Bleph & ptosis associated with FAS

May 7, 2006

Hi Everyone,

Our son, Micah, has suddenly stopped growing. Not

just slow growth or short stature - stopped growing

all together. No bone growth AT ALL in the last year.

And he is not gaining weight, in fact he lost two

pounds. All he does is eat all day long - so it is

not a nutritional issue.

We have been referred to Children's Hospital and are

trying to find the cause for the lack of growth, also

called " Failure to Thrive " in the medical community.

(Such a misleading term as this child is happy and

silly, and such a " thriving " and normal four year old

boy. He just isn't growing. But I digress.)

In my research, I came across a couple of articles

that are listing ptosis and blepharophimosis as two of

the MANY symptoms associated with fetal alcohol

syndrome. (FAS) I had never heard this before and

wanted to share the information.

If anyone else has information about this could you

please post and pass it on? And if anyone is headed

to a geneticist soon can you ask about this? I tried

to schedule us and the soonest they can get us in is

August.

Because Micah is adopted I have no idea what prenatal

exposure he had. Birthmom did admit to drinking - but

of course we have no way of knowing how much. Also,

his genetic testing in Korea came back normal - which

seems weird for BPES. So we are trying to piece this

all together.

Thanks!

April Eisele, Colorado, USA

Wife to Jon

Mommy to Mira, Micah & Misha

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