Re: Safety of DT and 1pv

[Guest guest]

You're really not taking any chances by not doing it. The likelihood of him

being exposed to any of that is minuscule. (Especially since most of those

around him -- I presume -- are immunized.)

We didn't get the boosters for my son. Our doctor has something ready for Kenny

at his office if he should step on a nail or otherwise be at risk for tetanus,

but since this is a kid who never gets hurt in the first place, I'm not giving

it a second thought.

(Cary, NC)

persistentC@...

[ ] Safety of DT and 1pv

> I just came from Philip's doctor for his 6 year old check up. She wants me

> to give him his final DT shot and 1pv shot polio. I told her I would get

> back with her. She is pretty insistant on it. My son is autistic and has

> been doing IVIG treatments with much success. I don't want to mess anything

> up but I don't want to take chances either. Any advice?

>

> ------------------------------------------------------------------------

> Wish you had something rad to add to your email?

> We do at www.supersig.com.

> 1/6810/9/_/705339/_/964108541/

> ------------------------------------------------------------------------

>

>

[Guest guest]

In a message dated 7/20/00 11:07:48 AM Pacific Daylight Time,

elevatordance@... writes:

<< First, check the brand of your IVIG and make sure there is no thimerosal in

it.

Second, what doctor is supervising the IVIG? That doc should be writing you

an exemption from further vaccination for immune system abnormalities.

>>

I do have an exemption from Dr. Bradstreet whom is doing the IVIG. It is

just that Philip's main pediatrician on this coast wants him to have it. I

hate to switch but will if it means having to give him something unsafe. I

am just looking for opinions. I don't want him to get sick from not getting

them either.

[Guest guest]

I forgot to mention another thing. Philip threw up this morning before going

to the doctor. She still wanted me to give him his DT and polio today. I

just don't understand. He had his first MMR at 15 months after just getting

off antibiotics and he still had a cold. They told me it was ok as long as

he was not running a fever. At 16 months I knew something was wrong. I have

had his titers checked and he is immune to all, with his measles being 3x's

what they need to be. He is having IVIG to help with auto antibodies to the

myelin and she still wants to give him the MMR after the IVIG is done. She

just doesn't think there is any connection. Unfortunatley, she has been

great about authorizing any test or therapy I needed done. I can always get

into her office right away if the kids are sick. It is hard to change

peoples minds once they are set on something being safe.

[Guest guest]

First, check the brand of your IVIG and make sure there is no thimerosal in

it.

Second, what doctor is supervising the IVIG? That doc should be writing you

an exemption from further vaccination for immune system abnormalities.

Heidi

[ ] Safety of DT and 1pv

> I just came from Philip's doctor for his 6 year old check up. She wants

me

> to give him his final DT shot and 1pv shot polio. I told her I would get

> back with her. She is pretty insistant on it. My son is autistic and has

> been doing IVIG treatments with much success. I don't want to mess

anything

> up but I don't want to take chances either. Any advice?

>

> ------------------------------------------------------------------------

> Wish you had something rad to add to your email?

> We do at www.supersig.com.

> 1/6810/9/_/705339/_/964108541/

> ------------------------------------------------------------------------

>

>

[Guest guest]

In a message dated 07/20/2000 5:59:13 PM Eastern Daylight Time,

keephope2@... writes:

<< I can always get

into her office right away if the kids are sick. It is hard to change

peoples minds once they are set on something being safe. >>

I'm having a problem here. You believe your child had a problem with vaccines

and you are worried about what your doctor wants. Who's the parent here. Do

you really want to give your child another vaccine at this time. Maybe you

should take sometime to really think this through. Goodluck. Carole

[Guest guest]

In a message dated 07/20/2000 4:35:03 PM Eastern Daylight Time,

kblanco@... writes:

<< I just came from Philip's doctor for his 6 year old check up. She wants me

>to give him his final DT shot and 1pv shot polio. I told her I would get

>back with her. She is pretty insistant on it. My son is autistic and has

>been doing IVIG treatments with much success. I don't want to mess

anything

>up but I don't want to take chances either. Any advice?

