Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 HI EVERYONE, FIRST LET ME SAY I WAS SO GLAD TO FIND A SUPPORT GROUP FOR THE FAMILIES OF CHILDREN WHO HAVE BLEPH. MY SON WAS DIAGNOSED WHEN HE WAS A WEEK OLD. NO ONE IS MY FAMILY OR HIS FATHERS SIDE HAS THIS SYNDROME. MEHKAI IS GETTING READY TO TURN 3 AND WE ARE HEADING UP TO CHICAGO IN JANUARY TO DISCUSS SURGERY OPTIONS. THE SURGEON HAS ALREADY TOLD ME HE NEEDS THE SURGERY MY BIGGEST FEAR IS THE SURGERY AND POSSIBLE COMPLICATIONS. I HAVE RESEARCHED MY HEART ON THIS SYNDROME BUT I HAVENT FOUND MUCH ON THE SURGERY DOES ANYONE HAS ANY SUGG. ON WEBSITES FOR ME TO LOOK AT I WOULD GREATLY APPRECIATE IT. AGAIN IM SO GLAD I FOUND THIS GROUP AND ITS NICE TO KNOW IM NOT ALONE IN THIS. THANKS AGAIN Quote Link to comment Share on other sites More sharing options...
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