Guest guest Posted September 6, 1999 Report Share Posted September 6, 1999 In a message dated 99-09-06 19:56:55 EDT, you write: << > When you had your child's bloodwork done what were the HHV6 > numbers? Were they way out of range? HHV6 was 1: 160 normal range is < 1: 20 > I wonder if the fact that has > been taking zovirax will skew the numbers if I were to do his bloodwork > soon....Margie I can't answer this except with an assumption that it would, since the zovirax is supposed to fight off the virus. It seems to me it would lower the outcome. But maybe somebody more knowledgeable could answer this. >> Margie: It sounds like this was IgM? My son has very high IgG (1:320, ref is 1:10 and also high on Singh's assay). We are contemplating trying zovirax with the hope and theory that is may lower this titer (with the attentand other good results). Please let us know if you get the titers redone and they are lowered by Zovirax. Maura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2000 Report Share Posted July 19, 2000 HHV6 is human herpes virus 6. For some reason, it seems to be found in lots of kids with autism. My son had very high titers to that as well as Epstein-Barr Virus (EBV) otherwise known as " mono " . (Cary, NC) viruses are everywhere and they are oportunistic, if your immune system is strong they don't bother you; but if its weak they find a fertile place to live. These kids immune systems are overwhelmed by exposure to toxics, poorly functioning detox systems, electrolyte,mineral, and EFA imbalances. Thus viruses find easy prey. These problems have to be fixed to give the immune system a fighting chance. Bernie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2000 Report Share Posted July 19, 2000 Oh heres a cute one toooo. I was carrying my son while battling with an active mono infection, my immune system was crap, and yes, during the 4th month of gestation, when the brain is forming/completing. Stange....he does not have EBV or HHv6? Kathy [ ] re: HHV6 > >HHV6 is human herpes virus 6. For some reason, it seems to be found in >lots >of kids with autism. My son had very high titers to that as well as >Epstein-Barr Virus (EBV) otherwise known as " mono " . > > (Cary, NC) > > viruses are everywhere and they are oportunistic, if >your immune system is strong they don't bother you; but if its weak >they find a fertile place to live. These kids immune systems are >overwhelmed by exposure to toxics, poorly functioning detox systems, >electrolyte,mineral, and EFA imbalances. Thus viruses find easy prey. >These problems have to be fixed to give the immune system a fighting >chance. >Bernie > > >------------------------------------------------------------------------ >Best friends, most artistic, class clown Find 'em here: >1/7078/9/_/705339/_/963967135/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 > Hi guys, > Someone recently posted that monolaurin, which I believe is from coconut > oil, is good for combating HHV6. Can anyone expand on this concept? My > son has HHV6 elevated titers... > We tried it. It made Kenny REALLY hyper. When we repeated the immune panel later, it hadn't done a thing to the HHV6. (Cary, NC) persistentC@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 Lots of HIV patients sware that it also helps I did a search on MONOLAURIN and then got a few web sites of interest, one thing that dinged me was that measles is also an enveloping virus, just as much as HHV6, so why not use this? I have seen very good results with it. Cardiovascular Research has a good brand of it, do search on that too. My sons fatty acids specifically called for CLO, Lauric acid (which is in monolaurin) and olive oil. Kathy Re: [ ] re: HHV6 >Hi guys, >Someone recently posted that monolaurin, which I believe is from coconut >oil, is good for combating HHV6. Can anyone expand on this concept? My >son has HHV6 elevated titers... > >Thanks much, >Chris > >On Tue, 18 Jul 2000 20:37:25 -0400 Bernard Windham ><berniew1@...> writes: >> >> HHV6 is human herpes virus 6. For some reason, it seems to be found >> in >> lots >> of kids with autism. My son had very high titers to that as well as >> Epstein-Barr Virus (EBV) otherwise known as " mono " . >> >> (Cary, NC) >> >> viruses are everywhere and they are oportunistic, if >> your immune system is strong they don't bother you; but if its weak >> they find a fertile place to live. These kids immune systems are >> overwhelmed by exposure to toxics, poorly functioning detox >> systems, >> electrolyte,mineral, and EFA imbalances. Thus viruses find easy >> prey. >> These problems have to be fixed to give the immune system a fighting >> chance. >> Bernie >> >> >> >------------------------------------------------------------------------ >> Best friends, most artistic, class clown Find 'em here: >> 1/7078/9/_/705339/_/963967135/ >> >------------------------------------------------------------------------ >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 <howard78@j...