>

>------------------------------------------------------------------------ >>

Yeah...I got advice...get another doctor!!!!!!!!

[Guest guest]

In a message dated 07/20/2000 7:21:59 PM Eastern Daylight Time,

fullarmor@... writes:

<< In a message dated 07/20/2000 4:35:03 PM Eastern Daylight Time,

kblanco@... writes:

<< I just came from Philip's doctor for his 6 year old check up. She wants

me

>to give him his final DT shot and 1pv shot polio. I told her I would get

>back with her. She is pretty insistant on it. My son is autistic and has

>been doing IVIG treatments with much success. I don't want to mess

anything

>up but I don't want to take chances either. Any advice?

>

>------------------------------------------------------------------------ >>

Yeah...I got advice...get another doctor!!!!!!!!

>>

Sorry...I'm in a state of aggravation right now!!! The reason I said that

was because my son suffered a MASSIVE regression after finishing off his

boosters for Kindergarten. Despite the screaming, regression (which ended up

being a loss of over 1 1/2 years of hard-earned skills from 4 years of ABA),

throwing himself on the floor, diarrhea, loss of toileting skills, etc, etc.

....I was told by a pediatric immunologist that " Of all the stories I've heard

from parents of autistic children which might link their autism to vaccines,

your's is the most convincing...BUT THE THEORY IS NOT PROVEN " So I ended up

waiting two months for this " professional "

opinion on a messed up immune panel with Rubella titers 10X the normal high

level (which he said he's seen before and it just means he's immune) and once

again came away with no help for my hurting little boy. I get

frustrated...so please forgive my last post!!!!!

[Guest guest]

<< << I can always get

into her office right away if the kids are sick. It is hard to change

peoples minds once they are set on something being safe. >>

I'm having a problem here. You believe your child had a problem with vaccines

and you are worried about what your doctor wants. Who's the parent here. Do

you really want to give your child another vaccine at this time. Maybe you

should take sometime to really think this through. Goodluck. Carole >>

Carole is right. It is supposed to be a doctor-patient relationship, not a

codependent doormat relationship (which is what MD's are apparently trained

to try to have with you in med school). You have the rights. She can't do

anything without your permission. End of story.

Andy

[Guest guest]

Your kidding right? Say you will not give him anymore until they prove

that they are perfectly safe in every way. Take chances with what?

Kathy

[ ] Safety of DT and 1pv

>I just came from Philip's doctor for his 6 year old check up. She wants me

>to give him his final DT shot and 1pv shot polio. I told her I would get

>back with her. She is pretty insistant on it. My son is autistic and has

>been doing IVIG treatments with much success. I don't want to mess

anything

>up but I don't want to take chances either. Any advice?

>

>------------------------------------------------------------------------

>Wish you had something rad to add to your email?

>We do at www.supersig.com.

>1/6810/9/_/705339/_/964108541/

>------------------------------------------------------------------------

>

>

[Guest guest]

it is my understanding that the MBP antibodies are due to the measles.The

measle antibody and the MBP antibody closely resemble eachother, and the body

confuses the two and starts making the antibodies against the MBP. I would

DEFINATELY not give MMR again, especially after spending all the money on the

IVIG to correct this. They are seeing a 98% recovery from doing IVIG for

this.I'd be finding me another doc or none at all if need be.

Kathi

Mom to Colten 3

[Guest guest]

In a message dated 7/20/00 4:22:05 PM Pacific Daylight Time,

fullarmor@... writes:

<< n a message dated 07/20/2000 4:35:03 PM Eastern Daylight Time,

kblanco@... writes:

<< I just came from Philip's doctor for his 6 year old check up. She wants

me

>to give him his final DT shot and 1pv shot polio. I told her I would get

>back with her. She is pretty insistant on it. My son is autistic and has

>been doing IVIG treatments with much success. I don't want to mess

anything

>up but I don't want to take chances either. Any advice?

>

>------------------------------------------------------------------------ >>

Yeah...I got advice...get another doctor!!!!!!!!

