Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 Hi Everyone My name's Nikki and I have a son who is 20 months old and has congenital ptosis of the right eye. We live in Hounslow, Middlesex. We are under the care of Great Ormond Street and go for regular check ups every 3-6 months to see how his eyesight is doing. At our latest appointment we were told that he will need glasses when he is 2 as he is short sighted (in the good eye too). The lid covers half the pupil so we have been told that he will have the eye lift operation when he is 4 yrs old. I found out about this group as Shireen joined the support group that i have set up for parents of children with congenital ptosis, UKPtosis Kids. We don't have very many members yet so please do join up if you would like to!: UKPtosisKids- subscribe I had never heard of congenital ptosis before I gave birth to my son and had not heard of blepharophimosis before either! But it is funny how quickly you learn and become and expert about these things once your lives are affected by them! Anyway I look forward to chatting to you all! Take care Nikki Quote Link to comment Share on other sites More sharing options...
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