizyme label. I would

> also like to remind the reader that the zinc content is not 10 mg

> anymore, it is now 2 1/2 mg.

>

> Note: For a short time I added some Pork enzymes to Pams protocol

2-

> 2-0 but coupled with the other enzymes it gave Pam diarrhea, I

tried

> 1-1-0 and it still did, so I cut them out all together and she was

> fine after that.

>

> http://www.bluegrass.net/~jclark/omnizyme.htm

>

> 8- http://www.lef.org/prod_hp/php424.html 1-0-1

> Vitamin D3

>

> Update: As of 01/01/03 Pam went to 1-1-1 She will go back to 1-0-1

> in May.

>

> 9- http://www.lef.org/newshop/items/item00579.html 0-1-0

> LEF Booster

>

> 10- http://www.lef.org/prod_hp/php157.html 2-1-2

> Mega EPA

>

> 11- Omega 3 complex 1200 mg 0-1-0

> Note: I get this from my local herbal store, it's their own blend.

>

> 12- http://www.lef.org/newshop/items/item00444.html 2-2-2

> Super Green Tea Extract (95% decaf)

>

> 13- http://www.lef.org/prod_hp/php698.html 1-0-0

> COQ10

>

> 14- http://www.lef.org/newshop/items/item00214.html 2-0-2

> Kyolic Garlic Formula 105

>

> 15- http://www.lef.org/newshop/items/item00356.html 2-0-2

> Pur-Gar

>

> 16- http://www.lef.org/newshop/items/item00552.html 2-1-1

> Super Curcumin with Bioperine

>

> Update: As of 02/01/03 Pam went to 1-1-1

>

> 17- http://www.lef.org/newshop/items/item00495.html 0-1-0

> Super K

>

> 18- http://www.lef.org/newshop/items/item00496.html 1-1-1

> Silibinin Plus

>

> 19- http://www.lef.org/newshop/items/item00412.html 0-1-0

> Calcium Citrate W/D3

>

> 20- http://store./iherb/calmagd.html 2-1-2

> Nature's Way Calcium, Magnesium & Vitamin D3

> Note: When I changed to LEF on 03/13/02 I ordered Calcium and then

I

> started thinking that Pam has been taking this for some time now

and

> is doing so well why change.I like it that it has 3 kinds of

Calcium

> plus the Magnesium.

>

> 21- http://www.lef.org/prod_hp/php218.html 2-0-0

> THYMIC IMMUNE FACTORS

>

> 22- http://www.lef.org/newshop/items/item00451.html 0-0-1

> MSM

>

> 23- http://www.vitacost.com/store/products/ProductDescription.cfm?

> SKUNumber=030054072296 1-1-1

> Cat's Claw

> Note: I buy it at my local health/herb store.

>

> Update: as of 02/01/03 Pam went to 1-0-1

>

> 24- http://store./iherb/maitake.html 5-5-5

> Maitake D-fraction http://www.alliedwaves.com/maitake_1.htm#Dosage

> Note: When Pam has a CAT scan or a Xray done I give her 7-7-7 for

a

> week before and a week after.

>

> Update: As of 02/15/03 Pam went to 3-0-3 and added Host Defence

see

> #34

>

> 25- http://store./iherb/beta13.html 1-0-1

> Beta 1,3 Glucans From the yeast cell wall.

> Note: I added 400 mg's of Beta 1,3 Glucan from yeast, it cost less

> and I think it gets Pam more diversified.

>

> Update: As of 03/01/03 Pam went to 0-0-1

>

> 26- http://store./iherb/zinc5.html 0-1-0

> Zinc 30 mg amino acid chelate

> Note: I have been giving Pam this kind since around 09/15/99 so

I'm

> staying with it.

>

> 27- http://www.pau-d-arco.com/ 0-0-8 oz

> Pau D Arco Tea

> Note: Pam puts a lot of lemon juice in her tea. It has no sugar in

> it and it helps to bring her ph up.Some even think it helps to

> increase the tea's bio-availability.

>

> A good quality Pau D Arco tea is probably one of the hardest herbs

> to find in the internet jungle. Some grind up the outer bark along

> with the inner bark. Some even grind up the whole tree, and some

is

> so old and dry that most of the good properties are gone. After

> searching all over the net I finely come across DeLong's

site

> ( the site above ) Now I can't say I can be 100% sure of the

quality

> of 's tea, but what I can say after reading his site, passing

> eMails back in forth, and talking to him on the phone, I get a

> general feeling that is an honest and caring man. Sometimes

> all one has to go on is ones instinct and gut feelings. and

I

> don't exactly see eye to eye on some things, laetrile for

instance,

> It's not that he is against it, he is just vary skeptical of it.

> seems to be very skeptical of a lot of things, he's a hard

man

> to convince, so for to be so convinced about Pau D Arco tea,

> to me is really saying something. believes that just the

tea,

> some vitamin K and maybe a good multiple is all one needs to fight

> cancer. He suggest plenty of clean water also. This is another

thing

> I don't agree with. I think one should hit it from all four sides

> with everything one has, but who knows, maybe he's right, he has a

> lot more experience with Pau d Arco tea then me, and with all the

> research I have done I have no dought that Pau d Arco is a good

> cancer killer, I just don't like putting all my eggs in one

basket.

> Back in mid 2002 stopped selling the tea to new customers,

he

> wants to get the word out on the benefits of Pau d Arco tea and he

> thinks selling it takes something away from his integrity. Now I

> just don't get that, I believe as long as it is a quality product

> one can sell it and still keep their integrity at the same time.

> Geeezzz somebody has got to sell it. I don't care if someone makes

> money off me just so long as I get what I pay for, and yes, there

> are a lot of crooks out there so one has got to weed through the

> jungle, it sucks but that's the way it is. When stopped

> selling the tea I bought a vary large amount, so I'm good for a

long

> time and informed me that he will still supply me if I need

> more. At a very low price I might add. But when the time comes

that

> I can't get the tea off I will need another good source.

> Awhile back I came across this site http://www.herb-care.com/ and

> had a feeling that they got their tea from when they started

> their fight with cancer, so I emailed and asked him if he

knew

> them. said indeed he does know them and he speaks highly of

> them, and that they sell the same quality tea as he. said at

> first they wanted to be a destributor for him but said he

> wanted out of the business ( that integrity thing again ) so they

> are on their own. said he did supply them with the tea

> wholesale, whether he does now or not, I don't know. To me I

believe

> If or when I need another source this site will probably be my

best

> shot for quality, again that comes from a little knowledge and a

big

> gut feeling. This is just to tell the reader what I would do, of

> course the reader has no way of knowing of my integrity either,

> that's just the way it is. I suggest the reader do their own

> research and go with their own gut feelings.

>

> 28- http://store./iherb/paudarco3.html 1 tsp-0-0

> Pau D Arco extract

> Note: Pam puts 1 tsp in her coffee in the morning.

>

> I started giving Pam this brand at the suggestion from

DeLong.

> looked into this company a little and said he liked the

> overall process they use to make the extract. will tell you

> that the extract is just a good booster, and that the tea is the

> best cancer fighter. stresses this point alot. Pam and I put

> it in our coffee, I really like it, it's good.

>

> 29- http://www.cytopharma.com/ 2-2-2

> Laetrile/Amygdalin/Vitamin B17 500 mg

> Note: Pam has been on this since 09/15/99. I gave her 2-2-2 for

her

> first 6 months than I brought her down to 2-0-2 for 2 years and

> then, when Pam got off Taxol, I went back to 2-2-2 on 03/13/02.

>

> Update: As of 01/01/03 Pam went to 1-1-2

>

> I believe laetrile/B17 can cure some cancers mostly in the early

> stages. It seems to work best on adenocarcinoma. ( just a

> observation) I believe B17 can stop metastasis (spread) in all

> cancers.From all that I have read, this is an observation of many,

> but the observation of one person and two words is what sticks in

my

> head.Doctor Kanematsu Sugiuan one of the best researches at Sloan

> Kettering back in the 70's with 60 years of experiance, did some

> extensive research on laetrile and cancer. When a reporter asked

Dr

> Sugiua, Do you stick by your belief that laetrile STOPS the spread

> of cancer? He replied ( I STICK ). This is on record! Now I can do

> all the research in the world and It would still not mean as much

as

> those two words " I stick " coming from such a man of experience and

> integrity. Dr Sugiua said, I write what I see, and I believe him.

>

> http://www.geocities.com/freee80/B-171.html

>

> http://www.mecfilms.com/universe/articles/laetrile.htm

>

> Below is some more information on B17.

>

> http://www.smart-drugs.net/ias-laetrile-cancer.htm

>

> http://www.curezone.com/foods/laetrile.asp

>

> http://credence.org/Eclub/Sept14th2000.htm

>

> http://www.whale.to/m/binzel2.html

>

> http://www.cancure.org/laetrile.htm

>

>

http://news.bbc.co.uk/1/hi/in_depth/sci_tech/2000/festival_of_science

> /913463.stm

>

> More on laetrile/B17 below on cancer diet.

>

> 30-

>

http://www.bluegrass.net/~jclark/apricot_kernels.htm

> 10 throughout the day

> Apricot Kernels/seeds

> Note: Pam has been eating the seeds since 09/15/99 also. She ate

20

> a day for the first 6 months then went down to 10 a day from then

> on. I wanted her to go no lower then 15 but she wanted to go to 10

> so that was that. 15 to 36 is the recommendation when one has

> cancer. 10 a day for life is the recommendation in remission.

>

> Note: Up until 07/17/02 I have always gotten my seeds from

> Christian Brothers (1-718-651-3790) but on my last order it took a

> long time to come in. They have been having a lot of trouble with

> the FDA for the last 3 years, so that may be the problem. I have

> been ordering from the link above lately and the seeds seem to be

> just as good as the ones I had been getting from C.B., I feel

> comfortable with them.

>

> Pam and I started out very slowly with the seeds, eating just 1 or

2

> at a time spread throughout the day until we were to the amount we

> felt we needed. When we first started out, anything more then 2

> would drop our blood pressure so fast that we would feel light

> headed and have to sit down. This happens to most people in the

> beginning, it is said that it's because the body has been lacking

> nitrilosides for so long it takes time for the body to adjust. In

> the beginning the seeds should taste bitter, this is how one can

> tell how fresh they are. The more bitter they are the fresher they

> are. Over time the seeds will not tast as bitter as they did in

the

> beginning because the body is getting used to them, this is a

> observation of many. I have had high blood pressure for years, I

eat

> 5 seeds at once, twice a day, with no light headed feeling and the

> bitterness is cut to half and whenever I get my blood pressure

> checked all I ever hear is perfect, this is a observation by many

> also. Pam still only eats 2 or 3 at a time, spread out in the day,

> until she gets to 10.

>

> The apricot seed is the second best source for natural

nitrilosides.

> The best natural source is the bitter almond. It is said it takes

> about 5 apricot seeds to get the same amount of nitrilosides that

> one would get from 1 bitter almond. It is also said that there are

> some trees that produce an even higher content then that. In 1995

> the bitter almond tree was banned from the U.S., I find this a bit

> odd. The FDA has been trying with a lot of effort to ban the

apricot

> seed for some time now but they just don't seem to know how to go

> about it. I find this very odd also. Haven't they got better

things

> to do? This puts up flags all around me. Think about it!

>

> Below is something one may call not very scientific but I find it

> very interesting just the same. One more interesting note is that

in

> some asian countries they refer to apricot seeds as almonds.

>

> Below are readings from Edgar Cayce, the sleeping prophet.

>

> http://ecayce.tripod.com/qa-1.htm#questions

>

>

> QUESTION:

> In general, What do Cayce's readings say about cancer?(rogman)

> REPLY:

> From READING 1206-13 Given on November 23, 1941

>

> " ...if ye would take each day, through thy experience, two

almonds,

> ye will never have skin blemishes, ye will never be tempted even

in

> body toward cancer nor towards those things that make blemishes in

> the body-forces themselves. "

>

> From READING #3180-3 Given on December 21, 1943

>

> " ...almonds are good and if an almond is taken each day, and kept

> up, you'll never have accumulations of tumors or such conditions

> through the body. An almond a day is much more in accord with

> keeping the doctor away, especially certain types of doctors, than

> apples. For the apple was the fall, not almond - for the almond

> blossomed when everything else died. Remember this is life! "

>

> http://www.second-opinions.co.uk/laetrile.html

>

> Vary strange coincidence don't you think?

>

>

>

> 31- Drug, Atenolol 25 mg 1-0-0

>

> Update: Around 09/15/02 Pam went to 12 1/2 mg

>

> 32- Drug, Digitek 0.125 mg 1-0-0

>

>

> 33- http://www.lef.org/prod_desc/item00289.html 2-2-0

> CLA

> Update: Around 11/01/02 I added CLA to Pam's protocol.

>

> 34- http://store./iherb/hostdef.html 0-2-0

> Host Defence

> Update: Around 01/15/03 I added Host Defence to Pam's protocol.

>

> Update: As of 02/01/03 I started giving Pam just one small dose on

> Sundays. I had read many times that small breaks in a supplement

> protocol can actually make the supplements work better. I don't

> really know why, maybe a break gives everything time to level out

> and start working together, beats me. Some take as much as a week

> off every month but I still don't dare to do that yet, but one

small

> dose a week seems ok to me. Pam takes the below at mid day but she

> still takes the Pau d Arco tea, extract, and seeds at the same

time.

>

> laetrile 2 tabs, Green tea 3 caps, Omega 3 complex 1 cap, Curcumin

1

> cap, Vit. C with bioflavonoids 500 mg 1 cap, CLA 1 cap

>

>

> Cancer Diet

>

> Pam has never been on a real strict diet but what she has done I

> think has helped a lot.She started the below around 09/15/99

>

> 1- She started eating more raw vegetables (salads) and less red

meat

> and pork.

>

> 2- She started eating fish at least 1 time a week if not 2. Many

> know that one needs to keep a certain balance of omega 3 (found in

> fish) and omega 6 (found in meat) and that most of us eat way to

> much omaga 6. So besides taking omege 3 supplements, eating fish

can

> help a lot because when one is eating omega 3 one is not eating

> omega 6 so one is actually doubling the affect.

>

> 3- NO SUGAR!!! well very low sugar anyway. Pam stopped her sugar

> intake as best she could around 09/15/99 but it's almost

impossible

> to get away from sugar altogether.They put sugar in just about

> everything. Pam stopped eating simple sugars (refined sugar) like

> pastries, candy, sodas, ice cream, etc, and she eats very little

> complex sugars like fruit, and drinks very little fruit juice. The

> complex sugars don't spike like simple sugars do but to me it is

> still sugar and cancer loves sugar.Pam still eats carbohydrates

like

> bread and rice, among other things, I don't think it's a good

idea,

> but she don't eat a whole lot of it anyway.

