Guest guest Posted July 24, 2000 Report Share Posted July 24, 2000 Heidi et al, At the risk of sounding negative, I once met with one of Dr Oleske's partners about this issue. Dr Oleske conducted a study here in the NYC area, the results of which were never published, using IVIG with autistic children. He was very picky with regard to the children they were enrolling in the study, only those children who were sick frequently and had a certain immune profile. I wa told my son probably wouldn't meet the criteria, but I decided to meet with his partner anyway. When I met this partner, they told me that they had seen many more kids than Gupta and that they just weren't seeing the results. They went on to speculate that the child who did so well with Gupta probably wasn't autistic. I've also heard that the unversity where Gupta is, is no longer conducting any work with IVIG and autistic children. Good luck, Ed " elevatordance " <elevatordance@...> on 07/22/2000 02:41:27 PM Please respond to egroups egroups cc: (bcc: Decelie/CHASE) Subject: Re: [ ] Safety of DT and 1pv I was under the impression that only one child had " recovered " after IVIG and that child had had a lot of other therapies as well. Goldenburg's son. I would be curious to hear of other " recoveries " from IVIG. Heidi Re: [ ] Safety of DT and 1pv > , > Dr. Gupta published a paper on IVIG and autism in the Journal of Autism > and Developmental Disorders in 1996- Vol 26, No 4, pg 439. It was a > study on only 10 kids. He rated the improvements 1 to 4 (4=high) one kid > had a 4, 4 kids had a 3, and 5 kids had a 1('minimal' improvement). The > protocol was 400 mg/kg at 4 week intervals for 6 months. > I think some docs are doing 'high dose' IVIG now, which I think is around > double the dosage and they are having better success. > > I don't know any good websites... > > Chris > > On Fri, 21 Jul 2000 22:16:03 -0700 (PDT) O'Neill > <paultradi@...> writes: > > Is there a good paper or website explaining more about > > IVIG > > > > thx > > --- D Bogert <howard78@...> wrote: > > > Kathi, > > > Wow! 98% recovery with IVIG...is this the high dose > > > version. That > > > statistic sounds a lot higher than what Gupta talks > > > about. Can you share > > > more please!? Do you know what the dosage is? > > > > > > We're seriously considering IVIG in the next couple > > > months... > > > > > > Thanks a bunch, > > > Chris > > > > > > On Thu, 20 Jul 2000 20:51:56 EDT Mycoltjoe@... > > > writes: > > > > it is my understanding that the MBP antibodies are > > > due to the > > > > measles.The > > > > measle antibody and the MBP antibody closely > > > resemble eachother, and > > > > the body > > > > confuses the two and starts making the antibodies > > > against the MBP. I > > > > would > > > > DEFINATELY not give MMR again, especially after > > > spending all the > > > > money on the > > > > IVIG to correct this. They are seeing a 98% > > > recovery from doing IVIG > > > > for > > > > this.I'd be finding me another doc or none at all > > > if need be. > > > > Kathi > > > > Mom to Colten 3 > > > > > > > > > > > > > > ------------------------------------------------------------------------ > > > > Wish you had something rad to add to your email? > > > > We do at www.supersig.com. > > > > > > > > > 1/6810/9/_/705339/_/964140723/ > > > > > > > > > > ------------------------------------------------------------------------ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2000 Report Share Posted July 24, 2000 Not to mention Ed, the high risk factors involved in a blood product (even if it is " so called " screened) Kathy Re: [ ] Safety of DT and 1pv > > > >I was under the impression that only one child had " recovered " after IVIG >and that child had had a lot of other therapies as well. Goldenburg's >son. I would be curious to hear of other " recoveries " from IVIG. > >Heidi > > > Re: [ ] Safety of DT and 1pv > > >> , >> Dr. Gupta published a paper on IVIG and autism in the Journal of Autism >> and Developmental Disorders in 1996- Vol 26, No 4, pg 439. It was a >> study on only 10 kids. He rated the improvements 1 to 4 (4=high) one kid >> had a 4, 4 kids had a 3, and 5 kids had a 1('minimal' improvement). The >> protocol was 400 mg/kg at 4 week intervals for 6 months. >> I think some docs are doing 'high dose' IVIG now, which I think is around >> double the dosage and they are having better success. >> >> I don't know any good websites... >> >> Chris >> >> On Fri, 21 Jul 2000 22:16:03 -0700 (PDT) O'Neill >> <paultradi@...> writes: >> > Is there a good paper or website explaining more about >> > IVIG >> > >> > thx >> > --- D Bogert <howard78@...> wrote: >> > > Kathi, >> > > Wow! 98% recovery with IVIG...is this the high dose >> > > version. That >> > > statistic sounds a lot higher than what Gupta talks >> > > about. Can you share >> > > more please!? Do you know what the dosage is? >> > > >> > > We're seriously considering IVIG in the next couple >> > > months... >> > > >> > > Thanks a bunch, >> > > Chris >> > > >> > > On Thu, 20 Jul 2000 20:51:56 EDT Mycoltjoe@... >> > > writes: >> > > > it is my understanding that the MBP antibodies are >> > > due to the >> > > > measles.The >> > > > measle antibody and the MBP antibody closely >> > > resemble eachother, and >> > > > the body >> > > > confuses the two and starts making the antibodies >> > > against the MBP. I >> > > > would >> > > > DEFINATELY not give MMR again, especially after >> > > spending all the >> > > > money on the >> > > > IVIG to correct this. They are seeing a 98% >> > > recovery from doing IVIG >> > > > for >> > > > this.I'd be finding me another doc or none at all >> > > if need be. >> > > > Kathi >> > > > Mom to Colten 3 >> > > > >> > > > >> > > >> > >> ------------------------------------------------------------------------ >> > > > Wish you had something rad to add to your email? >> > > > We do at www.supersig.com. >> > > > >> > > >> > 1/6810/9/_/705339/_/964140723/ >> > > > >> > > >> > >> ------------------------------------------------------------------------ >> > > > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2000 Report Share Posted July 24, 2000 In a message dated 7/24/00 10:47:50 AM Pacific Daylight Time, decelie_edward@... writes: << They went on to speculate that the child who did so well with Gupta probably wasn't autistic. I've also heard that the unversity where Gupta is, is no longer conducting any work with IVIG and autistic children. >> My son is definitely autistic yet is making great gains on IVIG. Each kid responds different but I have a lot of friends with autisitc kids showing great results with IVIG. I am sure not everyone does but it has definitely been the best thing I ever did for him. Quote Link to comment Share on other sites More sharing options...
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