Can we 2nd on this list????? Oh well, I'll do it anyway............I 2nd this

one!!!!!!!!!!!!

Vicki

[Guest guest]

In a message dated 7/20/00 5:56:46 PM Pacific Daylight Time,

AndyCutler@... writes:

<< She can't do

anything without your permission. >>

I realize this. I am not sure whether or not vaccines played a role in my

sons autism or not. My dilemma is I do not want him to catch anything he

could die from because I didn't give him a vaccine. I know it is my

decision, I just want to be sure I make the right one. Thanks for the advice

though.

[Guest guest]

In a message dated 07/20/2000 9:42:21 PM Eastern Daylight Time,

keephope2@... writes:

<< My dilemma is I do not want him to catch anything he

could die from because I didn't give him a vaccine. >>

think about this for a minute. How many people have you ever heard of dying

from Measles? How many have you heard of with autism? My sister, brother and

I had each of these illnesses as children and we're still here. I'm not

saying there is no chance a child will die from these, but the chances are

slim to none when you compare it to the risk of autism. Carole

[Guest guest]

<< My dilemma is I do not want him to catch anything he

could die from because I didn't give him a vaccine. >>

Almost none of the other nonvaccinated kids do. What are the CDC statistics

for how many kids aren't vaccinated, and for how many die of Diptheria,

Pertussis or Tetanus?

Andy Cutler

[Guest guest]

vaccines really won't give you great immunity from CHILDHOOD illnesses.

They say they will, they lied, look at any website on vaccines like think

twice, that will get you going.

KAthy

Re: [ ] Safety of DT and 1pv

>In a message dated 7/20/00 5:56:46 PM Pacific Daylight Time,

>AndyCutler@... writes:

>

><< She can't do

> anything without your permission. >>

>

>I realize this. I am not sure whether or not vaccines played a role in my

>sons autism or not. My dilemma is I do not want him to catch anything he

>could die from because I didn't give him a vaccine. I know it is my

>decision, I just want to be sure I make the right one. Thanks for the

advice

>though.

>

>------------------------------------------------------------------------

>Failed tests, classes skipped, forgotten locker combinations.

>Remember the good 'ol days

>1/7076/9/_/705339/_/964143468/

>------------------------------------------------------------------------

>

>

[Guest guest]

I agree with Carole, particularly since your son already had the vaccines.

The additional vaccines are designed to catch the 5% who didn't get immunity

from the first ones.

My boys, with one MMR each, are above immunity levels on measles (way above

for my autistic son) and an additional booster in all likelihood would have

severely worsened their situation. We did titers instead of boosters for

little brother before kindergarten, and waivers for the Hep.

They clearly didn't know all that was to be known, when they started these

vaccination programs. I am darn tired of what amounts to experimentation on

my children. Children died of polio, and perhaps the risk is worth it

there. But did one out of 150 die of the rest?

Lorilyn

Re: [ ] Safety of DT and 1pv

> In a message dated 07/20/2000 9:42:21 PM Eastern Daylight Time,

> keephope2@... writes:

>

> << My dilemma is I do not want him to catch anything he

> could die from because I didn't give him a vaccine. >>

>

> think about this for a minute. How many people have you ever heard of

dying

> from Measles? How many have you heard of with autism? My sister, brother

and

> I had each of these illnesses as children and we're still here. I'm not

> saying there is no chance a child will die from these, but the chances are

> slim to none when you compare it to the risk of autism. Carole

>

> ------------------------------------------------------------------------

> To email plain text is conventional, to add graphics is divine.

> We'll show you how at www.supersig.com.

> 1/6811/9/_/705339/_/964146755/

> ------------------------------------------------------------------------

>

>

[Guest guest]

>From: keephope2@...

