Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 Hi all. I'm writting from Madrid, Spain. I have two sons, one with BPES, he has 5 months and when he was born I had never heard about BPES, in fact I do not know anybody with it. When I looked in the internet about information I founded your group and now I feel much better seeing than there is more like my son and that all boys and girls look so happy in all photos. I am a bit worried because we do not know yet any doctor specialised in BPES, we are still looking for it, here in Madrid, and if not we are thinking in going to Moorfields in London, which I know from your experiences. Sorry about my English, I do not speak/write very well. But Only I wanted to say thank you to all of you for all the support and information I have founded only by reading your messages. Regards from Madrid. Gemma Quote Link to comment Share on other sites More sharing options...
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