> wrote: > Hi guys, > Someone recently posted that monolaurin, which I believe is from coconut > oil, is good for combating HHV6. Can anyone expand on this concept? My > son has HHV6 elevated titers... > > Thanks much, > Chris Monolaurin has been found to be effective in treating enveloped DNA and RNA viruses such as those in the herpes family, influenzas, paramyxoviruses, rubeola, and several others. It is not effective in treating non-enveloped viruses such as polio, coxsakie, rotaviruses, etc. If you contact Ecological Formulas at 1-800-888-4585 they can send you the references to the research done on monolaurin and EBV, CMV, influenza, etc. In their literature they explain how the lauric acid binds to the lipid-protein envelop of the virus, thereby inactivating it. Additionally, it is alleged that lauric acid (monolaurin) inhibits the replication of viruses by interrupting the binding of the virus to the host cells. I have used monolaurin to help my EBV in check. So far, so good. Ricci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2001 Report Share Posted March 17, 2001 , There is a book called " The Virus Within " by Regush which points toward HHV6 being a very big co-factor in AIDS, possibly bigger than HIV. It has been found that HHV6 kills CD4 cells much more effectively than HIV. In a rush to find " the marker " for AIDS, once HIV was found, most co-factor theories were thrown out. The good news is that the direction in AIDS research has changed. The aim now is to hold the disease in check (not necessarily find a cure) and to ensure that patients have quality of life. So many of the retrovirals have very nasty side affects that quality of life has become a big issue. So, now co-factors are again being looked at because if AIDS can be attacked from a different angle using research already conducted, it would be better for the patients length of life and quality of life. (I hope this makes sense). When my daughter was younger she constantly watched TV standing on her head (on couch cushions). She would also press her head against my body. She was seeking this pressure, but I didn't know why. Now that her HHV6 titers are down from 40-60 to 20 (after 21 months of Valtrex), she only stands on her head once in a great while. Because HHV6 lives in the brain (neurotropic), I asked Dr. G if this could possibly lead to swollen brain tissue. He agreed that it could. I can't imagine how painful that must have been. HHV6 is one bad * & * & *^%$$$! I think that the drugs in Dr. G's arsenal can only do so much. I can't wait for the new neurotransmitters to see if they can pull the HHV6 back into its inactive state. At least, that's how I understand it. Ginger Re: Re:Sensory integration > ginger, > > what do you think it means if you never had roseola? my son had the MMR > vaccines and does have high HHV6 titers. he has also been on and off > anitvirals for yrs. > > mary > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2001 Report Share Posted March 17, 2001 Ginger, My son saw Dr. Goldberg for the first time in Jan. and his HHV6 came back at 640. Kind of scary. Anyway, he'll be starting on Valtrex this week. He can't swallow pills and he has to chew everything. His eating is still very limited (we just started the diet Dr. G recommends. I tasted those tablets (NASTY!). How do you get your daughter to take this...and three times a day. I'm kind of worried he won't cooperate and boy does he need this med. I would appreciate any suggestions from the group. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2001 Report Share Posted March 17, 2001 THis is a very interesting post. OUr son was diagnosed with increased intracranial pressure this week. I'm awaiting the results of his HHV6 titer, (his EBV titer is very high.) I'm fascinated by the description of your daughter standing on her head. It's not identical to my son's way of seeking pressure for his head, but it's very very similar. I'm really anxious for June 18th when we can ask Dr. Goldberg to help us put this all together! Janette Re: Re:Sensory integration > > > > ginger, > > > > what do you think it means if you never had roseola? my son had the MMR > > vaccines and does have high HHV6 titers. he has also been on and off > > anitvirals for yrs. > > > > mary > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2001 Report Share Posted March 17, 2001 Since we went on an AIDS issue I would like to invite everyone to check out www.keephope.net there is an article in it from Progressive Health News Jan. 2001 issue on Transfer Factor Plus VS HIV/AIDS. Also same site has an article on Hepatitis C from Positive Health News 2001 issue from the use of Transfer Factor Plus as well. More information on medline and many other sites if interested in email me personally. Thanks. Re: Re:Sensory integration > > > > ginger, > > > > what do you think it means if you never had roseola? my son had the MMR > > vaccines and does have high HHV6 titers. he has also been on and off > > anitvirals for yrs. > > > > mary > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2001 Report Share Posted March 18, 2001 , I order the Valtrex compounded from B & B Pharmacy in Bellflower, CA. They fill prescriptions for lots and lots of Goldberg patients. You can call them, tell them you need a refill and they call Goldberg's office to get authorization to fill the prescription. They wash the blue coating off the pills, crunch them up and mix then into a banana-simple syrup that isn't bad. The syrup is great because I mix in her Prozac (1st dose); iron (2nd dose) and Diflucan (3rd dose). She is great about taking it. and it makes it easy to give her other meds in it. The telephone number to the pharmacy is (562-866-8363). You MUST ask to talk to a pharmacist. I have been burned waiting for prescriptions that don't show up in the mail because I didn't talk directly to a pharmacist. I have it sent third day priority mail. It must be refrigerated. Hope this helps. Ginger Re: HHV6 > Ginger, My son saw Dr. Goldberg for the first time in Jan. and his HHV6 > came back at 640. Kind of scary. Anyway, he'll be starting on Valtrex this > week. He can't swallow pills and he has to chew everything. His eating is > still very limited (we just started the diet Dr. G recommends. I tasted > those tablets (NASTY!). How do you get your daughter to take this...and > three times a day. I'm kind of worried he won't cooperate and boy does he > need this med. I would appreciate any suggestions from the group. Thanks! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2001 Report Share Posted March 18, 2001 Is HHV6 always painful? My son shows no pain in his head. His only really obvious stims, however, are visual stims (the notorious scanning with one eye) and some jumping when excited, okay a little humming now and again. Martha Re: Re:Sensory integration > > > > ginger, > > > > what do you think it means if you never had roseola? my son had the MMR > > vaccines and does have high HHV6 titers. he has also been on and off > > anitvirals for yrs. > > > > mary > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2001 Report Share Posted March 18, 2001 Ginger, Thank you SO MUCH!!! You just took a load off my mind!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2001 Report Share Posted March 18, 2001 , I have noticed that you make reference to these products in almost every post. Are you taking these and/or selling them? I know of alot of adults that have been taking these products and they don't seem to be doing as well as many on the protocol. One list I was on had several people taking the colostrum/whey products like transfer factor. They would have ongoing symptoms that they felt was a die-off reaction. To me it would seem more like they were taking a product that was causing a reaction. Whenever we use something that is helpful we don't see a die-off or detox reaction for months and months. I looked at some of the sites that you mentioned and noticed that once again Dr. See is involved with research (???) on a supplement by a company that is paying him. After he got fired from UCI for publishing on research at UCI (that was never done) for Mannatech who had also paid him, I am immediately skeptical. If these products were the answer to these illnesses everyone would know it by now. It would be on all the CFS groups and we would all be taking them. I am tired of all the multi-level money makers taking advantage of people that are ill. Not to mention the fact that this list is not for selling supplements. Cheryl >From: " jwhelp " <jwhelp@...