Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 Hello all, It has been quite a while since I've posted or even visited here. I first found this site when Miles, our 2 year old, was diagnosed. After seeing the geneticist, the diagnosis was confirmed. Since then he has grown beyond expectation and is sooooo smart. We continue to see the pediatric optha. and are waiting until he is 4 1/2 for the surgery. That time seems to be fastly approaching. They have also talked about " nasal wiring " for the folds which sounds pretty scary. We will have to research this more before deciding. I am glad that this community exist. As an African American parent, there are not many resources in my community. Often people say that Miles is still cute and that they cannot see anything wrong. But because his vision is affected there is something wrong. Again, thank you to all of you for sharing and I promise not to be a stranger. Crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2011 Report Share Posted March 26, 2011 Hi and welcome back. So sorry you now have Lupus. I can't help you as I know nothing about it. I am sure some members here will be a big help to you.  Hugs,  Barbara BARBARA From: emily <eandsspivey@...> Subject: [ ] Returning member Date: Friday, March 25, 2011, 3:58 PM  Hello All. My name is . I am a returning member to the group. I have had RA and Fibro for several years and was diagnosed this week with Lupus also, so I thought I'd rejoin the group and become educated on Lupus. Any info or suggestions will be greatly appreciated. Thanks! Quote Link to comment Share on other sites More sharing options...
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