>Reply- egroups

> egroups

>Subject: [ ] Safety of DT and 1pv

>Date: Thu, 20 Jul 2000 11:55:33 EDT

>

>I just came from Philip's doctor for his 6 year old check up. She wants me

>to give him his final DT shot and 1pv shot polio. I told her I would get

>back with her. She is pretty insistant on it. My son is autistic and has

>been doing IVIG treatments with much success. I don't want to mess

>anything

>up but I don't want to take chances either. Any advice?

you should look up side effects of DPT and IV vaccines, make an INFORMED

choice try www.van.org.uk/ -OR- www.909 shot.com ,

also look up the vaccines side effects / contraindications(which

individuals should NOT have the vaccine/s proposed)in the phycisians desk

reference, (US)

A.B.P.I. compendium (UK)

you could also seriously consider asking your doctor to fully check your

sons

antibody titres, it could well be that he's already immune; your doctor

should not refuse to do this.

I do hope hope this helps you, at the end of the day the decision is yours

don't be bullied or badgered your son is your priority.

p.s. if you're in the usa there are religous, philosophical and medical

exemptions

Best wishes,

margaret.

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Kathi,

Wow! 98% recovery with IVIG...is this the high dose version. That

statistic sounds a lot higher than what Gupta talks about. Can you share

more please!? Do you know what the dosage is?

We're seriously considering IVIG in the next couple months...

Thanks a bunch,

Chris

On Thu, 20 Jul 2000 20:51:56 EDT Mycoltjoe@... writes:

> it is my understanding that the MBP antibodies are due to the

> measles.The

> measle antibody and the MBP antibody closely resemble eachother, and

> the body

> confuses the two and starts making the antibodies against the MBP. I

> would

> DEFINATELY not give MMR again, especially after spending all the

> money on the

> IVIG to correct this. They are seeing a 98% recovery from doing IVIG

> for

> this.I'd be finding me another doc or none at all if need be.

> Kathi

> Mom to Colten 3

>

>

------------------------------------------------------------------------

> Wish you had something rad to add to your email?

> We do at www.supersig.com.

> 1/6810/9/_/705339/_/964140723/

>

------------------------------------------------------------------------

>

>

[Guest guest]

If the ped doesn't respect Bradstreet's exemption, then you should switch

peds. I don't even go to 's reg ped unless he is very sick.

Heidi

Re: [ ] Safety of DT and 1pv

> In a message dated 7/20/00 11:07:48 AM Pacific Daylight Time,

> elevatordance@... writes:

>

> << First, check the brand of your IVIG and make sure there is no

thimerosal in

> it.

>

> Second, what doctor is supervising the IVIG? That doc should be writing

you

> an exemption from further vaccination for immune system abnormalities.

> >>

>

> I do have an exemption from Dr. Bradstreet whom is doing the IVIG. It is

> just that Philip's main pediatrician on this coast wants him to have it.

I

> hate to switch but will if it means having to give him something unsafe.

I

> am just looking for opinions. I don't want him to get sick from not

getting

> them either.

>

> ------------------------------------------------------------------------

> Make new friends, find the old at Classmates.com:

> 1/7075/9/_/705339/_/964129732/

> ------------------------------------------------------------------------

>

>

[Guest guest]

Is there a good paper or website explaining more about

IVIG

thx

--- D Bogert <howard78@...> wrote:

> Kathi,

> Wow! 98% recovery with IVIG...is this the high dose

> version. That

> statistic sounds a lot higher than what Gupta talks

> about. Can you share

> more please!? Do you know what the dosage is?

>

> We're seriously considering IVIG in the next couple

> months...

>

> Thanks a bunch,

> Chris

>

> On Thu, 20 Jul 2000 20:51:56 EDT Mycoltjoe@...

> writes:

> > it is my understanding that the MBP antibodies are

> due to the

> > measles.The

> > measle antibody and the MBP antibody closely

> resemble eachother, and

> > the body

> > confuses the two and starts making the antibodies

> against the MBP. I

> > would

> > DEFINATELY not give MMR again, especially after

> spending all the

> > money on the

> > IVIG to correct this. They are seeing a 98%

> recovery from doing IVIG

> > for

> > this.I'd be finding me another doc or none at all

> if need be.

> > Kathi

> > Mom to Colten 3

> >

> >

>

------------------------------------------------------------------------

> > Wish you had something rad to add to your email?

> > We do at www.supersig.com.

