Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 Hope all goes well for you in the future.I am the mother of three daughters in their twenties and we have only just learnt ourselves there could be a problem with fertility.They have just had the blood tests to determine if they have POF and the results have come back not looking too good.They are now being referred to a specialist.They too had there ops at Great Ormond Street. All the best Barbara.birrellnadine <birrellnadine@...> wrote: Hi everyone and thank you for all the postings of support a couple of weeks ago. I have found it difficult posting recently as I have found out my BPES is type 1 as the hormone tests confirmed I am going through early menopause and have pre-ovarian failure. I also had a scan which confirms this further but on a positive I will be able to carry a child so donor eggs are the only option for me. I am devastated that I will never have my own child but hope that IVF will work for my husband and I with a donor egg.I wasn't going to post anything but feel strongly about other young woman with BPES type 1 knowing about what options they have as early as possible and even in early teens if necessary as I did not have any knowledge of this until the age of 28 years old and only through discovering through this site. My parents were never informed about the connection and Moorfields never contacted my parents about this connection in more recent years which I am angry about.I would advise all the young woman with BPES to contact their GP and seek further examination through blood tests and a possible scan if available. This will enable choices for the future to become clearer. I have been taking a contraceptive pill for ten years which at first I was upset about because for many years I have been preventing pregnancies and now I am told I am infertile but this has been a good thing for my health as I have been advised to return to taking the pill instead of HRT as they contain similar hormone replacement. I will need to have a bone scan to check the density of my bones but I'm not too worried as I have taken replacement hormones for ten years and also drink/eat so much calcium, I'm sure everything will be fine.I will also be referred for IVF but understand their is a very long waiting list for donor eggs and would prefer an unknown donor. Donor eggs are only available through other woman also going through IVF. My friends and family are devastated too, I am a very resilient person and believe life is a challenge and this is just another hurdle in life to get over and so far in life I have inspired many people to success in life through my own self determination and this is yet another moment that I can take on this life challenge of IVF and hope I am able to have a child at some time in the future. I am trying to think positive and hope by sharing my experience it will prepare other young woman to seek further medical advice and examination. take care for now, aged 28 years Switch an email account to , you could win FIFA World Cup tickets. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2006 Report Share Posted April 23, 2006 Hi Thank you so much for letting us all know, I understand it must have been hard to type your news but I hope you are feeling a bit more positive now. I was so sorry to hear your news but I am sure sharing your experience will definitely help others in the future. Garry and I will for sure tell Holly when she is old enough to understand so when she approcahes teeenage years we can have her tested. Take really good care of yourself and please keep in touch Love Lucy, Garry and Holly xxbirrellnadine <birrellnadine@...> wrote: Hi everyone and thank you for all the postings of support a couple of weeks ago. I have found it difficult posting recently as I have found out my BPES is type 1 as the hormone tests confirmed I am going through early menopause and have pre-ovarian failure. I also had a scan which confirms this further but on a positive I will be able to carry a child so donor eggs are the only option for me. I am devastated that I will never have my own child but hope that IVF will work for my husband and I with a donor egg.I wasn't going to post anything but feel strongly about other young woman with BPES type 1 knowing about what options they have as early as possible and even in early teens if necessary as I did not have any knowledge of this until the age of 28 years old and only through discovering through this site. My parents were never informed about the connection and Moorfields never contacted my parents about this connection in more recent years which I am angry about.I would advise all the young woman with BPES to contact their GP and seek further examination through blood tests and a possible scan if available. This will enable choices for the future to become clearer. I have been taking a contraceptive pill for ten years which at first I was upset about because for many years I have been preventing pregnancies and now I am told I am infertile but this has been a good thing for my health as I have been advised to return to taking the pill instead of HRT as they contain similar hormone replacement. I will need to have a bone scan to check the density of my bones but I'm not too worried as I have taken replacement hormones for ten years and also drink/eat so much calcium, I'm sure everything will be fine.I will also be referred for IVF but understand their is a very long waiting list for donor eggs and would prefer an unknown donor. Donor eggs are only available through other woman also going through IVF. My friends and family are devastated too, I am a very resilient person and believe life is a challenge and this is just another hurdle in life to get over and so far in life I have inspired many people to success in life through my own self determination and this is yet another moment that I can take on this life challenge of IVF and hope I am able to have a child at some time in the future. I am trying to think positive and hope by sharing my experience it will prepare other young woman to seek further medical advice and examination. take care for now, aged 28 years Switch an email account to , you could win FIFA World Cup tickets. