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Any one in Ireland?

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Hi There,

We suspect, based on the research we have done so far, that our

daughter may have BPES. She has been seen by a paediatrician

and is due to be seen by a clinical geneticist next week. Our

daughter is 4 1/5 months old, and we live in County Kildare -

Ireland. It would be great to hear if there is anyone out there from

Ireland too!!

Thanks!

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