> >

>

1/6810/9/_/705339/_/964140723/

> >

>

------------------------------------------------------------------------

> >

> >

[Guest guest]

,

Dr. Gupta published a paper on IVIG and autism in the Journal of Autism

and Developmental Disorders in 1996- Vol 26, No 4, pg 439. It was a

study on only 10 kids. He rated the improvements 1 to 4 (4=high) one kid

had a 4, 4 kids had a 3, and 5 kids had a 1('minimal' improvement). The

protocol was 400 mg/kg at 4 week intervals for 6 months.

I think some docs are doing 'high dose' IVIG now, which I think is around

double the dosage and they are having better success.

I don't know any good websites...

Chris

On Fri, 21 Jul 2000 22:16:03 -0700 (PDT) O'Neill

<paultradi@...> writes:

> Is there a good paper or website explaining more about

> IVIG

>

> thx

> --- D Bogert <howard78@...> wrote:

> > Kathi,

> > Wow! 98% recovery with IVIG...is this the high dose

> > version. That

> > statistic sounds a lot higher than what Gupta talks

> > about. Can you share

> > more please!? Do you know what the dosage is?

> >

> > We're seriously considering IVIG in the next couple

> > months...

> >

> > Thanks a bunch,

> > Chris

> >

> > On Thu, 20 Jul 2000 20:51:56 EDT Mycoltjoe@...

> > writes:

> > > it is my understanding that the MBP antibodies are

> > due to the

> > > measles.The

> > > measle antibody and the MBP antibody closely

> > resemble eachother, and

> > > the body

> > > confuses the two and starts making the antibodies

> > against the MBP. I

> > > would

> > > DEFINATELY not give MMR again, especially after

> > spending all the

> > > money on the

> > > IVIG to correct this. They are seeing a 98%

> > recovery from doing IVIG

> > > for

> > > this.I'd be finding me another doc or none at all

> > if need be.

> > > Kathi

> > > Mom to Colten 3

> > >

> > >

> >

>

------------------------------------------------------------------------

> > > Wish you had something rad to add to your email?

> > > We do at www.supersig.com.

> > >

> >

> 1/6810/9/_/705339/_/964140723/

> > >

> >

>

------------------------------------------------------------------------

> > >

> > >

[Guest guest]

I was under the impression that only one child had " recovered " after IVIG

and that child had had a lot of other therapies as well. Goldenburg's

son. I would be curious to hear of other " recoveries " from IVIG.

Heidi

Re: [ ] Safety of DT and 1pv

> ,

> Dr. Gupta published a paper on IVIG and autism in the Journal of Autism

> and Developmental Disorders in 1996- Vol 26, No 4, pg 439. It was a

> study on only 10 kids. He rated the improvements 1 to 4 (4=high) one kid

> had a 4, 4 kids had a 3, and 5 kids had a 1('minimal' improvement). The

> protocol was 400 mg/kg at 4 week intervals for 6 months.

> I think some docs are doing 'high dose' IVIG now, which I think is around

> double the dosage and they are having better success.

>

> I don't know any good websites...

>

> Chris

>

> On Fri, 21 Jul 2000 22:16:03 -0700 (PDT) O'Neill

> <paultradi@...> writes:

> > Is there a good paper or website explaining more about

> > IVIG

> >

> > thx

> > --- D Bogert <howard78@...> wrote:

> > > Kathi,

> > > Wow! 98% recovery with IVIG...is this the high dose

> > > version. That

> > > statistic sounds a lot higher than what Gupta talks

> > > about. Can you share

> > > more please!? Do you know what the dosage is?

> > >

> > > We're seriously considering IVIG in the next couple

> > > months...

> > >

> > > Thanks a bunch,

> > > Chris

> > >

> > > On Thu, 20 Jul 2000 20:51:56 EDT Mycoltjoe@...