> >Reply- >< > >Subject: Re: HHV6 >Date: Sat, 17 Mar 2001 15:30:48 -0800 > >Since we went on an AIDS issue I would like to invite everyone to check out >www.keephope.net there is an article in it from Progressive Health News >Jan. >2001 issue on Transfer Factor Plus VS HIV/AIDS. Also same site has an >article on Hepatitis C from Positive Health News 2001 issue from the use of >Transfer Factor Plus as well. More information on medline and many other >sites if interested in email me personally. Thanks. > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 - My son won't swallow pills either. We crush his meds up with a pill crusher we got at the pharmacy and mix the powder with pudding (Imagine Foods makes a good dairy/gluten free one). We started out with one scoop of pudding with the meds followed by a plain scoop of pudding. After a month we eliminated the plain scoop and slowly decreased the amount of pudding with the medicine so he wasn't getting too much extra sugar. I know what you mean about scary - my son's HHV6 was 130 and we thought that was bad. Then our " normal " daughter's came back at 640 and we can't get in to see Dr. Goldberg until August. Good luck with your son. The Valtrex didn't work for ours, but the Famvir has done AMAZING things for him. Keep us posted! On Sat, 17 Mar 2001 18:08:14 EST lveggie@... writes: >Ginger, My son saw Dr. Goldberg for the first time in Jan. and his >HHV6 >came back at 640. Kind of scary. Anyway, he'll be starting on >Valtrex this >week. He can't swallow pills and he has to chew everything. His >eating is >still very limited (we just started the diet Dr. G recommends. I >tasted >those tablets (NASTY!). How do you get your daughter to take >this...and >three times a day. I'm kind of worried he won't cooperate and boy >does he >need this med. I would appreciate any suggestions from the group. >Thanks! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 , what made you think to get your " normal " daughter tested? I have a typical daughter, full of health and vigour. It never occured to me to get her tested. Does your daughter manifest any signs of ill health? martha Re: HHV6 > - > My son won't swallow pills either. We crush his meds up with a pill > crusher we got at the pharmacy and mix the powder with pudding (Imagine > Foods makes a good dairy/gluten free one). We started out with one scoop > of pudding with the meds followed by a plain scoop of pudding. After a > month we eliminated the plain scoop and slowly decreased the amount of > pudding with the medicine so he wasn't getting too much extra sugar. > I know what you mean about scary - my son's HHV6 was 130 and we thought > that was bad. Then our " normal " daughter's came back at 640 and we can't > get in to see Dr. Goldberg until August. Good luck with your son. The > Valtrex didn't work for ours, but the Famvir has done AMAZING things for > him. Keep us posted! > > > > > > > On Sat, 17 Mar 2001 18:08:14 EST lveggie@... writes: > >Ginger, My son saw Dr. Goldberg for the first time in Jan. and his > >HHV6 > >came back at 640. Kind of scary. Anyway, he'll be starting on > >Valtrex this > >week. He can't swallow pills and he has to chew everything. His > >eating is > >still very limited (we just started the diet Dr. G recommends. I > >tasted > >those tablets (NASTY!). How do you get your daughter to take > >this...and > >three times a day. I'm kind of worried he won't cooperate and boy > >does he > >need this med. I would appreciate any suggestions from the group. > >Thanks! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 Thanks for the advice . We're very hopeful our son will improve on the antivirals. He's only on ketoconazole so far and is already doing some pretty amazing things in school so we have good reason to hope. What made you want to test your " normal " daughter. If she has no symptoms why does it need to be treated? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 , In response to your post concerning other colostrum products, there are many other research studies with the science and proof that Transfer Factor and Transfer Factor Plus do work if you care to check out the various sites. Articles from Progressive Health News and Postitive Health News that have nothing to do with Dr. See on HIV/AIDS at these sites www.keephope.net a mound of research on MEDLINE at www.healthy.com the Transfer Factor is proven to be the most effective product in boosting, modulating and realigning the immune system. I simply posted to the immune articles where some seem to be concerned with which products are effective and which are not. I know these worked for my family. For Mannatech, I do not think much of these products from the research side I have dealt with many of the distributors from this company