Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 God Bless your family you will be in our thoughts and prayers. cjberwick3 <cjberwick3@...> wrote: My son Jordan is having surgery on Tuesday March 7th. He will be having the sling surgery. I am a little nervous but I really trust our surgeon and believe Jordan will be in good hands. I just wanted to mention I am the one that posted the thing about arm restraints and not all kids have to use them it depends on the child. Jordan didn't need them after the second day of his last surgery but this one is more extensive so we will have to see. So if you all could think of us on Tuesday. Thank you and God bless all of you. Thanks for all the support<a href="http://www.TickerFactory.com/"><img border="0" src="http://www.TickerFactory.com/ezt/d/1;14;11/st/20050609/k/3901/preg.png"></a> Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 Hi Is your son, Jordan the baby in the photo album with his dad, Jim? Both are rather cute! Best of luck for the sling surgery. We are doing it the other way around, slings have been done and canthoplasty is booked for April. Kirsten recovered really quickly, and the result was brilliant. I am sure Jordan will do well and will pray for an uneventful and successful op. All the best Regards P > > My son Jordan is having surgery on Tuesday March 7th. He will be having > the sling surgery. I am a little nervous but I really trust our surgeon > and believe Jordan will be in good hands. I just wanted to mention I am > the one that posted the thing about arm restraints and not all kids > have to use them it depends on the child. Jordan didn't need them after > the second day of his last surgery but this one is more extensive so we > will have to see. So if you all could think of us on Tuesday. Thank you > and God bless all of you. Thanks for all the support > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 Yes, that is my son Jordan and my husband Jim. Thank You so much for thinking about us. I will keep everyone posted and I will post picture after surgery. > > > > My son Jordan is having surgery on Tuesday March 7th. He will be > having > > the sling surgery. I am a little nervous but I really trust our > surgeon > > and believe Jordan will be in good hands. I just wanted to mention > I am > > the one that posted the thing about arm restraints and not all > kids > > have to use them it depends on the child. Jordan didn't need them > after > > the second day of his last surgery but this one is more extensive > so we > > will have to see. So if you all could think of us on Tuesday. > Thank you > > and God bless all of you. Thanks for all the support > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 To Jordan & Family, All the best for the 7th our thoughts & prayers are with you all.Stay positive everyone is here to support you & your family.God Bless you all. Kind regards Ally.(new member.) blepharophimosis Sling Surgery My son Jordan is having surgery on Tuesday March 7th. He will be having the sling surgery. I am a little nervous but I really trust our surgeon and believe Jordan will be in good hands. I just wanted to mention I am the one that posted the thing about arm restraints and not all kids have to use them it depends on the child. Jordan didn't need them after the second day of his last surgery but this one is more extensive so we will have to see. So if you all could think of us on Tuesday. Thank you and God bless all of you. Thanks for all the support Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2006 Report Share Posted May 25, 2006 Hi yes, it's not an easy decision. In Bipin's case Mr Collin thinks that his eyesight probably will be affected if he doesn't have his lids lifted while he's still young. He's basing this on how much the pupil is covered by the lid (more in the right eye), but also the fact that his Dad's (Jakesh) sight is very bad in the right eye that also had the lower lid. Collin thinks that this is because Jakesh had his surgery later, from about 6 years old. Of course you never know exactly but it seems like a good enough reason to have the op. Our initial feeling was that we wouldn't have Bipin go through any ops if it was purely cosmetic, but since it seems necessary for his eyesight we decided to go ahead. The way that Collin explained the operation to us is that it is a 'temporary' thing that will last until his sight develops fully - at about 7 yrs old. I'm not exactly sure what temporary means, if the lid will gradually adjust back to normal...? On the other hand Bipin's aunt (Jakesh's sister) also has BPES and has never had any surgery and doesn't have particularly bad eyesight. So it's never an exact science. Thanks for your thoughts! Tessa --- In blepharophimosis , Conceição Hogg <chogg@...