Re: Question about long-sightedness

[Guest guest]

Hi, Our

daughter(only one in family with BPES) was diagnosed

with far-sightedness and bad stigmatism at 3.

No one else in the family has the far sightedness at all. Dtr thought it was

related, but guess what’s important is that we got it detected early and

she is fine with glasses now. (Straps on

the glasses really helped)!

blepharophimosis

Question about long-sightedness

Our 11 month old son, , has been diagnosed long-sighted and is

going to try glasses. We have been assured that this isn't linked to

his BPES but just wondered if anyone else had experience of this and of

glasses on such a young child. Also, we have now been given an

appointment for a second opinion with Mr Collin at Moorfields. Has

anyone else got any recent experience with him? Our surgeon in

Manchester (who is well-respected and experienced) has recommended brow

suspension but not surgery for the folds as he feels it is likely to

create scarring and that it's too early to predict how the nasal bridge

might develop and pull out the folds naturally. We'd really appreciate

any feedback. Thanks!

[Guest guest]

Hi Vicky

I just wanted to assure you that, without any doubt, Mr Collin is one of the leading ocular plastic surgeons. He has plenty of experience treating people with BPES. Also, he is absolutely amazing with people under his care, especially very little people.

You may like to look here:

http://www.elsevier-international.com/catalogue/title.cfm?ISBN=0750645504

To see a review of a book on A Manual of Systematic Eyelid Surgery, 3rd edition.

Many people in this group have been lucky to be treated by him. Rest assured, you are taking to see the right person.

Regards

Shireen

London, England

From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of vickycvincentSent: 10 August 2006 21:59blepharophimosis Subject: blepharophimosis Question about long-sightedness

Our 11 month old son, , has been diagnosed long-sighted and is going to try glasses. We have been assured that this isn't linked to his BPES but just wondered if anyone else had experience of this and of glasses on such a young child. Also, we have now been given an appointment for a second opinion with Mr Collin at Moorfields. Has anyone else got any recent experience with him? Our surgeon in Manchester (who is well-respected and experienced) has recommended brow suspension but not surgery for the folds as he feels it is likely to create scarring and that it's too early to predict how the nasal bridge might develop and pull out the folds naturally. We'd really appreciate any feedback. Thanks!

[Guest guest]

Hello all,

Is there any knowledge on the skills of ocular plastic surgeons in The Netherlands?

regards,

salut,Dolphajheideman@...http://members.lycos.nl/dolphheideman/index-nl.html (nederlands)

RE: blepharophimosis Question about long-sightedness

Hi Vicky

I just wanted to assure you that, without any doubt, Mr Collin is one of the leading ocular plastic surgeons. He has plenty of experience treating people with BPES. Also, he is absolutely amazing with people under his care, especially very little people.

You may like to look here:

http://www.elsevier-international.com/catalogue/title.cfm?ISBN=0750645504

To see a review of a book on A Manual of Systematic Eyelid Surgery, 3rd edition.

Many people in this group have been lucky to be treated by him. Rest assured, you are taking to see the right person.

Regards

Shireen

London, England

From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of vickycvincentSent: 10 August 2006 21:59blepharophimosis Subject: blepharophimosis Question about long-sightedness

Our 11 month old son, , has been diagnosed long-sighted and is going to try glasses. We have been assured that this isn't linked to his BPES but just wondered if anyone else had experience of this and of glasses on such a young child. Also, we have now been given an appointment for a second opinion with Mr Collin at Moorfields. Has anyone else got any recent experience with him? Our surgeon in Manchester (who is well-respected and experienced) has recommended brow suspension but not surgery for the folds as he feels it is likely to create scarring and that it's too early to predict how the nasal bridge might develop and pull out the folds naturally. We'd really appreciate any feedback. Thanks!

[Guest guest]

Hi. My daughter has BPES and she started wearing glasses at age two. She

has far sightedness (plus 4 in both eyes) and a stigmatism in one eye. She

may have needed them earlier, but she never received the eye test where the

doctor drops liquid in her eyes before age two. By the time she was five

and after her sling surgury she didn't want to wear the glasses anymore. A

doctor did many tests on her and found that she can now make her eyes focus,

although she is still far sighted. So, perhaps wearing glasses so early

helped her focus? She did not want to wear them when she was little. I

think I kept telling her how pretty she looked in them and gave her rewards

for wearing them.

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[Guest guest]

Hi Vicky, My little Granson Alfie has Just got Glasses and he is only

Five month old ..but he is doing Fine up to now only had them 2 weeks.

love June (warrington. UK)

>

> Our 11 month old son, , has been diagnosed long-sighted and

is

> going to try glasses. We have been assured that this isn't linked

to

> his BPES but just wondered if anyone else had experience of this

and of

> glasses on such a young child. Also, we have now been given an

> appointment for a second opinion with Mr Collin at Moorfields. Has

> anyone else got any recent experience with him? Our surgeon in

> Manchester (who is well-respected and experienced) has recommended

brow

> suspension but not surgery for the folds as he feels it is likely

to

> create scarring and that it's too early to predict how the nasal

bridge

> might develop and pull out the folds naturally. We'd really

appreciate

> any feedback. Thanks!

>

[Guest guest]

Hi All My daughter Rylee (pics under Rylee Ruby) has had glasses since 6 months old. She has had no problems with them and wears them all the time. The eye doctor also said that her wearing glasses does not have anything to do with the BPES. fall3005 <fall3005@...> wrote: Hi Vicky, My little Granson Alfie has Just got Glasses and he is only Five month old ..but he is doing Fine up to now only had them 2 weeks.love June (warrington. UK)>> Our 11 month old son, , has been diagnosed long-sighted and is > going to try glasses. We have been assured that this isn't linked to > his BPES but just wondered if anyone else had experience of this and of > glasses on such a young child. Also, we have now been given an > appointment for a second opinion with Mr Collin at Moorfields. Has > anyone else got any recent experience with him? Our surgeon in > Manchester (who is well-respected and experienced) has recommended brow > suspension but not surgery for the folds as he feels it is likely to > create scarring and that it's too early to predict how the nasal bridge > might develop and pull out the folds naturally. We'd really appreciate > any

feedback. Thanks!>

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