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Hi Everyone, My name is June and you might not belive this but I have a

son Marc who is 33yrs old and I have only just found out the name of his

condition.We were just told it was one of those things,and left to get

on with it(no net to look on then) and I have never met anyone else with

the condition it would have been so good to have been able to talk to

someone who understood! but now I have Just been blessed with a new

grandson Alfie (9th August)who also has bleph so I was able to find you,

and I have got to say it as helped so much to find what can be done now

and to read all the messages and to see the lovely Pictures thanks to

all.

June x

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