>

> I think stopping sugar intake is probably one of the most

important

> things one can do to fight cancer and it doesn't cost a thing, In

> fact, one may even save some money. If one is on laetrile therapy

a

> no sugar diet becomes twice as important. Sugar turns to glucose,

> the cancer cell consumes glucose in great quantities for energy (

> fuel ) so it can divide and grow into a tumor and then continue to

> grow. The cyanide in laetrile is wrapped in glucose. The whole

idea

> is to bring ones sugar level down as low as possible and then take

> the laetrile, with the cancer cell starving for glucose the

laetrile

> acts like a smart bomb, the cancer cell takes up the glucose along

> with the cyanide and BOOM!!

>

> I was told when one has cancer and eats something loaded with

sugar

> it is just like throwing a cup of gasoline on a smoldering fire. I

> think this guy is right on, I think it's a perfect comparison. I

> believe It may be possible to slow cancer down by as much as 50%

by

> just stopping sugar intake. It would be kind of like keeping it to

a

> smolder. It is thought that if one could stop all sugar/glucose

the

> cancer would die immediately, but so wouldn't your brain. The

brain

> needs lots of glucose. There are many working on this dilemma but

in

> the meantime one can at least slow it down by not overloading

> themselves with sugar.

>

> Below is some information on cancer and sugar.

>

> http://www.mercola.com/article/sugar/sugar_cancer.htm

>

> http://www.mercola.com/2000/oct/8/sugar_cancer.htm

>

> http://www.slip.net/~mcdavis/dbas7395/93309355.htm

>

> http://www.jhu.edu/~gazette/julsep95/jul2495/24cancer.html

>

> http://www.jhu.edu/~gazette/janmar98/mar1698/16briefs.html

>

> http://www.iptcancer.com/cancer_loves_sugar.htm

>

>

> The reader may be wondering how Pam keeps track of all the

> supplements she takes and how she knows she didn't miss any. I lay

> out 7 days worth at a time using a plastic fishing tackel divider.

> http://www.basspro-shops.com/servlet/catalog.TextId?

> hvarTextId=1557 & hvarTarget=search (I got mine from Wal-Mart) and

> she keeps it in a dark cool place. She has a carrying pouch for

when

> she is going somewhere, she just takes a dose with her.

> I think it is a lot easier for her because I keep track of all the

> inventory and do all the ordering and lay them out for her, all

she

> has to do is take them (that's enough)

>

> On 03/17/02 Pam and I went to Disney World for a week. I think

this

> was the best medicine for Pam at that time. We went on all the

> rides. A lot of people with cancer use a rebounder ( a small

> trampoline ) to bounce up and down to get the lymph nodes moving,

> this helps to detoxify the body and get the immune system going.

> Well Pam got bounced around a lot, and then on top of that, she

got

> a lot of sun ( vitamin D3 ), She did a lot of walking, got a lot

of

> fresh air, and had a lot of fun doing it. Laughter helps to heal

> both body and mind. This helped to get Pam's mind off everything

and

> helped to take any stress she had away. I recommend this for

> everybody.

>

> On 04/04/02 Pam had a CEA done. It was 1.9 . Pam's oncologist

walked

> into the room with a big smile on his face and said, Quote: You

are

> absolutely my favorite patient. Pam just laughed. He said, no, you

> really are, you are absolutely amazing. I then looked at the

doctor

> and said, things are starting to look pretty good aren't they doc?

> He looked at me with a big smile and then gave me the thumbs up.

> Then he went on to say that Pam was doing great and that he

couldn't

> predict Pam's future with cancer no more then he could predict his

> or mine. So the doc was happy, we were happy, it was a great day.

> All the doc said was, I'll see you in two months, he never said

that

> word but

> all we could think of was maybe he didn't think it's been a long

> enough time without the chemo, it was kind of strange but we'll

> wait. We never ask and athough Pam and I hardly talk about it, we

> both want the Doctor to say it on his own, and he just won't.

Maybe

> next time.

>

> On 06/06/02 Pam had another CEA done. It was 1.6 . Pam had gotten

> the results from the nurse before the doctor come in the room.

> Needless to say we were excited and relieved. I remember thinking,

> It's been three months without chemo, we are definatly going to

hear

> that word today. The doctor walked in and to our surprise, instead

> of acting really happy like the last visit, he seemed very quiet

and

> serious. He said he was happy with the CEA and then started going

> into this long speech about Pam's long history. He picked up Pam's

> file and said, see how thick this is? He said, I have another one

> just as thick in my office. To make a long story short, he was

> telling Pam that when most people have this kind of history (and

he

> referred a little to the live cells in the liquid 18 months

earlier

> among other things) that Pam's odds were still not that good. The

> doc said he wanted a CEA done in 2 months, Pam said 3, the doc

said,

> No, 2 months. Pam said, No! I'll see you in 3 months. The doc

> finally gave in and said ok 3 months but just as soon as you feel

> something get in here right away. Pam said ok. I could tell that

he

> was almost sure that Pam's CEA was going to be back up within 2

> months, in fact I think he was pretty sure it was going to be up

on

> this visit and I think it caught him off guard. Well, after all

> that, the doc said I'll see you in 3 months and then walked out

the

> door. Pam and I were still sitting there. I looked across at Pam,

> she had here head down and looked so disappointed It got me really

> pissed off. This is the first time I really got mad. By now the

doc

> was half way down the hallway, I just hollered out , when will you

> know if she is in remission?!!! The doc walked slowly back into

the

> room and said in a low voice, well she is in remission. I said,

Why

> didn't you say that?!!! He could tell I was mad. He said because

it

> might come back. Then I hollered at him again, And it might not!!!

> He kind of changed his tone a little and said, you're right it

might

> not. Then he started to kind of refer back to what he was talking

> about earlier and then just said when or if it comes back he was

> going to put Pam on taxotere. I could tell he was thinking more of

> when then if. The strange thing was, I'm not sure how much Pam

heard

> past the word remission, Pam's head came up with a big smile and I

> don't think Pam gave a hoot about anything anyone had to say past

> that word. It took her 3 1/2 years to hear what they all said

would

> not happen and she didn't care how it came. Pam took all the other

> imformation and put it on the back burner and focused on that one

> word. Pam and I took that day off from work and celebrated. It was

a

> great day.

>

> Note: One thing I forgot to mention that I was glad to hear was

the

> doc said he didn't want Pam to get another cat because he didn't

> want to take a chance of getting anything started again. That kind

> of struck me because it had been on my mind a lot and I had been

> meaning to ask him what his thoughts were on the subject. I think

> this was great he came out with this without me even asking. It

> sounded like the doc had been doing his homework. Over a 6 to 12

> month period prior to this visit there had been a lot of news on

> studies showing that too many CT scans and X rays can bring one

out

> of remission. This just helped to shore up what many people have

> been saying for years.

>

> I would like to stop here because I don't want the reader to get

the

> wrong impression of Pam's oncologist. Pam and I have a lot of

> respect for this man. We can tell that he cares a lot and we can

> also tell that he is always having a hard time trying to stay up

> front with us and at the same time trying not to be too negative.

> It's like he is always walking a tightrope. It was because of this

> mans experiance and our respect for him that hearing the word

> remission from him without asking meant a lot to us. Deep inside

we

> knew, but we wanted to hear it from him. It's to bad I had to

holler

> at him, but I couldn't take it anymore, and I don't think Pam

could

> either. He was just being very cautious. To me I would rather have

a

> doctor that's too cautious than one that's not cautious enough.

Now

> that I'm on the subject of Pam's oncologist, I said earlier that

Pam

> told him way back what she was taking and that we didn't think he

> even remembers it. Back when Pam told him what she was taking, he

> seemed to be kind of neutral on the subject. At the time there

were

> three oncologists there, now there's only two. From time to time

Pam

> would have one of the other oncologist check her out before chemo

> when her oncologist was not there. Pam, at one time or another,

hit

> both these oncologists with what she was taking to see what their

> reaction was. One, the one that left, didn't have a problem with

it,

> although he did kind of get on Pam about taking laetrile. He said

I

> can show you a study that proves it doesn't work. Pam said, If

> your'e referring to the study done by Sloan Kettering in the 70's

> don't bother, that was rigged. Pam said the oncologist looked kind

> of stunned for a bit and then just smiled, I think he just found

out

> Pam doesn't bow to anybody and if she has her mind made up you're

> not going to change it. Pam would have him every now and then and

> they would argue a little but I think they both liked it, they

> really liked each other actually. Now, the other oncologist is a

> different story. The same thing, Pam would have this one when

Pam's

> regular oncologist was not there, and the same thing, Pam hit him

> with what she was taking. By the way, this guy was the head

> oncologist and very big in the area, he traveled between three

> different clinics at that time, now I think he is just at the one

> since they became connected with Dana Farber, anyway, when Pam

told

> him what she was taking he had his back to her and wouldn't even

> turn around and he never said a word. Finally I said, she doesn't

> take the antioxidants on the morning she gets chemo,and all he

said

> was, that's good anyway, and that was it. A few months latter Pam

> had him again and somehow Pam's complimentary protocol came up

> again. When Pam came home she told me she had Dr ----- . I asked,

> what did he have to say? Pam said, he told me to throw the seeds

> away, they don't work. I said, so what are you going to do? Pam

> said, ---- him. I just smiled. After around mid 2000 Pam just

> stopped mentioning it all together. Now in the last six months or

so

> I'm starting to hear and see a little change in both oncologists

> attitude on complimentary approaches. Around 10/15/02 I went to

the

> herbal store in my home town. Over the last three years I have

> gotten to know the pharmacist/hearbalist/owner there, and he had

> taken an interest in Pam's progress. When I walked in he told me

> about a guy that was in earlier that said that he was there on the

> recommendation of Dr ---- ( the head oncologist ) and then he went

> on to tell him that Dr ---- recommends a lot of things to family

and

> friends behind closed doors. Now I can understand the doctors

> situation as far as recommending something out of protocol, being

> connected with Dana Farber and all, but I think this is a big step

> just the same, because at least he may not be so discouraging to

> somebody that's trying something on their own. I never did find

out

> what he was recommending. At the same time the owner told me that

it

> is very importent that Pam and I tell Pam's oncologist what Pam

has

> been doing for the last three years.(now 3 1/2 ) He said that

Pam's

> story may help to change their attitude towards complimentary

> treatment. I told him, I think if I gave Pam's oncologist a full

> list of what Pam was taking the doc would probably drop to the

> floor, anyway, I told him Pam and I would think about it but we

> still haven't said anything. Now another sign of change of

attitude

> came from a casual friend of my wifes. Pam's friends farther has

> been fighting lung cancer for a few years now and has been holding

> up way better then the oncologist ever thought he would. He has

the

> same oncologist as Pam. Around 02/15/03 the oncologist asked him

> what he was doing, he said he was drinking Essiac tea everyday.

Now

> the tea hasn't cured him but it sure seems to have helped a lot.

> What came next really surprised Pam and I. He said the Doc asked

him

> for the recipe and that he may recommend it to some of his

patients.

> I'm sure it would be for adjuvant therapy and not a cure. The way

I

> see it is this is great, they both seem to be opening their minds

to

> things and to me that's a good start. After hearing the last story

> Pam and I are starting to rethink telling the doc Pam's protocol,

> maybe.

>

> On 09/05/02 Pam had another CEA done. It was 2.0 . Pam's

oncologist

> said he was happy with the CEA and then looked her over and said

> there was no sign of cancer. The doc was very quiet that day and

> seemed very disturbed and I had a feeling it had nothing to do

with

> Pam. I think something bad happened just before we saw him, his

eyes

> were all watery and it looked like he was trying to get his

composer

> back but was having a hard time doing it. I wouldn't want his job

> for anything. Anyway, we didn't hold him up with a lot of small

> talk, he just said I'll see you in three months and then we got

out

> of there.

>

> On 12/05/02 Pam had another CEA done. It was 3.5 . Now this kind

of

> scared me, up a point and a half from the last time, but then the

> doc came in and I had never seen him so happy, he seemed kind of

> excited and very positive sounding. I started asking myself, is

this

> the same guy we talked to in June? I wanted to ask, what did you

do

> with Pam's Doctor? It's almost as if Pam made it to some small

> milestone or something but he never said one way or the other. I

> wonder if maybe it was because 2 years had gone by since the

cancer

> cells in the liquid seeped into her system. I have read before

that

> two years is a milestone with cancer. Anyway I asked him about the

> CEA going up and he said with a very positive voice, don't worry,

> It's not that accurate, there is no activity, and then he told Pam

> he will see her in three months. That was a good visit.

>

> On 01/17/03 Pam had a small mishap, she started to appear to cough

> up a lot of blood. This scared the hell out of us. Pam went to the

> emergency room and they did X rays and a blood test and couldn't

> figure it out. Finally it slowed down and we went home only to

have

> to go back 12 hours later with it being worse then it was before.

> Finally it stopped and they told Pam she was going to need a cat

and

> see her oncologist as soon as possible. By the time Pam saw her

> oncologist the bleeding had stopped and she seemed to be ok. Pam's

> oncologist said he thought it was because it had been so dry out

> that she may have popped a vessel in her nose and because of the

> post nasal drip it appeared to be coming from her lungs. The doc

> said he wanted Pam to have a cat and a CEA done and see a lung

> doctor just to be sure. Then he told Pam not to worry, he said the

> cat is not going to show anything and the CEA is going to be

normal,

> he said it was just a standard precaution. I remember thinking,

this

> guy sure sounds positive, what the heck happened to make him do

such

> a 180 like that? Anyway he made us both feel better.

>

> Note: I can understand why the doc had to tell Pam to get a cat,

it

> was his obligation to, but it still bothers me and Pam. Pam really

> didn't want that X ray or cat. When Pam told the doctor at the

> emergency room her and her oncologists concern on X rays and cats

he

> started to get mad and kind of loud and acted like it was a bunch

of

> bull. I think this doctor has just enough brains to be dangerous.

> Well, in the end we could see that we had to know and so didn't

the

> oncologist but it was too bad this had to happen, it had been just

> about two years without one and we were just starting to feel

> comfortable. Hopefully that was the last one.

>

> On 01/24/03 Pam had a CEA done. It was 3.4 . She went in to get

her

> cat done but there was a big car accident that day so Pam made

> another appointment for a week later.

>

> On 02/05/03 Pam saw the lung doctor. He said that the cat showed a

> lot of scar tissue and that if there was cancer behind it, it

would

> be hard to see it. He got Pam a little upset.