and they do not know that Dr. See was paid to research anything. That is their story. I heard that the lawsuit was dropped my Mannatech and if that is the case why? I do not know, does it really matter he is still in business and doing quite well and many many people seem to have a very strong respect for him. I have spoke to some that claim to know him on a personal level and have great respect for him. I am not defending or accusing Dr. See because I do not know, but I feel that is a little unfair to judge only 1 testing without going to National Institute of Health Database, Medline, Healthy.com, or any other sites that has research published on it. I am sorry to hear about your stories, my family have been on the products for 2 years with wonderful success and are not die-off effects here. Every illness and every person is different and this can make the difference. I am sure not everyone in the world believes in the theory as well. As for the MLM industry making false claims and trying to take a seriously ill person and trying to drain every last dime from them giving them false hopes and promises I do not like that myself. However, I assume it is a part of life. I just posted facts and information sites for anyone who would care to research. In their defense there are a few products that are sold MLM that are good products, have to give credit where credit is due. As you should know the FDA approves alot that is not safe for human consumption as well. Proven time and time again they were bought as well. Re: HHV6 > >Date: Sat, 17 Mar 2001 15:30:48 -0800 > > > >Since we went on an AIDS issue I would like to invite everyone to check out > >www.keephope.net there is an article in it from Progressive Health News > >Jan. > >2001 issue on Transfer Factor Plus VS HIV/AIDS. Also same site has an > >article on Hepatitis C from Positive Health News 2001 issue from the use of > >Transfer Factor Plus as well. More information on medline and many other > >sites if interested in email me personally. Thanks. > > > > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 Dear Michele, Yes I would like to know why you got your " normal " daughter tested too. Was it to " test " the theory? It makes me not have faith that Dr. Goldberg isn't on the right track if so called normal people have high levels of these titres too. Thanks, K. Re: HHV6 - My son won't swallow pills either. We crush his meds up with a pill crusher we got at the pharmacy and mix the powder with pudding (Imagine Foods makes a good dairy/gluten free one). We started out with one scoop of pudding with the meds followed by a plain scoop of pudding. After a month we eliminated the plain scoop and slowly decreased the amount of pudding with the medicine so he wasn't getting too much extra sugar. I know what you mean about scary - my son's HHV6 was 130 and we thought that was bad. Then our " normal " daughter's came back at 640 and we can't get in to see Dr. Goldberg until August. Good luck with your son. The Valtrex didn't work for ours, but the Famvir has done AMAZING things for him. Keep us posted! On Sat, 17 Mar 2001 18:08:14 EST lveggie@... writes: >Ginger, My son saw Dr. Goldberg for the first time in Jan. and his >HHV6 >came back at 640. Kind of scary. Anyway, he'll be starting on >Valtrex this >week. He can't swallow pills and he has to chew everything. His >eating is >still very limited (we just started the diet Dr. G recommends. I >tasted >those tablets (NASTY!). How do you get your daughter to take >this...and >three times a day. I'm kind of worried he won't cooperate and boy >does he >need this med. I would appreciate any suggestions from the group. >Thanks! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 Martha ( and too!) We decided to get her tested after seeing Dr. Goldberg and hearing him talk about getting our son, Al, looking " brighter " , clear from his allergies (food and environmental). We looked at each other and said that our daughter, Kelsie, wasn't bright and we could hear her breath on the other side of the house at night due to allergic congestion. She also seemed to have problems (nighttime leg pains since she was 2) when she ate dairy products and we had already eliminated those from her diet. I guess we call her normal because there aren't any speech/language issues, stimming, sensory problems, separation issues, etc etc etc. Dr. Goldberg recommended testing her if Al's HHV6 came back high, which it did. Right after seeing Dr. G. Al's physical therapist recommended Kelsie get evaluated for low muscle tone, and she is now in therapy for