Re: Informed Geneticists on BPES

[Guest guest]

You are wonderful. I will do it.

[Guest guest]

I don't think you would need to fly to DC, you should be able to do

it from anywhere, because the blood is going to one of these

certified labs.

He said if it's for prenatal testing, these certified labs put

a " rush on it " otherwise I don't know how long.

It seems to me that any hospital's prenatal testing or genetic

counseling should be able to provide you with info how to get the

blood test. It's amazing to me, that there is not a lab in the US

that offers this test, just because, it's a big country! Seems like

someone should do it....

> >

> > Dear Beth,

> >

> > Could you give me the details of your geneticist. Ours was not

> that informed

> > as yours seems to be. We live in New York State.

> >

> > I have also called local endocronologists to have my daughters

> blood sent to

> > Belgium to be tested for BPES 1 or II and they said they cannot

> send blood

> > overseas. Has anyone else had luck with this?

> >

> > Thanks,

> > Pam

> >

>

>

>

>

>

>

>

>

[Guest guest]

The labs he showed me, one was the same in Belgium others have talked

about in this group, the other was in Italy.

> > >

> > > Dear Beth,

> > >

> > > Could you give me the details of your geneticist. Ours was not

> > that informed

> > > as yours seems to be. We live in New York State.

> > >

> > > I have also called local endocronologists to have my daughters

> > blood sent to

> > > Belgium to be tested for BPES 1 or II and they said they cannot

> > send blood

> > > overseas. Has anyone else had luck with this?

> > >

> > > Thanks,

> > > Pam

> > >

> >

> >

> >

> >

> >

> >

> >

> >