>

> On 02/06/03 Pam saw her oncologist. He walked into the room just

as

> happy as could be and said everything looks good. Pam told him

what

> the lung doctor said and he said in a loud voice, absolutely not,

> there is no cancer and that he got Pam worried for nothing. The

doc

> said don't worry about it, everything looks good, there is nothing

> there. He told Pam to come in and see him in March but don't

bother

> to get a CEA done,he said he just wanted to visit with her. I'm

> still wondering what he did with Pam's real doc.

>

> On 03/06/03 Pam went to see her oncologist, he wasn't there, so

she

> saw the head oncologist. Pam really wanted to see her own

oncologist

> but at the same time we thought this is good because it was kind

of

> like getting a second opinion. The oncologist looked Pam over and

> looked at her latest records and said everything looks perfect and

> that she don't need another CEA done until June. Now this was

great

> that the big guy had this much confidence but at the same time we

> didn't like the idea of going so long without a CEA ,so Pam called

> her oncologist a week later and asked to get a CEA done in April.

He

> said no problem. This second opinion did help though.

>

> On 04/15/03 Pam had a CEA done. It was 4.0 . The doc said that he

> was happy with the CEA and that the rest of the blood work looked

> real good. I asked the doc if the CEA going up to 4.0 was anything

> to be concerned about, he said no, he said as long as it is 5.0 or

> under, 2 points one way or the other is meaningless, he said they

> are not that accurate, the CEA is fine. Well, this is a good day,

it

> marks two years of a normal CEA and marks one year of a normal CEA

> without Chemo. I don't count the month of March of 2002 because I

> figure it took at least one month for the bulk of the taxol to get

> out of Pams system. I look at this one year mark as a small

> milestone and although every normal CEA from here on out is a

small

> milestone, the two year mark, from everything I have read, is a

> major milestone, then, of course, there is the five year mark set

by

> mainstream as being cured. So Pams just going to keep at it and

I'm

> going to keep my eye out for any new information on staying in

> remission but I'm not going to spend as much time in front of the

> computer, I've got to get away from it to some degree and start

> thinking of other things, it's been a long haul for both Pam and I

> and we are tired, but I will tell the reader that we are not going

> to stop short of the goal line. I have seen this many times in my

> research where someone beats the odds only to stop their protocol

a

> short time later and have it come back. As time goes on, and when

> things feel right, Pam will slowly bring her protocol down to a

> maintenance dose and not before.

>

> My conclusion to date

>

> In my opinion Pam and I made the right decision in bulding a

> complementary protocol and adding it to Pams oncology protocol.

Just

> looking back at the facts, both Dana Farber and all three

> oncologists at home told Pam and I

> that remission would not happen, although the youngest oncologist

at

> home told Pam that it was highly unlikely, but he can't say with

all

> certainty that it won't happen. That was about as good as it got,

> and Pam had to drag that out of him. So anyway with all the

arsenal

> available at the time between Dana Farber and the clinic at home

> including experimental they said they had about a 20% chance of

> extending Pams life or as they call it, perserving the quality of

> life. By the way, don't ever say, trying to perserve the quality

of

> life to Pam, She said she was going to shot the next person that

> said that to her, she got really sick of hearing it. So given

these

> odds from all these oncologists I would have to think that the

> complimentary protocol was the deciding factor in stopping

> metastases and going into remission. The fact is that all these

> highly experienced Doctors in the mainstream had no faith at all

in

> their protocols. And on the other side of the coin there are other

> professionals in the so called alternative medicine practice that

> have a lot of faith in their protocols for the same prognoses.

Now,

> minus the side effects, I have no doubt the chemo's did a good job

> in helping to stop metastases and slowing the cancer down and I

> think the Taxol really beat the hell out of the cancer but I think

> it was the complimentary protocol that helped to get that last 5

to

> 10% that is always the toughest to get. At the vary least, if

Taxol

> alone put Pam into remission, I believe the complimentary protocol

> gave Pam the strength to stay with it and later hold in remission.

> Given the oncologists attitude three months after Taxol, I have to

> come to the conclusion that Pam's post chemo protocol is the

> deciding factor in staying in remission. Some may call it luck,

> maybe, but I doubt it very much. The oncologist said there was a

20%

> chance of the 5fu working at all, Pam added Cromolyn sodium, the

5fu

> worked ( that was luck #1) The oncologist said the cancer will

> matastasize to the liver, Pam started laetrile, it didn't ( that

was

> luck #2 ) The oncologist said that the chemo's would run her down,

> Pam's complimentary protocol got larger, the oncologist said that

> Pam must just be one of those people with a high tolerance for

> chemo. ( that was luck #3 ) The radiologist went too far with the

> radiation, Pam stuck with her protocol, Pam got through it. ( that

> was luck #4 ) The oncologist said that Taxol was all there was

left

> to try, we increased and added things complementary to Taxol in

> Pam's protocol,the Taxol worked ( that was luck #5)The oncologists

> said Pam would not go into remission, Pam stuck to her protocol,

Pam

> went into remission. ( that was luck #6 ) The oncologist didn't

> think Pam would stay in remission to date, Pam started her post

> chemo protocol, she is still in remission to date. ( that is Luck

> #7 ) The oncologist was very concerned with the live cancer cells

> that seeped into her system, Pam stayed on her protocol, nothing

> showing 28 months later. ( that is luck #8 )

>

> As lucky as Pam is, one would have to wonder how she ever got

> cancer in the first place.

>

> With all the negativity out there coming from the maintream over

> combining antioxidants with chemotherapy it puts a lot of pressure

> on one with cancer to make the decision to do so, but in Pams case

> the decision was a no-brainer. They all said they couldn't cure

her,

> and all they could do was maybe give her more time, so it doesn't

> take a rocket scientist to figure out that Pam had to do something

> on her own to change the outcome. Now if the doctors told Pam that

> the chemo had a good chance of curing her then making that

decision

> would have been a lot harder so I can see where someone in that

> situation would feel like they were between a rock and a hard

spot.

> There are more and more doctors out there starting to get with it,

> and if one is lucky enough to get one of these doctors, it takes

> alot of pressure off. Something someone with cancer definitely

> doesn't need is pressure. As far as a post chemo protocol in my

> opinion should be a no-brainer for everyone. It only makes sense

> that there was something missing in the body that caused the

cancer

> to begin with, so trying to fix the problem by putting good things

> in the body seems to me to be the best solution. Below is some

info

> on antioxidants and chemotherapy.

>

> http://www.lef.org/protocols/prtcl-153.shtml?

> source=eNewsLetterWk15 & key=Body+Pro\

>

> http://www.cancerdecisions.com/denmark2001.html

>

> http://www.cmbm.org/conferences/ccc2000/transcripts2000/018.htm

>

> Well that's my conculsion up to now, I leave it to the reader to

> draw their conclusion. We know we have a long way to go, but we

> believe we are on the right path so we are going to stay on it.

>

> Take care

> Jim Drake

[Guest guest]

I am so very happy and pleased that Pam is doing miraculously well and you are

both an inspiration.....Blessings, Bev.

Re: Remission story/protocol Update!

For those who may be interested I would like to give a update on

Pam's progress.

Around 07/10/03 Pam was getting alot of discomfort in the chest area

so she called her oncologist and he had a cat and a CEA done, she

was due for a CEA in a few weeks anyway. The cat showed a large

buildup of scare tissue from the radiation but no sign of cancer and

the CEA was 4.3 . This was good news and kind of bad news at the

same time, we asked the doc when will the scare tissue stop building

and he didn't seem to have a answer for us, he said she would

probably always have some discomfort there and then he seemed to

want to change the subject. As far as the CEA , the doc was happy

with it and although 4.3 is normal it kind of bothered us because it

seemed to be creeping up little by little but all in all it was a

good day, the doc just said see you in 3 months.

On 10/21/03 Pam had a CEA done, It was 3.8 this was great news,

finally it is going in the right direction. The doc seemed really

happy that day he said to Pam, you are unbelievable, you are truly a

miracle then he said your immune system must be working well, that's

when I said I think all the supplements she takes helps alot, the

nurse that was new to us asked what supplements? I just said alot of

different ones about 90 a day in all, her eyes got big and I could

see the wheels turning but she just looked at the doc and didn't say

much, the doc's ears where wiggling but he made no comment. Oh well

who cares Pam is going to stick to her protocol and we will continue

to take things one step at a time.

Pam is still on the same protocol, I plan to reduce it slowly

probably around the first of the year.

I wish everybody well.

Take Care

Jim

> Disclaimer

>

> Below is the story of my wife Pam and her battle with cancer

and

> what she did to go into remission and what she is doing to stay

in

> remission. This is in no way to be taken as medical advice. This

is

> for the readers information only. I am not a Doctor or have any

> medical background what so ever. I'm just a guy trying to do

what's

> best for his wife and now feels I should share this

information.The

> reader will read in places where I have expressed my opinion and

> that is all it is, MY opinion, it does not mean I'm right. My

> opinion is based on studies done by professionals and observations

> made by Doctors,pharmacist,chemist,herbalist,researchers,myself

and

> others. There is new information coming out every day that can

> change mine and others opinion at any time so I suggest to the

> reader to do their own research, consult with a professional, and

> always keep an open mind.

>

> No matter if the reader believes in the bible or not I think

this

> verse still holds true.

> Hosea 4:6 " My people perish for lack of knowledge "

>

> The reader will see in my wife's protocol where I have

supplied

> links to certain products.I have absolutely no connection with

these

> companies what so ever, I'm just telling the reader what and where

I

> get them. These links also have information that I find

interesting

> and the reader may find them interesting also. Again I suggest the

> reader do their own research.

>

> From the beginning

>

> Around 12/4/98 Pam felt a lump on the lower part of her neck. She

> called the doctor the next morning to get it checked and he made

an

> appointment with another doctor to take a biopsy .

>

> Around 12/20/98 the doctor did the biopsy

>

> Around 12/28/98 the results came back. It was cancer. The doctor

has

> no idea what kind. The doctor made an appointment for Pam to have

a

> CT scan.

>

> Around 01/04/99 the results of the cat scan were in. It showed

> something in the ovaries and two shadows in the mediastinum (in

the

> chest). The doctor made an appointment with a doctor that deals

with

> ovaries.

>

> Around 01/08/99 the doctor said there was definatly something in

the

> ovaries but because of the shadows in the mediastinum she was not

> sure what she was dealing with and thought it would be best to

send

> Pam to an ovarian cancer doctor at the Dana Farber cancer

institute.

> So she made a appointment for her.

>

> Around 01/12/99 the doctor at Dana Farber looked Pam over and then

> sent her to Brigham and Womens hospital down the street for some

> tests. The tests took about 3-4 hours and then back to Dana Farber

> we went. The doctor looked over the tests and said she wanted to

> take the ovaries out and that there is no way to tell if it's

> ovarian cancer or not until the ovaries are out. Pam had to go

back

> to Dana Farber one more time before the surgery and then the

surgery

> was set for 02/09/99.

>

> On 02/09/99 the surgery was done.The doctor said there were two

> tumors on one ovary and that she had another doctor look over the

> intestines and found nothing. The doctor said that it will take

some

> time to biopsy the tumors but she said she had a feeling it was

not

> the primary tumor and that it may not be ovarian cancer. The

doctor

> said they may never find the primary but she said we will have to

> wait for the results. This not finding the primary really confused

> us.The doctor gave Pam a prescription for Premarin and then Pam

went

> home a few days later and we waited for the results.

>

> Around 02/16/99 the doctor finely called, She said they checked

> three times to be sure and that was why it took so long. She said

> the tumors were not the primary and that she wanted to see her in

a

> few days.

>

> Around 02/22/99 we went back to Dana Farber to talk to the doctor,

> She looked Pam over and then we sat down to talk. She said she was

> going to set up a appointment to get a colonoscopy done in our

home

> town and then make an appontment with the cancer center in our

home

> town and send all Pam's records there. She said the oncologist's

> there was vary good. This sounded good to us not haveing to travel

> so far in all. We asked her about this unknown primary thing and

she

> just said sometimes you just don't find it. She seemed so casual

> about it that we got the feeling that it wasn't that bad, we

started

> thinking if it was so small that you can't find it then how hard

> could it be to get rid of it with a little chemo. Boy were we

dumb!!

> Anyway she said Pam was out of her field and that we were done

with

> her.

>

> Around 03/06/99 Pam got the colonoscopy done. The doctor only

found

> three polyps and he said that we would have to wait for the

results

> of the biopsy but he said I will tell you right now that they are

> not malignant. The results later showed he was right. At first we

> thought this was a good thing and then we started thinking, is

this

> good or is this bad?The fact was Pam still had a primary tumor

> somewhere and we still don't know where it was. This was getting

> very confusing but we were still telling ourselves things weren't

> that bad.

>

> Around 03/12/99 The big day has finally come. We had a appointment

> to see an oncologist at the cancer center in our home town and

> finely find out what Pam has and what they were going to do about

> it. When we got there a nurse started telling us all these things

> that made no sense to us and then the doctor came in and started

> saying things that made no sense to us and Pam and I looked at

each

> other like what in hell are they talking about? Finally Pam

stopped

> them and said well what do I have anyway? They both stopped and

then

> the doctor asked, have you been told the finel diagnoses? Pam said

> no, that's what I'm here for now, then she said again so what do I

> have? The doctor said he thought someone had already told her. We

> think Pam's primary care doctor was the one that was suppose to

tell

> her but somehow we went by him, anyway the doctor left the room

for

> about a half an hour and then came back. The doctor told Pam she

had

> adenocarcinoma of unknown primary stage IV metastasized to the

> ovaries, the lymph nodes in the neck and two places in the

> mediastinum. Pam asked what kind of treatment they had for it. The

> doctor said all they could do was to try to preserve the quality

of

> life and that anything they try would be a shot in the dark. He

said

> he had a feeling that the primary was in the small intestine and

> that the best bet was to go at it like colon cancer. He said that

he

> would start her with 5FU and leucovorin but he said she had only

> about a 20% chance of it working. Pam asked what if it does work?

> The doctor said all we can hope for is it can shrink the mets

> (metastasized or secondary tumors) but it will not get the primary

(

> the main tumor from where the cancer started). Pam said do you

mean

> I won't go into remission? He said no you won't, then he said

agian

> all we can do is try to preserve the quality of life. Pam said,

are

> you telling me I'm going to die? The doctor just sat there and

said

> nothing. Pam started to cry and then got up and went to the

> bathroom. At that time I looked at the doctor and said are you

> telling me there is nothing you can do? He raised his hand in the

> air and moved his fingers and said the seeds have spread too far

and

> it was too late. Pam came back and we asked more questions and the

> doctor could tell we were trying not to believe him. The doctor

> finely said he was going to send Pam back to Dana Farber to talk

to

> a gastrointestinal doctor for a second opinion and we said good.