that. Now that Al is feeling so much better we are seeing such a difference between he and his sister - we actually get worse behavior from her than from him - usually in the form of low frustration level leading to large tantrums. So many " professionals " in our lives told us she behaved like Al because they are so close in age (15 months apart) and she was mimicking him for attention (mostly just the tantrums). Dr. G was the first one to think that wasn't the case. We will soon be running a modified version of Dr. G's tests on our 1 year old since she has already had signs of being allergic to dairy products and berries (she gets a runny nose when I eat them and nurse her - the whole family is now on Dr. G's diet - yum, yum - I would kill for a piece of REAL pizza and a hot fudge sundae). How's that for a long-winded answer? If California is too far for you to travel to see Dr. Goldberg, we were able to see him in Bethesda, land. It's a few hours closer, anyway. Good luck! ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 An isolated high level of antibodies to anything is not the only factor in diagnosing . The diagnosis is made by an extensive history and multiple tests which are viewed in relationship to each other and the history. Kathy -Northern New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 , I'm going to prevail upon my niece to get tested for the same reasons. She's a successful health care professional who is always sick and always tired despite being extremely athletic. She had allergies as a child and still fights with eczema. Her brother has ADD. Let us not forget chronic fatigue syndrome comes under the umbrella. Kathy -Northern New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 Kathleen - I didn't think a casual remark would get so many replies. I guess I used the term " normal " to mean that she has no symptoms of autism, not that she has no symptoms of . I am still getting used to using that term to refer to my son, but I also have to get used to using it to refer to my daughter as well. She is not " bright " looking and hasn't been for a few years. As Dr. G was talking about what to look for when Alec started the meds - brighter, less spacey, etc - my husband and I mentioned that Kelsie, our 5 year old, was not very bright and " mimicked " some of Alec's behavior (ie tantrums, hitting, clinging to me). Every other docor passed this off to their being close in age and her just doing it to get attention. Dr. G suggested getting her tested if Alec's HHV6 came back high, which it did. Now that he is doing so much better on Famvir, Kelsie's behavior stands out more because he is no longer doing it. Also, behavior modification techniques (ie rewards for desired behavior and losing privileges for undesired behavior) aren't working for Kelsie where they are now working with Alec. I DO think Dr. G is on the right track with these kids. Otherwise I certainly wouldn't be taking my kids to him. I think Kelsie will end up with something other that autism (ie ADD) if we don't work to get her healthy now. The fact that she has low muscle tone (recently diagnosed) and reaction to dairy products indicates, to me at least, that she has some of the same issues that Alec has. Kelsie did not stim, lose language, have poor sleep patterns, head banging, etc like Alec did which is why I refer to her as " normal " . I do feel, however, that she is not healthy and that Dr. G will help her get there. I don't want to find out a few years from now that we should have helped our other kids when we were spending so much time focusing on our son and not paying as much attention to them as we should have. We won't be able to see Dr. G until August with Kelsie. Maybe I am reading too much into her results, but I think it's worth the trip to either hear that she is just fine, don't worry, or that we should start treating her so that something more serious doesn't result later on (my sister-in-law had CFS/candida in law school - I would never want my child to go through that). I didn't put Kelsie through all that bloodwork to test Dr. G's theory. I would have put myself through it if that was my intention. I researched and spoke to people before starting with him. I didn't need to be further convinced that, for my family at least, his medical interventions make sense. Hope this helps! On Mon, 19 Mar 2001 16:31:44 -0600 " kathleen przekwas " <evchk96@...