Re: surgery concerns

[Guest guest]

Hi brianne19802004,

There are several surgeries that are common with BPEI. Without knowing

which surgery you're referring to, it's hard to provide much specific

information.

There are a number of resources on the Intarweb that describe the

surgeries. For example: http://www.emedicine.com/ent/topic97.htm

describes ptosis repair surgery. And here's a random article that Google

threw at me:

http://www.ijo.in/article.asp?issn=0301-4738;year=1983;volume=31;issue=4;spage=3\

39;epage=341;aulast=Betharia

Can you say what operation the surgeon has been talking about?

Rob W

p.s. Please turn off your caps lock. In Internet fora, upper-case is

usually used for SHOUTING.

brianne19802004 wrote:

> HI EVERYONE,

> FIRST LET ME SAY I WAS SO GLAD TO FIND A SUPPORT GROUP FOR THE FAMILIES

> OF CHILDREN WHO HAVE BLEPH. MY SON WAS DIAGNOSED WHEN HE WAS A WEEK

> OLD. NO ONE IS MY FAMILY OR HIS FATHERS SIDE HAS THIS SYNDROME. MEHKAI

> IS GETTING READY TO TURN 3 AND WE ARE HEADING UP TO CHICAGO IN JANUARY

> TO DISCUSS SURGERY OPTIONS. THE SURGEON HAS ALREADY TOLD ME HE NEEDS

> THE SURGERY MY BIGGEST FEAR IS THE SURGERY AND POSSIBLE COMPLICATIONS.

> I HAVE RESEARCHED MY HEART ON THIS SYNDROME BUT I HAVENT FOUND MUCH ON

> THE SURGERY DOES ANYONE HAS ANY SUGG. ON WEBSITES FOR ME TO LOOK AT I

> WOULD GREATLY APPRECIATE IT. AGAIN IM SO GLAD I FOUND THIS GROUP AND

> ITS NICE TO KNOW IM NOT ALONE IN THIS.

> THANKS AGAIN

[Guest guest]

Hello ne,

I wanted to just let you know that my daughter is 5 months old and

had a sling surgery at 3 months of age. The surgery was performed at

Riley Hospital for Children in Indianapolis, Indiana. The doctor was

wonderful and I could not have asked to better results. You can see

before and after pictures of Avery's surgery.

If you have any questions or know what surgery your child is

scheduled for, please let me know.

Thanks,

Nicki

> > HI EVERYONE,

> > FIRST LET ME SAY I WAS SO GLAD TO FIND A SUPPORT GROUP FOR THE

FAMILIES

> > OF CHILDREN WHO HAVE BLEPH. MY SON WAS DIAGNOSED WHEN HE WAS A

WEEK

> > OLD. NO ONE IS MY FAMILY OR HIS FATHERS SIDE HAS THIS SYNDROME.

MEHKAI

> > IS GETTING READY TO TURN 3 AND WE ARE HEADING UP TO CHICAGO IN

JANUARY

> > TO DISCUSS SURGERY OPTIONS. THE SURGEON HAS ALREADY TOLD ME HE

NEEDS

> > THE SURGERY MY BIGGEST FEAR IS THE SURGERY AND POSSIBLE

COMPLICATIONS.

> > I HAVE RESEARCHED MY HEART ON THIS SYNDROME BUT I HAVENT FOUND

MUCH ON

> > THE SURGERY DOES ANYONE HAS ANY SUGG. ON WEBSITES FOR ME TO LOOK

AT I

> > WOULD GREATLY APPRECIATE IT. AGAIN IM SO GLAD I FOUND THIS GROUP

AND

> > ITS NICE TO KNOW IM NOT ALONE IN THIS.

> > THANKS AGAIN

>