The

> doctor said first he wanted Pam to have a CEA blood tumor marker

> done before she went. The CEA was 56.0, normal is 0.0 to 5.0 .

>

>

> Around 03/17/99 we headed for Dana Farber to talk to the

> gastrointestinal doctor. The doctor and his team went through all

> Pam's files and looked over the CT scans from back in Jan. and

then

> called us in to talk. The doctor said that he agreed 100% with

Pam's

> oncologist all the way down to it may be in the small intestine.

> That was not what we wanted to hear.

> The doctor said that it would be best to wait and see if the

primary

> shows up or the mets get to big before she tried any chemo. He

said

> that it was a shot in the dark and that it might run her down for

no

> reason, he said if the primary showed up they would have a better

> way of knowing what may help or not, he said that this would be

the

> best way of inproving the quality of life. The doctor said Pam

> should have a cat done every 3 months starting from the last one

in

> Jan. so she only had about 2 more weeks before the next one. Pam

> asked if there was any hope of going into remission, he said no.

Pam

> said so your'e saying there is no hope? He said your'e young (46

at

> the time) and then he said he had a 70 year old women with almost

> the same diagnoses as her and she died within a month and said you

> are clearly doing a lot better then that. That didn't help. So Pam

> was told to do nothing untill something showed up.

>

> Around 03/21/99 we went back to see Pam's oncologist and told him

> what the gastrointestinal doctor said but I think he already knew,

> he just wanted to hear it from us so he knew we knew. He made a

> appointment for a cat in about a week.

>

> Around 03/25/99 Pam and I had watched a women on the show Hard

Copy

> that had terminal Breast cancer and was given 3 months to live and

> reversed the cancer with NasalCrom (Cromolyn sodium) or (Disodium

> Cromoglycate)or (Intal) With a little research I found that it

> helped inhibit protein kinase C for in turn inhibited angiogenesis

> and also helps to build or regulate white blood cells, so we said

> why not, It can't hurt, so Pam started snorting it 3 to 4 times a

> day. I even thought of getting the pill form from the doctor

> thinking it would get to the tumor in the small intestine better

but

> I never did. Jence the women on Hard Copy later started

> useing one of those mist pipes they use to clear the lungs 3 times

a

> day but Pam never did that either. Anyway I guess this was the

start

> of us doing something complimentary on our own.

>

> Around 04/01/99 Pam had the cat done and went in to see the

> oncologist. The doctor said that the cat showed that the tumors in

> the mediastinum had grown a lot and that he felt he should get her

> on 5FU now, today. Pam asked what the doctor at Dana Farber

thought

> and he said he would call him right now. The doctor agreed so Pam

> started weekly 5FU and leucovorin, 6 weeks on and 1 off, that day.

>

> Around 05/18/99 Pam finished her first round of 6 and than had

> another cat and CEA done on her off week and then she saw the

doctor

> The cat showed about a 30% drop in size to the tumors in the

> mediastinum and no new mets (matastases/spread) the CEA dropped to

> about 16.0 . This was the best news we had in about 5 months. Pam

> continued with the 5FU and snorting the NasalCrom.

>

> Around 06/28/99 Pam had another CEA done. It was about 13.0

>

> Around 08/10/99 Pam had another cat and CEA done. The cat showed a

> little drop in tumor size and no new mets and the CEA was about

11.0

> plus the lump in the lymph node in her neck was gone. This sounded

> good until the doctor said that the cat showed nothing in the

liver

> yet, but it will. Just like that (but it will) This told me I had

> better get searching for something, anything that might help

because

> this oncologist sounded to darn sure of himself. By the way, Pam's

> oncologist has been doing this for many years and has a lot of

> experience and that's what really scared us.

>

> Around 08/18/99 I had an appendix attack and had to have it taken

> out. I was out of work for some time and had a lot of time on my

> hands so I started searching the net for anything that might help.

> Up until then I was looking mostly into conventional medicine with

> no prevail. I started searching alternative and complementary

> treatments and found so many I didn't know where to start first.

> Laetrile or vitamin B17 was one that seemed to catch my interest

so

> I started to research it.

>

> Around 09/10/99 Pam had another CEA done. It was about 14.0

>

> Around 09/15/99 By this time I had read so much about laetrile,

> apricot seeds, pancreatic enzymes and antioxidants that I was sure

> there was something to it. I showed Pam a lot of the information I

> was reading and we both decided why not? So Pam started all of the

> following very slowly until she was up to 3000 mg of laetrile, 20

> seeds, 9 tab's of Megazyme, 1000 iu Vit. E, 2000 mg Ester Vit. C,

> 25000 iu beta carotene, 200 mcg of selenium, 100 mg Vit. B15,

shark

> cartilage about 10 grams, and a good multiple vitamin per day and

> stopped all refined sugar intake. Not long after Pam started this

> protocol she stopped snorting the NasalCrom, one is only supposed

to

> use it for no more then 6 weeks and Pam had been on it for 6

months.

> I still, to this day, don't know if it helped or not but looking

> back maybe it helped to stop it from spreading farther. See link

> below.

>

> http://www.cancerhelp.org.uk/help/default.asp?page=2513

>

> Around 10/10/99 Pam had another CEA done. It was about 18.0 and

the

> lump in her neck was back . The doctor said that the 5FU was not

> working anymore. He said in the begining that the 5FU would

probably

> only work for about 6 months or so and he was right. He told Pam

to

> wait about 2 weeks and then he will try something else.

>

> Around 10/24/99 I had read a lot about Premarin and found it was

bad

> stuff so Pam got off it.

>

> Around 10/25/99 Pam's oncologist started her on Camptosar 6 weeks

on

> 1 off.

>

> Around 12/05/99 Pam had a cat and a CEA done on her off week. The

> cat showed that the tumors in the mediastinum had grown some more

> but no new mets and the CEA was up to about 24.0 so the Camptosar

> was clearly not working. The doctor told Pam to take about 2 weeks

> off and then he will try something else. Pam was glad to get off

> that stuff because it made her very sick. In the meantime I added

> Maitake D Fraction 21 caps, IP6 2 scoops a day, 7 Keto DHEA 25

mg,

> grape seed extract 1000 mg, Co Q10 400 mg, MSM 2000 mg, milk

thistle

> 450 mg, Fish oil 4 grams, Lyprinol 150 mg, Cats Claw 1500 mg, zinc

> 30 mg and 200 more mcg of selenium to Pam's Protocol per day. By

the

> way Pam's Protocol was divided to 3 doses in the day.

> Note: Back when Pam started the Megazyme each tab had 10 mg of

zinc

> gluconate in them and now only has 2 1/2 mg per tab so I think

it's

> important that the reader knows that between the Megazyme, the

> multiple and the 30 mg Pam was getting 130 mg of zinc a day.

>

> Around 12/19/99 The Dr. started Pam on Gemcitabine (Gemzar) 6

weeks

> on 1 off. About this time I took Pam off the shark cartilage. From

> the research I had done I found that it didn't work well taken by

> mouth. I found that the best results were when one takes it in

large

> quantities by way of a enema two or three times a day and Pam

would

> have none of that. So much for that.

>

> Around 02/01/00 Pam had another cat and CEA done. The cat showed

> that the tumors in the mediastinum had shrunk by about 30% and

there

> were no new Mets and the CEA went down to about 16.0. This was

great

> news.

>

> Around 03/10/00 Pam had another CEA done. The CEA was about 14.0.

In

> the meantime I started Pam on Red21 Ellagic Acid and then a lot

> later changed to Ellagic plus 4 caps a day. I also had Pam on

about

> 500 mg of Vit.B3 niacin for a little while but then decided it may

> not be a good idea with the chemo so I took her off it.

>

> Around 03/15/00 I had done a lot of reading on Flax seed oil and

> cottage cheese and we decided to give it a try. Pam said there was

> no way she could eat the Flax oil and cottage cheese alone so I

had

> to make it into a smoothy. I used a 3/4 cup of low fat cottage

> cheese, 3 tablespoons of Barlean's flax oil, 1/2 cup frozen red

> raspberrys, 3 apricot seeds, 1 cup of concord grape juice, 1 cap

> Ellagic acid and a few ice cubes so the flax won't heat up in the

> blender. I did this twice a day. Pam really liked it a lot, in

fact

> I think she kind of looked forward to it. I dropped the Fish oil

to

> 2 grams a day and the Lyprinol to 50 mg a day when she started the

> Flax oil. If the reader is wondering why I was changing things and

> adding things when the CEA was going down I realized that the

chemo

> and my protocol was probably not going to put Pam into remission

(but

> I think the protocol stopped the Mets and was keeping her strong)

> and didn't know if there was any chemo left that would work at all

> so my only hope, and Pam's of course, was to find a protocol that

> would put Pam into remission before the chemo stopped working.

>

> Around 04/01/00 I droped the laetrile down to 2000 mg and Pam went

> down to eating 10 apricot seeds a day. I also dropped the maitake

d

> fraction down to 15 caps and I added 100 mg of vit. B6 a day.

Back

> on 9/15/99 Pam stopped all refined sugar, she started using

powdered

> Stevia in her coffee for awhile but didn't like the aftertaste so

> she had been using aspartame (bad stuff) untill I started thinking

> maybe even though raw honey is sugar it is probably better then

> aspartame. Personally I don't like any sugar when one has cancer

and

> I don't like aspartame period, and that goes for the other

synthetic

> sweeteners also. So Pam started putting raw honey in her coffee.

> While I'm on the subject of coffee/caffeine I just want to say

that

> I had done some research on caffeine and cancer and for everything

I

> found against it I would find something for it. It seems to be 6

of

> 1 and a 1/2 dozen of another. The jury is still out on this one.

> Personally I'm leaning towards it doing more good then harm but

I'm

> still not sure. I kind of like this explanation myself.

>

> http://www.lef.org/magazine/mag2002/aug2002_report_caffine_01.html

>

> Around 05/15/00 Pam had another CEA done. It was about 12.0

>

> Around 06/30/00 Pam had another CEA done. It was about 11.0. The

> doctor commented on how well Pam was doing and he couldn't seem to

> get over how well Pam was holding up to the chemo, he said you

must

> just be one of those people that have a high tolerance for it. He

> made these comments on a lot of visits, he would say things like,

> you are just plan amazing on a lot of visits. Pam told him of all

> the things she was takeing about 8 months earlier but maybe he

> forgot or just didn't give it a thought, anyway we never mentioned

> it again except when the nurse asked if Pam was taking anything

and

> Pam would answer, a whole lot of supplements, and the nurse would

> say, what, and Pam would say, way too many to write down now, then

> the nurse would just say OK, then she would write something down

and

> that would be it. This happened a lot with different nurses but

we

> could tell nobody really cared, so why talk about it. They did

their

> thing and we did ours. Well anyway, by this time I had done a lot

of

> reading on parasites and cancer. Now I don't know if parasites

cause

> cancer or not but I have always known that a lot of people get

them

> and there is no doubt in my mind if one has them, and can get rid

of

> them, one would be a whole lot better off. So I asked Pam if she

> would try the parasite cleanse and she said you first. So I

ordered

> the wormwood, the clove and the black walnut hull tincture and did

> the 21 day protocol. On about the 16th day I had a bowel movement

> that was very strange, it looked like something I can't explain,

and

> the methane smell was real bad. I had read that the methane smell

> was from dead Parasites and I had no reason not to think

otherwise.

> I don't think this was just some strange coincidence I really

think

> it worked. It was very strange to say the least. Pam did the 21

day

> protocol but didn't have anything dramatic happen like I did but

she

> did have some changing in color and a little diarrhea and all I

> could think was maybe everything came out so slowly it wasn't all

> that noticeable, anyway I was glad she did it.

>

> Around 08/15/00 Pam had another CEA done. It was about 14.0

>

> Around 09/15/00 Pam had another CEA done. It was about 24.0 and

the

> lump in her neck was back. The doctor said the Gemzar was not

> working anymore and he said that Pam should take some time off.

The

> doctor said that he was going to try Taxol ( Paclitaxel ) next but

> he said he wanted to wait until the first of the year to do it. I

> could tell that even though the doctor thought Pam had done really

> good up until then, he had never changed his thoughts from the

> beginning. He was still just trying to preserve the qualty of life.

>

> Around 10/10/00 Pam was haveing a hard time breathing and saw her

> oncologist. The doctor thought it may be a lung infection so he

put

> her on some antibiotics.

>

> Around 10/20/00 Pam and I was walking along the river and came to

a

> small hill, Pam could hardly breathe by the time we got to the

top.

> Something was wrong, it seemed to get a little worse every day and

> she couldn't stop coughing.

>

> Around 10/25/00 Pam saw her oncologist and he had a cat and a CEA

> done. The CEA was at 225.0 and the cat showed that one of the

tumors

> in the mediastinum was pressing on her windpipe cutting her air

off,

> but at least there were no new mets. The tumors for some reason

> started to grow real fast, faster than the doctor ever thought it

> would. The doctor told Pam she will need radiation right away.

>

> Around 10/26/00 I kind of panicked, I just couldn't figure out

what

> was causing the tumors to take off like that and my thoughts were

> bouncing everywhere. Finely I decided to drop the co Q10 to 200 mg

> and take Pam off the IP 6, B15 and the Flax oil, and told her to

> stop putting honey in her coffee. I brought her up to 4 grams of

> cold water salmon oil and 2400 mg of a omega 3 complex that

> included 800mg of flax oil shortly after. Now taking Pam off the

IP

> 6 and the B15 didn't bother me because I had been thinking of

taking

> her off them anyway and the raw honey/sugar was no question, it

had

> to go, but the Flax oil and cottage cheese has bothered me ever

> since I took her off it. In all the research I had done up until

> then I had come across many alternative doctors, herbalist and

> other people that say that many times when on something that works

> that the tumors will grow very large and the blood tumor marker

will

> go very high before it gets very small / low or goes away

> altogether. Doctor Kelley comes to mind. I wonder sometimes if it

> hadn't been for the tumor pressing on the windpipe would it have

run

> it's course and then disappeared? Or, if it wasn't for the tumor

> pressing on the windpipe would it of gone unnoticed until it was

to

> late? Another thought is, in my research, I had read that a lot

of

> times when the primary is killed before the mets the mets take on

a

> new life and start to grow much faster because they are not taking

> signals from the primary. Now if the primary is in the small

> intestine it would not be to inconceivable to think that maybe the

> FO/CC along with everything else killed the primary before the

mets

> because that's where everything goes first. I guess I will never

> know the real answer to these questions but Pam is OK and that's

> what counts. Anyway I never did put Pam on the FO/CC again but I

> really don't want to discourage it because, in my research, I have

> come across many people that I believe to be very sincere when

they

> say that it helped their cancer alot, so like I said at the top,

do

> your own research and keep an open mind. By the way sometime later

> Pam told me she really missed the smoothies I made her every day.

