Guest guest Posted July 23, 2005 Report Share Posted July 23, 2005 Hi, . I'm surprised you didn't hear from me about my little forum. I certainly meant to invite you. Well, consider yourself invited. I'd sure love to see somebody actually post there (besides Cam and me!) But this one is clearly catching on better, so I guess it doesn't matter so much where we meet as that we meet. I might as well give a quick update on me. I'm scheduled to see Dr. Rand in August. I figure I've put it off long enough and I don't want to wait until I'm in unbearable pain before actually consulting a revision surgeon. I do think my back is gradually getting worse, and walking is getting harder. I'm not desperate yet, but maybe with advance planning I won't get that way. Nothing new in regards to MS. It may be coincidence, but since I've been on the MS drug Copaxone (over 4 months), I haven't had a single migraine. Having lots of fun with my new pond, and hoping to get the landscaping around it done before surgery, if indeed I end up having surgery. I'm getting record numbers of water lily blooms (yeah, it's probably over-planted, but who cares?!), and my lotuses are in bloom as well. I've added more colorful goldfish, and have been training the fish to eat out of my hands. If you want, check out some of my favorite pond pics here: http://photobucket.com/albums/v62/harper97/ I'm glad to see so many friends here, and look forward to forum-ing with you all. Sharon [ ] Hi!!! > Hi everyone! Cam, I am so happy that you started this. I just finished > reading all of the posts but because it is my bedtime (yes, don't > laugh at me!) and I have to work Friday and Saturday, I will not be > able to post my story until sometime this weekend. I am thrilled to > see so many old friends and glad we are all together here! Even Sharon > from NH - how are you girlfriend? I never knew of your forum or I > would have visited!?! Anyway, didn't want to not take the moment to > say hello to everyone and let the support and friendship swell! > from RI > > > > > scoliosis vetrans * flatback sufferers * revison candidates > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2005 Report Share Posted July 23, 2005 Sharon, Wow!! Your making an appointment with Rand is huge news. I know that is a big step for you. I am sorry to hear that your back is giving you more problems but I am glad to hear that the migraines have stopped. I am also sorry that I did not participate in your forum. I was concentrating on healing for a bit and honestly I found the structure of that site a bit difficult to navigate. I must admit that I am happy that things fell apart on the feisty site and that so many people have enthusiastically made the move to this group. I hope that you continue to post here. The pond looks great! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2005 Report Share Posted July 23, 2005 In a message dated 7/23/2005 12:02:45 AM Eastern Standard Time, sharon.green18@... writes: http://photobucket.com/albums/v62/harper97/ Sharon, I just finished seeing your photos of the Bush Rally. They, too are really great! Are you the cameraperson? Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 Hi Sharon - I think your pond flowers are absolutely beautiful. I am ambivilent upon hearing of your news that you will be seeing Dr. Rand next month. Part of me is happy that you have finally reached a point to confront this darn flatback and see where you stand but another part is unhappy that you feel you have gotten to the point that many of us have previously reached. I know from experience that it is something you can only hold off if the pain isn't too bad yet, but when it gets really bad, you realize that you have no choice but to face it head-on. Please let us know how you make out - I am so happy to hear from you as it has been so long since you had posted. I was a little worried about you! Take care. > Hi, . > > I'm surprised you didn't hear from me about my little forum. I certainly > meant to invite you. Well, consider yourself invited. I'd sure love to see > somebody actually post there (besides Cam and me!) > > But this one is clearly catching on better, so I guess it doesn't matter so > much where we meet as that we meet. > > I might as well give a quick update on me. I'm scheduled to see Dr. Rand in > August. I figure I've put it off long enough and I don't want to wait until > I'm in unbearable pain before actually consulting a revision surgeon. I do > think my back is gradually getting worse, and walking is getting harder. > I'm not desperate yet, but maybe with advance planning I won't get that way. > > Nothing new in regards to MS. It may be coincidence, but since I've been on > the MS drug Copaxone (over 4 months), I haven't had a single migraine. > > Having lots of fun with my new pond, and hoping to get the landscaping > around it done before surgery, if indeed I end up having surgery. I'm > getting record numbers of water lily blooms (yeah, it's probably > over-planted, but who cares?!), and my lotuses are in bloom as well. I've > added more colorful goldfish, and have been training the fish to eat out of > my hands. > > If you want, check out some of my favorite pond pics here: > > http://photobucket.com/albums/v62/harper97/ > > I'm glad to see so many friends here, and look forward to forum- ing with you > all. > > Sharon > > > > [ ] Hi!!! > > > > Hi everyone! Cam, I am so happy that you started this. I just finished > > reading all of the posts but because it is my bedtime (yes, don't > > laugh at me!) and I have to work Friday and Saturday, I will not be > > able to post my story until sometime this weekend. I am thrilled to > > see so many old friends and glad we are all together here! Even Sharon > > from NH - how are you girlfriend? I never knew of your forum or I > > would have visited!?! Anyway, didn't want to not take the moment to > > say hello to everyone and let the support and friendship swell! > > from RI > > > > > > > > > > scoliosis vetrans * flatback sufferers * revison candidates > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 Hello Selena Welcome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 hi Selena! Welcome to the group. My name is . I have a nephew that is 22 months old . He has BPES. Hope you like the group! ---the_artist_219 <the_artist_219@...> wrote: hi im new to this group im 13 and have had 3 surgeries and my name is selena just thought i should introduce myself __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 >Hi Selena, I have a daughter who is 12 and has had a few eye surgeries. She was just finally diagnosed with BPES. If you would like to contact her please email me and I will let her know and give you her email address. From: the_artist_219 <the_artist_219@...> >Date: 2006/09/14 Thu PM 05:17:38 CDT >blepharophimosis >Subject: blepharophimosis hi!!! > >hi im new to this group im 13 and have had 3 surgeries and my name is >selena just thought i should introduce myself > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2006 Report Share Posted October 3, 2006 --- In blepharophimosis , <c.jameson@...> wrote: > > >Hi Selena, > > I have a daughter who is 12 and has had a few eye surgeries. She was just finally diagnosed with BPES. If you would like to contact her please email me and I will let her know and give you her email address. > > > > > From: the_artist_219 <the_artist_219@...> > >Date: 2006/09/14 Thu PM 05:17:38 CDT > >blepharophimosis > >Subject: blepharophimosis hi!!! > > > > >hi im new to this group im 13 and have had 3 surgeries and my name is > >selena just thought i should introduce myself > > > > hi i would like to talk to you. i think that would be so cool. i have never talk to any one that was my age. hannnah please write back > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2007 Report Share Posted April 15, 2007 no question it is a opening that many woman use when one first meets them in many different venues. russ[one blue one blue/brown] Hi!!! Well.. im 15 and i have a blue eye, and the other one is green. My parents didnt noticed when i was baby, because the color is kind of similar, but now its like changing more, you can see the difference.I love having heterochromia, its great for getting girls. BYE!! Quote Link to comment Share on other sites More sharing options...
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