> wrote: > > Hello Lucy, > > I am , Danny's mum, from Portugal. > > I really do not know how to put this, but I am going to do it anyway. > Danny also had his surgery appointment cancelled when he was 8 months > old, because he had a fever. He is nearly 7 years old now and has > not had any operation yet. > > As I have mentioned before we went to see Mr. Collin last November > and he told us that in Danny's case the operation would not make him > see any better, it would only make him look more awake. > > Danny is a very happy boy and he does not seem to be affected in any > way by his eyes being different from other people's. > > We just went to the doctor (eye specialist) yesterday for his annual > vision check-up. He told us, that his vision is not being affected > by his condition, he sees very well and he does not need glasses. > (Mr. Collin in November told us the same.) > > Well, what I wanted to tell you is that I am very happy that Danny > has not been operated yet, and I do not now if , in his case, being > operated will improve his quality of life. And although we made an > appointment for him to be operated in August by Mr. Collin, I am > having second thoughts about it. > > I remember how much Lucy reminded me of Danny when I met you! > > I am not trying to give you any advice or tell what to do, I just > wanted to let you know what I feel about my son's situation. I hope > I am not making things more confusing for you, but I could not stop > myself from telling you what I feel about Danny. > > Wishing you all the best. > Love, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2006 Report Share Posted May 25, 2006 Hello Tessa, Thank you for your reply. I guess that if Danny's vision has not been affected and he is nearly 7 (his birthday is in August) then his BPES condition is probably mild, and in his case the operation will be mainly for cosmetic reasons, right? Wishing you and your son Bipin all the best. Hope you have lovely holidays in Spain when they come. Take care, Hi yes, it's not an easy decision. In Bipin's case Mr Collin thinks that his eyesight probably will be affected if he doesn't have his lids lifted while he's still young. He's basing this on how much the pupil is covered by the lid (more in the right eye), but also the fact that his Dad's (Jakesh) sight is very bad in the right eye that also had the lower lid. Collin thinks that this is because Jakesh had his surgery later, from about 6 years old. Of course you never know exactly but it seems like a good enough reason to have the op. Our initial feeling was that we wouldn't have Bipin go through any ops if it was purely cosmetic, but since it seems necessary for his eyesight we decided to go ahead. The way that Collin explained the operation to us is that it is a 'temporary' thing that will last until his sight develops fully - at about 7 yrs old. I'm not exactly sure what temporary means, if the lid will gradually adjust back to normal...? On the other hand Bipin's aunt (Jakesh's sister) also has BPES and has never had any surgery and doesn't have particularly bad eyesight. So it's never an exact science. Thanks for your thoughts! Tessa --- In blepharophimosis , Conceição Hogg <chogg@...> wrote: > > Hello Lucy, > > I am , Danny's mum, from Portugal. > > I really do not know how to put this, but I am going to do it anyway. > Danny also had his surgery appointment cancelled when he was 8 months > old, because he had a fever. He is nearly 7 years old now and has > not had any operation yet. > > As I have mentioned before we went to see Mr. Collin last November > and he told us that in Danny's case the operation would not make him > see any better, it would only make him look more awake. > > Danny is a very happy boy and he does not seem to be affected in any > way by his eyes being different from other people's. > > We just went to the doctor (eye specialist) yesterday for his annual > vision check-up. He told us, that his vision is not being affected > by his condition, he sees very well and he does not need glasses. > (Mr. Collin in November told us the same.) > > Well, what I wanted to tell you is that I am very happy that Danny > has not been operated yet, and I do not now if , in his case, being > operated will improve his quality of life. And although we made an > appointment for him to be operated in August by Mr. Collin, I am > having second thoughts about it. > > I remember how much Lucy reminded me of Danny when I met you! > > I am not trying to give you any advice or tell what to do, I just > wanted to let you know what I feel about my son's situation. I hope > I am not making things more confusing for you, but I could not stop > myself from telling you what I feel about Danny. > > Wishing you all the best. > Love, > > Quote Link to comment Share on other sites More sharing options...
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