> She really liked it. It was too bad that the one thing in her

> protocol she really liked I took away.

>

> Around 11/01/00 Pam started the radiation.

>

> Around 11/07/00 Pam was starting to breathe better and the

coughing

> slowed down.

>

> Around 11/25/00 Pam was done with the radiation and had a cat

done.

> The cat showed that the tumors went down about 30% and no new

mets,

> the doctor said he will start her on Taxol the first of the year.

>

> Around 12/02/00 Pam was feeling a lot of tightening around her

> chest, she said it was like a band around it. We knew it was from

> the radiation. She also had to lean to one side to burp, we think

it

> was because the tumor was so close to the windpipe that the

> radiation hit the windpipe about the same amount as the tumor.

Pam's

> oncologist thinks so to. She still has this tightening and also

> leans to burp to this day, but it is not as bad as it was in the

> beginning.

>

> Around 12/07/00 Pam started getting heart palpitations and getting

> very dizzy almost to the point of blacking out but she didn't say

> anything to me until sometime later. She said she had hoped it

would

> go away. It didn't. Pam made an appointment with her oncologist.

>

> Around 12/14/00 Pam never made it to see her oncologist, the

> palpitations were so bad she had to go to the emergency room.

After

> all the tests, they found that she had a lot of liquid around her

> heart so they put her in ICU and put a port in her and started

> draning the liquid out. We think the radiologist went a little too

> far but of course he didn't think so. Later, Pam's oncologist

agreed

> with us.

>

> Around 12/18/00 Finally after 4 days in ICU the liquid stopped

> building and they let Pam go home. They took a sample of the cells

> in the liquid and said we would get the results later.

>

> On 12/26/00 Pam's primary care doctor wanted to see her. He said

he

> had the results of the cells in the liquid and that he had bad

news,

> he said that the liquid was full of live cancer cells and that

they

> had been seeping into her system. This scared the hell out of me

but

> for some odd reason it didn't seem to get Pam very upset at all.

> Maybe she had been at it for so long she was just getting used to

> bad news, I don't know. Anyway we just stayed positive, and didn't

> talk about it after that. While we were there the doctor asked Pam

> if she was taking any medication and Pam just said a lot of

> supplements, the doctor said that's good and then asked what she

was

> taking. Pam and I started to tell him all the different things she

> was taking and to our surprise he said that was great and then

made

> some comments on some of the things and also said that there were

> some things he didn't know about so he couldn't comment on them.

> Then the big one came,Pam said I'm also on laetrile. The doctor

> looked at Pam and said in a loud voice, I think that's great!

Well,

> Pam and I almost fell out of our chairs, then Pam asked in a very

> low voice, do you know what laetrile is? The doctor said in a even

> louder voice, yes I do and I think that's great, keep it up! He

> never elaborated on why he thought it was great but we sure liked

> the way he sounded. By the way while we were there the doctor gave

> Pam a great tip on how to stop palpitations. He said to close your

> eyes and then put your fingers on your eyeballs and apply a lot of

> pressure for about 30 to 60 seconds. You may have to do it 3 or 4

> times. Every once in a while I will get palpitations, probably

from

> too much coffee, anyway I have done this about three times and it

> worked every time. I just thought that would be good to know, I

> think it's pretty cool myself.

>

> On 12/28/00 Pam went in to see her oncologist. He said because of

> all that has happened that she needed to get on Taxol today.

(weekly

> taxol 135 mg 6 weeks on 1 off) He said that if the Taxol doesn't

> work there is nothing else out there at this time. Pam had read a

> few bad stories about Taxol and the allergic reactions one might

get

> from it (Pam has allergies) and was very nervous. Pam took a walk

> around the bulding to think about it. The doctor came up to me and

> told me that she has got to do it today and that he was worried

> about the live cancer cells that seeped into her system. I said I

> know and she will, just give her some time. Finally Pam got it

done,

> but I had never seen her that scared in my life. The other chemo's

> didn't seem to bother her much but for some reason Pam had a bad

> feeling that this stuff was going to kill her. As time went on it

> got easier for her.

>

> On 12/28/00 Pam had to see a heart doctor right after her first

> Taxol treatment. The doctor looked Pam over and then asked if she

> was taking any antioxidants. Pam told him what she was taking and

he

> said that's good and then started to write it all down. He

commented

> on some and said he couldn't comment on others but all in all he

had

> no problem with anything. We never said anything about the

laetrile,

> it had been a long day and we just didn't want to get into it. The

> doctor told Pam she should be taking at least 1000 mg of calcium,

> she was only getting about 200 mg at that time. The doctor

> prescribed Digitek and Atenolol. The next day I dropped the co Q10

> down to 100 mg because I was not sure if 200 mg was too much or

not

> enough with the beta blocker, and I added 1000 mg of calcium with

> 400 iu Vitamin D3 and 500 mg of magnesium. I also, around this

time,

> took Pam off the Ellagic Acid. In my research I found that Ellagic

> Acid has the ability to inhibit a lot of the phase 1 P450 enzymes

> that are responsible for drug/pharmaceutical matabolism and at the

> same time it has the ability to enhance the phase 2 P450 enzymes

> responsible for detoxification ( although some phase 1's do

> detoxify ). Now to me this is absolutely great, it helps to stop

> chemicals/toxins from entering the cells, and then when some do

get

> through it enhances the ability to detoxify them, but when one is

on

> chemo one wants the opposite effect in the short term. I believe

> Ellagic Acid has the ability to stimulate the efflux pumps in the

> cells, these are tiny little pumps in the cells that pump out

> toxins. The cancer cell or cells making up a tumor over time have

> the ability to grow more pumps which in turn gives the cells/tumor

> the ability to pump out more toxins/chemo. This is the main reason

> for chemo resistance but not the only one. The longer the tumor is

> there, the more pumps it will have, and the more resistant it will

> be, this is why both Pam's oncologist and the gastrointestinal

> doctor at Dana Farber said that they may shrink or even get the

> mets/secondary tumors but they can't get the primary because the

> mets have not been there as long as the primary. They think Pam's

> primary, as small as it is, has been there for a long time.

Anyway,

> my thoughts on it is hold back until after chemo and then go for

it.

> This is just my take on it, it does not mean I'm right, It is

> interesting to note that LEF recommends their multiple that has

130

> mg of Ellagic acid in it for chemo and they know a heck of alot

more

> then I do on the subject, so please do your own research. Below is

> some info on detoxification and the P450 enzymes.

>

> http://www.thorne.com/altmedrev/fulltext/detox3-3.html

>

> Around 01/02/01 I found that selenium worked well with taxol so I

> went from 400 mcg to 800 mcg a day and gave Pam 400 mcg 2 hours

> before taxol. Below is some info on selenium and taxol. At one

time

> over 2 1/2 years ago there was a news article of a study done by

> Dana Farber where they were very excited with the results of using

> selenium 2 hours before taxol. Oddly it disappeared. I wonder why?

>

> http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

> cmd=Retrieve & db=PubMed & list_uids=10928049 & dopt=Abstract

>

> On 01/03/01 Pam had a CEA done. Her oncologist needed a starting

> point because they never got a CEA done after the radiation. It

was

> 96.0

>

> On 01/24/01 Pam's oncologist said her white blood cells were kind

of

> low( borderline ) and he wanted to make sure she got through all 6

> treatments so Pam got one of those booster shots ( I forgot what

you

> call it ) and was fine after that. That was the first and only

time

> Pam had to have the booster. In the meantime I ran out of Liprinol

> and I never did order more. Looking back I think that was kind of

> stupid. Liprinol is a unique omega 3 with a whole different chain

> and supposed to be a good cox 2 inhibitor, but anyway things

turned

> out ok so I guess it didn't make that much difference. I also

> dropped the grape seed extract, I don't really know why, I guess I

> had chemo resistance on my mind, but looking back I don't think it

> would have hurt anything and probably would of helped some.

>

> Let me recap Pam's protocol at this point because I had made so

many

> changes I think I should regroup. At Pam's request on the first of

> the year the dosage was divided to twice a day instead of three

> times a day. I like three myself. I will put M for morning, N for

> night and 0 for none.

>

> Multiple Vitamin Solgar no iron M & 0, laetrile 1000 mg M & N,

Magnizyme

> Forte Plus 4 tabs M & N (now called Omnizyme), Ester C 1000 mg M & N,

> Matake D Fraction 7 caps M & N, Cold water Salmon oil 2 grams M & N,

> Omega 3 complex 1200 mg M & N, Co Q10 100 mg M & 0, Calcium 500 mg

with

> Vitamin D3 200 iu and Magnesium 250 mg M & N, Cat's Claw 500 mg M & N,

> Zinc Chelate 30 mg M & 0, Selenium from yeast 400 mcg with 100 iu

> vitamin E M & N, Vitamin E 400 iu M & 0, MSM 1000 mg M & N, Vitamin B6

> 100 mg M & 0, Vitamin A 10,000 iu M & 0 every other day,

> 7*Keto DHEA 25 mg M & 0, Milk Thistle 150 mg M & N, B complex 50 mg

M & 0,

> Apricot seeds 10 divided in the day, Drug Atenolol 25 mg M & 0, Drug

> Digitek 0.125 mg M & 0, Pam would take a 1/2 a Valium once in a

great

> while when she felt some stress coming on. Stress can excellarate

> cancer. Pam tried to eliminate stress as much as possible.

>

> Note: On Chemo/taxol day Pam would only take 400 mcg of selenium

> with 100 iu Vit. E 2 hours before. Pam would skip the rest of the

> morning dose and only take the nightly dose that night and then

back

> to normal the next day.

>

> On 02/08/01 Pam had a cat and a CEA done. The cat showed that the

> tumors in the medistinum had srunk well over 50% and no new mets

and

> the CEA was 13.4 . Plus the lump in her neck was gone. This was a

> really good day.

>

> On 04/05/01 Pam had a CEA done. It was 2.6 ( NORMAL!!!!!!! ) This

> surprised us and the doctor, then to top it off a few days earlier

> Pam had a follow up with her heart doctor and he had some blood

work

> done and unknown to us he had a CA-125 blood tumor marker done and

> sent it to Pam's oncologist. It was 13.0 . Normal is 0 to 35 .

This

> was a great day but we never heard the word we had been longing to

> hear ( remission ) still a great day anyway. We can wait. From

here

> the oncologist started slowly bringing Pam down to a maintenance

> dose. Pam went 4 on 1 off, 4 on 1 off, 3 on 1 off, 2 on 1 off, and

> finally around 08/10/01 she was down to 1 treatment of 135 mg

every

> other week from then on. I don't know what Pam's oncologist was

> thinking when he put Pam on a maintenance dose of every other week

> but I had read that low dose Chemo/Taxol for a extended period of

> time, 1 year or more, has had much better results with chemo

> resistant tumors, held remissions longer (if not forever), and had

a

> lot less side effects. It is thought that when one goes from high

> dose to low dose chemo, the chemo goes from killing cancer cells

to

> cutting off the blood supply to the tumor called angiogenesis

> inhibition, although it will still kill cancer cells the

> conventional way to some degree, new mets for instance. The link

> below explains this concept better and although taxol at 135 mg

> every other week for a extended period of time dosn't seem the

same,

> to me it seems similar.

>

> http://www.cancerprotocol.com/low_dose_chemotherapy.html

>

> Around 06/05/01 Pam had a CEA done. It was 1.8 . We still didn't

> hear that word but it was another great day.

>

> Around 08/10/01 Pam had a CEA done. It was 1.9 . We still didn't

> hear that word.

>

> Around 11/01/01 Pam's oncologist wanted to do another CEA. Pam

said

> no. Pam told the doctor that she has had the last three holiday

> seasons ruined and that she just didn't want to know antthing or

> even think about it until after the first of the year. The doctor

> just said ok, he didn't seem to have a problem with it so Pam

> continued with the Taxol every other week, stuck with her

protocol,

> and we had a good holiday season.

>

> Around 01/10/02 Pam had a CEA done. It was 1.6 . This was great

> news. I don't mind saying that I was getting kind of nervous

because

> it had been so long. What a relief!! I always try to refrain

myself

> from negative thoughts when I'm around Pam. I stay positive

thinking

> most of the time for it helps Pam to stay positive, although Pam

> dosn't need much help in that department. Pam is one incredible

> women, and I'm not just saying that because she is my wife, I

really

> mean it, she is incredible, right from the beginning when she was

> getting all kinds of bad news I would watch her go into a kind of

> low for a short period, sometimes only minutes, and then shrug it

> off and then put a smile on her face and crack a joke or two. The

> doctors and nurses always seemed to be amazed with her attitude

and

> friends, family and the people she works with never seemed to

really

> realize how serious Pam's situation was and I think that was just

> what she was trying to do. It helped to keep negative thoughts

away,

> although most people were positive thinking around Pam and I think

> that helped alot. Over this whole ordeal Pam had alot of the usual

> signs of someone on chemo like with the 5FU she lost her eyebrows

> and had some black and blues, her hair thinned on the gemzar and

she

> lost her hair alltogether on Taxol and had to wear a wig, she had

> lost a lot of weight but with her attitude and joking about her

> overall appearance it seemed to make everybody think that things

> were just fine, myself included. I don't know what I would do if

Pam

> didn't have this positive attitude, it sure helped to keep me

calm,

> and still does. Pam told me not too long after the final diagnosis

> that she was not going to let it eat at her and that she was going

> to try and stay positive and not dwell on it. Pam has done that

very

> well. Some people have this ability to switch things off when they

> want to. I know things enter Pam's head a lot but then she manages

> to switch it off and go on, I beleive that this ability

contributed

> a lot to Pam's remission, I don't know if I could do the same if I

> was in the same situation. I guess I will never know unless I have

> been there.

>

> On Pam's last visit with her oncologist he said he was going to go

8

> more weeks (that's 4 more treatments) and then give her a break.

Yup

> that's what he said, a break. I knew then that's why he wouldn't

say

> the word remission because he thought the taxol was just holding

the

> cancer back, but I can't help but think by this time that deep

> inside he thought remission was possible. I think he just didn't

> want to get Pam's hopes up too high only to be let down a short

time

> later. I remember saying to myself, break my ass, Pam's going to

> show him a long break, like forever.

