Guest guest Posted June 18, 2006 Report Share Posted June 18, 2006 Hi everybody! My name is Elodie, I'm French and I'm 22 years old.. A few days ago, I was searching for some informations about all my problems with my eyes. I've been operated twice, at 2 and 3 years old. And my parents always told me, it was because of a malformation. But as I told i made some researches on my own, and i found, this was not a malformation but a disease. There is no doubt possible, i have the BPES syndrome and it's so good to put a name on this thing ( i'm sorry my english is really bad).. Actually I'm a bit affraid, because i learnt i could have some problem of sterility, but this is not question about this in my life right now, so i stay calm.. I'm sorry, i'm realising i want to say many things in the same time so my post is really becoming disorganized... It is good to know i'm not alone ^^ I mean i've felt alone a big part of my childhood. i've got a lovely family and 2 beautiful sisters and no one had this probleme except me. When i went to school, i suppose everybody there know that... children were just awful with me T_T... By growing i realized that grow-ups could be really worst than children about this... This disease is just frustrating. I mean, i can't complain about my eyes, i'm quite lucky to have been operated, and i'm not uggly, and i'm not stupid thanks to the bpes, i think... But when people judge me because of my eyes, or when i have some remarks, well i suppose everybody here know that... Well it's just so painful, i'm so sensitive about this. So now i've said all my emotional things , i have some questions. But first of all, i'd like to thank the persons who had one day the idea of forming this group ^^ i 've told you my post would be disorganized >>>>>> Is there a large proportion of women with bpes, who have problem of sterility? >>>>>> even if i am sterile, is there a way to have a baby? ( i'm not talking about adoption >_<') >>>>>> should i go to a genetician? (= a doctor in genetic) >>>>>> are people pleased with their eyes? >>>>>> are non-operated people pleased with their eyes? >>>>>> how do operated eyes grow old? do they need other interventions? i'm not sure i asked all what i wanted to... but i think i'll be back ^^ I give you my msn messenger adress, if anybody wants to make me improve my english ^^ miss_crayon@... i'm really happy to have found this group ^^ have a nice day every one ^^ Quote Link to comment Share on other sites More sharing options...
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