RE: concerned unaffected parent

[Guest guest]

Hi

I am 27 and have BPES. I had a daughter when I was 24 and have been trying

for a second but after having tests have been found to have Pre-ovarian

failure.

Women with the condition can be tested to see if they have fertility

problems. I would advise that they see their GP who can hopefully refer

them to a suitable specialist.

Best of luck.

blepharophimosis concerned unaffected parent

I am an unaffected parent of 3 girls with the eye condition. They are

now in their twenties and I have recently learnt that fertility could

be a problem. I wonder if anyone has any experiences that may help me.

[Guest guest]

Hi Bryony Thanks for your reply. You obviously didn't realise that it was Barbara who was writing the e mail. (cheryl's mum). I know Cheryl is worried about it and I just wondered if there was any other older people on the site who had daughters in the same position. Thanks again. BarbaraBryony <bryony2@...> wrote: HiI am 27 and have BPES. I had a daughter when I was 24 and have been tryingfor a second but after having tests have been found to have Pre-ovarianfailure.Women with the condition can be tested to see if they have fertilityproblems. I would advise that they see their GP who can hopefully referthem to a suitable specialist. Best of luck.-----Original Message-----From:

blepharophimosis [mailto:blepharophimosis ] On Behalf Of capri542000Sent: 07 April 2006 13:17blepharophimosis Subject: blepharophimosis concerned unaffected parentI am an unaffected parent of 3 girls with the eye condition. They are now in their twenties and I have recently learnt that fertility could be a problem. I wonder if anyone has any experiences that may help me.

[Guest guest]

> Hi

>

> I am 27 and have BPES. I had a daughter when I was 24 and have been

trying

> for a second but after having tests have been found to have Pre-

ovarian

> failure.

>

> Women with the condition can be tested to see if they have fertility

> problems. I would advise that they see their GP who can hopefully

refer

> them to a suitable specialist.

>

> Best of luck.

>

>

>

> blepharophimosis concerned unaffected parent

>

> I am an unaffected parent of 3 girls with the eye condition. They

are

> now in their twenties and I have recently learnt that fertility

could

> be a problem. I wonder if anyone has any experiences that may help

me.

>

>

>

>

>

>

>

[Guest guest]

Hello capri542000

would like to talk with you about this topic - can you email me direct

please? hope you see this post

Maree

>

> I am an unaffected parent of 3 girls with the eye condition. They

are

> now in their twenties and I have recently learnt that fertility

could

> be a problem. I wonder if anyone has any experiences that may help

me.

>

[Guest guest]

Hi,

I know it was a long tme since you posted so hope you se this.....is

this a common option for girls who may have infertility problems? Did

the specialist suggest removing her ovaries without actually knowing

for sure if she was going to have a problem?

I have a 19yr old daughter with BPES & big concerns about this issue

right now......would love to `talk` with you some more - could you

email me direct please?

Bye

Maree

> >

> > I am an unaffected parent of 3 girls with the eye condition. They

> are

> > now in their twenties and I have recently learnt that fertility

> could

> > be a problem. I wonder if anyone has any experiences that may

help

> me.

> >

>

[Guest guest]

> > >

> > > I am an unaffected parent of 3 girls with the eye condition.

They

> > are

> > > now in their twenties and I have recently learnt that

fertility

> > could

> > > be a problem. I wonder if anyone has any experiences that may

> help

> > me.

> > >

> >

>

[Guest guest]

HI all, ive just come in at this point, so sorry for not saying anything earlier. I am 37, I have BPES - and told at an early age about 15 that there was a possibility i couldnt have children (because of BPES) - not really understanding why, that was it - i didnt ask anymore. They scanned me and gave me blood tests and said everything looked 'normal'. My periods have always been completely up the wall, sometimes ok, sometimes completely missing, sometimes only a week in between..still do.. I have been pregnant twice now, have 2 beautiful healthy children, both born by C-Section, but apart from that perfectly 'normal' everything else. This is my story, and i wanted to share it. I understand medical profession has come a long way since I was 15, and i think it depends on type 1 or type 11. Clare

Teale Herts UK z942271 <z942271@...> wrote: > > >> > > I am an unaffected parent of 3 girls with the eye condition. They > > are > > > now in their twenties and I have recently learnt that fertility > > could > > > be a problem. I wonder if anyone has any experiences that may > help > > me.> > >> >>

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[Guest guest]

My history is quite similar to Clare's, except that I have one child.

Many people have anovulatory cycles. It does not necessarily mean

they will never have any children, but unfortunately sometimes it

does. The geneticist I recently saw, said he could not say that being

diagnosed with type 1 or 2 would definitely say whether or not a

female is or would become infertile.

I know this is a difficult and emotional issue. I am sorry your

daughter has to go through this.

> > > >

> > > > I am an unaffected parent of 3 girls with the eye condition.

> They

> > > are

> > > > now in their twenties and I have recently learnt that

> fertility

> > > could

> > > > be a problem. I wonder if anyone has any experiences that may

> > help

> > > me.

> > > >

> > >

> >

>

>

>

>

>

>

> ---------------------------------

> Messenger with Voice. Make PC-to-Phone Calls to the US (and

30+ countries) for 2¢/min or less.

>

[Guest guest]

Hi Everyone,

24th of Sept sounds great see you all there.

Joyce, Mayowa and Tina