>

> Around 01/15/02 I started to hit the net hard, or harder, I should

> say. Pam thinks I spend way to much time on the net researching,

> about 4 or 5 hours a day, but I just can't stop, I'm always afraid

> I'm going to miss something important. I feel that one usually

only

> gets one chance at this so one had better make it a good one. All

I

> can say is thank God for the net. Anyway I discovered that Pau d

> Arco/Beta lapachone and vitamin D3 was synergistic to taxol. Beats

> me how that got by me but I figured better late then never, so I

> made some strong Pau d Arco tea and Pam started drinking 8 oz of

it

> twice a day and then later once a day. I also got some Pau d Arco

> extract, Pam put a teaspoon in her coffee every morning. Pam was

> getting 800 iu of vitamin D3 a day and I remember thinking maybe

it

> helped a little bit, but I added 2000 more IU's from then on. Pam

> drank the tea just before bed the night before taxol day and then

> put the extract in her coffee 2 hours before taxol that morning.

Pam

> would also drink coffee during treatment. I would like to remind

the

> reader of the earlier link on caffein and chemotherapy. In my

> research on taxol I made an observation that I'm not really sure

> about, but in my research I would find little bits and pieces

> indicating the ability of calcium and zinc to actually enter the

> microtubule and straiten, open and stabilize them and let the

taxol

> enter. This is how taxol works, although it is a lot more

> complicated than this, It enters the tiny tubes called microtubles

> in the cell, then stabilizes them, then when the immortal cancer

> cell goes to divide in two it dies naturally instead of

continually

> multiplying into a tumor or a larger tumor. I have read a lot of

> testimonials of people on taxol along with taking a complementary

> protocol and the ones that had really good results I noticed they

> all had one thing in common, they all took 1000 to 2000 mg of

> calcium and at least 50 mg of zinc or more. Of course they where

> doing a lot of the same antioxidants also. Now I'm sure these

people

> wasn't thinking of this microtuble thing when they started taking

> calcium and zinc but they may have added a little extra punch

> without knowing it. Anyway, Pam was already on 1000 mg of calcium

> and 120 mg of zinc from the beginning of taxol so maybe she got

that

> little extra punch also. Like I say, this is just a observation

and

> who knows, maybe I'm all wet, but in my opinion when one is on

chemo

> one has to replace the calcium and zinc that the chemo sucks out

> anyway. And also a high intake of calcium has been connected with

a

> high PH and a high intake of zinc has been connected with

rebuilding

> the thymic gland that is responsible for a major part of the

immune

> system, chemo depletes the thymic gland. And high zinc has also

been

> connected with copper inhibition which, in turn, causes

angiogenesis

> inhibition. So to me it's a win win situation. Remember, this is

> just my own theory, do your own research.

>

> Here is some info on Pau D Arco/Beta Lapachone and Taxol. Notice

on

> the first link where they say beta lapachone alone worked about

the

> same as taxol alone. To me that's a mouthfull. Dana Farber made

the

> same comment about selenium and taxol in the news article that

> disappeared. I just find that very interesting.

>

> http://www.dana-farber.org/abo/news/pressarchive/110899_b.asp

>

> The reader will see on the next link where Dana Farber sold the

> rights to beta lapachone under the name CO-501.

>

> http://atlas.pharmalicensing.com/news/adisp/981071183_3a79f54f91d29

>

> The reader will see on the next link where CO-501 is going into

> clinical trials in mid 2003. Yup, this year.

>

> http://216.239.37.100/search?

> q=cache:0D5pfOzwEUEC:www.cyclispharma.com/about/+co-

> 501+cancer & hl=en & ie=UTF-8

>

> Another news article

>

> http://www.annieappleseedproject.org/paudarandtax.html

>

> Go below to PubMed and type in beta lapachone to see all the

studies

> being done.

>

> http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?CMD=search & DB=PubMed

>

> Below is some info on Vitamin D3 and Taxol. Notice in the first 2

> links where they say that Vitamin D3 worked better alone then

Taxol

> alone. They have been using different D3 analogs in the studies

but

> I would almost be willing to bet that the more natural form from

> supplements would work as well. Notice I said more natural, the

real

> natural form you get from the sun and your own body.

>

> http://www.annieappleseedproject.org/comefofvitd3.html

>

> http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

> cmd=Retrieve & db=PubMed & list_uids=10326788 & dopt=Abstract

>

> http://www.annieappleseedproject.org/vitdanditsan.html

>

> http://www.annieappleseedproject.org/vitd3anclaso.html

>

> http://www.lef.org/protocols/prtcl-027e.shtml?GO.X=8\ & GO.Y=6

>

> Around 01/20/02 I had about 10 days worth of wormwood left with

> about 2 months left on them so Pam used them up.

>

> On 02/28/02 Pam had her last taxol treatment.

>

> On 03/13/02 Pam was off chemo and Pam and I were bound and

> determined she was going to stay off it. We decided to add and

> change a lot of things in the protocol, a sort of post chemo

> protocol athough there is a lot of things in it that I probably

> should have had her on right along. I also made a big change in

the

> brands I buy. It had always been hard enough to figure out what

type

> of supplements to buy but to figure out from who was just about as

> hard. I used a lot of different brands and I'm sure most of them

> were just fine but I was getting tired of going all over for this

> that and the other thing and still not sure of the quality.

> Throughout all my research I would always come across the Life

> Extension Foundation and people speaking very highly of them. I

> thought many times in the past year or so of going with them but I

> didn't want to change anything when things where starting to look

> good. Now Pam was going into a new ballgame and I just decided to

> heck with it, I'm going to go with them for the most part and also

> pick out a lot of their reconmmendations from their cancer

adjuvant

> protocol. So on 03/13/02 I made a big change but I stuck with a

lot

> of things I couldn't get through them and some things I just

didn't

> want to change. I guess I added to the protocol more then changed

it.

>

> Pam takes a lot of things in this protocol in the link below plus

a

> lot of other things she was already taking.

> The LEF protocol on the link below has been updated on 03/04/03

>

> Updates: Over the past year I have tweaked Pam's protocol. I have

> added and subtracted some things so I will put the updates in red

> below.

>

> http://www.lef.org/protocols/prtcl-027.shtml

>

> Here is a list of what Pam is taking. The first number will be the

> AM dose, the second number will be the afternoon dose, and the

third

> will be the late PM dose. I will put 0 for none.

>

> 1- http://www.lef.org/prod_hp/prod00585.html 3-3-3

> LEF MIX

>

> 2- http://www.lef.org/newshop/items/item00298.html 1 Tbs-0-

> 0

> LEF Herbal Mix

> Update: As of about 08/01/02 Pam stopped taking the herbal mix

> altogether. It didn't mix well and she really didn't like it so I

> didn't push her to take it because she was already doing a lot.

>

> 3- http://www.lef.org/newshop/items/item00567.html 0-1-0

> se-methlyselenocysteine or LEF's Se MSC

> Note: LEF came out with this around april 02. I started Pam on

this

> around the end of april 02.

>

> 4- http://nutri.com/selenium/ 2-0-2

> se-methlyselenocysteine or seleniumMC

> Note: Before LEF came out with their SeMSC, Wholesale Nutrition

was

> the only one in the world (I think) you could get this kind of

> selenium and because Pam is doing so well I did not want to change

> completely over to LEF's but I'm pretty sure LEF's is just as good

> and it cost less.

>

> Update: As of about 02/01/03 Pam went to 1-0-1

>

> 5- http://shop.store./vitanet/7ket60capphy.html 1-0-0

> 7-Keto DHEA

> Note: Pam takes 7-Keto DHEA in the place of the regular DHEA

because

> it well not raise Testosterone or estrogen. It cost more but I

think

> it's worth it.

>

> 6- http://www.lef.org/prod_hp/php200.html 0-0-1

> Melatonin

>

> 7- http://store./holistic-

alternatives/magforplushi.html

> 3-3-3

> Magnizyme Forte Plus

> Note: Pam has been doing these since around 09/15/99 and I think

> they are one of the most important things in her protocol.

> Pancreatic enzymes can eat away the protective protein coating

that

> protects the cancer cell and let's the immune system and any

cancer

> fighting supplements one may be taking in to kill the bad cell.

This

> also includes chemo. I buy my enzymes from the above link because

I

> get them cheaper there, but I like the explanation on the link

> below . The label will say Omnizyme, It's the same thing as

> Magnizyme or Megazyme just a different label. If one ordered from

> the above link it will also come with the Omnizyme label. I would

> also like to remind the reader that the zinc content is not 10 mg

> anymore, it is now 2 1/2 mg.

>

> Note: For a short time I added some Pork enzymes to Pams protocol

2-

> 2-0 but coupled with the other enzymes it gave Pam diarrhea, I

tried

> 1-1-0 and it still did, so I cut them out all together and she was

> fine after that.

>

> http://www.bluegrass.net/~jclark/omnizyme.htm

>

> 8- http://www.lef.org/prod_hp/php424.html 1-0-1

> Vitamin D3

>

> Update: As of 01/01/03 Pam went to 1-1-1 She will go back to 1-0-1

> in May.

>

> 9- http://www.lef.org/newshop/items/item00579.html 0-1-0

> LEF Booster

>

> 10- http://www.lef.org/prod_hp/php157.html 2-1-2

> Mega EPA

>

> 11- Omega 3 complex 1200 mg 0-1-0

> Note: I get this from my local herbal store, it's their own blend.

>

> 12- http://www.lef.org/newshop/items/item00444.html 2-2-2

> Super Green Tea Extract (95% decaf)

>

> 13- http://www.lef.org/prod_hp/php698.html 1-0-0

> COQ10

>

> 14- http://www.lef.org/newshop/items/item00214.html 2-0-2

> Kyolic Garlic Formula 105

>

> 15- http://www.lef.org/newshop/items/item00356.html 2-0-2

> Pur-Gar

>

> 16- http://www.lef.org/newshop/items/item00552.html 2-1-1

> Super Curcumin with Bioperine

>

> Update: As of 02/01/03 Pam went to 1-1-1

>

> 17- http://www.lef.org/newshop/items/item00495.html 0-1-0

> Super K

>

> 18- http://www.lef.org/newshop/items/item00496.html 1-1-1

> Silibinin Plus

>

> 19- http://www.lef.org/newshop/items/item00412.html 0-1-0

> Calcium Citrate W/D3

>

> 20- http://store./iherb/calmagd.html 2-1-2

> Nature's Way Calcium, Magnesium & Vitamin D3

> Note: When I changed to LEF on 03/13/02 I ordered Calcium and then

I

> started thinking that Pam has been taking this for some time now

and

> is doing so well why change.I like it that it has 3 kinds of

Calcium

> plus the Magnesium.

>

> 21- http://www.lef.org/prod_hp/php218.html 2-0-0

> THYMIC IMMUNE FACTORS

>

> 22- http://www.lef.org/newshop/items/item00451.html 0-0-1

> MSM

>

> 23- http://www.vitacost.com/store/products/ProductDescription.cfm?

> SKUNumber=030054072296 1-1-1

> Cat's Claw

> Note: I buy it at my local health/herb store.

>

> Update: as of 02/01/03 Pam went to 1-0-1

>

> 24- http://store./iherb/maitake.html 5-5-5

> Maitake D-fraction http://www.alliedwaves.com/maitake_1.htm#Dosage

> Note: When Pam has a CAT scan or a Xray done I give her 7-7-7 for

a

> week before and a week after.

>

> Update: As of 02/15/03 Pam went to 3-0-3 and added Host Defence

see

> #34

>

> 25- http://store./iherb/beta13.html 1-0-1

> Beta 1,3 Glucans From the yeast cell wall.

> Note: I added 400 mg's of Beta 1,3 Glucan from yeast, it cost less

> and I think it gets Pam more diversified.

>

> Update: As of 03/01/03 Pam went to 0-0-1

>

> 26- http://store./iherb/zinc5.html 0-1-0

> Zinc 30 mg amino acid chelate

> Note: I have been giving Pam this kind since around 09/15/99 so

I'm

> staying with it.

>

> 27- http://www.pau-d-arco.com/ 0-0-8 oz

> Pau D Arco Tea

> Note: Pam puts a lot of lemon juice in her tea. It has no sugar in

> it and it helps to bring her ph up.Some even think it helps to

> increase the tea's bio-availability.

>

> A good quality Pau D Arco tea is probably one of the hardest herbs

> to find in the internet jungle. Some grind up the outer bark along

> with the inner bark. Some even grind up the whole tree, and some

is

> so old and dry that most of the good properties are gone. After

> searching all over the net I finely come across DeLong's

site

> ( the site above ) Now I can't say I can be 100% sure of the

quality

> of 's tea, but what I can say after reading his site, passing

> eMails back in forth, and talking to him on the phone, I get a

> general feeling that is an honest and caring man. Sometimes

> all one has to go on is ones instinct and gut feelings. and

I

> don't exactly see eye to eye on some things, laetrile for

instance,

> It's not that he is against it, he is just vary skeptical of it.

> seems to be very skeptical of a lot of things, he's a hard

man

> to convince, so for to be so convinced about Pau D Arco tea,

> to me is really saying something. believes that just the

tea,

> some vitamin K and maybe a good multiple is all one needs to fight

> cancer. He suggest plenty of clean water also. This is another

thing

> I don't agree with. I think one should hit it from all four sides

> with everything one has, but who knows, maybe he's right, he has a

> lot more experience with Pau d Arco tea then me, and with all the

> research I have done I have no dought that Pau d Arco is a good

> cancer killer, I just don't like putting all my eggs in one

basket.

> Back in mid 2002 stopped selling the tea to new customers,

he

> wants to get the word out on the benefits of Pau d Arco tea and he

> thinks selling it takes something away from his integrity. Now I

> just don't get that, I believe as long as it is a quality product

> one can sell it and still keep their integrity at the same time.

> Geeezzz somebody has got to sell it. I don't care if someone makes

> money off me just so long as I get what I pay for, and yes, there

> are a lot of crooks out there so one has got to weed through the

> jungle, it sucks but that's the way it is. When stopped

> selling the tea I bought a vary large amount, so I'm good for a

long

> time and informed me that he will still supply me if I need

> more. At a very low price I might add. But when the time comes

that

> I can't get the tea off I will need another good source.

> Awhile back I came across this site http://www.herb-care.com/ and

> had a feeling that they got their tea from when they started

> their fight with cancer, so I emailed and asked him if he

knew

> them. said indeed he does know them and he speaks highly of

> them, and that they sell the same quality tea as he. said at

> first they wanted to be a destributor for him but said he

> wanted out of the business ( that integrity thing again ) so they

> are on their own. said he did supply them with the tea

> wholesale, whether he does now or not, I don't know. To me I

believe

> If or when I need another source this site will probably be my

best

> shot for quality, again that comes from a little knowledge and a

big

> gut feeling. This is just to tell the reader what I would do, of

> course the reader has no way of knowing of my integrity either,

> that's just the way it is. I suggest the reader do their own

> research and go with their own gut feelings.

>

> 28- http://store./iherb/paudarco3.html 1 tsp-0-0

> Pau D Arco extract

> Note: Pam puts 1 tsp in her coffee in the morning.

