Kirsten surgery

[Guest guest]

Hi all

Hope everyone is in good health and enjoying the summer (on this

side of the equator of course).

Kirsten (3) is having her Y-V canthoplasty done by Mr Collin in 9

days time on the 27th. She is having it done at Harley St Clinic as

opposed to Moorfields because that is where he can fit her in. We

will stay for 1 night in hospital and drive back to Yorkshire the

next day. The surgery could not have come at a better time as Kirst

is now expressing that she wants big eyes like me. We never bring

attention to her differences so were quite surprised at her recent

comments.

Mr Collin's secretary tells me that at Moorfields Hospital, policies

on day case surgery have changed and now BPES kids go home the day

of surgery. Is this anyones recent experience and how do parents

feel about this?

Kirsten has also seen a geneticist from Leeds as she has problems

with her soft palate resulting in speech difficulties. I have been

assured that there is no link between typical BPES and palatal

problems by 2 genetics consultants, one of them being Dr Oley from

Birmingham. (Shireen, you gave me her name a while ago, thanks). It

is an unfortunate coincidence that Kirsten has 2 independent

problems. The point I initially wanted to make is that she is having

FOXL2 studies done by the (now famous amongst us lot) lab in Belgium

to confirm BPES and hopefully type it. So the long and patient wait

for that result has begun.

Please keep Kirsten in your thoughts. I will let you know how she

gets on.

Regards

Parsons