> > > writes:

> > > > it is my understanding that the MBP antibodies are

> > > due to the

> > > > measles.The

> > > > measle antibody and the MBP antibody closely

> > > resemble eachother, and

> > > > the body

> > > > confuses the two and starts making the antibodies

> > > against the MBP. I

> > > > would

> > > > DEFINATELY not give MMR again, especially after

> > > spending all the

> > > > money on the

> > > > IVIG to correct this. They are seeing a 98%

> > > recovery from doing IVIG

> > > > for

> > > > this.I'd be finding me another doc or none at all

> > > if need be.

> > > > Kathi

> > > > Mom to Colten 3

> > > >

> > > >

> > >

> >

> ------------------------------------------------------------------------

> > > > Wish you had something rad to add to your email?

> > > > We do at www.supersig.com.

> > > >

> > >

> > 1/6810/9/_/705339/_/964140723/

> > > >

> > >

> >

> ------------------------------------------------------------------------

> > > >

> > > >

[Guest guest]

This recovery rate is what Dr. Jeff Bradstreet in Palm Bay is finding, he is

using Dr. Jane ElDahr's protocol.It is an Autism Research Center. He

presented his findings at the Irvine confrence. My son has been a top

responder with IVIG, and we are using high dose.(5)I know they are having

great success with it.

Kathi

[Guest guest]

What is IVIG please? Thanks, Ken

elevatordance wrote:

> I was under the impression that only one child had " recovered " after IVIG

> and that child had had a lot of other therapies as well. Goldenburg's

> son. I would be curious to hear of other " recoveries " from IVIG.

>

> Heidi

>

> Re: [ ] Safety of DT and 1pv

>

> > ,

> > Dr. Gupta published a paper on IVIG and autism in the Journal of Autism

> > and Developmental Disorders in 1996- Vol 26, No 4, pg 439. It was a

> > study on only 10 kids. He rated the improvements 1 to 4 (4=high) one kid

> > had a 4, 4 kids had a 3, and 5 kids had a 1('minimal' improvement). The

> > protocol was 400 mg/kg at 4 week intervals for 6 months.

> > I think some docs are doing 'high dose' IVIG now, which I think is around

> > double the dosage and they are having better success.

> >

> > I don't know any good websites...

> >

> > Chris

> >

> > On Fri, 21 Jul 2000 22:16:03 -0700 (PDT) O'Neill

> > <paultradi@...> writes:

> > > Is there a good paper or website explaining more about

> > > IVIG

> > >

> > > thx

> > > --- D Bogert <howard78@...> wrote:

> > > > Kathi,

> > > > Wow! 98% recovery with IVIG...is this the high dose

> > > > version. That

> > > > statistic sounds a lot higher than what Gupta talks

> > > > about. Can you share

> > > > more please!? Do you know what the dosage is?

> > > >

> > > > We're seriously considering IVIG in the next couple

> > > > months...

> > > >

> > > > Thanks a bunch,

> > > > Chris

> > > >

> > > > On Thu, 20 Jul 2000 20:51:56 EDT Mycoltjoe@...

> > > > writes:

> > > > > it is my understanding that the MBP antibodies are

> > > > due to the

> > > > > measles.The

> > > > > measle antibody and the MBP antibody closely

> > > > resemble eachother, and

> > > > > the body

> > > > > confuses the two and starts making the antibodies

> > > > against the MBP. I

> > > > > would

> > > > > DEFINATELY not give MMR again, especially after

> > > > spending all the

> > > > > money on the

> > > > > IVIG to correct this. They are seeing a 98%

> > > > recovery from doing IVIG

> > > > > for

> > > > > this.I'd be finding me another doc or none at all

> > > > if need be.

> > > > > Kathi

> > > > > Mom to Colten 3

> > > > >

> > > > >

> > > >

> > >

> > ------------------------------------------------------------------------

> > > > > Wish you had something rad to add to your email?

> > > > > We do at www.supersig.com.

> > > > >

> > > >

> > > 1/6810/9/_/705339/_/964140723/

> > > > >

> > > >

> > >

> > ------------------------------------------------------------------------

> > > > >

> > > > >

[Guest guest]

The only autistics they are doing IVIG on at this research center are the

ones with the high antibodies to MBP or NFP, the IVIG is proving to get rid

of the MBP antibodies.

Kathi

Mom to Colten 3