>

> I started giving Pam this brand at the suggestion from

DeLong.

> looked into this company a little and said he liked the

> overall process they use to make the extract. will tell you

> that the extract is just a good booster, and that the tea is the

> best cancer fighter. stresses this point alot. Pam and I put

> it in our coffee, I really like it, it's good.

>

> 29- http://www.cytopharma.com/ 2-2-2

> Laetrile/Amygdalin/Vitamin B17 500 mg

> Note: Pam has been on this since 09/15/99. I gave her 2-2-2 for

her

> first 6 months than I brought her down to 2-0-2 for 2 years and

> then, when Pam got off Taxol, I went back to 2-2-2 on 03/13/02.

>

> Update: As of 01/01/03 Pam went to 1-1-2

>

> I believe laetrile/B17 can cure some cancers mostly in the early

> stages. It seems to work best on adenocarcinoma. ( just a

> observation) I believe B17 can stop metastasis (spread) in all

> cancers.From all that I have read, this is an observation of many,

> but the observation of one person and two words is what sticks in

my

> head.Doctor Kanematsu Sugiuan one of the best researches at Sloan

> Kettering back in the 70's with 60 years of experiance, did some

> extensive research on laetrile and cancer. When a reporter asked

Dr

> Sugiua, Do you stick by your belief that laetrile STOPS the spread

> of cancer? He replied ( I STICK ). This is on record! Now I can do

> all the research in the world and It would still not mean as much

as

> those two words " I stick " coming from such a man of experience and

> integrity. Dr Sugiua said, I write what I see, and I believe him.

>

> http://www.geocities.com/freee80/B-171.html

>

> http://www.mecfilms.com/universe/articles/laetrile.htm

>

> Below is some more information on B17.

>

> http://www.smart-drugs.net/ias-laetrile-cancer.htm

>

> http://www.curezone.com/foods/laetrile.asp

>

> http://credence.org/Eclub/Sept14th2000.htm

>

> http://www.whale.to/m/binzel2.html

>

> http://www.cancure.org/laetrile.htm

>

>

http://news.bbc.co.uk/1/hi/in_depth/sci_tech/2000/festival_of_science

> /913463.stm

>

> More on laetrile/B17 below on cancer diet.

>

> 30-

>

http://www.bluegrass.net/~jclark/apricot_kernels.htm

> 10 throughout the day

> Apricot Kernels/seeds

> Note: Pam has been eating the seeds since 09/15/99 also. She ate

20

> a day for the first 6 months then went down to 10 a day from then

> on. I wanted her to go no lower then 15 but she wanted to go to 10

> so that was that. 15 to 36 is the recommendation when one has

> cancer. 10 a day for life is the recommendation in remission.

>

> Note: Up until 07/17/02 I have always gotten my seeds from

> Christian Brothers (1-718-651-3790) but on my last order it took a

> long time to come in. They have been having a lot of trouble with

> the FDA for the last 3 years, so that may be the problem. I have

> been ordering from the link above lately and the seeds seem to be

> just as good as the ones I had been getting from C.B., I feel

> comfortable with them.

>

> Pam and I started out very slowly with the seeds, eating just 1 or

2

> at a time spread throughout the day until we were to the amount we

> felt we needed. When we first started out, anything more then 2

> would drop our blood pressure so fast that we would feel light

> headed and have to sit down. This happens to most people in the

> beginning, it is said that it's because the body has been lacking

> nitrilosides for so long it takes time for the body to adjust. In

> the beginning the seeds should taste bitter, this is how one can

> tell how fresh they are. The more bitter they are the fresher they

> are. Over time the seeds will not tast as bitter as they did in

the

> beginning because the body is getting used to them, this is a

> observation of many. I have had high blood pressure for years, I

eat

> 5 seeds at once, twice a day, with no light headed feeling and the

> bitterness is cut to half and whenever I get my blood pressure

> checked all I ever hear is perfect, this is a observation by many

> also. Pam still only eats 2 or 3 at a time, spread out in the day,

> until she gets to 10.

>

> The apricot seed is the second best source for natural

nitrilosides.

> The best natural source is the bitter almond. It is said it takes

> about 5 apricot seeds to get the same amount of nitrilosides that

> one would get from 1 bitter almond. It is also said that there are

> some trees that produce an even higher content then that. In 1995

> the bitter almond tree was banned from the U.S., I find this a bit

> odd. The FDA has been trying with a lot of effort to ban the

apricot

> seed for some time now but they just don't seem to know how to go

> about it. I find this very odd also. Haven't they got better

things

> to do? This puts up flags all around me. Think about it!

>

> Below is something one may call not very scientific but I find it

> very interesting just the same. One more interesting note is that

in

> some asian countries they refer to apricot seeds as almonds.

>

> Below are readings from Edgar Cayce, the sleeping prophet.

>

> http://ecayce.tripod.com/qa-1.htm#questions

>

>

> QUESTION:

> In general, What do Cayce's readings say about cancer?(rogman)

> REPLY:

> From READING 1206-13 Given on November 23, 1941

>

> " ...if ye would take each day, through thy experience, two

almonds,

> ye will never have skin blemishes, ye will never be tempted even

in

> body toward cancer nor towards those things that make blemishes in

> the body-forces themselves. "

>

> From READING #3180-3 Given on December 21, 1943

>

> " ...almonds are good and if an almond is taken each day, and kept

> up, you'll never have accumulations of tumors or such conditions

> through the body. An almond a day is much more in accord with

> keeping the doctor away, especially certain types of doctors, than

> apples. For the apple was the fall, not almond - for the almond

> blossomed when everything else died. Remember this is life! "

>

> http://www.second-opinions.co.uk/laetrile.html

>

> Vary strange coincidence don't you think?

>

>

>

> 31- Drug, Atenolol 25 mg 1-0-0

>

> Update: Around 09/15/02 Pam went to 12 1/2 mg

>

> 32- Drug, Digitek 0.125 mg 1-0-0

>

>

> 33- http://www.lef.org/prod_desc/item00289.html 2-2-0

> CLA

> Update: Around 11/01/02 I added CLA to Pam's protocol.

>

> 34- http://store./iherb/hostdef.html 0-2-0

> Host Defence

> Update: Around 01/15/03 I added Host Defence to Pam's protocol.

>

> Update: As of 02/01/03 I started giving Pam just one small dose on

> Sundays. I had read many times that small breaks in a supplement

> protocol can actually make the supplements work better. I don't

> really know why, maybe a break gives everything time to level out

> and start working together, beats me. Some take as much as a week

> off every month but I still don't dare to do that yet, but one

small

> dose a week seems ok to me. Pam takes the below at mid day but she

> still takes the Pau d Arco tea, extract, and seeds at the same

time.

>

> laetrile 2 tabs, Green tea 3 caps, Omega 3 complex 1 cap, Curcumin

1

> cap, Vit. C with bioflavonoids 500 mg 1 cap, CLA 1 cap

>

>

> Cancer Diet

>

> Pam has never been on a real strict diet but what she has done I

> think has helped a lot.She started the below around 09/15/99

>

> 1- She started eating more raw vegetables (salads) and less red

meat

> and pork.

>

> 2- She started eating fish at least 1 time a week if not 2. Many

> know that one needs to keep a certain balance of omega 3 (found in

> fish) and omega 6 (found in meat) and that most of us eat way to

> much omaga 6. So besides taking omege 3 supplements, eating fish

can

> help a lot because when one is eating omega 3 one is not eating

> omega 6 so one is actually doubling the affect.

>

> 3- NO SUGAR!!! well very low sugar anyway. Pam stopped her sugar

> intake as best she could around 09/15/99 but it's almost

impossible

> to get away from sugar altogether.They put sugar in just about

> everything. Pam stopped eating simple sugars (refined sugar) like

> pastries, candy, sodas, ice cream, etc, and she eats very little

> complex sugars like fruit, and drinks very little fruit juice. The

> complex sugars don't spike like simple sugars do but to me it is

> still sugar and cancer loves sugar.Pam still eats carbohydrates

like

> bread and rice, among other things, I don't think it's a good

idea,

> but she don't eat a whole lot of it anyway.

>

> I think stopping sugar intake is probably one of the most

important

> things one can do to fight cancer and it doesn't cost a thing, In

> fact, one may even save some money. If one is on laetrile therapy

a

> no sugar diet becomes twice as important. Sugar turns to glucose,

> the cancer cell consumes glucose in great quantities for energy (

> fuel ) so it can divide and grow into a tumor and then continue to

> grow. The cyanide in laetrile is wrapped in glucose. The whole

idea

> is to bring ones sugar level down as low as possible and then take

> the laetrile, with the cancer cell starving for glucose the

laetrile

> acts like a smart bomb, the cancer cell takes up the glucose along

> with the cyanide and BOOM!!

>

> I was told when one has cancer and eats something loaded with

sugar

> it is just like throwing a cup of gasoline on a smoldering fire. I

> think this guy is right on, I think it's a perfect comparison. I

> believe It may be possible to slow cancer down by as much as 50%

by

> just stopping sugar intake. It would be kind of like keeping it to

a

> smolder. It is thought that if one could stop all sugar/glucose

the

> cancer would die immediately, but so wouldn't your brain. The

brain

> needs lots of glucose. There are many working on this dilemma but

in

> the meantime one can at least slow it down by not overloading

> themselves with sugar.

>

> Below is some information on cancer and sugar.

>

> http://www.mercola.com/article/sugar/sugar_cancer.htm

>

> http://www.mercola.com/2000/oct/8/sugar_cancer.htm

>

> http://www.slip.net/~mcdavis/dbas7395/93309355.htm

>

> http://www.jhu.edu/~gazette/julsep95/jul2495/24cancer.html

>

> http://www.jhu.edu/~gazette/janmar98/mar1698/16briefs.html

>

> http://www.iptcancer.com/cancer_loves_sugar.htm

>

>

> The reader may be wondering how Pam keeps track of all the

> supplements she takes and how she knows she didn't miss any. I lay

> out 7 days worth at a time using a plastic fishing tackel divider.

> http://www.basspro-shops.com/servlet/catalog.TextId?

> hvarTextId=1557 & hvarTarget=search (I got mine from Wal-Mart) and

> she keeps it in a dark cool place. She has a carrying pouch for

when

> she is going somewhere, she just takes a dose with her.

> I think it is a lot easier for her because I keep track of all the

> inventory and do all the ordering and lay them out for her, all

she

> has to do is take them (that's enough)

>

> On 03/17/02 Pam and I went to Disney World for a week. I think

this

> was the best medicine for Pam at that time. We went on all the

> rides. A lot of people with cancer use a rebounder ( a small

> trampoline ) to bounce up and down to get the lymph nodes moving,

> this helps to detoxify the body and get the immune system going.

> Well Pam got bounced around a lot, and then on top of that, she

got

> a lot of sun ( vitamin D3 ), She did a lot of walking, got a lot

of

> fresh air, and had a lot of fun doing it. Laughter helps to heal

> both body and mind. This helped to get Pam's mind off everything

and

> helped to take any stress she had away. I recommend this for

> everybody.

>

> On 04/04/02 Pam had a CEA done. It was 1.9 . Pam's oncologist

walked

> into the room with a big smile on his face and said, Quote: You

are

> absolutely my favorite patient. Pam just laughed. He said, no, you

> really are, you are absolutely amazing. I then looked at the

doctor

> and said, things are starting to look pretty good aren't they doc?

> He looked at me with a big smile and then gave me the thumbs up.

> Then he went on to say that Pam was doing great and that he

couldn't

> predict Pam's future with cancer no more then he could predict his

> or mine. So the doc was happy, we were happy, it was a great day.

> All the doc said was, I'll see you in two months, he never said

that

> word but

> all we could think of was maybe he didn't think it's been a long

> enough time without the chemo, it was kind of strange but we'll

> wait. We never ask and athough Pam and I hardly talk about it, we

> both want the Doctor to say it on his own, and he just won't.

Maybe

> next time.

>

> On 06/06/02 Pam had another CEA done. It was 1.6 . Pam had gotten

> the results from the nurse before the doctor come in the room.

> Needless to say we were excited and relieved. I remember thinking,

> It's been three months without chemo, we are definatly going to

hear

> that word today. The doctor walked in and to our surprise, instead

> of acting really happy like the last visit, he seemed very quiet

and

> serious. He said he was happy with the CEA and then started going

> into this long speech about Pam's long history. He picked up Pam's

> file and said, see how thick this is? He said, I have another one

> just as thick in my office. To make a long story short, he was

> telling Pam that when most people have this kind of history (and

he

> referred a little to the live cells in the liquid 18 months

earlier

> among other things) that Pam's odds were still not that good. The

> doc said he wanted a CEA done in 2 months, Pam said 3, the doc

said,

> No, 2 months. Pam said, No! I'll see you in 3 months. The doc

> finally gave in and said ok 3 months but just as soon as you feel

> something get in here right away. Pam said ok. I could tell that

he

> was almost sure that Pam's CEA was going to be back up within 2

> months, in fact I think he was pretty sure it was going to be up

on

> this visit and I think it caught him off guard. Well, after all

> that, the doc said I'll see you in 3 months and then walked out

the

> door. Pam and I were still sitting there. I looked across at Pam,

> she had here head down and looked so disappointed It got me really

> pissed off. This is the first time I really got mad. By now the

doc

> was half way down the hallway, I just hollered out , when will you

> know if she is in remission?!!! The doc walked slowly back into

the

> room and said in a low voice, well she is in remission. I said,

Why

> didn't you say that?!!! He could tell I was mad. He said because

it

> might come back. Then I hollered at him again, And it might not!!!

> He kind of changed his tone a little and said, you're right it

might

> not. Then he started to kind of refer back to what he was talking

> about earlier and then just said when or if it comes back he was

> going to put Pam on taxotere. I could tell he was thinking more of

> when then if. The strange thing was, I'm not sure how much Pam

heard

> past the word remission, Pam's head came up with a big smile and I

> don't think Pam gave a hoot about anything anyone had to say past

> that word. It took her 3 1/2 years to hear what they all said

would

> not happen and she didn't care how it came. Pam took all the other

> imformation and put it on the back burner and focused on that one

> word. Pam and I took that day off from work and celebrated. It was

a

> great day.

>

> Note: One thing I forgot to mention that I was glad to hear was

the

> doc said he didn't want Pam to get another cat because he didn't

> want to take a chance of getting anything started again. That kind

> of struck me because it had been on my mind a lot and I had been

> meaning to ask him what his thoughts were on the subject. I think

> this was great he came out with this without me even asking. It

> sounded like the doc had been doing his homework. Over a 6 to 12

> month period prior to this visit there had been a lot of news on

> studies showing that too many CT scans and X rays can bring one

out

> of remission. This just helped to shore up what many people have

> been saying for years.

