Re: Surgery with Dr. Pashby

[Guest guest]

Hi Evergreen!

Thanks so much for replying to my post! Each time I hear positive

things about Dr. Pashby, I am a bit more relieved and at ease about

the whole thing!

I am also glad to hear that Dr. Pashby doesn't mind having a list of

questions thrown at him! I am certain that this will be the only way

I will cover everything. And I must say I am VERY impressed with

your organizational skills!! I think I can finally tell my husband

that there is someone else out there who is like me!! Although I

stupidly had been keeping all of Halle's medical notes on my

computer at work and this spring we had a crash and I had not backed

up that particular folder...so I lost it all! I now print things off

as I write them but that doesn't get back all the info I had typed

previously. Oh well...I guess its made me wiser!

I'm glad you told me about the possible 'wait'!! Halle will be 2 1/2

and an hour's wait might seem like 6 hours if not prepared!! I will

be sure to pack a little activity bag in case we need it!

That is so very sweet of you to offer to hook up! I do have some

relatives in or close to the city but this trip will be a flying one

as my husband (a chef) can't be away from work too long. That's why

we decided to get a hotel close to the hospital. I am hoping to get

to see an elderly aunt of mine who I haven't seen in awhile but

other then that, we will really only have a day to do a bit of

shopping to take home little treats to our 8 and 10 yo and to

hopefully celebrate our anniversary somehow! But we are hoping that

next summer or whenever Halle goes for her first surgery, that we

will be able to come up early and do some visiting, sightseeing,

etc. I would love to meet you then if you are able! How old is

Keaton? Is he the only one in your family with BPES?

Well Halle is ready for her nap so I better sign off! Thank you so

much for taking the time to chat with me! I hope we can keep in

touch and I will let you all know how our appt goes!

Cheers,

Donna

> > > Hi all,

> > > I am not a regular poster here but do follow you and have been

> >since

> > > our daughter, Halle, was diagnosed with BPES in Sept 2004. She

is

> >now

> > > 26 mos old and doing wonderfully! We are from PEI, Canada.

> > > We have an appt scheduled with Dr. Pasby in Toronto on Sept

25th

> >for

> > > consultation. I am both thrilled to get 'the ball rolling' and

> >scared

> > > of what lies ahead with surgeries, recoveries, outcomes, etc.

> > > I thought I had read on this site once before a list of

questions

> >that

> > > should be asked at the first appt with the surgeon...I am so

> >nervous

> > > that I will forget to ask something or think of it afterwards!

> > > Do any of you know the list I am talking about? If not, are

there

> >any

> > > questions you can think of that I should be asking?

> > > I know I've come across Dr. Pashby's name on this site as

> >well...are

> > > there any of you out there who are patients or have children

who

> >are

> > > patients of his? What are your comments, views on him?

> > > Thank you so much for any help or info you can give me!

> > > Cheers,

> > > Donna

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Talk is cheap. Use Messenger to make PC-to-Phone calls.

> >Great rates starting at 1¢/min.

> > >

> >

> >

> >

> >

>