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 Hi Im so sorry to hear your news, you must be absolutely devastated. You are absolutely right though there are other ways and means of these things happening. Well done and thank you for typing such an emotional difficult e-mail, however your bravery will help so many other people. Information is key - for all of us who have generations to pass this stuff onto. thinking of you and hubby. thank you love clarebirrellnadine <birrellnadine@...> wrote: Hi everyone and thank you for all the postings of support a couple of weeks ago. I have found it difficult posting recently as I have found out my BPES is type 1 as the hormone tests confirmed I am going through early menopause and have pre-ovarian failure. I also had a scan which confirms this further but on a positive I will be able to carry a child so donor eggs are the only option for me. I am devastated that I will never have my own child but hope that IVF will work for my husband and I with a donor egg.I wasn't going to post anything but feel strongly about other young woman with BPES type 1 knowing about what options they have as early as possible and even in early teens if necessary as I did not have any knowledge of this until the age of 28 years old and only through discovering through this site. My parents were never informed about the connection and Moorfields never contacted my parents about this connection in more recent years which I am angry about.I would advise all the young woman with BPES to contact their GP and seek further examination through blood tests and a possible scan if available. This will enable choices for the future to become clearer. I have been taking a contraceptive pill for ten years which at first I was upset about because for many years I have been preventing pregnancies and now I am told I am infertile but this has been a good thing for my health as I have been advised to return to taking the pill instead of HRT as they contain similar hormone replacement. I will need to have a bone scan to check the density of my bones but I'm not too worried as I have taken replacement hormones for ten years and also drink/eat so much calcium, I'm sure everything will be fine.I will also be referred for IVF but understand their is a very long waiting list for donor eggs and would prefer an unknown donor. Donor eggs are only available through other woman also going through IVF. My friends and family are devastated too, I am a very resilient person and believe life is a challenge and this is just another hurdle in life to get over and so far in life I have inspired many people to success in life through my own self determination and this is yet another moment that I can take on this life challenge of IVF and hope I am able to have a child at some time in the future. I am trying to think positive and hope by sharing my experience it will prepare other young woman to seek further medical advice and examination. take care for now, aged 28 years Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Hello , hope you are still checking the board - I know its a long time since you posted & I`m sorry to hear of your diagnosis. But my own daughters concerns at the moment have propmted me to find out some more info regarding this fertility issue. Her doctor not keen to refer her to fertility specialist until DNA results are known. Ours were done in Dec `04 & we are still waiting. That could take years we are told & then it is not necessarily accurate. She would like to talk to someone who can give her her options - who to see tho` & should she push for a referral? I don`t mind you emailing me direct, Bye Maree > > Hi everyone and thank you for all the postings of support a couple > of weeks ago. > > I have found it difficult posting recently as I have found out my > BPES is type 1 as the hormone tests confirmed I am going through > early menopause and have pre-ovarian failure. I also had a scan > which confirms this further but on a positive I will be able to > carry a child so donor eggs are the only option for me. I am > devastated that I will never have my own child but hope that IVF > will work for my husband and I with a donor egg. > > I wasn't going to post anything but feel strongly about other young > woman with BPES type 1 knowing about what options they have as early > as possible and even in early teens if necessary as I did not have > any knowledge of this until the age of 28 years old and only through > discovering through this site. My parents were never informed about > the connection and Moorfields never contacted my parents about this > connection in more recent years which I am angry about. > > I would advise all the young woman with BPES to contact their GP and > seek further examination through blood tests and a possible scan if > available. This will enable choices for the future to become > clearer. I have been taking a contraceptive pill for ten years > which at first I was upset about because for many years I have been > preventing pregnancies and now I am told I am infertile but this has > been a good thing for my health as I have been advised to return to > taking the pill instead of HRT as they contain similar hormone > replacement. I will need to have a bone scan to check the density > of my bones but I'm not too worried as I have taken replacement > hormones for ten years and also drink/eat so much calcium, I'm sure > everything will be fine. > > I will also be referred for IVF but understand their is a very long > waiting list for donor eggs and would prefer an unknown donor. > Donor eggs are only available through other woman also going through > IVF. My friends and family are devastated too, I am a very resilient > person and believe life is a challenge and this is just another > hurdle in life to get over and so far in life I have inspired many > people to success in life through my own self determination and this > is yet another moment that I can take on this life challenge of IVF > and hope I am able to have a child at some time in the future. > > I am trying to think positive and hope by sharing my experience it > will prepare other young woman to seek further medical advice and > examination. take care for now, aged 28 years > Quote Link to comment Share on other sites More sharing options...
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