cleaning eyes after epicanthal surgery

[Guest guest]

Thanks Shireen, Trish, Sharon and Bryony for replying so quickly!

At the moment of the e-mail I was kind of desperate. We had not seen

the surgeon after the operation, which was preformed 24 hours

earlier. At that moment we were staying (sleeping over) at the child

ward (sp?) and the nurses and doctors which surrounded us - and with

whom I ofcourse consulted this problem a trilion times - did not

dare do anything, untill the surgeon himself would stop by to

consult Nina. That was the reason I went desperate and consulted

this group. The 'regular'staff of the hospital didnt have a

clue.

So Nina was blind as a bat because of the crusts till noon the first

day after surgery. At that time the surgeon consulted us and told

the nurse of our ward how to clean her eyes: just with special

medical water (in tiny bottles, thrown away after one use) on a non

woven compress.

Then he also gave us a oinment against infection, which we should

have used from the first moment...

And then we were released from hospital!

I think our surgeon is really, really great. It is a academic

hospital with a thousand specialisations and it is a pitty the

regular staff depend so much on the specialists, with which it seems

to be hard to communicate!

It is now the second day after the day of surgery. Nina's a happy

little girl! Therefor, so am I!

Her eyes are starting to infect a little... we will talk to the doc

about this tommorow.

In one week the first stitches will be taken out( the stitches in

a '>' that close her skin. In two weeks the stitches in the exact

corner. Never heared anyone before about taking out stitches... or

two kinds of stitches, for that matter. The surgeon assured me that

it will not hurt, it will be a little 'emotional'.

I wish I could take her place.

Anyway thanks again all for being there, it helps!

And yes Shireen! it would be very nice if we meet again! I often

think of how great it was to meet and talk to you in Amsterdam! I am

sorry that we will not be in London at the get together. But when

Nina grows a little older and will benefit from this, we will sure

cross that channel!

Bye bye, Bernice

>

> Hi Bernice

> I would suggest that you ask the doctor or nurse. There may be

> considerations that seem to be obvious to us when we talk about it

amongst

> ourselves, but would not be the right choice.

>

> For example (please don't take this as advice, more as an

illustration) I

> know that moist cotton wool can leave behind strands. However,

some types of

> gauze are woven and are better for cleaning the site of surgery.

It hurts my

> eyes to use saline which has preservative in it. On the other

hand, the type

> without preservatives needs to be kept in the fridge. However, I

have never

> liked cold drops in my eyes.

>

> The best thing you can do is to ask the doctor or nurse. There is

no

> substitute for professional advice for this sort of thing.

>

> I hope that your little Nina recovers well. It would be lovely to

meet you

> again (it was about 3 years ago that we first met, I think).

> Take care

> Shireen

>

>

>

> _____

>

> From: blepharophimosis

> [mailto:blepharophimosis ] On Behalf Of bcrijns

> Sent: 12 September 2006 09:27

> blepharophimosis

> Subject: blepharophimosis cleaning eyes after epicanthal surgery

>

> Hi and others,

>

> At the moment I am at the hospital. Yesterday my daughter Nina

(5yr)

> had her 2nd surgery to correct her epicanthal via transnasal

wiring. I

> havent been on the site for ages and try to look for some

> information others wrote on this phase - which is actuallly quite

> hard! - So , I was very happy to find your mails and pics

> of/about . Which help a lot! I am wondering how she's doing

now?

> How are the scars? How does she feel about her eyes now?

>

> I actually have a specific question abour cleaning after surgury.

One

> day has past after the operation without seeing the surgeon. And no

> doc or nurse seems to know if it is possible to clean blood and

puss

> out of her eyes, Nina's eyes are locked shut. Which is rather

> bothersom for the little girl. She feels fine, no pain. so that is

> good! But it would be nice if she can see again.

>

> Please, any information about this phase would be really welcome,

> especially the cleaning part!

> Take care everyone,

> Bye bye,

>

> Bernice, Nina's mum

> The netherlands

>

>

>

> .

>

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