> writes: >Dear Michele, >Yes I would like to know why you got your " normal " daughter tested >too. Was it to " test " the theory? It makes me not have faith that >Dr. Goldberg isn't on the right track if so called normal >people have high levels of these titres too. >Thanks, K. > Re: HHV6 > > > - > My son won't swallow pills either. We crush his meds up with a pill > crusher we got at the pharmacy and mix the powder with pudding >(Imagine > Foods makes a good dairy/gluten free one). We started out with one >scoop > of pudding with the meds followed by a plain scoop of pudding. >After a > month we eliminated the plain scoop and slowly decreased the amount >of > pudding with the medicine so he wasn't getting too much extra sugar. > > I know what you mean about scary - my son's HHV6 was 130 and we >thought > that was bad. Then our " normal " daughter's came back at 640 and we >can't > get in to see Dr. Goldberg until August. Good luck with your son. >The > Valtrex didn't work for ours, but the Famvir has done AMAZING things >for > him. Keep us posted! > > > > > > > On Sat, 17 Mar 2001 18:08:14 EST lveggie@... writes: > >Ginger, My son saw Dr. Goldberg for the first time in Jan. and >his > >HHV6 > >came back at 640. Kind of scary. Anyway, he'll be starting on > >Valtrex this > >week. He can't swallow pills and he has to chew everything. His > >eating is > >still very limited (we just started the diet Dr. G recommends. I > >tasted > >those tablets (NASTY!). How do you get your daughter to take > >this...and > >three times a day. I'm kind of worried he won't cooperate and boy > >does he > >need this med. I would appreciate any suggestions from the group. > > >Thanks! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 Dear , Yes, it does help clarify matters a lot. I don't mean to question your decisions, its just, I am planning on taking my son to see Dr. G. and I have to ask questions and I want to be sure I am making the right decision. I really want to help my son, he's only 2, and so many doctors and others are skeptical, so I want to ask a lot of questions. Thank you for your reply. K. Re: HHV6 > > > - > My son won't swallow pills either. We crush his meds up with a pill > crusher we got at the pharmacy and mix the powder with pudding >(Imagine > Foods makes a good dairy/gluten free one). We started out with one >scoop > of pudding with the meds followed by a plain scoop of pudding. >After a > month we eliminated the plain scoop and slowly decreased the amount >of > pudding with the medicine so he wasn't getting too much extra sugar. > > I know what you mean about scary - my son's HHV6 was 130 and we >thought > that was bad. Then our " normal " daughter's came back at 640 and we >can't > get in to see Dr. Goldberg until August. Good luck with your son. >The > Valtrex didn't work for ours, but the Famvir has done AMAZING things >for > him. Keep us posted! > > > > > > > On Sat, 17 Mar 2001 18:08:14 EST lveggie@... writes: > >Ginger, My son saw Dr. Goldberg for the first time in Jan. and >his > >HHV6 > >came back at 640. Kind of scary. Anyway, he'll be starting on > >Valtrex this > >week. He can't swallow pills and he has to chew everything. His > >eating is > >still very limited (we just started the diet Dr. G recommends. I > >tasted > >those tablets (NASTY!). How do you get your daughter to take > >this...and > >three times a day. I'm kind of worried he won't cooperate and boy > >does he > >need this med. I would appreciate any suggestions from the group. > > >Thanks! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 , Dr. A. Lerner is the expert on Chronic Fatigue syndrome. A viral workup should include HSV-6, CMV, and EBV (antigen not antibody avialable from Lerner). Healthcare professionals (especially nurses) have a higher risk than the lay public to contract this disease according to research in the Chicago area. Treatment varies depending upon the etiology (virus). For example, EBV is treated with high doses of Valtrex 4-6 grams per day for a minimum of 6 months and then a maintainence dose maybe for the rest of the patients life to suppress the virus. If you have any questions, please e-mail me directly. >From: JOSKAT95@... >Reply- > >Subject: Re: HHV6 >Date: Fri, 23 Mar 2001 16:06:40 EST > >, >I'm going to prevail upon my niece to get tested for the same reasons. >She's >a successful health care professional who is always sick and always tired >despite being extremely athletic. She had allergies as a child and still >fights with eczema. Her brother has ADD. Let us not forget chronic fatigue >syndrome comes under the umbrella. Kathy -Northern New York > > > Quote Link to comment Share on other sites More sharing options...
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