>

> I would like to stop here because I don't want the reader to get

the

> wrong impression of Pam's oncologist. Pam and I have a lot of

> respect for this man. We can tell that he cares a lot and we can

> also tell that he is always having a hard time trying to stay up

> front with us and at the same time trying not to be too negative.

> It's like he is always walking a tightrope. It was because of this

> mans experiance and our respect for him that hearing the word

> remission from him without asking meant a lot to us. Deep inside

we

> knew, but we wanted to hear it from him. It's to bad I had to

holler

> at him, but I couldn't take it anymore, and I don't think Pam

could

> either. He was just being very cautious. To me I would rather have

a

> doctor that's too cautious than one that's not cautious enough.

Now

> that I'm on the subject of Pam's oncologist, I said earlier that

Pam

> told him way back what she was taking and that we didn't think he

> even remembers it. Back when Pam told him what she was taking, he

> seemed to be kind of neutral on the subject. At the time there

were

> three oncologists there, now there's only two. From time to time

Pam

> would have one of the other oncologist check her out before chemo

> when her oncologist was not there. Pam, at one time or another,

hit

> both these oncologists with what she was taking to see what their

> reaction was. One, the one that left, didn't have a problem with

it,

> although he did kind of get on Pam about taking laetrile. He said

I

> can show you a study that proves it doesn't work. Pam said, If

> your'e referring to the study done by Sloan Kettering in the 70's

> don't bother, that was rigged. Pam said the oncologist looked kind

> of stunned for a bit and then just smiled, I think he just found

out

> Pam doesn't bow to anybody and if she has her mind made up you're

> not going to change it. Pam would have him every now and then and

> they would argue a little but I think they both liked it, they

> really liked each other actually. Now, the other oncologist is a

> different story. The same thing, Pam would have this one when

Pam's

> regular oncologist was not there, and the same thing, Pam hit him

> with what she was taking. By the way, this guy was the head

> oncologist and very big in the area, he traveled between three

> different clinics at that time, now I think he is just at the one

> since they became connected with Dana Farber, anyway, when Pam

told

> him what she was taking he had his back to her and wouldn't even

> turn around and he never said a word. Finally I said, she doesn't

> take the antioxidants on the morning she gets chemo,and all he

said

> was, that's good anyway, and that was it. A few months latter Pam

> had him again and somehow Pam's complimentary protocol came up

> again. When Pam came home she told me she had Dr ----- . I asked,

> what did he have to say? Pam said, he told me to throw the seeds

> away, they don't work. I said, so what are you going to do? Pam

> said, ---- him. I just smiled. After around mid 2000 Pam just

> stopped mentioning it all together. Now in the last six months or

so

> I'm starting to hear and see a little change in both oncologists

> attitude on complimentary approaches. Around 10/15/02 I went to

the

> herbal store in my home town. Over the last three years I have

> gotten to know the pharmacist/hearbalist/owner there, and he had

> taken an interest in Pam's progress. When I walked in he told me

> about a guy that was in earlier that said that he was there on the

> recommendation of Dr ---- ( the head oncologist ) and then he went

> on to tell him that Dr ---- recommends a lot of things to family

and

> friends behind closed doors. Now I can understand the doctors

> situation as far as recommending something out of protocol, being

> connected with Dana Farber and all, but I think this is a big step

> just the same, because at least he may not be so discouraging to

> somebody that's trying something on their own. I never did find

out

> what he was recommending. At the same time the owner told me that

it

> is very importent that Pam and I tell Pam's oncologist what Pam

has

> been doing for the last three years.(now 3 1/2 ) He said that

Pam's

> story may help to change their attitude towards complimentary

> treatment. I told him, I think if I gave Pam's oncologist a full

> list of what Pam was taking the doc would probably drop to the

> floor, anyway, I told him Pam and I would think about it but we

> still haven't said anything. Now another sign of change of

attitude

> came from a casual friend of my wifes. Pam's friends farther has

> been fighting lung cancer for a few years now and has been holding

> up way better then the oncologist ever thought he would. He has

the

> same oncologist as Pam. Around 02/15/03 the oncologist asked him

> what he was doing, he said he was drinking Essiac tea everyday.

Now

> the tea hasn't cured him but it sure seems to have helped a lot.

> What came next really surprised Pam and I. He said the Doc asked

him

> for the recipe and that he may recommend it to some of his

patients.

> I'm sure it would be for adjuvant therapy and not a cure. The way

I

> see it is this is great, they both seem to be opening their minds

to

> things and to me that's a good start. After hearing the last story

> Pam and I are starting to rethink telling the doc Pam's protocol,

> maybe.

>

> On 09/05/02 Pam had another CEA done. It was 2.0 . Pam's

oncologist

> said he was happy with the CEA and then looked her over and said

> there was no sign of cancer. The doc was very quiet that day and

> seemed very disturbed and I had a feeling it had nothing to do

with

> Pam. I think something bad happened just before we saw him, his

eyes

> were all watery and it looked like he was trying to get his

composer

> back but was having a hard time doing it. I wouldn't want his job

> for anything. Anyway, we didn't hold him up with a lot of small

> talk, he just said I'll see you in three months and then we got

out

> of there.

>

> On 12/05/02 Pam had another CEA done. It was 3.5 . Now this kind

of

> scared me, up a point and a half from the last time, but then the

> doc came in and I had never seen him so happy, he seemed kind of

> excited and very positive sounding. I started asking myself, is

this

> the same guy we talked to in June? I wanted to ask, what did you

do

> with Pam's Doctor? It's almost as if Pam made it to some small

> milestone or something but he never said one way or the other. I

> wonder if maybe it was because 2 years had gone by since the

cancer

> cells in the liquid seeped into her system. I have read before

that

> two years is a milestone with cancer. Anyway I asked him about the

> CEA going up and he said with a very positive voice, don't worry,

> It's not that accurate, there is no activity, and then he told Pam

> he will see her in three months. That was a good visit.

>

> On 01/17/03 Pam had a small mishap, she started to appear to cough

> up a lot of blood. This scared the hell out of us. Pam went to the

> emergency room and they did X rays and a blood test and couldn't

> figure it out. Finally it slowed down and we went home only to

have

> to go back 12 hours later with it being worse then it was before.

> Finally it stopped and they told Pam she was going to need a cat

and

> see her oncologist as soon as possible. By the time Pam saw her

> oncologist the bleeding had stopped and she seemed to be ok. Pam's

> oncologist said he thought it was because it had been so dry out

> that she may have popped a vessel in her nose and because of the

> post nasal drip it appeared to be coming from her lungs. The doc

> said he wanted Pam to have a cat and a CEA done and see a lung

> doctor just to be sure. Then he told Pam not to worry, he said the

> cat is not going to show anything and the CEA is going to be

normal,

> he said it was just a standard precaution. I remember thinking,

this

> guy sure sounds positive, what the heck happened to make him do

such

> a 180 like that? Anyway he made us both feel better.

>

> Note: I can understand why the doc had to tell Pam to get a cat,

it

> was his obligation to, but it still bothers me and Pam. Pam really

> didn't want that X ray or cat. When Pam told the doctor at the

> emergency room her and her oncologists concern on X rays and cats

he

> started to get mad and kind of loud and acted like it was a bunch

of

> bull. I think this doctor has just enough brains to be dangerous.

> Well, in the end we could see that we had to know and so didn't

the

> oncologist but it was too bad this had to happen, it had been just

> about two years without one and we were just starting to feel

> comfortable. Hopefully that was the last one.

>

> On 01/24/03 Pam had a CEA done. It was 3.4 . She went in to get

her

> cat done but there was a big car accident that day so Pam made

> another appointment for a week later.

>

> On 02/05/03 Pam saw the lung doctor. He said that the cat showed a

> lot of scar tissue and that if there was cancer behind it, it

would

> be hard to see it. He got Pam a little upset.

>

> On 02/06/03 Pam saw her oncologist. He walked into the room just

as

> happy as could be and said everything looks good. Pam told him

what

> the lung doctor said and he said in a loud voice, absolutely not,

> there is no cancer and that he got Pam worried for nothing. The

doc

> said don't worry about it, everything looks good, there is nothing

> there. He told Pam to come in and see him in March but don't

bother

> to get a CEA done,he said he just wanted to visit with her. I'm

> still wondering what he did with Pam's real doc.

>

> On 03/06/03 Pam went to see her oncologist, he wasn't there, so

she

> saw the head oncologist. Pam really wanted to see her own

oncologist

> but at the same time we thought this is good because it was kind

of

> like getting a second opinion. The oncologist looked Pam over and

> looked at her latest records and said everything looks perfect and

> that she don't need another CEA done until June. Now this was

great

> that the big guy had this much confidence but at the same time we

> didn't like the idea of going so long without a CEA ,so Pam called

> her oncologist a week later and asked to get a CEA done in April.

He

> said no problem. This second opinion did help though.

>

> On 04/15/03 Pam had a CEA done. It was 4.0 . The doc said that he

> was happy with the CEA and that the rest of the blood work looked

> real good. I asked the doc if the CEA going up to 4.0 was anything

> to be concerned about, he said no, he said as long as it is 5.0 or

> under, 2 points one way or the other is meaningless, he said they

> are not that accurate, the CEA is fine. Well, this is a good day,

it

> marks two years of a normal CEA and marks one year of a normal CEA

> without Chemo. I don't count the month of March of 2002 because I

> figure it took at least one month for the bulk of the taxol to get

> out of Pams system. I look at this one year mark as a small

> milestone and although every normal CEA from here on out is a

small

> milestone, the two year mark, from everything I have read, is a

> major milestone, then, of course, there is the five year mark set

by

> mainstream as being cured. So Pams just going to keep at it and

I'm

> going to keep my eye out for any new information on staying in

> remission but I'm not going to spend as much time in front of the

> computer, I've got to get away from it to some degree and start

> thinking of other things, it's been a long haul for both Pam and I

> and we are tired, but I will tell the reader that we are not going

> to stop short of the goal line. I have seen this many times in my

> research where someone beats the odds only to stop their protocol

a

> short time later and have it come back. As time goes on, and when

> things feel right, Pam will slowly bring her protocol down to a

> maintenance dose and not before.

>

> My conclusion to date

>

> In my opinion Pam and I made the right decision in bulding a

> complementary protocol and adding it to Pams oncology protocol.

Just

> looking back at the facts, both Dana Farber and all three

> oncologists at home told Pam and I

> that remission would not happen, although the youngest oncologist

at

> home told Pam that it was highly unlikely, but he can't say with

all

> certainty that it won't happen. That was about as good as it got,

> and Pam had to drag that out of him. So anyway with all the

arsenal

> available at the time between Dana Farber and the clinic at home

> including experimental they said they had about a 20% chance of

> extending Pams life or as they call it, perserving the quality of

> life. By the way, don't ever say, trying to perserve the quality

of

> life to Pam, She said she was going to shot the next person that

> said that to her, she got really sick of hearing it. So given

these

> odds from all these oncologists I would have to think that the

> complimentary protocol was the deciding factor in stopping

> metastases and going into remission. The fact is that all these

> highly experienced Doctors in the mainstream had no faith at all

in

> their protocols. And on the other side of the coin there are other

> professionals in the so called alternative medicine practice that

> have a lot of faith in their protocols for the same prognoses.

Now,

> minus the side effects, I have no doubt the chemo's did a good job

> in helping to stop metastases and slowing the cancer down and I

> think the Taxol really beat the hell out of the cancer but I think

> it was the complimentary protocol that helped to get that last 5

to

> 10% that is always the toughest to get. At the vary least, if

Taxol

> alone put Pam into remission, I believe the complimentary protocol

> gave Pam the strength to stay with it and later hold in remission.

> Given the oncologists attitude three months after Taxol, I have to

> come to the conclusion that Pam's post chemo protocol is the

> deciding factor in staying in remission. Some may call it luck,

> maybe, but I doubt it very much. The oncologist said there was a

20%

> chance of the 5fu working at all, Pam added Cromolyn sodium, the

5fu

> worked ( that was luck #1) The oncologist said the cancer will

> matastasize to the liver, Pam started laetrile, it didn't ( that

was

> luck #2 ) The oncologist said that the chemo's would run her down,

> Pam's complimentary protocol got larger, the oncologist said that

> Pam must just be one of those people with a high tolerance for

> chemo. ( that was luck #3 ) The radiologist went too far with the

> radiation, Pam stuck with her protocol, Pam got through it. ( that

> was luck #4 ) The oncologist said that Taxol was all there was

left

> to try, we increased and added things complementary to Taxol in

> Pam's protocol,the Taxol worked ( that was luck #5)The oncologists

> said Pam would not go into remission, Pam stuck to her protocol,

Pam

> went into remission. ( that was luck #6 ) The oncologist didn't

> think Pam would stay in remission to date, Pam started her post

> chemo protocol, she is still in remission to date. ( that is Luck

> #7 ) The oncologist was very concerned with the live cancer cells

> that seeped into her system, Pam stayed on her protocol, nothing

> showing 28 months later. ( that is luck #8 )

>

> As lucky as Pam is, one would have to wonder how she ever got

> cancer in the first place.

>

> With all the negativity out there coming from the maintream over

> combining antioxidants with chemotherapy it puts a lot of pressure

> on one with cancer to make the decision to do so, but in Pams case

> the decision was a no-brainer. They all said they couldn't cure

her,

> and all they could do was maybe give her more time, so it doesn't

> take a rocket scientist to figure out that Pam had to do something

> on her own to change the outcome. Now if the doctors told Pam that

> the chemo had a good chance of curing her then making that

decision

> would have been a lot harder so I can see where someone in that

> situation would feel like they were between a rock and a hard

spot.

> There are more and more doctors out there starting to get with it,

> and if one is lucky enough to get one of these doctors, it takes

> alot of pressure off. Something someone with cancer definitely

> doesn't need is pressure. As far as a post chemo protocol in my

> opinion should be a no-brainer for everyone. It only makes sense

> that there was something missing in the body that caused the

cancer

> to begin with, so trying to fix the problem by putting good things

> in the body seems to me to be the best solution. Below is some

info

> on antioxidants and chemotherapy.

>

> http://www.lef.org/protocols/prtcl-153.shtml?

> source=eNewsLetterWk15 & key=Body+Pro\

>

> http://www.cancerdecisions.com/denmark2001.html

>

> http://www.cmbm.org/conferences/ccc2000/transcripts2000/018.htm

>

> Well that's my conculsion up to now, I leave it to the reader to

> draw their conclusion. We know we have a long way to go, but we

> believe we are on the right path so we are going to stay on it.

>

> Take care

> Jim Drake